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    • 15 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 5 hours, 16 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 5 hours, 17 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 5 hours, 18 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 2 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 2 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 5 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 5 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    How important is the A1c measurement to you?

    Home > LC Polls > How important is the A1c measurement to you?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    40 Comments

    1. Janice B

      Time in range is much more important to me. A1C is not complete indicator of blood sugar management

      6
      2 years ago Log in to Reply
    2. Kathleen Juzenas

      I marked important. Also important is time in range.

      1
      2 years ago Log in to Reply
    3. Stephen Woodward

      With tge fact that A1c is an antiquated, subject , and unreliable lab test, with a CGM the data I have access to not make the A1c test irrelevant when assessing daily management.

      1
      2 years ago Log in to Reply
    4. Molly Jones

      I was wavering between important and very important, but then thought that I have never had an A1C above the 7 something. That would be very impacting and tell me something was very wrong.

      2 years ago Log in to Reply
    5. Ahh Life

      Television destroys nuance. You see so many ads for CGM’s touting “good A1c’s, good A1c’s” when in fact the CGM benefits of time in range and standard deviation make for very poor marketing phrases. Pity! The latter two push A1c down to “somewhat important” on my list. ( ͡❛ ‿‿ ͡❛)

      6
      2 years ago Log in to Reply
    6. Bonnie kenney

      My endo is more concerned with my Time in Range.

      3
      2 years ago Log in to Reply
    7. Nevin Bowman

      Important, but time in range and standard deviation are more important. That being said, if it came back over 6, I would make changes based on the other 2 criteria.

      2
      2 years ago Log in to Reply
    8. Clare Fishman

      It is not as important as time in range to me or my endo. A1C can be manipulated by donating blood. Time in range cannot.

      2
      2 years ago Log in to Reply
    9. Jane Cerullo

      Have always had A1c below 6 but now more interested in TIR. I have it set between 70-150 and mostly stay in the 90 -100 percentile. It is a struggle. The older I get the more complications I get. Not sure if all diabetes related. But life goes on.

      2 years ago Log in to Reply
    10. Rob Smith

      Used to be very important. Now somewhat. A good a1c keeps my endo happy but I’m relying more on TIR and std dev now.

      6
      2 years ago Log in to Reply
    11. Larry Martin

      Time in range means much more than A1C but I use a CGM so I know what my true time in range is. Checking your glucose once a day is not time in range. I run numbers weekly also so I pay attention to all the detail.

      1
      2 years ago Log in to Reply
    12. Lawrence S.

      I am currently struggling with very high blood sugar levels after meals. I just got done with my Endo visit. She wants me to add proteins to my meals, and make some adjustments to carb ratios, correction factors, and basal rates. When I saw that my A1c is currently 5.9, I find it hard to believe, given all of my high BG’s. But, I still consider the A1c to be “very important”. But, it doesn’t tell the whole story. I don’t believe my control is as good as it should be right now.

      2
      2 years ago Log in to Reply
    13. Marty

      My CGM data is far more informative about my glucose control because measurements actual blood glucose values every 5 min. Also, I have a blood condition that makes my red blood cells “younger” than average so they don’t accumulate glycosylation normally, which makes my A1c lower than it should be.

      1
      2 years ago Log in to Reply
    14. connie ker

      I follow all of the numbers because it is not a competition. I think all of the testing is important and it all helps patients and Drs understand what is happening which continually changes moment by moment. Happy 100th Birthday to Insulin!!!!! That’s the most important research that became a gift to all T1Ds.

      6
      2 years ago Log in to Reply
    15. TEH

      As others have said CGI and TIR are more important than A1C. All A1C gives you is a long term average, a macro view. It cant tell you where the trouble areas are. As other have indicated, CGI show you each response to each meal, a micro view. From that Carb ratios can be fine tuned. TIR tells you how well you stayed “in-bounds”. From that you can review what other outside influences are affecting you BG levels. I have good days and bad days I can see that with TIR.

      Tell that to you GP next time they don’t understand CGI and TIR.

      1
      2 years ago Log in to Reply
    16. Brett Jorgensen

      Time in range has become most important to me since getting a cam.

      2 years ago Log in to Reply
      1. Brett Jorgensen

        CGM

        1
        2 years ago Log in to Reply
    17. Annie Simon

      My endocrinologist would like to see it ar 7 or lower do that is my goal as I’m now ranging between 7.2-7.5….getting there🙏

      2 years ago Log in to Reply
    18. George Lovelace

      TIR which I found is dependent on SD

      2 years ago Log in to Reply
    19. Edward Geary

      Pretty useful and, in my experience, correlates strongly with time in range.

      2 years ago Log in to Reply
    20. TomH

      I put “somewhat” because I put equal, if not more, value in GMI and TIR. All three together serve as a verification check and balance to ensure an accurate perspective.

      1
      2 years ago Log in to Reply
    21. Mary Dexter

      I use a CGM. Anyone who wishes to know what my blood sugar has been for the past 3 months can look at each of the thousands of readings taken every 5 minutes during that time.

      2 years ago Log in to Reply
    22. Dave Akers

      If I’m showing ~80% TIR and less than 2%… I’m not worried about A1c… it will be under 6.5%.

      1
      2 years ago Log in to Reply
    23. Carol Meares

      If I keep my A1c between 5 and 6, I am good. The actual number beyond that is not important. My variability is very important to me. A1c would be very important to me if it went above 6 as I would know that my management was starting to falter a bit. Ha, I think I should have checked important. I have just had it between 5 and 6 for so long that I am working more on variability to make my days go better.

      1
      2 years ago Log in to Reply
    24. kflying1@yahoo.com

      What I’ve learned from experience is that I need to keep a higher than recommended BS level if I exercise, to prevent. going hypo.

      Of course, I could choose to be a couch potato with a great A1C.

      1
      2 years ago Log in to Reply
    25. Brad Cohen

      Totally unimportant. The new standard is Time in Range!

      2
      2 years ago Log in to Reply
    26. Becky Hertz

      I think time range is equally if not slightly more important

      1
      2 years ago Log in to Reply
    27. Janis Senungetuk

      A1c is important, but definitely not as important as TIR and Standard Deviation. Of utmost importance is QoL, quality of life.

      7
      2 years ago Log in to Reply
      1. ConnieT1D62

        I agree with you and say Amen to that!!!

        1
        2 years ago Log in to Reply
      2. KarenM6

        Janis and Connie –
        I agree wholeheartedly and unreservedly!! 🙂

        2 years ago Log in to Reply
    28. Cheryl Seibert

      A1C is important but a measurement that is losing it’s purpose with the ability to monitor Time In Range(TIR). I did not choose Very Important. Very Important is Time in Range. A1C is more or less and average, so if I am wildly swinging between lows and highs with more lows, my A1C would look very good <6.5. But you can have a very good Time in Range, but always run on the high side of normal range so A1C would be higher indicating a great TIR is not reflecting the optimal BG levels.

      2
      2 years ago Log in to Reply
    29. ConnieT1D62

      Not as important as it once was since TIR became the cutting edge and preferred method for assessing BG control. I still pay attention to A1c since most HCPs, insurance companies, and many PWDs still use it as their standard measure of understanding overall BG control. However, you don’t really get a picture of day to day TIR if you are not using a CGM.

      Diabetes science and technology has grown and changed by leaps and bounds since the discovery of how to use insulin as a hormone replacement for people with beta cell destruction and resultant insulin deficiency. However, not everyone uses a CGM to track BGs and TIR, so for the time being the two measurements of A1c and TIR can work alone and apart, as well as in tandem with each other.

      4
      2 years ago Log in to Reply
    30. KarenM6

      I only put “important” because the A1c is still being used as the gold standard and demarcation line for certain other medical services… despite the A1c needing to be customized to the patient and its known reliability problems.

      2 years ago Log in to Reply
    31. MARIE

      Very important… as one indicator.

      1
      2 years ago Log in to Reply
    32. LizB

      I put somewhat important. I think TIR is a better indication. My A1c has been in the same range for years but in the past I had so many serious lows and highs. Now I often have daily TIR of 100% or close to it and still have the same A1c as before.

      2 years ago Log in to Reply
    33. AnitaS

      I put important. I follow time-in-range all the time, but lets face it, if the time-in-range is always hovering around 165, the A1c isn’t going to be below 7. My A1cs typically are around 5.6-5.7, and if my time-in-ranges are typically around 92-95%, then I feel like I am handling my diabetes pretty well.

      2 years ago Log in to Reply
    34. Jodi Greenfield

      It helps me to keep track of how I’m doing. If it’s 7.5 or lower I’m happy. Right now it is 8.1, so I have to get back on track.

      2 years ago Log in to Reply
      1. TEH

        It took learning my TIR before I could get my A1C below 7.5. Im now at 6.9. Keep going. You can make it there!

        2 years ago Log in to Reply
    35. Savanna Vance

      I have my a1c checked at every endo appointment. However, my endo wants me to focus more on my time in range and what is going on in my life rather than my a1c because you can have a perfect a1c but low blood sugars all the time. Time in range is a better tool.

      2 years ago Log in to Reply
    36. Jane Cerullo

      Started with 4 day surgeries on my hands. Managed my pump and made sure anesthesiologist knew to keep eye on my numbers. Then had hip replaced. Stayed overnight and no problems managing my own blood sugars. I make sure to let everybody know just in case I have a problem.

      2 years ago Log in to Reply

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