Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 21 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 9 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 52 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 15 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 38 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 35 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
    Previous

    When eating a food that you are not very familiar with, how often do you look up the nutritional information for the food you are about to eat?

    Next

    For CGM users: How long have you been using a CGM?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    22 Comments

    1. Bruce Johnson

      Right now I will not be able to afford any more meds/supplies until June. This is where long-term methods of rationing both food and insulin/supplies has been useful to avoid getting too anxious about it. Just use your common sense.

      3
      3 years ago Log in to Reply
    2. Mary Berube

      Not concerned since I just maxed out my deductible

      3 years ago Log in to Reply
    3. Mick Martin

      I’m not concerned as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are free to all diabetics receiving treatment. This is financed via our NHS (National Health Service), which is financed via direct taxation of all working people.

      4
      3 years ago Log in to Reply
    4. Mark Schweim

      No concern as long as current employment continues. Current job is the first job I’ve had in 25 years that had NO copayment or out-of-pocket cost to CGM related supplies and the ONLY supplies I currently have to pay anything for are a couple non-Diabetes related prescriptions, my pump infusion sets and my pump cartridges, and the ONLY supplies not covered by my pharmacy benefits are the cartridges for my pump!!!

      1
      3 years ago Log in to Reply
    5. Ahh Life

      As a recent newspaper headline said, “The war on poverty in America is over. The rich won.”

      12
      3 years ago Log in to Reply
    6. Jane Cerullo

      Only concern is idiot politicians not funding Medicare. Other than that not concerned.

      6
      3 years ago Log in to Reply
    7. Nevin Bowman

      The deductible itself is a killer. I definitely feel for those who have to pay for everything up front!

      4
      3 years ago Log in to Reply
    8. Janice Bohn

      I have great insurance through Medicare and my Medicare Supplement so no worries about affording medications or supplies. My concern is affording the insurance premiums when I am no longer working. Hoping to work til 70 but husbands Alzheimer’s is getting worse so not sure I will be able to work another 4 years.

      2
      3 years ago Log in to Reply
    9. Lmiller

      Insurance reimbursement is constantly getting worse. When I retire I really worry about affording my supplies.

      1
      3 years ago Log in to Reply
    10. Gerald Oefelein

      Medicare and supplemental insurance (Cigna) cover 100% of supplies after meeting medicare deductible in January.

      3 years ago Log in to Reply
    11. cynthia jaworski

      We seldom spend money on anything other than the basics in life, so I am able to absorb the chaotic increases in out-of-pocket insulin costs. A new twist has emerged. Recently, the pharmacy refused to fill the entire prescribed amount, explaining that it is expensive. I was told to have a new prescription written for the remainder of my insulin supply. The pharmacist also complained about it being inappropriate to give me more than the precise number of insulin pens prescribed, but he felt it was not permissible to break up the box of 5 pens.

      Sounds unbelievable, right? My insurance company felt that I had misunderstood, so they contacted the pharmacy. As a result of that contact, the insurance folks arranged for me to get my supplies from a pharmacy that complied with the rules.

      3
      3 years ago Log in to Reply
    12. Lori Lehnen

      I put a little concerned even though currently my supplies and equipment are fully paid for and my insulin copay is small. I’m self-employed and my insurance is through my husband’s employer. Maybe because I’m not in control of insurance and diabetic needs are literally life-saving needs, every time I get new supplies, I wonder what would I do if I lose coverage before the next order & had to pay full price.

      8
      3 years ago Log in to Reply
      1. Anneyun

        Same situation for me. My husband’s business might go under and it is their insurance that I use.

        1
        3 years ago Log in to Reply
    13. Catherine Davis

      I met my out-of-pocket costs limit in March. Thank you Obamacare!!

      2
      3 years ago Log in to Reply
    14. Becky Hertz

      As of July, hopefully my months supply of insulin will be considerably less expensive.

      3 years ago Log in to Reply
    15. sweetcharlie

      The medicare ruleing of Max. cost of insulin for $35 permonth [I think] is confusing……. pens come in box of 5 pens at 10 days per pen…. no cost limit for needles, or syringes….. vial of insulin expires after 42 days…. etc….. some of oldies recall back when the pig and cow insulin cost $1.25 and you used the whole vial and sharpened your needles and boiled your glass syringes..

      3 years ago Log in to Reply
    16. Donna Condi

      I Thank God I’ve always had good insurance and now I’m on Medicare now so I can afford everything but the only problem is actuality getting my stuff because of pre-authorization holdups and all the paperwork required by Medicare.

      1
      3 years ago Log in to Reply
    17. Jneticdiabetic

      I’m really lucky to be covered by employer insurance and be able to afford my copays.

      3 years ago Log in to Reply
    18. Molly Jones

      I put a little concerned as I am aware of how lucky my medical services and supplies are compared to so many other people in the world and I don’t take this for granted.

      1
      3 years ago Log in to Reply
    19. Steven Gill

      By “A little” I mean I budget for it. My eating out, stuff like that is limited to be sure all my meds are covered (when working and with insurance, now retired and paying out of pocket). Called being as grown up?

      3 years ago Log in to Reply
    20. mbulzomi@optonline.net

      I’m on Medicare Part “B” which covers all my Pump and Sensor needs. Along with my Federal Employer Program, Blue Cross, Blue Shield, secondary Insurance. Northing out of pocket except the yearly deductibles.

      3 years ago Log in to Reply
    21. Wanacure

      I try not to fret about things that have not happened.

      3 years ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]