Have you ever had an islet cell transplant or a pancreas transplant?

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- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 50 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 55 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
- 56 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
- 56 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
- 58 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
- 59 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 1 hour ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
Clear All

Have you ever had an islet cell transplant or a pancreas transplant?

How many of the following relatives in your life have had T1D? Select all that apply.

Sarah Howard

15 Comments

Bob Durstenfeld

I would if I were a good candidate and did not need the NASTY immunosuppressive drugs.

2 years ago Log in to Reply
Nevin Bowman

Never had an option.

2 years ago Log in to Reply
rick phillips

Sign me up twice

2 years ago Log in to Reply
Franklin Rios

Is it possibe?

2 years ago Log in to Reply
Becky Buchanan

I was approved for one. It was at Jackson Memorial Hospital in Miami Florida. I lived over 1400 miles away. The distance concerned me as well as paying for the anti-rejection medication. They said at that point the drug companies were paying for them but they didn’t know how long it would continue for. Those two things made me decide to not pursue it.

2 years ago Log in to Reply
Linda Murphy

So that’s what they mean by a transplant, just the cells, not the entire pancreas?

2 years ago Log in to Reply
GLORIA MILLER

I went down for the screening in Miami around 2012 to have the islet cell transplants. Unfortunately, I have a certain type of antibody in my body that disqualified me from getting the transplant. They said they thought since I only birthed one child that I would not have the antibody but I did. I was very disappointed. This particular type of antibody would have made it more likely I would have rejected the transplant.

2 years ago Log in to Reply
connie ker

I live in a smaller city so these new trials are done in large teaching hospitals in large cities or connected with medical schools.

2 years ago Log in to Reply
Ahh Life

We have transplant specialists in our area. The long-term statistics are not yet at 100%. Advanced age mitigates against it. Anti-rejection medications are clouded somewhat by the virus age. All in all, if you are in the right circumstances, go for it. Otherwise, maybe not.

2 years ago Log in to Reply
Kristine Warmecke

Back in the late ’90s I signed up to be on the list for an islet cell transplant at the University I’ve always gone to for endocrinology, the early day of the research. I do have a friend I met because of Moyamoya that has had a pancreas and kidney transplant. She’s doing wonderful now, after a couple of scares.

2 years ago Log in to Reply
Jana Foley

I have not and at this time I don’t believe I would. Transplant means a different kind of maintenance for the rest of my life and I am not sure I’m up for it.

2 years ago Log in to Reply
Amanda Barras

I contacted staff about the islet transplant and found I was about 20 lbs over weight and wouldn’t qualify.

2 years ago Log in to Reply
Janis Senungetuk

Seriously considered applying for the Edmonton Procedure clinical study that was conducted thru Northwestern University in Evanston, IL. My daughter and her family live there. Although my endo thought I met all of the study requirements I decided that the need to continue taking anti-rejection drugs wasn’t a positive exchange.

2 years ago Log in to Reply
Bill Marston

The Q wasn’t “would you or have you CONSIDERED a transplant”. It was “Have you ever had an islet cell transplant or a pancreas transplant?” I have – I received the human islet cell transplant at Univ of Pennsylvania, one of some 35 international centers, back in 2002. I recall that there were 350 of us in that phase. I tolerated the immunosuppressants as did 7 others but I heard 1 dropped out very quickly. Doses were adjusted regularly/frequently based on blood studies. **IT WAS AMAZING** One overnight, infused cells into portal vein of liver, discharged with the Rx and a halved insulin which then was ZERO insulin in a matter of days!!! I bought a Chunky chocolate-raisin-nut candy which had been my favorite b4 becoming diabetic. HEAVEN. After a year or two, gradually, cells became less effective so per their protocols I got a 2nd dose (first dose had been @the minimum in the range of thousands of cells per Kg of body weight). So, back to being non-diabetic again!! This time less than a year, taking insulin again and eventually I retired from being a subject. I have been continuing as the Type 1 Diabetic that I really am since 2006. I would absolutely do it again except for my age, cancer history, CKD et al (AKA I got older). … and OF COURSE medical science learned from our participation – which, alone, for me was nearly enough reason to have done it all.

2 years ago Log in to Reply
Sally Numrich

No, but I did take part in the Viactye stem cell study in San Diego to test device and procedure safety standards. I didn’t get enough cells to make insulin although I was tested every month to see if I was producing insulin. I do feel the cure will be in stem cell research but it is a long way off. Probably won’t see it in my life time but if I don’t age out, I will continue to volunteer for studies,

2 years ago Log in to Reply