How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?

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- 4 hours, 22 minutes ago
  
  AnitaS likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Only "illness" that makes it really difficult to control my blood sugar is getting steroid injections into my cervical spine or fingers. I leave my basal rate on my pump at 250% and need much higher bolus doses and many "extra" doses if my blood sugar remains really high. I tell the MD's that it turns my insulin into tap water and try to avoid it, experience with having gotten these injections over the past few years has helped, but having blood sugars of 400-500 despite much higher basal and bolus dosing is so frustrating!
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 23 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 5 hours, 29 minutes ago
  
  Randell Cole has commented in the same post you commented in :
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- 5 hours, 29 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
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- 5 hours, 29 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
  How can I get on the Mark Cuban test program ?
- 5 hours, 29 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
  How can I get on the Mark Cuban test program ?
Clear All

How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?

How many times in 2022 did you have an appointment with your main T1D healthcare provider?

Sarah Howard

22 Comments

Jen Farley

I am so drained financially by my rheumatoid arthritis’s doctor and my endocrinologist it is hard to afford the others like an ophthalmologist or podiatrist and all the prescriptions. Deductibles continue to rise while the care is the same. When will the copays slow down.

4

1 month ago Log in to Reply
Gary Taylor

I usually have a dilated exam every year, but with having cataract surgery a year ago and moving to a new community 6 months ago, I have not yet scheduled an exam. I will try to do that in January.

1

1 month ago Log in to Reply
Liz Avery

I usually do this just once, but my ophthalmologist questioned blood in one eye, so had me return after 3 months for a second exam. I have retinopathy in both eyes, and had many laser treatments 20 years ago. Both eyes passed muster and on we go.

4

1 month ago Log in to Reply
Carol Standish

I had a Macular Pucker due to scar tissue formed after a retinal tear, not diabetes related. Surgery in November to repair the macula.

2

1 month ago Log in to Reply
Ms Cris

Once/year is all I need at this time, no retinopathy. I always use an ophthalmologist for the dilation and retinal exam.

1

1 month ago Log in to Reply
TEH

I have seen the ophthalmologist 4 times this year. I have the onset of Glaucoma the Dr. has been watching. So each time I go I get a dilated exam and anual retnal pictures. I went last week and he showed me the start of cateracts.

1

1 month ago Log in to Reply
Jane Cerullo

Ophthalmologist for thyroid eye disease
Retinal ophthalmologist for retina in one eye

Optometrist for regular check up

1

1 month ago Log in to Reply
Lawrence S.

I answered one (1), but actually went twice. I had blood on the outside of my eyeball, and went the extra time. No damage from the blood. Usually, I go once a year.

1 month ago Log in to Reply
KCR

I had cataract surgery this year in both eyes so I had a lot of eye exams! 👀

1

1 month ago Log in to Reply
Joan Fray

Kaiser allows one comprehensive exam a year, as long as no problems. So far, eyes good, no retinopathy.

1 month ago Log in to Reply
Sue Martin

Annual eye exams are critical. When I had my exam 3 1/2 years ago the ophthalmologist told me my optic nerve was swollen and had me get an MRI that day. I had a brain tumor that was larger than a tennis ball. It turned out to be benign, thank the Lord. I hadn’t had any symptoms, headache, vertigo, etc. That ophthalmologist is our favorite doctor, she saved my life.

5

1 month ago Log in to Reply
cynthia jaworski

Priorities have been shifted since covid began, and then dealing with my 100 year old father this past year. I hope to return to my typical rotation of check-ups soon.

2

1 month ago Log in to Reply
dennis krajewski

2019 was my last visit due to Covid. Still hesitant on making an appointment…..

1 month ago Log in to Reply
Janis Senungetuk

Once, for an annual exam with a retina specialist I’ve been seeing for over a decade. I was dx with diabetic retinopathy in 1982.

1

1 month ago Log in to Reply
KarenM6

I had a comprehensive “regular” eye exam with my doctor who does the vision acuity, cataracts (no surgery yet), and glaucoma. She has the most amazing equipment and can take pictures of my eyes in great detail.
Then, I had 3 with my retina guy who takes care of my retinopathy. He is an amazing doctor.
I’m glad I have both doctors!! 😀

2

1 month ago Log in to Reply
Becky Hertz

I’ve previously had extensive PRP in both eyes. They have been stable since the early 1990’s.

1

1 month ago Log in to Reply
Kristine Warmecke

I go every 6 months, so twice a year; unless a problem arises.

1 month ago Log in to Reply
Bea Anderson

Since 2015 about every 4 weeks at retinal specialist. Shots for Wet Macular Degeneration. So, a lot. And they are helping.

1 month ago Log in to Reply
Lori Lehnen

I responded 0, but that’s a bit misleading. I had 2 comprehensive Evaluations in 2021: one about 3 months before my initial T1D diagnosis (I knew something was up with my vision) and then again right after diagnosis when I suddenly had perfect 20/20 vision after wearing glasses for more than 40 year (if only my eyes would have stayed perfect). My next appointment is in early January 2023, so I just missed having one in 2022.

1 month ago Log in to Reply
Tom Webb

I have retinopathy and was seen by my optometrist , ophthalmologist, and retinologist.

1

1 month ago Log in to Reply
mbulzomi@optonline.net

I go every six weeks to get Eylea injections in both eyes. Been doing this for a long time. I’m fortunate that Medicare and my Federal BCBS insurance covers all. No Copays

1 month ago Log in to Reply
Leona Hanson

Couldn’t afford to travel to the eye doctor it takes a day to get there and a day to get back home

1 month ago Log in to Reply