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  • Activity
    • 14 hours, 59 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 1 minute ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 14 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 20 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 20 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 20 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 21 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 25 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 25 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 25 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 26 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 26 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 26 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 26 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 16 hours, 46 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 47 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 7 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 16 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 16 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 16 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 16 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 17 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 17 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 17 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    How many of the following relatives in your life have had T1D? Select all that apply.

    Home > LC Polls > How many of the following relatives in your life have had T1D? Select all that apply.
    Previous

    Do you (or your loved one with T1D) have thyroid issues in addition to T1D?

    Next

    Have you ever had an islet cell transplant or a pancreas transplant?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. Janice B

      My Grandfather’s sister this was back in the 20’s

      3 years ago Log in to Reply
    2. Britni Steingard

      My grandfather’s cousin’s son (my 2nd cousin once removed) and two of his children (my 3rd cousins) have type 1. Otherwise it’s just me

      3 years ago Log in to Reply
    3. Eve Rabbiner

      Interesting to see that most of the people responding report a relative with Type1

      3 years ago Log in to Reply
    4. Nevin Bowman

      One niece, one nephew, one child of a niece.

      3 years ago Log in to Reply
    5. connie ker

      My husband was one of the longest living diabetics in the country with juvenile diabetes, living to be 85 years of age. I became diabetic T1D with LADA, and one son became T1D juvenile. So there were 3 of us under the same roof. I also had 2 cousins with T1D. My brother is a type 2 later in his life too.

      3 years ago Log in to Reply
    6. Lakesha McDonald Kee

      Both my son and I are the only T1D in the family. Strangely he became a T1D very close to the age I was. He was 7 and I was 8.

      3 years ago Log in to Reply
    7. Kristine Warmecke

      My middle brother, his oldest daughter (my niece), 1 Uncle, Great Grandmother (Uncles Grandmother), other relatives on that side of the family that on different branches that lead back to my Great Grandmother.

      3 years ago Log in to Reply
    8. Trina Blake

      I’m the only one (aren’t I special!) back several generations (lots of medical professionals in the family – great records) No T2D or gestational either.

      3 years ago Log in to Reply
    9. Jana Foley

      My two youngest children are both T1Ds, diagnosed just 3 months and 4 days apart when my son was 6 and my daughter was 11. I am a MODY T1D.

      3 years ago Log in to Reply
    10. William Bennett

      My 1st cousin’s daughter, other than that not a one, out of probably 100 relatives at that degree of kinship.

      3 years ago Log in to Reply
    11. Janis Senungetuk

      My maternal grandfather had T1D. There’s a history of auto-immune disease on both sides of my family. I have a second cousin on my father’s side living with T1D.

      3 years ago Log in to Reply
    12. Sally Numrich

      My maternal great grandmother although she got it later in life so there is some thoughts it might have been type 2 that advanced to needing insulin. My mother remembered watching her boil her syringes. Many on my fathers side with type 2 including himself and his mom.

      3 years ago Log in to Reply
    13. Bob Durstenfeld

      T1D is Life in my family, my dad had it (diagnosed at age 18 months), I have it diagnosed at age 18 months), two out three younger brothers have it Dx’ed at ages 3 and 4), my eldest of three sons has T1D (dx’ed at 8 months old) and his only daughter has it (Dx’ed at 18 months). She is the first girl in the lineage to get it. There is no history on her mother’s side or my wife’s side.

      3 years ago Log in to Reply
    14. Molly Jones

      Autoimmune conditions run on my mother’s side of the family, thyroid, lupus, MS, Addison’s, …. I am on the only one with T1D.

      3 years ago Log in to Reply
    15. Timothy Steinert

      My brother was diagnosed when I was five (in 1971). I was diagnosed when I was forty-three (in 2009). It didn’t occur to me that it might be Type 1, though.

      3 years ago Log in to Reply
    16. Glen Heatherington

      I was diagnosed 55 years ago at age 10, my brother was diagnosed at age 7 in 1956; two first cousins (brother and sister) maternal side; and my uncle on maternal side; all type 1.

      3 years ago Log in to Reply
    17. Steven Gill

      A grandmother (maternal side) waa insulin diabetic in the ’50s. While there was probably no distinction of TYPE 1 or 2 back than, she was slender and almost blind but lived to her 60’s. A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2 diagnosis (magically changed to 1 several years later). However there were glucose concerns in both parents as they aged but at some point the the body does slow down. Another brother was diagnosed TYPE 2 but he says a1C is good, being my brother l have to trust/hope he’s doing well. An adopted cousin it’s a long term TYPE 1 with some complications, we’ve become closer through the years, even if my part of the family was the “black sheep.” BUT the

      3 years ago Log in to Reply
    18. Chip Brookes

      Father developed T2 late in life (late 70s). His father was diabetic. He was born in 1892 and died in 1957 of a heart attack. Don’t know anything about his diabetes. I am T1 due to a pancreatic infection. Diagnosed in 2008 at age 51. I don’t really know wether I would have developed the disease or not. The infection was the fruit of a gallstone pancreatitis. So who knows.

      3 years ago Log in to Reply

    How many of the following relatives in your life have had T1D? Select all that apply. Cancel reply

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