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    • 1 hour ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 hour ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 15 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 2 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 2 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 2 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 2 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 21 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 5 hours, 42 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 4 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 27 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 28 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 28 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 43 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 44 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 7 hours, 45 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 22 hours, 45 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 22 hours, 45 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 22 hours, 46 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 4 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
    Previous

    When eating a food that you are not very familiar with, how often do you look up the nutritional information for the food you are about to eat?

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    For CGM users: How long have you been using a CGM?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Bruce Johnson

      Right now I will not be able to afford any more meds/supplies until June. This is where long-term methods of rationing both food and insulin/supplies has been useful to avoid getting too anxious about it. Just use your common sense.

      3
      3 years ago Log in to Reply
    2. Mary Berube

      Not concerned since I just maxed out my deductible

      3 years ago Log in to Reply
    3. Mick Martin

      I’m not concerned as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are free to all diabetics receiving treatment. This is financed via our NHS (National Health Service), which is financed via direct taxation of all working people.

      4
      3 years ago Log in to Reply
    4. Mark Schweim

      No concern as long as current employment continues. Current job is the first job I’ve had in 25 years that had NO copayment or out-of-pocket cost to CGM related supplies and the ONLY supplies I currently have to pay anything for are a couple non-Diabetes related prescriptions, my pump infusion sets and my pump cartridges, and the ONLY supplies not covered by my pharmacy benefits are the cartridges for my pump!!!

      1
      3 years ago Log in to Reply
    5. Ahh Life

      As a recent newspaper headline said, “The war on poverty in America is over. The rich won.”

      12
      3 years ago Log in to Reply
    6. Jane Cerullo

      Only concern is idiot politicians not funding Medicare. Other than that not concerned.

      6
      3 years ago Log in to Reply
    7. Nevin Bowman

      The deductible itself is a killer. I definitely feel for those who have to pay for everything up front!

      4
      3 years ago Log in to Reply
    8. Janice Bohn

      I have great insurance through Medicare and my Medicare Supplement so no worries about affording medications or supplies. My concern is affording the insurance premiums when I am no longer working. Hoping to work til 70 but husbands Alzheimer’s is getting worse so not sure I will be able to work another 4 years.

      2
      3 years ago Log in to Reply
    9. Lmiller

      Insurance reimbursement is constantly getting worse. When I retire I really worry about affording my supplies.

      1
      3 years ago Log in to Reply
    10. Gerald Oefelein

      Medicare and supplemental insurance (Cigna) cover 100% of supplies after meeting medicare deductible in January.

      3 years ago Log in to Reply
    11. cynthia jaworski

      We seldom spend money on anything other than the basics in life, so I am able to absorb the chaotic increases in out-of-pocket insulin costs. A new twist has emerged. Recently, the pharmacy refused to fill the entire prescribed amount, explaining that it is expensive. I was told to have a new prescription written for the remainder of my insulin supply. The pharmacist also complained about it being inappropriate to give me more than the precise number of insulin pens prescribed, but he felt it was not permissible to break up the box of 5 pens.

      Sounds unbelievable, right? My insurance company felt that I had misunderstood, so they contacted the pharmacy. As a result of that contact, the insurance folks arranged for me to get my supplies from a pharmacy that complied with the rules.

      3
      3 years ago Log in to Reply
    12. Lori Lehnen

      I put a little concerned even though currently my supplies and equipment are fully paid for and my insulin copay is small. I’m self-employed and my insurance is through my husband’s employer. Maybe because I’m not in control of insurance and diabetic needs are literally life-saving needs, every time I get new supplies, I wonder what would I do if I lose coverage before the next order & had to pay full price.

      8
      3 years ago Log in to Reply
      1. Anneyun

        Same situation for me. My husband’s business might go under and it is their insurance that I use.

        1
        3 years ago Log in to Reply
    13. Catherine Davis

      I met my out-of-pocket costs limit in March. Thank you Obamacare!!

      2
      3 years ago Log in to Reply
    14. Becky Hertz

      As of July, hopefully my months supply of insulin will be considerably less expensive.

      3 years ago Log in to Reply
    15. sweetcharlie

      The medicare ruleing of Max. cost of insulin for $35 permonth [I think] is confusing……. pens come in box of 5 pens at 10 days per pen…. no cost limit for needles, or syringes….. vial of insulin expires after 42 days…. etc….. some of oldies recall back when the pig and cow insulin cost $1.25 and you used the whole vial and sharpened your needles and boiled your glass syringes..

      3 years ago Log in to Reply
    16. Donna Condi

      I Thank God I’ve always had good insurance and now I’m on Medicare now so I can afford everything but the only problem is actuality getting my stuff because of pre-authorization holdups and all the paperwork required by Medicare.

      1
      3 years ago Log in to Reply
    17. Jneticdiabetic

      I’m really lucky to be covered by employer insurance and be able to afford my copays.

      3 years ago Log in to Reply
    18. Molly Jones

      I put a little concerned as I am aware of how lucky my medical services and supplies are compared to so many other people in the world and I don’t take this for granted.

      1
      3 years ago Log in to Reply
    19. Steven Gill

      By “A little” I mean I budget for it. My eating out, stuff like that is limited to be sure all my meds are covered (when working and with insurance, now retired and paying out of pocket). Called being as grown up?

      3 years ago Log in to Reply
    20. mbulzomi@optonline.net

      I’m on Medicare Part “B” which covers all my Pump and Sensor needs. Along with my Federal Employer Program, Blue Cross, Blue Shield, secondary Insurance. Northing out of pocket except the yearly deductibles.

      3 years ago Log in to Reply
    21. Wanacure

      I try not to fret about things that have not happened.

      3 years ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

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