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    • 5 hours, 38 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 5 hours, 39 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 6 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 57 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 58 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 6 hours, 58 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 59 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 37 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 38 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 21 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 43 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 11 hours, 6 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 7 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 7 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 22 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 23 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 12 hours, 24 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 9 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Do you (or your loved one with T1D) have thyroid issues in addition to T1D?

    Home > LC Polls > Do you (or your loved one with T1D) have thyroid issues in addition to T1D?
    Previous

    Does your dentist usually ask about or discuss your diabetes with you?

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    How many of the following relatives in your life have had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Chip Brookes

      Taking synthroid due to other medication that affects the thyroid. I expect to stop using that med. My thyroid should return to normal.

      5 years ago Log in to Reply
    2. Jneticdiabetic

      My mother and I both have T1D and Hashimoto’s thyroiditis.

      5 years ago Log in to Reply
    3. Amanda Barras

      Hypothyroidism since age 17.

      5 years ago Log in to Reply
    4. connie ker

      None of the 3 T1Ds in my family have or had thyroid problems. However, I know that is one of the lab tests done frequently.

      5 years ago Log in to Reply
    5. Sharon Beckman

      Hashimoto’s 15 years prior to being diagnosed TD1

      5 years ago Log in to Reply
    6. Janet Wilson

      My son (our only T1) does NOT have thyroid issues. I DO. I’m NOT T1. I answered “NO” because I am not T1.

      5 years ago Log in to Reply
    7. Janet Wilson

      Side note: I highly dislike this question/answer format compared to the old format. This method is definitely NOT as good as the prior. :'(

      5 years ago Log in to Reply
    8. James Merrick

      Had both for 40 years. A lot has changed since my first diagnosis. Just happy to be alive.

      5 years ago Log in to Reply
    9. Sondra Kirby

      I was diagnosed with hyperthyroidism in my mid 20s and had a radioactive iodine treatment. Now hypothyroidism. I was diagnosed with T1D in my early 30s.

      5 years ago Log in to Reply
    10. Thomas Hatton

      I had Hyperthyroidism and I have a malignant nodule on my thyroid. I treated my hyperthyroidism without radiotherapy and it has gone into remission. My Endo verifyed it was malignant and checks the nodule every 6 months with a sonogram. And I agree with Sondra. This is much harder to use. We lost the feature to comment on other posts. My passwors wassuposed to port, but it took me 3 tries to reset it. This was because the password rules weren’t prominently displayed on the password reset page. Im sure others agree. The number of posts has dropped significantly, only 9 other comments at the time of this post. This is a case of newer not being better.

      5 years ago Log in to Reply
    11. Thomas Hatton

      Sorry, it was Jannet, not Saundra. We also lost the ability to edit our posted comments. 😒

      5 years ago Log in to Reply
    12. Jana Foley

      I do not suffer from hyperthyroidism. I also dislike the limiting features of this new question and answer page. Not only can we not reply directly to other people’s comments, we also cannot correct our own if we need to.

      5 years ago Log in to Reply
    13. Caroline Kwiatkowski

      Dx with Grave’s Disease at age 15. Had surgery then radioactive iodine one year later. Dx T1D at 40.

      5 years ago Log in to Reply
    14. Janis Senungetuk

      Yes, low thyroid dx in 2004. T1D dx in 1955. I wish to add my thoughts on the new combined website. The opening page is visually very difficult to follow. I’m hit with too many sections calling for my attention without a navigation guide. Simplify. Rethink User Experience (UX). The ability to personalize my answers is the reason I’ve continued to respond to the questions. The new format makes that more difficult. Placement for my response should be directly after answering the question. The new format didn’t transfer my profile photo or password. Asking me to login before answering a question should not be necessary , since you sent me the email. It’s definitely time for a response from TID Exchange. It’s definitely time for a response from TID Exchange.

      5 years ago Log in to Reply
    15. sara falconer

      Dxed t1d 1974. Dxed graves 1981. Treated with medication for year and it went into remission. It came back in 2002. Medication remission medication remission… finally had radio active iodine in 2013…. now hypo thyroid. F’n auto immune disorders

      5 years ago Log in to Reply
    16. Patty Harris

      This new format is NOT user friendly in my opinion. Please find something easier to use.

      5 years ago Log in to Reply
    17. Nicole Duggins

      My thyroid blood test shows slightly overactive, but I don’t have any issues from it.

      5 years ago Log in to Reply
    18. Ann Taylor

      I was dx with low thyroid when I was about 26 and then dx with T1D when I was 62 I also do not like having to put in my password every time so this is the 1st time I’ve answered a question since the change. Also there is too much stuff before answering the question

      5 years ago Log in to Reply
    19. Molly Jones

      I have acquired hypothyroidism. Diagnosed in my early twenties. Everyone family member on my mothers side of the family has had thyroid issues: her parents, her siblings, my maternal cousins, my sibling, ….

      5 years ago Log in to Reply
    20. kilupx

      I have had hypothyroid for 31 years and type 1 for 5. I take Synthroid and have never had problems. I couldn’t agree more with comments about new format being user unfriendly. I tried to like them but was unable to on my phone. Why can’t a redesigned website keep the interactive features of the previous one?

      5 years ago Log in to Reply
    21. Sally Numrich

      No one has thyroid issues. I am tested each year but still working well.

      5 years ago Log in to Reply
    22. Debbie Kolterman

      I was diagnosed with T1D and Hashimotos syndrome within a year or two of each other. I then was diagnosed with thyroid cancer and had a thyroidectomy in 1995.

      5 years ago Log in to Reply

    Do you (or your loved one with T1D) have thyroid issues in addition to T1D? Cancel reply

    You must be logged in to post a comment.




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