Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 2 hours, 50 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 15 hours, 14 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 15 hours, 36 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 16 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 16 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 16 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 16 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 16 hours, 53 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 16 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 16 hours, 58 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 17 hours, 45 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 10 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 16 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 16 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 3 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 3 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 10 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 10 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 10 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 10 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 15 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 15 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 16 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 16 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 16 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How many times in 2022 did you have an appointment with your main T1D healthcare provider?

    Home > LC Polls > How many times in 2022 did you have an appointment with your main T1D healthcare provider?
    Previous

    Did you have any diabetes-related achievements or milestones in 2022? Share what you’re proud of in the comments!

    Next

    How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 1 week ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 2 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 weeks ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 4 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 1 month ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 1 month ago 6 min read  

    23 Comments

    1. sweet charlie

      I see myself every day!!

      10
      3 years ago Log in to Reply
    2. Ms Cris

      This year went down to 3x per year because of fewer issues. Used to be 4x per year.

      1
      3 years ago Log in to Reply
    3. Eva

      I would like to go to every 4 months but my insurance requires every 3 months.

      1
      3 years ago Log in to Reply
    4. Kathleen Juzenas

      Twice with doctor and twice with nurse practitioner.

      1
      3 years ago Log in to Reply
    5. Lawrence S.

      Every three months, four times in 2022, as required by Medicare. I’d prefer to go two times per year.

      3 years ago Log in to Reply
      1. GLORIA MILLER

        I also have Medicare as primary but I only go once every six months. I would rather go once a year but the prescriptions for Dexcom and Omnipod won’t be filled if I don’t see her every six months. I do not use Medicare for prescriptions but federal BCBS. BTW, the doctor’s staff argued with me that I had to go every three months according to Medicare rules but now they know that isn’t true.

        3 years ago Log in to Reply
    6. Janice B

      I see my main endocrinologist twice a year and his CDE nurse practitioner twice a year.

      3 years ago Log in to Reply
    7. Gary Taylor

      I answered “other”. With a move in the middle of the year, and the retirement of my long-time endocrinologist, I have seen an endo in my previous hometown, and a nurse practitioner specializing in endocrinology in my new home area. Things still seem in flux.

      1
      3 years ago Log in to Reply
    8. Joan Benedetto

      Once for annual checkup, once to rule out ear infection.

      3 years ago Log in to Reply
      1. Joan Benedetto

        Oops. Endo-Once in person, PA-once via zoom

        3 years ago Log in to Reply
    9. Jeanne McMillan-Olson

      I see my endo at least every 6 months for my Dexcom due to Medicare requirements. He is a full professor and does a lot of research so I learn a lot and can participate in research opportunities. I see my pcp every 3 months for my pump supplies and insulin RXs due to Medicare again. I can see him for other problems as he is much closer to my home. It’s worth it as I don’t have to pay for my insulin, pump supplies or Dexcom supplies.

      1
      3 years ago Log in to Reply
      1. Wanacure

        !N0 PAY!?

        3 years ago Log in to Reply
    10. mbulzomi@optonline.net

      I’m on Medicare, every quarter.

      1
      3 years ago Log in to Reply
    11. Jim Cobbe

      3 times telehealth, once in person.

      3 years ago Log in to Reply
    12. dave hedeen

      Would hav preferred, if not Medicare, how many visits. Medicare requires quarterly visit to pay some diabetic items

      1
      3 years ago Log in to Reply
    13. Nicole Slobe

      My daughter was diagnosed 10/16 and we don’t have an endo appointment until 3/1

      1
      3 years ago Log in to Reply
    14. Janis Senungetuk

      I answered 3 x, but if I included the online appointment the answer would be quarterly. I saw my endo 3 x and CDE 2 x, including an office appointment to answer my low potassium diet questions.

      3 years ago Log in to Reply
    15. Amanda Barras

      2- reluctantly. Only see my endo 1x a year normally. But DME supplier/insurance was requiring doc notes from the last 6 months so back I went. Thank goodness my provider squeezed me in quick to get me what I needed!

      3 years ago Log in to Reply
    16. Christine Ward

      I would have had 4 but it was scheduled for 12/28 and I was just exhausted and felt it would not be as meaningful. Rescheduled for January.

      3 years ago Log in to Reply
    17. Bonnie Lundblom

      Every 3 months to keep Medicare happy and because I need to continue to have my Dexcom and Tandem pump supplies delivered on schedule.

      3 years ago Log in to Reply
    18. Cheryl Weaver

      4 times

      3 years ago Log in to Reply
    19. Wanacure

      So it’s a Medicare requirement that I have these frequent phone appointments. Aha!

      3 years ago Log in to Reply
    20. PamK

      I started on new insurance last March, so I was only with my current endo for 3/4 of the year at most. Thus, only 3 appointments were possible last year.

      3 years ago Log in to Reply

    How many times in 2022 did you have an appointment with your main T1D healthcare provider? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]