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    • 1 hour, 29 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you had any issues obtaining life insurance because of T1D?

    Home > LC Polls > Have you had any issues obtaining life insurance because of T1D?
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    Has a stranger ever approached you to talk about your visible diabetes device(s)?

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    If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    39 Comments

    1. Lawrence S.

      I answered “no, I have not tried to by life insurance.” But, after thinking more about it, many years ago, maybe in the 1980’s I applied for life insurance with a private company and was denied because I have T1D. No great loss. I was able to buy life insurance through my employer.

      3 years ago Log in to Reply
    2. Nevin Bowman

      Privately, there is not a chance, but fortunately, I work for a company where I could get 2 policies through group plans.

      3 years ago Log in to Reply
    3. Ginger Vieira

      I could’ve gotten it, but it was going to be at least $600/month and thus not worth it. They don’t care what your A1c is, the diagnosis is just marked immediately as high-risk. Not fair!

      1
      3 years ago Log in to Reply
    4. Keith LeMar

      Yes Ive been denied many times even though I have A1C’s below 6.3 for many years and no other health issues except T1D. I have been accepted but the premiums are exorbitant, no way I could afford them. Very frustrating

      3 years ago Log in to Reply
    5. Cristina Jorge Schwarz

      Luckily, I got life insurance in my early 20s. My T1D came along in my early 40s. I haven’t tried increasing it because I fear the repercussions of telling them!

      3 years ago Log in to Reply
    6. GLORIA MILLER

      When I was working I could get it as a group policy but there was no way of getting it privately without an exorbitantly high premium. Not that I am retired, that is out of the question. Sure wish I had been able to get it but I developed T1 at age 7.

      3 years ago Log in to Reply
    7. Kristine Warmecke

      My brother and I (both T1D) were very fortunate that our parents bought life insurance for us before we were each diagnosed. Grateful for the Church member who convinced them it would be a smart idea to do so before we were 6 months old.

      3 years ago Log in to Reply
    8. KIMBERELY SMITH

      No I haven’t

      3 years ago Log in to Reply
    9. Julie Blehm

      I was refused by most companies. The company who finally insured me charges me a great deal more than average because of my diabetes

      3 years ago Log in to Reply
    10. mojoseje

      As an adult, I was denied several times but my dad got one when I was 11—diabetic from age 7. I shake my head because I have a great A1c and have outlived several friends and family who were considered to have had good health.

      1
      3 years ago Log in to Reply
    11. Glenda Schuessler

      I am grateful that I had life insurance prior to my diagnosis (age 40). Different issue, but I was also able to get long term care insurance. Perhaps T1D would like to ask a question regarding long term care insurance.

      1
      3 years ago Log in to Reply
    12. Brian Vodehnal

      They do increase your monthly rate over folks that don’t have T1D which is b.s. in my opinion because we see doctors more often.

      3 years ago Log in to Reply
    13. Eva

      No never asked for it. I don’t care to deal with businesses whose sole business model is to calculate the rate of return based on interest rates relative to presumed life expectancy, morbidity and severity of claims. Thank you, but I’d rather invest the money my myself.

      0
      3 years ago Log in to Reply
    14. Mary Halverson

      I had life insurance in place before my LADA diagnosis.

      3 years ago Log in to Reply
    15. Jian

      I already had insurance before I got T1D but my daughter was refused till she was 16 then we got it for her (it was because she had diabetes and if you reach age of 16 they figure you are a good bet. I think we had to pay slightly more but not much).

      3 years ago Log in to Reply
    16. Bob Durstenfeld

      The only way I was able to obtain life insurance was through my employment. At one employer I was able to roll over the life insurance into a personal whole life policy , without medical questions.

      1
      3 years ago Log in to Reply
    17. Janis Senungetuk

      Yes. At 23, after the birth of our daughter, I was told I was uninsurable because of T1D dx at the age of 8.

      3 years ago Log in to Reply
    18. AnitaS

      No, I was always insured under my employer’s offerings for insurance

      1
      3 years ago Log in to Reply
    19. TEH

      I had life insurance through my employer and independently before I was Dx’ed with T1D. Still have the independent insurance.

      3 years ago Log in to Reply
    20. Britni

      Said no because I’ve only ever had life insurance through my employer. I’ve never tried to obtain it independently before.

      1
      3 years ago Log in to Reply
    21. Michelle Saunders

      My mom tried when I was a teen was told my attempt at suicide and my diabetes made it a no go. When in my late 20s I tried when I was eligible through work and was told I couldn’t get the extra beyond the basic because of my diabetes.

      3 years ago Log in to Reply
    22. terrih57@msn.com

      The real answer is Yes but I have only thought about and then decided against because I knew I either would be denied or it would cost more. Fortunately I got extra life insurance when I was first diagnosed. Hopefully enough. It’s crazy to think only healthy people can get reasonably priced insurance.

      3 years ago Log in to Reply
    23. Lisa Sierra

      I can’t carry life insurance because I get my health insurance through medicaire because of a disability.

      3 years ago Log in to Reply
    24. Mark Schweim

      I haven’t tried getting life insurance since my T1D diagnosis, but I have had life insurance through my job everywhere I have worked since my T1D diagnosis since employer offered insurance says they can’t exclude any employees from any of the insurance benefits offered by the company.

      3 years ago Log in to Reply
    25. Ken Raiche

      I answered no but I applied way back when the only yet major issue is the cost.

      3 years ago Log in to Reply
    26. Wanacure

      I don’t need it ‘cause I don’t have kids & never been married. But years ago I had it free courtesy of my credit union. It was free to any member who wanted it. You also got reimbursed if you lost a hand, more if you lost both hands or a hand and a foot, and so on. No medical exams required. I signed up for it, since it was free. But this is not offered anymore. For many others this is a very important social equity issue that clearly needs attention.

      3 years ago Log in to Reply
    27. Lynn Smith

      I wouldn’t say I have had issues. I just had to pay a higher premium. But, that was over 25 years ago. I haven’t had life insurance since then.

      3 years ago Log in to Reply
    28. Jan Masty

      Yes. I had a smaller life insurance policy through work but wanted more due to some family circumstances. I got it but had to pass a physical and pay quite a bit for it.. thingsa have changed and I lowered the amount and pay less now. I get it though about it being hard for insurance companies.. they have no idea who of us type 1’s are going to have longevity.

      3 years ago Log in to Reply
    29. ConnieT1D62

      Always had it through employers. Now that I am retired, got a cheap reasonable plan with no questions asked from Colonial Penn to cover final expenses. I don’t have kids or family members to worry about who will rely on financial support from me after I am gone to the Hereafter. Anything leftover will go to select .org charitable funds.

      1
      3 years ago Log in to Reply
    30. Tb-well

      I have two policies which will cover me without the need for a medical exam. I purposefully avoid the ones that require a medical exam.

      3 years ago Log in to Reply
    31. Ahh Life

      Ancient history, but in the late 1990’s while touring Buckingham Palace in an area with multiple “NO PHOTOGRAPHY” signs, I whipped out my Medtronic to bolus a bit.

      Female guard came unglued. She was ready to banish me from the kingdom for taking pictures. And even when provided an explanation, her eldritch manner did not allow for a smile. Must be a requirement of the job. 💂‍♀️

      3 years ago Log in to Reply
      1. Ahh Life

        Oops. Answer posted to the wrong question. Sorry.

        3 years ago Log in to Reply
    32. KarenM6

      When I’ve had employers who offered insurance, I could get it. But, I’ve tried a couple of times privately and was denied without a “by your leave.”
      My current employer doesn’t offer any insurance benefits, so I don’t have it. But, as a few others have mentioned, I don’t have kids to worry about! I will likely get the Colonial Penn insurance in a few years because they have the “no questions asked” plan!

      3 years ago Log in to Reply
    33. Donna Condi

      I purchased my life insurance before I was diagnosed with diabetes at age 42.

      3 years ago Log in to Reply
    34. PamK

      Basic life insurance through work I can get, but if I try to upgrade or purchase a policy outside of work I get denied because of my diabetes. Note, this is even though I have been well controlled for over 50 years with this disease!

      3 years ago Log in to Reply
    35. T1D4LongTime

      Always refused for individual life insurance and Long-Term Care Insurance. T1D since 6 years old for 56 years. The only way to get insurance is to work at a company that offers a group plan that is convertible to a private policy if you resign. Insurance companies are very biased against diabetics. Many of us are much healthier than the average person.

      1
      3 years ago Log in to Reply
    36. Becky Lamont

      Yes. I was diagnosed in 1996 & my father demanded that a life insurance policy be obtained for me because he was not going to pay for my burial. I was 17. He was not a nice person. I’ve always had trouble getting life insurance, but still have the burial policy, modified & adjusted by me to provide benefits to my heirs 57 years later. ;> )

      3 years ago Log in to Reply
    37. Jeff Balbirnie

      Yup, vitriolic hostile experience, several times. Once upon a time had an incompetent MD (an internist) who made a series of hostile assumptions (no basis in fact-medical science) who black balled me to a life insurance company. So hostile, the insurance agent got me a copy of the doctors cover letter and worked zealously to eventually find me life insurance and more importantly a NEW physician!!!

      3 years ago Log in to Reply
    38. Elizabeth Jones

      I am disabled due to a brain tumor, so my husband has life insurance since he works full time. My brother who is type 1 as well has term life insurance. He never had a problem getting it.

      3 years ago Log in to Reply

    Have you had any issues obtaining life insurance because of T1D? Cancel reply

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