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    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How many of the following relatives in your life have had T1D? Select all that apply.

    Home > LC Polls > How many of the following relatives in your life have had T1D? Select all that apply.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Janice B

      My Grandfather’s sister this was back in the 20’s

      5 years ago Log in to Reply
    2. Britni Steingard

      My grandfather’s cousin’s son (my 2nd cousin once removed) and two of his children (my 3rd cousins) have type 1. Otherwise it’s just me

      5 years ago Log in to Reply
    3. Eve Rabbiner

      Interesting to see that most of the people responding report a relative with Type1

      5 years ago Log in to Reply
    4. Nevin Bowman

      One niece, one nephew, one child of a niece.

      5 years ago Log in to Reply
    5. connie ker

      My husband was one of the longest living diabetics in the country with juvenile diabetes, living to be 85 years of age. I became diabetic T1D with LADA, and one son became T1D juvenile. So there were 3 of us under the same roof. I also had 2 cousins with T1D. My brother is a type 2 later in his life too.

      5 years ago Log in to Reply
    6. Lakesha McDonald Kee

      Both my son and I are the only T1D in the family. Strangely he became a T1D very close to the age I was. He was 7 and I was 8.

      5 years ago Log in to Reply
    7. Kristine Warmecke

      My middle brother, his oldest daughter (my niece), 1 Uncle, Great Grandmother (Uncles Grandmother), other relatives on that side of the family that on different branches that lead back to my Great Grandmother.

      5 years ago Log in to Reply
    8. Trina Blake

      I’m the only one (aren’t I special!) back several generations (lots of medical professionals in the family – great records) No T2D or gestational either.

      5 years ago Log in to Reply
    9. Jana Foley

      My two youngest children are both T1Ds, diagnosed just 3 months and 4 days apart when my son was 6 and my daughter was 11. I am a MODY T1D.

      5 years ago Log in to Reply
    10. William Bennett

      My 1st cousin’s daughter, other than that not a one, out of probably 100 relatives at that degree of kinship.

      5 years ago Log in to Reply
    11. Janis Senungetuk

      My maternal grandfather had T1D. There’s a history of auto-immune disease on both sides of my family. I have a second cousin on my father’s side living with T1D.

      5 years ago Log in to Reply
    12. Sally Numrich

      My maternal great grandmother although she got it later in life so there is some thoughts it might have been type 2 that advanced to needing insulin. My mother remembered watching her boil her syringes. Many on my fathers side with type 2 including himself and his mom.

      5 years ago Log in to Reply
    13. Bob Durstenfeld

      T1D is Life in my family, my dad had it (diagnosed at age 18 months), I have it diagnosed at age 18 months), two out three younger brothers have it Dx’ed at ages 3 and 4), my eldest of three sons has T1D (dx’ed at 8 months old) and his only daughter has it (Dx’ed at 18 months). She is the first girl in the lineage to get it. There is no history on her mother’s side or my wife’s side.

      5 years ago Log in to Reply
    14. Molly Jones

      Autoimmune conditions run on my mother’s side of the family, thyroid, lupus, MS, Addison’s, …. I am on the only one with T1D.

      5 years ago Log in to Reply
    15. Timothy Steinert

      My brother was diagnosed when I was five (in 1971). I was diagnosed when I was forty-three (in 2009). It didn’t occur to me that it might be Type 1, though.

      5 years ago Log in to Reply
    16. Glen Heatherington

      I was diagnosed 55 years ago at age 10, my brother was diagnosed at age 7 in 1956; two first cousins (brother and sister) maternal side; and my uncle on maternal side; all type 1.

      5 years ago Log in to Reply
    17. Steven Gill

      A grandmother (maternal side) waa insulin diabetic in the ’50s. While there was probably no distinction of TYPE 1 or 2 back than, she was slender and almost blind but lived to her 60’s. A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2 diagnosis (magically changed to 1 several years later). However there were glucose concerns in both parents as they aged but at some point the the body does slow down. Another brother was diagnosed TYPE 2 but he says a1C is good, being my brother l have to trust/hope he’s doing well. An adopted cousin it’s a long term TYPE 1 with some complications, we’ve become closer through the years, even if my part of the family was the “black sheep.” BUT the

      5 years ago Log in to Reply
    18. Chip Brookes

      Father developed T2 late in life (late 70s). His father was diabetic. He was born in 1892 and died in 1957 of a heart attack. Don’t know anything about his diabetes. I am T1 due to a pancreatic infection. Diagnosed in 2008 at age 51. I don’t really know wether I would have developed the disease or not. The infection was the fruit of a gallstone pancreatitis. So who knows.

      5 years ago Log in to Reply

    How many of the following relatives in your life have had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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