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    • 3 hours, 37 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 3 hours, 37 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 4 hours, 6 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 12 hours, 28 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 22 hours, 1 minute ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 22 hours, 2 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 22 hours, 2 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 22 hours, 3 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 2 hours ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 8 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 12 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 12 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 10 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 11 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 11 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    22 Comments

    1. Bruce Johnson

      Right now I will not be able to afford any more meds/supplies until June. This is where long-term methods of rationing both food and insulin/supplies has been useful to avoid getting too anxious about it. Just use your common sense.

      3
      3 years ago Log in to Reply
    2. Mary Berube

      Not concerned since I just maxed out my deductible

      3 years ago Log in to Reply
    3. Mick Martin

      I’m not concerned as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are free to all diabetics receiving treatment. This is financed via our NHS (National Health Service), which is financed via direct taxation of all working people.

      4
      3 years ago Log in to Reply
    4. Mark Schweim

      No concern as long as current employment continues. Current job is the first job I’ve had in 25 years that had NO copayment or out-of-pocket cost to CGM related supplies and the ONLY supplies I currently have to pay anything for are a couple non-Diabetes related prescriptions, my pump infusion sets and my pump cartridges, and the ONLY supplies not covered by my pharmacy benefits are the cartridges for my pump!!!

      1
      3 years ago Log in to Reply
    5. Ahh Life

      As a recent newspaper headline said, “The war on poverty in America is over. The rich won.”

      12
      3 years ago Log in to Reply
    6. Jane Cerullo

      Only concern is idiot politicians not funding Medicare. Other than that not concerned.

      6
      3 years ago Log in to Reply
    7. Nevin Bowman

      The deductible itself is a killer. I definitely feel for those who have to pay for everything up front!

      4
      3 years ago Log in to Reply
    8. Janice Bohn

      I have great insurance through Medicare and my Medicare Supplement so no worries about affording medications or supplies. My concern is affording the insurance premiums when I am no longer working. Hoping to work til 70 but husbands Alzheimer’s is getting worse so not sure I will be able to work another 4 years.

      2
      3 years ago Log in to Reply
    9. Lmiller

      Insurance reimbursement is constantly getting worse. When I retire I really worry about affording my supplies.

      1
      3 years ago Log in to Reply
    10. Gerald Oefelein

      Medicare and supplemental insurance (Cigna) cover 100% of supplies after meeting medicare deductible in January.

      3 years ago Log in to Reply
    11. cynthia jaworski

      We seldom spend money on anything other than the basics in life, so I am able to absorb the chaotic increases in out-of-pocket insulin costs. A new twist has emerged. Recently, the pharmacy refused to fill the entire prescribed amount, explaining that it is expensive. I was told to have a new prescription written for the remainder of my insulin supply. The pharmacist also complained about it being inappropriate to give me more than the precise number of insulin pens prescribed, but he felt it was not permissible to break up the box of 5 pens.

      Sounds unbelievable, right? My insurance company felt that I had misunderstood, so they contacted the pharmacy. As a result of that contact, the insurance folks arranged for me to get my supplies from a pharmacy that complied with the rules.

      3
      3 years ago Log in to Reply
    12. Lori Lehnen

      I put a little concerned even though currently my supplies and equipment are fully paid for and my insulin copay is small. I’m self-employed and my insurance is through my husband’s employer. Maybe because I’m not in control of insurance and diabetic needs are literally life-saving needs, every time I get new supplies, I wonder what would I do if I lose coverage before the next order & had to pay full price.

      8
      3 years ago Log in to Reply
      1. Anneyun

        Same situation for me. My husband’s business might go under and it is their insurance that I use.

        1
        3 years ago Log in to Reply
    13. Catherine Davis

      I met my out-of-pocket costs limit in March. Thank you Obamacare!!

      2
      3 years ago Log in to Reply
    14. Becky Hertz

      As of July, hopefully my months supply of insulin will be considerably less expensive.

      3 years ago Log in to Reply
    15. sweetcharlie

      The medicare ruleing of Max. cost of insulin for $35 permonth [I think] is confusing……. pens come in box of 5 pens at 10 days per pen…. no cost limit for needles, or syringes….. vial of insulin expires after 42 days…. etc….. some of oldies recall back when the pig and cow insulin cost $1.25 and you used the whole vial and sharpened your needles and boiled your glass syringes..

      3 years ago Log in to Reply
    16. Donna Condi

      I Thank God I’ve always had good insurance and now I’m on Medicare now so I can afford everything but the only problem is actuality getting my stuff because of pre-authorization holdups and all the paperwork required by Medicare.

      1
      3 years ago Log in to Reply
    17. Jneticdiabetic

      I’m really lucky to be covered by employer insurance and be able to afford my copays.

      3 years ago Log in to Reply
    18. Molly Jones

      I put a little concerned as I am aware of how lucky my medical services and supplies are compared to so many other people in the world and I don’t take this for granted.

      1
      3 years ago Log in to Reply
    19. Steven Gill

      By “A little” I mean I budget for it. My eating out, stuff like that is limited to be sure all my meds are covered (when working and with insurance, now retired and paying out of pocket). Called being as grown up?

      3 years ago Log in to Reply
    20. mbulzomi@optonline.net

      I’m on Medicare Part “B” which covers all my Pump and Sensor needs. Along with my Federal Employer Program, Blue Cross, Blue Shield, secondary Insurance. Northing out of pocket except the yearly deductibles.

      3 years ago Log in to Reply
    21. Wanacure

      I try not to fret about things that have not happened.

      3 years ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

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