Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 5 hours, 50 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 5 hours, 50 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 7 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 7 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 7 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 7 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 7 hours, 9 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 9 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 7 hours, 10 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 9 hours, 11 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 50 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 32 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 55 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 11 hours, 18 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 19 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 19 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 34 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 35 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 12 hours, 35 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 9 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How many of the following relatives in your life have had T1D? Select all that apply.

    Home > LC Polls > How many of the following relatives in your life have had T1D? Select all that apply.
    Previous

    Do you (or your loved one with T1D) have thyroid issues in addition to T1D?

    Next

    Have you ever had an islet cell transplant or a pancreas transplant?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 week ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    18 Comments

    1. Janice B

      My Grandfather’s sister this was back in the 20’s

      5 years ago Log in to Reply
    2. Britni Steingard

      My grandfather’s cousin’s son (my 2nd cousin once removed) and two of his children (my 3rd cousins) have type 1. Otherwise it’s just me

      5 years ago Log in to Reply
    3. Eve Rabbiner

      Interesting to see that most of the people responding report a relative with Type1

      5 years ago Log in to Reply
    4. Nevin Bowman

      One niece, one nephew, one child of a niece.

      5 years ago Log in to Reply
    5. connie ker

      My husband was one of the longest living diabetics in the country with juvenile diabetes, living to be 85 years of age. I became diabetic T1D with LADA, and one son became T1D juvenile. So there were 3 of us under the same roof. I also had 2 cousins with T1D. My brother is a type 2 later in his life too.

      5 years ago Log in to Reply
    6. Lakesha McDonald Kee

      Both my son and I are the only T1D in the family. Strangely he became a T1D very close to the age I was. He was 7 and I was 8.

      5 years ago Log in to Reply
    7. Kristine Warmecke

      My middle brother, his oldest daughter (my niece), 1 Uncle, Great Grandmother (Uncles Grandmother), other relatives on that side of the family that on different branches that lead back to my Great Grandmother.

      5 years ago Log in to Reply
    8. Trina Blake

      I’m the only one (aren’t I special!) back several generations (lots of medical professionals in the family – great records) No T2D or gestational either.

      5 years ago Log in to Reply
    9. Jana Foley

      My two youngest children are both T1Ds, diagnosed just 3 months and 4 days apart when my son was 6 and my daughter was 11. I am a MODY T1D.

      5 years ago Log in to Reply
    10. William Bennett

      My 1st cousin’s daughter, other than that not a one, out of probably 100 relatives at that degree of kinship.

      5 years ago Log in to Reply
    11. Janis Senungetuk

      My maternal grandfather had T1D. There’s a history of auto-immune disease on both sides of my family. I have a second cousin on my father’s side living with T1D.

      5 years ago Log in to Reply
    12. Sally Numrich

      My maternal great grandmother although she got it later in life so there is some thoughts it might have been type 2 that advanced to needing insulin. My mother remembered watching her boil her syringes. Many on my fathers side with type 2 including himself and his mom.

      5 years ago Log in to Reply
    13. Bob Durstenfeld

      T1D is Life in my family, my dad had it (diagnosed at age 18 months), I have it diagnosed at age 18 months), two out three younger brothers have it Dx’ed at ages 3 and 4), my eldest of three sons has T1D (dx’ed at 8 months old) and his only daughter has it (Dx’ed at 18 months). She is the first girl in the lineage to get it. There is no history on her mother’s side or my wife’s side.

      5 years ago Log in to Reply
    14. Molly Jones

      Autoimmune conditions run on my mother’s side of the family, thyroid, lupus, MS, Addison’s, …. I am on the only one with T1D.

      5 years ago Log in to Reply
    15. Timothy Steinert

      My brother was diagnosed when I was five (in 1971). I was diagnosed when I was forty-three (in 2009). It didn’t occur to me that it might be Type 1, though.

      5 years ago Log in to Reply
    16. Glen Heatherington

      I was diagnosed 55 years ago at age 10, my brother was diagnosed at age 7 in 1956; two first cousins (brother and sister) maternal side; and my uncle on maternal side; all type 1.

      5 years ago Log in to Reply
    17. Steven Gill

      A grandmother (maternal side) waa insulin diabetic in the ’50s. While there was probably no distinction of TYPE 1 or 2 back than, she was slender and almost blind but lived to her 60’s. A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2 diagnosis (magically changed to 1 several years later). However there were glucose concerns in both parents as they aged but at some point the the body does slow down. Another brother was diagnosed TYPE 2 but he says a1C is good, being my brother l have to trust/hope he’s doing well. An adopted cousin it’s a long term TYPE 1 with some complications, we’ve become closer through the years, even if my part of the family was the “black sheep.” BUT the

      5 years ago Log in to Reply
    18. Chip Brookes

      Father developed T2 late in life (late 70s). His father was diabetic. He was born in 1892 and died in 1957 of a heart attack. Don’t know anything about his diabetes. I am T1 due to a pancreatic infection. Diagnosed in 2008 at age 51. I don’t really know wether I would have developed the disease or not. The infection was the fruit of a gallstone pancreatitis. So who knows.

      5 years ago Log in to Reply

    How many of the following relatives in your life have had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]