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    • 1 hour, 52 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 52 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 2 hours, 8 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 2 hours, 9 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 29 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 38 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 38 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 35 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 51 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    How important is the A1c measurement to you?

    Home > LC Polls > How important is the A1c measurement to you?
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    40 Comments

    1. Janice B

      Time in range is much more important to me. A1C is not complete indicator of blood sugar management

      6
      1 year ago Log in to Reply
    2. Kathleen Juzenas

      I marked important. Also important is time in range.

      1
      1 year ago Log in to Reply
    3. Stephen Woodward

      With tge fact that A1c is an antiquated, subject , and unreliable lab test, with a CGM the data I have access to not make the A1c test irrelevant when assessing daily management.

      1
      1 year ago Log in to Reply
    4. Molly Jones

      I was wavering between important and very important, but then thought that I have never had an A1C above the 7 something. That would be very impacting and tell me something was very wrong.

      1 year ago Log in to Reply
    5. Ahh Life

      Television destroys nuance. You see so many ads for CGM’s touting ā€œgood A1c’s, good A1c’sā€ when in fact the CGM benefits of time in range and standard deviation make for very poor marketing phrases. Pity! The latter two push A1c down to ā€œsomewhat importantā€ on my list. ( Ķ”ā›ā€Æā€æā€æ Ķ”ā›)

      6
      1 year ago Log in to Reply
    6. Bonnie kenney

      My endo is more concerned with my Time in Range.

      3
      1 year ago Log in to Reply
    7. Nevin Bowman

      Important, but time in range and standard deviation are more important. That being said, if it came back over 6, I would make changes based on the other 2 criteria.

      2
      1 year ago Log in to Reply
    8. Clare Fishman

      It is not as important as time in range to me or my endo. A1C can be manipulated by donating blood. Time in range cannot.

      2
      1 year ago Log in to Reply
    9. Jane Cerullo

      Have always had A1c below 6 but now more interested in TIR. I have it set between 70-150 and mostly stay in the 90 -100 percentile. It is a struggle. The older I get the more complications I get. Not sure if all diabetes related. But life goes on.

      1 year ago Log in to Reply
    10. Rob Smith

      Used to be very important. Now somewhat. A good a1c keeps my endo happy but I’m relying more on TIR and std dev now.

      6
      1 year ago Log in to Reply
    11. Larry Martin

      Time in range means much more than A1C but I use a CGM so I know what my true time in range is. Checking your glucose once a day is not time in range. I run numbers weekly also so I pay attention to all the detail.

      1
      1 year ago Log in to Reply
    12. Lawrence S.

      I am currently struggling with very high blood sugar levels after meals. I just got done with my Endo visit. She wants me to add proteins to my meals, and make some adjustments to carb ratios, correction factors, and basal rates. When I saw that my A1c is currently 5.9, I find it hard to believe, given all of my high BG’s. But, I still consider the A1c to be “very important”. But, it doesn’t tell the whole story. I don’t believe my control is as good as it should be right now.

      2
      1 year ago Log in to Reply
    13. Marty

      My CGM data is far more informative about my glucose control because measurements actual blood glucose values every 5 min. Also, I have a blood condition that makes my red blood cells “younger” than average so they don’t accumulate glycosylation normally, which makes my A1c lower than it should be.

      1
      1 year ago Log in to Reply
    14. connie ker

      I follow all of the numbers because it is not a competition. I think all of the testing is important and it all helps patients and Drs understand what is happening which continually changes moment by moment. Happy 100th Birthday to Insulin!!!!! That’s the most important research that became a gift to all T1Ds.

      6
      1 year ago Log in to Reply
    15. TEH

      As others have said CGI and TIR are more important than A1C. All A1C gives you is a long term average, a macro view. It cant tell you where the trouble areas are. As other have indicated, CGI show you each response to each meal, a micro view. From that Carb ratios can be fine tuned. TIR tells you how well you stayed “in-bounds”. From that you can review what other outside influences are affecting you BG levels. I have good days and bad days I can see that with TIR.

      Tell that to you GP next time they don’t understand CGI and TIR.

      1
      1 year ago Log in to Reply
    16. Brett Jorgensen

      Time in range has become most important to me since getting a cam.

      1 year ago Log in to Reply
      1. Brett Jorgensen

        CGM

        1
        1 year ago Log in to Reply
    17. Annie Simon

      My endocrinologist would like to see it ar 7 or lower do that is my goal as I’m now ranging between 7.2-7.5….getting therešŸ™

      1 year ago Log in to Reply
    18. George Lovelace

      TIR which I found is dependent on SD

      1 year ago Log in to Reply
    19. Edward Geary

      Pretty useful and, in my experience, correlates strongly with time in range.

      1 year ago Log in to Reply
    20. TomH

      I put ā€œsomewhatā€ because I put equal, if not more, value in GMI and TIR. All three together serve as a verification check and balance to ensure an accurate perspective.

      1
      1 year ago Log in to Reply
    21. Mary Dexter

      I use a CGM. Anyone who wishes to know what my blood sugar has been for the past 3 months can look at each of the thousands of readings taken every 5 minutes during that time.

      1 year ago Log in to Reply
    22. Dave Akers

      If I’m showing ~80% TIR and less than 2%… I’m not worried about A1c… it will be under 6.5%.

      1
      1 year ago Log in to Reply
    23. Carol Meares

      If I keep my A1c between 5 and 6, I am good. The actual number beyond that is not important. My variability is very important to me. A1c would be very important to me if it went above 6 as I would know that my management was starting to falter a bit. Ha, I think I should have checked important. I have just had it between 5 and 6 for so long that I am working more on variability to make my days go better.

      1
      1 year ago Log in to Reply
    24. kflying1@yahoo.com

      What I’ve learned from experience is that I need to keep a higher than recommended BS level if I exercise, to prevent. going hypo.

      Of course, I could choose to be a couch potato with a great A1C.

      1
      1 year ago Log in to Reply
    25. Brad Cohen

      Totally unimportant. The new standard is Time in Range!

      2
      1 year ago Log in to Reply
    26. Becky Hertz

      I think time range is equally if not slightly more important

      1
      1 year ago Log in to Reply
    27. Janis Senungetuk

      A1c is important, but definitely not as important as TIR and Standard Deviation. Of utmost importance is QoL, quality of life.

      7
      1 year ago Log in to Reply
      1. ConnieT1D62

        I agree with you and say Amen to that!!!

        1
        1 year ago Log in to Reply
      2. KarenM6

        Janis and Connie –
        I agree wholeheartedly and unreservedly!! šŸ™‚

        1 year ago Log in to Reply
    28. Cheryl Seibert

      A1C is important but a measurement that is losing it’s purpose with the ability to monitor Time In Range(TIR). I did not choose Very Important. Very Important is Time in Range. A1C is more or less and average, so if I am wildly swinging between lows and highs with more lows, my A1C would look very good <6.5. But you can have a very good Time in Range, but always run on the high side of normal range so A1C would be higher indicating a great TIR is not reflecting the optimal BG levels.

      2
      1 year ago Log in to Reply
    29. ConnieT1D62

      Not as important as it once was since TIR became the cutting edge and preferred method for assessing BG control. I still pay attention to A1c since most HCPs, insurance companies, and many PWDs still use it as their standard measure of understanding overall BG control. However, you don’t really get a picture of day to day TIR if you are not using a CGM.

      Diabetes science and technology has grown and changed by leaps and bounds since the discovery of how to use insulin as a hormone replacement for people with beta cell destruction and resultant insulin deficiency. However, not everyone uses a CGM to track BGs and TIR, so for the time being the two measurements of A1c and TIR can work alone and apart, as well as in tandem with each other.

      4
      1 year ago Log in to Reply
    30. KarenM6

      I only put “important” because the A1c is still being used as the gold standard and demarcation line for certain other medical services… despite the A1c needing to be customized to the patient and its known reliability problems.

      1 year ago Log in to Reply
    31. MARIE

      Very important… as one indicator.

      1
      1 year ago Log in to Reply
    32. LizB

      I put somewhat important. I think TIR is a better indication. My A1c has been in the same range for years but in the past I had so many serious lows and highs. Now I often have daily TIR of 100% or close to it and still have the same A1c as before.

      1 year ago Log in to Reply
    33. AnitaS

      I put important. I follow time-in-range all the time, but lets face it, if the time-in-range is always hovering around 165, the A1c isn’t going to be below 7. My A1cs typically are around 5.6-5.7, and if my time-in-ranges are typically around 92-95%, then I feel like I am handling my diabetes pretty well.

      1 year ago Log in to Reply
    34. Jodi Greenfield

      It helps me to keep track of how I’m doing. If it’s 7.5 or lower I’m happy. Right now it is 8.1, so I have to get back on track.

      1 year ago Log in to Reply
      1. TEH

        It took learning my TIR before I could get my A1C below 7.5. Im now at 6.9. Keep going. You can make it there!

        1 year ago Log in to Reply
    35. Savanna Vance

      I have my a1c checked at every endo appointment. However, my endo wants me to focus more on my time in range and what is going on in my life rather than my a1c because you can have a perfect a1c but low blood sugars all the time. Time in range is a better tool.

      1 year ago Log in to Reply
    36. Jane Cerullo

      Started with 4 day surgeries on my hands. Managed my pump and made sure anesthesiologist knew to keep eye on my numbers. Then had hip replaced. Stayed overnight and no problems managing my own blood sugars. I make sure to let everybody know just in case I have a problem.

      1 year ago Log in to Reply

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