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    • 14 hours, 57 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 59 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 15 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 15 hours, 1 minute ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 9 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 1 minute ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 17 hours, 2 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 4 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 5 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 7 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 52 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    How important is the A1c measurement to you?

    Home > LC Polls > How important is the A1c measurement to you?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. Janice B

      Time in range is much more important to me. A1C is not complete indicator of blood sugar management

      6
      4 years ago Log in to Reply
    2. Kathleen Juzenas

      I marked important. Also important is time in range.

      1
      4 years ago Log in to Reply
    3. Stephen Woodward

      With tge fact that A1c is an antiquated, subject , and unreliable lab test, with a CGM the data I have access to not make the A1c test irrelevant when assessing daily management.

      1
      4 years ago Log in to Reply
    4. Molly Jones

      I was wavering between important and very important, but then thought that I have never had an A1C above the 7 something. That would be very impacting and tell me something was very wrong.

      4 years ago Log in to Reply
    5. Ahh Life

      Television destroys nuance. You see so many ads for CGM’s touting “good A1c’s, good A1c’s” when in fact the CGM benefits of time in range and standard deviation make for very poor marketing phrases. Pity! The latter two push A1c down to “somewhat important” on my list. ( ͡❛ ‿‿ ͡❛)

      6
      4 years ago Log in to Reply
    6. Bonnie kenney

      My endo is more concerned with my Time in Range.

      3
      4 years ago Log in to Reply
    7. Nevin Bowman

      Important, but time in range and standard deviation are more important. That being said, if it came back over 6, I would make changes based on the other 2 criteria.

      2
      4 years ago Log in to Reply
    8. Clare Fishman

      It is not as important as time in range to me or my endo. A1C can be manipulated by donating blood. Time in range cannot.

      2
      4 years ago Log in to Reply
    9. Jane Cerullo

      Have always had A1c below 6 but now more interested in TIR. I have it set between 70-150 and mostly stay in the 90 -100 percentile. It is a struggle. The older I get the more complications I get. Not sure if all diabetes related. But life goes on.

      4 years ago Log in to Reply
    10. Rob Smith

      Used to be very important. Now somewhat. A good a1c keeps my endo happy but I’m relying more on TIR and std dev now.

      6
      4 years ago Log in to Reply
    11. Larry Martin

      Time in range means much more than A1C but I use a CGM so I know what my true time in range is. Checking your glucose once a day is not time in range. I run numbers weekly also so I pay attention to all the detail.

      1
      4 years ago Log in to Reply
    12. Lawrence S.

      I am currently struggling with very high blood sugar levels after meals. I just got done with my Endo visit. She wants me to add proteins to my meals, and make some adjustments to carb ratios, correction factors, and basal rates. When I saw that my A1c is currently 5.9, I find it hard to believe, given all of my high BG’s. But, I still consider the A1c to be “very important”. But, it doesn’t tell the whole story. I don’t believe my control is as good as it should be right now.

      2
      4 years ago Log in to Reply
    13. Marty

      My CGM data is far more informative about my glucose control because measurements actual blood glucose values every 5 min. Also, I have a blood condition that makes my red blood cells “younger” than average so they don’t accumulate glycosylation normally, which makes my A1c lower than it should be.

      1
      4 years ago Log in to Reply
    14. connie ker

      I follow all of the numbers because it is not a competition. I think all of the testing is important and it all helps patients and Drs understand what is happening which continually changes moment by moment. Happy 100th Birthday to Insulin!!!!! That’s the most important research that became a gift to all T1Ds.

      6
      4 years ago Log in to Reply
    15. TEH

      As others have said CGI and TIR are more important than A1C. All A1C gives you is a long term average, a macro view. It cant tell you where the trouble areas are. As other have indicated, CGI show you each response to each meal, a micro view. From that Carb ratios can be fine tuned. TIR tells you how well you stayed “in-bounds”. From that you can review what other outside influences are affecting you BG levels. I have good days and bad days I can see that with TIR.

      Tell that to you GP next time they don’t understand CGI and TIR.

      1
      4 years ago Log in to Reply
    16. Brett Jorgensen

      Time in range has become most important to me since getting a cam.

      4 years ago Log in to Reply
      1. Brett Jorgensen

        CGM

        1
        4 years ago Log in to Reply
    17. Annie Simon

      My endocrinologist would like to see it ar 7 or lower do that is my goal as I’m now ranging between 7.2-7.5….getting there🙏

      4 years ago Log in to Reply
    18. George Lovelace

      TIR which I found is dependent on SD

      4 years ago Log in to Reply
    19. Edward Geary

      Pretty useful and, in my experience, correlates strongly with time in range.

      4 years ago Log in to Reply
    20. TomH

      I put “somewhat” because I put equal, if not more, value in GMI and TIR. All three together serve as a verification check and balance to ensure an accurate perspective.

      1
      4 years ago Log in to Reply
    21. Mary Dexter

      I use a CGM. Anyone who wishes to know what my blood sugar has been for the past 3 months can look at each of the thousands of readings taken every 5 minutes during that time.

      4 years ago Log in to Reply
    22. Dave Akers

      If I’m showing ~80% TIR and less than 2%… I’m not worried about A1c… it will be under 6.5%.

      1
      4 years ago Log in to Reply
    23. Carol Meares

      If I keep my A1c between 5 and 6, I am good. The actual number beyond that is not important. My variability is very important to me. A1c would be very important to me if it went above 6 as I would know that my management was starting to falter a bit. Ha, I think I should have checked important. I have just had it between 5 and 6 for so long that I am working more on variability to make my days go better.

      1
      4 years ago Log in to Reply
    24. kflying1@yahoo.com

      What I’ve learned from experience is that I need to keep a higher than recommended BS level if I exercise, to prevent. going hypo.

      Of course, I could choose to be a couch potato with a great A1C.

      1
      4 years ago Log in to Reply
    25. Brad Cohen

      Totally unimportant. The new standard is Time in Range!

      2
      4 years ago Log in to Reply
    26. Becky Hertz

      I think time range is equally if not slightly more important

      1
      4 years ago Log in to Reply
    27. Janis Senungetuk

      A1c is important, but definitely not as important as TIR and Standard Deviation. Of utmost importance is QoL, quality of life.

      7
      4 years ago Log in to Reply
      1. ConnieT1D62

        I agree with you and say Amen to that!!!

        1
        4 years ago Log in to Reply
      2. KarenM6

        Janis and Connie –
        I agree wholeheartedly and unreservedly!! 🙂

        4 years ago Log in to Reply
    28. Cheryl Seibert

      A1C is important but a measurement that is losing it’s purpose with the ability to monitor Time In Range(TIR). I did not choose Very Important. Very Important is Time in Range. A1C is more or less and average, so if I am wildly swinging between lows and highs with more lows, my A1C would look very good <6.5. But you can have a very good Time in Range, but always run on the high side of normal range so A1C would be higher indicating a great TIR is not reflecting the optimal BG levels.

      2
      4 years ago Log in to Reply
    29. ConnieT1D62

      Not as important as it once was since TIR became the cutting edge and preferred method for assessing BG control. I still pay attention to A1c since most HCPs, insurance companies, and many PWDs still use it as their standard measure of understanding overall BG control. However, you don’t really get a picture of day to day TIR if you are not using a CGM.

      Diabetes science and technology has grown and changed by leaps and bounds since the discovery of how to use insulin as a hormone replacement for people with beta cell destruction and resultant insulin deficiency. However, not everyone uses a CGM to track BGs and TIR, so for the time being the two measurements of A1c and TIR can work alone and apart, as well as in tandem with each other.

      4
      4 years ago Log in to Reply
    30. KarenM6

      I only put “important” because the A1c is still being used as the gold standard and demarcation line for certain other medical services… despite the A1c needing to be customized to the patient and its known reliability problems.

      4 years ago Log in to Reply
    31. MARIE

      Very important… as one indicator.

      1
      4 years ago Log in to Reply
    32. LizB

      I put somewhat important. I think TIR is a better indication. My A1c has been in the same range for years but in the past I had so many serious lows and highs. Now I often have daily TIR of 100% or close to it and still have the same A1c as before.

      4 years ago Log in to Reply
    33. AnitaS

      I put important. I follow time-in-range all the time, but lets face it, if the time-in-range is always hovering around 165, the A1c isn’t going to be below 7. My A1cs typically are around 5.6-5.7, and if my time-in-ranges are typically around 92-95%, then I feel like I am handling my diabetes pretty well.

      4 years ago Log in to Reply
    34. Jodi Greenfield

      It helps me to keep track of how I’m doing. If it’s 7.5 or lower I’m happy. Right now it is 8.1, so I have to get back on track.

      4 years ago Log in to Reply
      1. TEH

        It took learning my TIR before I could get my A1C below 7.5. Im now at 6.9. Keep going. You can make it there!

        4 years ago Log in to Reply
    35. Savanna Vance

      I have my a1c checked at every endo appointment. However, my endo wants me to focus more on my time in range and what is going on in my life rather than my a1c because you can have a perfect a1c but low blood sugars all the time. Time in range is a better tool.

      4 years ago Log in to Reply
    36. Jane Cerullo

      Started with 4 day surgeries on my hands. Managed my pump and made sure anesthesiologist knew to keep eye on my numbers. Then had hip replaced. Stayed overnight and no problems managing my own blood sugars. I make sure to let everybody know just in case I have a problem.

      4 years ago Log in to Reply

    How important is the A1c measurement to you? Cancel reply

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