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    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 11 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How many times in 2022 did you have an appointment with your main T1D healthcare provider?

    Home > LC Polls > How many times in 2022 did you have an appointment with your main T1D healthcare provider?
    Previous

    Did you have any diabetes-related achievements or milestones in 2022? Share what you’re proud of in the comments!

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    How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. sweet charlie

      I see myself every day!!

      10
      3 years ago Log in to Reply
    2. Ms Cris

      This year went down to 3x per year because of fewer issues. Used to be 4x per year.

      1
      3 years ago Log in to Reply
    3. Eva

      I would like to go to every 4 months but my insurance requires every 3 months.

      1
      3 years ago Log in to Reply
    4. Kathleen Juzenas

      Twice with doctor and twice with nurse practitioner.

      1
      3 years ago Log in to Reply
    5. Lawrence S.

      Every three months, four times in 2022, as required by Medicare. I’d prefer to go two times per year.

      3 years ago Log in to Reply
      1. GLORIA MILLER

        I also have Medicare as primary but I only go once every six months. I would rather go once a year but the prescriptions for Dexcom and Omnipod won’t be filled if I don’t see her every six months. I do not use Medicare for prescriptions but federal BCBS. BTW, the doctor’s staff argued with me that I had to go every three months according to Medicare rules but now they know that isn’t true.

        3 years ago Log in to Reply
    6. Janice B

      I see my main endocrinologist twice a year and his CDE nurse practitioner twice a year.

      3 years ago Log in to Reply
    7. Gary Taylor

      I answered “other”. With a move in the middle of the year, and the retirement of my long-time endocrinologist, I have seen an endo in my previous hometown, and a nurse practitioner specializing in endocrinology in my new home area. Things still seem in flux.

      1
      3 years ago Log in to Reply
    8. Joan Benedetto

      Once for annual checkup, once to rule out ear infection.

      3 years ago Log in to Reply
      1. Joan Benedetto

        Oops. Endo-Once in person, PA-once via zoom

        3 years ago Log in to Reply
    9. Jeanne McMillan-Olson

      I see my endo at least every 6 months for my Dexcom due to Medicare requirements. He is a full professor and does a lot of research so I learn a lot and can participate in research opportunities. I see my pcp every 3 months for my pump supplies and insulin RXs due to Medicare again. I can see him for other problems as he is much closer to my home. It’s worth it as I don’t have to pay for my insulin, pump supplies or Dexcom supplies.

      1
      3 years ago Log in to Reply
      1. Wanacure

        !N0 PAY!?

        3 years ago Log in to Reply
    10. mbulzomi@optonline.net

      I’m on Medicare, every quarter.

      1
      3 years ago Log in to Reply
    11. Jim Cobbe

      3 times telehealth, once in person.

      3 years ago Log in to Reply
    12. dave hedeen

      Would hav preferred, if not Medicare, how many visits. Medicare requires quarterly visit to pay some diabetic items

      1
      3 years ago Log in to Reply
    13. Nicole Slobe

      My daughter was diagnosed 10/16 and we don’t have an endo appointment until 3/1

      1
      3 years ago Log in to Reply
    14. Janis Senungetuk

      I answered 3 x, but if I included the online appointment the answer would be quarterly. I saw my endo 3 x and CDE 2 x, including an office appointment to answer my low potassium diet questions.

      3 years ago Log in to Reply
    15. Amanda Barras

      2- reluctantly. Only see my endo 1x a year normally. But DME supplier/insurance was requiring doc notes from the last 6 months so back I went. Thank goodness my provider squeezed me in quick to get me what I needed!

      3 years ago Log in to Reply
    16. Christine Ward

      I would have had 4 but it was scheduled for 12/28 and I was just exhausted and felt it would not be as meaningful. Rescheduled for January.

      3 years ago Log in to Reply
    17. Bonnie Lundblom

      Every 3 months to keep Medicare happy and because I need to continue to have my Dexcom and Tandem pump supplies delivered on schedule.

      3 years ago Log in to Reply
    18. Cheryl Weaver

      4 times

      3 years ago Log in to Reply
    19. Wanacure

      So it’s a Medicare requirement that I have these frequent phone appointments. Aha!

      3 years ago Log in to Reply
    20. PamK

      I started on new insurance last March, so I was only with my current endo for 3/4 of the year at most. Thus, only 3 appointments were possible last year.

      3 years ago Log in to Reply

    How many times in 2022 did you have an appointment with your main T1D healthcare provider? Cancel reply

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