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  • Activity
    • 1 hour, 23 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 1 hour, 23 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 1 hour, 24 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 1 hour, 24 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 1 hour, 24 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 12 hours, 53 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 12 hours, 53 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 12 hours, 55 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 15 hours, 58 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 19 hours, 55 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 21 hours, 3 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 26 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 22 hours, 26 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 22 hours, 26 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 22 hours, 50 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 22 hours, 50 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 22 hours, 50 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 22 hours, 51 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 23 hours ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 23 hours, 1 minute ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 23 hours, 1 minute ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 23 hours, 2 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 23 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 23 hours, 3 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
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    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
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    For CGM users: How long have you been using a CGM?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Bruce Johnson

      Right now I will not be able to afford any more meds/supplies until June. This is where long-term methods of rationing both food and insulin/supplies has been useful to avoid getting too anxious about it. Just use your common sense.

      3
      3 weeks ago Log in to Reply
    2. Mary Berube

      Not concerned since I just maxed out my deductible

      3 weeks ago Log in to Reply
    3. Mick Martin

      I’m not concerned as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are free to all diabetics receiving treatment. This is financed via our NHS (National Health Service), which is financed via direct taxation of all working people.

      4
      3 weeks ago Log in to Reply
    4. Mark Schweim

      No concern as long as current employment continues. Current job is the first job I’ve had in 25 years that had NO copayment or out-of-pocket cost to CGM related supplies and the ONLY supplies I currently have to pay anything for are a couple non-Diabetes related prescriptions, my pump infusion sets and my pump cartridges, and the ONLY supplies not covered by my pharmacy benefits are the cartridges for my pump!!!

      1
      3 weeks ago Log in to Reply
    5. Ahh Life

      As a recent newspaper headline said, “The war on poverty in America is over. The rich won.”

      12
      3 weeks ago Log in to Reply
    6. Jane Cerullo

      Only concern is idiot politicians not funding Medicare. Other than that not concerned.

      6
      3 weeks ago Log in to Reply
    7. Nevin Bowman

      The deductible itself is a killer. I definitely feel for those who have to pay for everything up front!

      4
      3 weeks ago Log in to Reply
    8. Janice Bohn

      I have great insurance through Medicare and my Medicare Supplement so no worries about affording medications or supplies. My concern is affording the insurance premiums when I am no longer working. Hoping to work til 70 but husbands Alzheimer’s is getting worse so not sure I will be able to work another 4 years.

      2
      3 weeks ago Log in to Reply
    9. Lmiller

      Insurance reimbursement is constantly getting worse. When I retire I really worry about affording my supplies.

      1
      3 weeks ago Log in to Reply
    10. Gerald Oefelein

      Medicare and supplemental insurance (Cigna) cover 100% of supplies after meeting medicare deductible in January.

      3 weeks ago Log in to Reply
    11. cynthia jaworski

      We seldom spend money on anything other than the basics in life, so I am able to absorb the chaotic increases in out-of-pocket insulin costs. A new twist has emerged. Recently, the pharmacy refused to fill the entire prescribed amount, explaining that it is expensive. I was told to have a new prescription written for the remainder of my insulin supply. The pharmacist also complained about it being inappropriate to give me more than the precise number of insulin pens prescribed, but he felt it was not permissible to break up the box of 5 pens.

      Sounds unbelievable, right? My insurance company felt that I had misunderstood, so they contacted the pharmacy. As a result of that contact, the insurance folks arranged for me to get my supplies from a pharmacy that complied with the rules.

      3
      3 weeks ago Log in to Reply
    12. Lori Lehnen

      I put a little concerned even though currently my supplies and equipment are fully paid for and my insulin copay is small. I’m self-employed and my insurance is through my husband’s employer. Maybe because I’m not in control of insurance and diabetic needs are literally life-saving needs, every time I get new supplies, I wonder what would I do if I lose coverage before the next order & had to pay full price.

      8
      3 weeks ago Log in to Reply
      1. Anneyun

        Same situation for me. My husband’s business might go under and it is their insurance that I use.

        1
        3 weeks ago Log in to Reply
    13. Catherine Davis

      I met my out-of-pocket costs limit in March. Thank you Obamacare!!

      2
      3 weeks ago Log in to Reply
    14. Becky Hertz

      As of July, hopefully my months supply of insulin will be considerably less expensive.

      3 weeks ago Log in to Reply
    15. sweetcharlie

      The medicare ruleing of Max. cost of insulin for $35 permonth [I think] is confusing……. pens come in box of 5 pens at 10 days per pen…. no cost limit for needles, or syringes….. vial of insulin expires after 42 days…. etc….. some of oldies recall back when the pig and cow insulin cost $1.25 and you used the whole vial and sharpened your needles and boiled your glass syringes..

      3 weeks ago Log in to Reply
    16. Donna Condi

      I Thank God I’ve always had good insurance and now I’m on Medicare now so I can afford everything but the only problem is actuality getting my stuff because of pre-authorization holdups and all the paperwork required by Medicare.

      1
      2 weeks ago Log in to Reply
    17. Jneticdiabetic

      I’m really lucky to be covered by employer insurance and be able to afford my copays.

      2 weeks ago Log in to Reply
    18. Molly Jones

      I put a little concerned as I am aware of how lucky my medical services and supplies are compared to so many other people in the world and I don’t take this for granted.

      1
      2 weeks ago Log in to Reply
    19. Steven Gill

      By “A little” I mean I budget for it. My eating out, stuff like that is limited to be sure all my meds are covered (when working and with insurance, now retired and paying out of pocket). Called being as grown up?

      2 weeks ago Log in to Reply
    20. mbulzomi@optonline.net

      I’m on Medicare Part “B” which covers all my Pump and Sensor needs. Along with my Federal Employer Program, Blue Cross, Blue Shield, secondary Insurance. Northing out of pocket except the yearly deductibles.

      2 weeks ago Log in to Reply
    21. Wanacure

      I try not to fret about things that have not happened.

      1 week ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

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