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    • 12 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 38 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 38 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 39 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 51 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 52 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 52 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 35 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 58 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 55 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 18 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 20 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 21 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 21 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 30 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?

    Home > LC Polls > How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist?
    Previous

    How many times in 2022 did you have an appointment with your main T1D healthcare provider?

    Next

    How many times in 2022 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Jen Farley

      I am so drained financially by my rheumatoid arthritis’s doctor and my endocrinologist it is hard to afford the others like an ophthalmologist or podiatrist and all the prescriptions. Deductibles continue to rise while the care is the same. When will the copays slow down.

      4
      3 years ago Log in to Reply
    2. Gary Taylor

      I usually have a dilated exam every year, but with having cataract surgery a year ago and moving to a new community 6 months ago, I have not yet scheduled an exam. I will try to do that in January.

      1
      3 years ago Log in to Reply
    3. Liz Avery

      I usually do this just once, but my ophthalmologist questioned blood in one eye, so had me return after 3 months for a second exam. I have retinopathy in both eyes, and had many laser treatments 20 years ago. Both eyes passed muster and on we go.

      4
      3 years ago Log in to Reply
    4. Carol Standish

      I had a Macular Pucker due to scar tissue formed after a retinal tear, not diabetes related. Surgery in November to repair the macula.

      2
      3 years ago Log in to Reply
    5. Ms Cris

      Once/year is all I need at this time, no retinopathy. I always use an ophthalmologist for the dilation and retinal exam.

      1
      3 years ago Log in to Reply
    6. TEH

      I have seen the ophthalmologist 4 times this year. I have the onset of Glaucoma the Dr. has been watching. So each time I go I get a dilated exam and anual retnal pictures. I went last week and he showed me the start of cateracts.

      1
      3 years ago Log in to Reply
    7. Jane Cerullo

      Ophthalmologist for thyroid eye disease
      Retinal ophthalmologist for retina in one eye

      Optometrist for regular check up

      1
      3 years ago Log in to Reply
    8. Lawrence S.

      I answered one (1), but actually went twice. I had blood on the outside of my eyeball, and went the extra time. No damage from the blood. Usually, I go once a year.

      3 years ago Log in to Reply
    9. KCR

      I had cataract surgery this year in both eyes so I had a lot of eye exams! 👀

      1
      3 years ago Log in to Reply
    10. Joan Fray

      Kaiser allows one comprehensive exam a year, as long as no problems. So far, eyes good, no retinopathy.

      3 years ago Log in to Reply
    11. Sue Martin

      Annual eye exams are critical. When I had my exam 3 1/2 years ago the ophthalmologist told me my optic nerve was swollen and had me get an MRI that day. I had a brain tumor that was larger than a tennis ball. It turned out to be benign, thank the Lord. I hadn’t had any symptoms, headache, vertigo, etc. That ophthalmologist is our favorite doctor, she saved my life.

      5
      3 years ago Log in to Reply
    12. cynthia jaworski

      Priorities have been shifted since covid began, and then dealing with my 100 year old father this past year. I hope to return to my typical rotation of check-ups soon.

      2
      3 years ago Log in to Reply
    13. dennis krajewski

      2019 was my last visit due to Covid. Still hesitant on making an appointment…..

      3 years ago Log in to Reply
    14. Janis Senungetuk

      Once, for an annual exam with a retina specialist I’ve been seeing for over a decade. I was dx with diabetic retinopathy in 1982.

      1
      3 years ago Log in to Reply
    15. KarenM6

      I had a comprehensive “regular” eye exam with my doctor who does the vision acuity, cataracts (no surgery yet), and glaucoma. She has the most amazing equipment and can take pictures of my eyes in great detail.
      Then, I had 3 with my retina guy who takes care of my retinopathy. He is an amazing doctor.
      I’m glad I have both doctors!! 😀

      2
      3 years ago Log in to Reply
    16. Becky Hertz

      I’ve previously had extensive PRP in both eyes. They have been stable since the early 1990’s.

      1
      3 years ago Log in to Reply
    17. Kristine Warmecke

      I go every 6 months, so twice a year; unless a problem arises.

      3 years ago Log in to Reply
    18. Bea Anderson

      Since 2015 about every 4 weeks at retinal specialist. Shots for Wet Macular Degeneration. So, a lot. And they are helping.

      3 years ago Log in to Reply
    19. Lori Lehnen

      I responded 0, but that’s a bit misleading. I had 2 comprehensive Evaluations in 2021: one about 3 months before my initial T1D diagnosis (I knew something was up with my vision) and then again right after diagnosis when I suddenly had perfect 20/20 vision after wearing glasses for more than 40 year (if only my eyes would have stayed perfect). My next appointment is in early January 2023, so I just missed having one in 2022.

      3 years ago Log in to Reply
    20. Tom Webb

      I have retinopathy and was seen by my optometrist , ophthalmologist, and retinologist.

      1
      3 years ago Log in to Reply
    21. mbulzomi@optonline.net

      I go every six weeks to get Eylea injections in both eyes. Been doing this for a long time. I’m fortunate that Medicare and my Federal BCBS insurance covers all. No Copays

      3 years ago Log in to Reply
    22. Leona Hanson

      Couldn’t afford to travel to the eye doctor it takes a day to get there and a day to get back home

      3 years ago Log in to Reply

    How many times in 2022 did you get a comprehensive eye exam (including dilation with eye drops or retinal imaging) with an ophthalmologist or optometrist? Cancel reply

    You must be logged in to post a comment.




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