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    • 1 minute ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      7 video calls in preparation for going onto a closed loop system
    • 2 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      I really like my educator. She keeps me up-to-date on all of the new tech and helps communicate with the vendors and figure out insurance stuff. It's a nice morale boast too; we review Dexcom data and talk about specific highs or lows and different techniques to try. I see my doctor every 6 months and my educator every 6 months, but we're on a schedule so I see one of the two every quarter.
    • 2 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      My Diabetes Care Specialist is also a Nutritionist. I have found her advice and support vital to mastering T1 since my diagnosis 2 years ago
    • 38 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
    • 50 minutes ago
      Samantha Walsh likes your comment at
      In honor of GivingTuesday, what are your favorite ways of giving to organizations you support? Select all that apply.
      Correction: Service to others is the rent you pay for your time on earth."
    • 1 hour, 13 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 hour, 14 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.
    • 1 hour, 14 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 1 hour, 15 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 hour, 15 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 hour, 16 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 hour, 16 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.
    • 12 hours, 29 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
    • 12 hours, 29 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      I love it! Can't live without one.
    • 19 hours, 17 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 19 hours, 17 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 day, 10 hours ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 day, 18 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 18 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 1 day, 18 hours ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
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    How many of the following relatives in your life have had T1D? Select all that apply.

    Home > LC Polls > How many of the following relatives in your life have had T1D? Select all that apply.
    Previous

    Do you (or your loved one with T1D) have thyroid issues in addition to T1D?

    Next

    Have you ever had an islet cell transplant or a pancreas transplant?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. Janice B

      My Grandfather’s sister this was back in the 20’s

      3 years ago Log in to Reply
    2. Britni Steingard

      My grandfather’s cousin’s son (my 2nd cousin once removed) and two of his children (my 3rd cousins) have type 1. Otherwise it’s just me

      3 years ago Log in to Reply
    3. Eve Rabbiner

      Interesting to see that most of the people responding report a relative with Type1

      3 years ago Log in to Reply
    4. Nevin Bowman

      One niece, one nephew, one child of a niece.

      3 years ago Log in to Reply
    5. connie ker

      My husband was one of the longest living diabetics in the country with juvenile diabetes, living to be 85 years of age. I became diabetic T1D with LADA, and one son became T1D juvenile. So there were 3 of us under the same roof. I also had 2 cousins with T1D. My brother is a type 2 later in his life too.

      3 years ago Log in to Reply
    6. Lakesha McDonald Kee

      Both my son and I are the only T1D in the family. Strangely he became a T1D very close to the age I was. He was 7 and I was 8.

      3 years ago Log in to Reply
    7. Kristine Warmecke

      My middle brother, his oldest daughter (my niece), 1 Uncle, Great Grandmother (Uncles Grandmother), other relatives on that side of the family that on different branches that lead back to my Great Grandmother.

      3 years ago Log in to Reply
    8. Trina Blake

      I’m the only one (aren’t I special!) back several generations (lots of medical professionals in the family – great records) No T2D or gestational either.

      3 years ago Log in to Reply
    9. Jana Foley

      My two youngest children are both T1Ds, diagnosed just 3 months and 4 days apart when my son was 6 and my daughter was 11. I am a MODY T1D.

      3 years ago Log in to Reply
    10. William Bennett

      My 1st cousin’s daughter, other than that not a one, out of probably 100 relatives at that degree of kinship.

      3 years ago Log in to Reply
    11. Janis Senungetuk

      My maternal grandfather had T1D. There’s a history of auto-immune disease on both sides of my family. I have a second cousin on my father’s side living with T1D.

      3 years ago Log in to Reply
    12. Sally Numrich

      My maternal great grandmother although she got it later in life so there is some thoughts it might have been type 2 that advanced to needing insulin. My mother remembered watching her boil her syringes. Many on my fathers side with type 2 including himself and his mom.

      3 years ago Log in to Reply
    13. Bob Durstenfeld

      T1D is Life in my family, my dad had it (diagnosed at age 18 months), I have it diagnosed at age 18 months), two out three younger brothers have it Dx’ed at ages 3 and 4), my eldest of three sons has T1D (dx’ed at 8 months old) and his only daughter has it (Dx’ed at 18 months). She is the first girl in the lineage to get it. There is no history on her mother’s side or my wife’s side.

      3 years ago Log in to Reply
    14. Molly Jones

      Autoimmune conditions run on my mother’s side of the family, thyroid, lupus, MS, Addison’s, …. I am on the only one with T1D.

      3 years ago Log in to Reply
    15. Timothy Steinert

      My brother was diagnosed when I was five (in 1971). I was diagnosed when I was forty-three (in 2009). It didn’t occur to me that it might be Type 1, though.

      3 years ago Log in to Reply
    16. Glen Heatherington

      I was diagnosed 55 years ago at age 10, my brother was diagnosed at age 7 in 1956; two first cousins (brother and sister) maternal side; and my uncle on maternal side; all type 1.

      3 years ago Log in to Reply
    17. Steven Gill

      A grandmother (maternal side) waa insulin diabetic in the ’50s. While there was probably no distinction of TYPE 1 or 2 back than, she was slender and almost blind but lived to her 60’s. A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2 diagnosis (magically changed to 1 several years later). However there were glucose concerns in both parents as they aged but at some point the the body does slow down. Another brother was diagnosed TYPE 2 but he says a1C is good, being my brother l have to trust/hope he’s doing well. An adopted cousin it’s a long term TYPE 1 with some complications, we’ve become closer through the years, even if my part of the family was the “black sheep.” BUT the

      3 years ago Log in to Reply
    18. Chip Brookes

      Father developed T2 late in life (late 70s). His father was diabetic. He was born in 1892 and died in 1957 of a heart attack. Don’t know anything about his diabetes. I am T1 due to a pancreatic infection. Diagnosed in 2008 at age 51. I don’t really know wether I would have developed the disease or not. The infection was the fruit of a gallstone pancreatitis. So who knows.

      3 years ago Log in to Reply

    How many of the following relatives in your life have had T1D? Select all that apply. Cancel reply

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