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    • 1 hour, 20 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 13 hours, 44 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 14 hours, 5 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 14 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 14 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 14 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 14 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 15 hours, 23 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 15 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 15 hours, 28 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 16 hours, 15 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 9 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 14 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 15 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 1 hour ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 1 hour ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 9 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 9 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 9 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 9 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 13 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 13 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 14 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 14 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 15 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
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    How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?

    Home > LC Polls > How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?
    Previous

    How many times in 2022 did you have an appointment with your main T1D healthcare provider?

    Next

    How many times in 2022 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Jen Farley

      I am so drained financially by my rheumatoid arthritis’s doctor and my endocrinologist it is hard to afford the others like an ophthalmologist or podiatrist and all the prescriptions. Deductibles continue to rise while the care is the same. When will the copays slow down.

      4
      3 years ago Log in to Reply
    2. Gary Taylor

      I usually have a dilated exam every year, but with having cataract surgery a year ago and moving to a new community 6 months ago, I have not yet scheduled an exam. I will try to do that in January.

      1
      3 years ago Log in to Reply
    3. Liz Avery

      I usually do this just once, but my ophthalmologist questioned blood in one eye, so had me return after 3 months for a second exam. I have retinopathy in both eyes, and had many laser treatments 20 years ago. Both eyes passed muster and on we go.

      4
      3 years ago Log in to Reply
    4. Carol Standish

      I had a Macular Pucker due to scar tissue formed after a retinal tear, not diabetes related. Surgery in November to repair the macula.

      2
      3 years ago Log in to Reply
    5. Ms Cris

      Once/year is all I need at this time, no retinopathy. I always use an ophthalmologist for the dilation and retinal exam.

      1
      3 years ago Log in to Reply
    6. TEH

      I have seen the ophthalmologist 4 times this year. I have the onset of Glaucoma the Dr. has been watching. So each time I go I get a dilated exam and anual retnal pictures. I went last week and he showed me the start of cateracts.

      1
      3 years ago Log in to Reply
    7. Jane Cerullo

      Ophthalmologist for thyroid eye disease
      Retinal ophthalmologist for retina in one eye

      Optometrist for regular check up

      1
      3 years ago Log in to Reply
    8. Lawrence S.

      I answered one (1), but actually went twice. I had blood on the outside of my eyeball, and went the extra time. No damage from the blood. Usually, I go once a year.

      3 years ago Log in to Reply
    9. KCR

      I had cataract surgery this year in both eyes so I had a lot of eye exams! 👀

      1
      3 years ago Log in to Reply
    10. Joan Fray

      Kaiser allows one comprehensive exam a year, as long as no problems. So far, eyes good, no retinopathy.

      3 years ago Log in to Reply
    11. Sue Martin

      Annual eye exams are critical. When I had my exam 3 1/2 years ago the ophthalmologist told me my optic nerve was swollen and had me get an MRI that day. I had a brain tumor that was larger than a tennis ball. It turned out to be benign, thank the Lord. I hadn’t had any symptoms, headache, vertigo, etc. That ophthalmologist is our favorite doctor, she saved my life.

      5
      3 years ago Log in to Reply
    12. cynthia jaworski

      Priorities have been shifted since covid began, and then dealing with my 100 year old father this past year. I hope to return to my typical rotation of check-ups soon.

      2
      3 years ago Log in to Reply
    13. dennis krajewski

      2019 was my last visit due to Covid. Still hesitant on making an appointment…..

      3 years ago Log in to Reply
    14. Janis Senungetuk

      Once, for an annual exam with a retina specialist I’ve been seeing for over a decade. I was dx with diabetic retinopathy in 1982.

      1
      3 years ago Log in to Reply
    15. KarenM6

      I had a comprehensive “regular” eye exam with my doctor who does the vision acuity, cataracts (no surgery yet), and glaucoma. She has the most amazing equipment and can take pictures of my eyes in great detail.
      Then, I had 3 with my retina guy who takes care of my retinopathy. He is an amazing doctor.
      I’m glad I have both doctors!! 😀

      2
      3 years ago Log in to Reply
    16. Becky Hertz

      I’ve previously had extensive PRP in both eyes. They have been stable since the early 1990’s.

      1
      3 years ago Log in to Reply
    17. Kristine Warmecke

      I go every 6 months, so twice a year; unless a problem arises.

      3 years ago Log in to Reply
    18. Bea Anderson

      Since 2015 about every 4 weeks at retinal specialist. Shots for Wet Macular Degeneration. So, a lot. And they are helping.

      3 years ago Log in to Reply
    19. Lori Lehnen

      I responded 0, but that’s a bit misleading. I had 2 comprehensive Evaluations in 2021: one about 3 months before my initial T1D diagnosis (I knew something was up with my vision) and then again right after diagnosis when I suddenly had perfect 20/20 vision after wearing glasses for more than 40 year (if only my eyes would have stayed perfect). My next appointment is in early January 2023, so I just missed having one in 2022.

      3 years ago Log in to Reply
    20. Tom Webb

      I have retinopathy and was seen by my optometrist , ophthalmologist, and retinologist.

      1
      3 years ago Log in to Reply
    21. mbulzomi@optonline.net

      I go every six weeks to get Eylea injections in both eyes. Been doing this for a long time. I’m fortunate that Medicare and my Federal BCBS insurance covers all. No Copays

      3 years ago Log in to Reply
    22. Leona Hanson

      Couldn’t afford to travel to the eye doctor it takes a day to get there and a day to get back home

      3 years ago Log in to Reply

    How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist? Cancel reply

    You must be logged in to post a comment.




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