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    • 15 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 15 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 31 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 32 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 2 hours, 52 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 1 minute ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 1 minute ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 11 hours, 58 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 14 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 23 hours, 24 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 3 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!

    Home > LC Polls > Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
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    46 Comments

    1. jamesmpii

      I volunteered with Beyond Type 1 and put up diabetes awareness posters around my area. Then I never heard from the organization again.

      3 weeks ago Log in to Reply
    2. sweet charlie

      YES…. with Joslin…. They wanted Proof from my Doctors… who were all DEAD !!!

      2
      3 weeks ago Log in to Reply
    3. ConnieT1D62

      Yes – as a young adult peer group facilitator and leader in the 1980s with Long Island and NYC ADA chapters; as a PODS leader for Diabetes Sisters from 2009 to 2020; and as a RN, CDE for TCOYD events.

      4
      3 weeks ago Log in to Reply
    4. Wanacure

      I volunteered with JDRF for Gingerbread House fund raiser one day one winter. At that time JDRF was mostly parents of T1Ds. I also used to make monthly donations to JDRF to ā€œfind a cure.ā€ No cures, but I guess JDRF can be credited for research leading to insulin pumps & lobbying for and publicizing their use.
      0n my own initiative I ran a UW Experimental College type 1 diabetes discussion group in my home. We learned from each other meeting weekly for 3 months.

      2
      3 weeks ago Log in to Reply
    5. Britni

      For both Joslin and JDRF. Collected donations at a movie theater for Joslin twice, pre-Covid. Been volunteering for JDRF in one way or another since I was a kid. One Walk, holiday gift wrapping, Children’s Congress, Online Diabetes Support Team…

      2
      3 weeks ago Log in to Reply
    6. Ahh Life

      Unless you live in a too rural an area, there are probably diabetic support groups everywhere.

      I once sat in the back with another guy and we compared pump indicators and directional arrows. Guess we were talking a little too loud. Anyway, he said, ā€œ194ā€ and I said ā€œSee ya one and raise you two.ā€

      The room erupted in laughter. Maybe they thought we were playing poker.

      2
      2 weeks ago Log in to Reply
    7. Mark Fuller

      30 years on the Board of the Barton Center for Diabetes Education. Past chair and current Treasurer.
      Diabetes Center of Excellence for UMASS Medical School.

      2
      2 weeks ago Log in to Reply
    8. Barbara Bubar

      I wasn’t counting being a Medalist with Joslin although you did have to submit all kinds of things for proof of longevity. I did go there twice for all kinds of testing and I had to “volunteer” in terms of agreeing to do it.

      2
      2 weeks ago Log in to Reply
    9. ELYSSE HELLER

      Yes, with JDRF. Also volunteered with my brother when he was a medical student at Maimonides Hospital where they were studying gestational diabetes.

      1
      2 weeks ago Log in to Reply
    10. Sealani Weiner

      I didn’t directly, but did work on getting speakers for a support group.

      1
      2 weeks ago Log in to Reply
    11. eherban1

      When the ADA had a state affiliate system, I was the chairman of the NJ affiliate Government Relations Committee. We got a bill passed in NJ that mandated coverage for all diabetes related therapies, medicines and supplies (back then, insulin and testing supplies weren’t covered by most insurances b/c they were not prescription meds). This was the second such bill passed nationwide. The reason it was newsworthy was because we convinced a GOP legislature to pass it and a GOP governor to sign it into law. After our success, I worked with the national organization to train others to repeat the process in other states and to lobby Congress for an analog bill for medicare medicaid.

      5
      2 weeks ago Log in to Reply
      1. Bill Marston

        Spectacular efforts & accomplishments, eherban1 wherever you are!

        Now you might help get Medicare’s $35/month insulin copay to apply to pump users. Ack!! I learned today that it doesn’t consider pump-delivered insulin to qualify under the brand new 2023 bill’s cap on copay!!! Impossible to imagine how IBX Keystone65HMO Basic Rx had their lawyers find that ā€˜loophole’ in the federal law!
        Just one of the grotesque idiocities that insurance layers over & through its plans IN CONTRAVENTION to what was indisputably the intent of Congress & the President – to cap the diabetic’s out-of-pocket spending for insulin.

        Here in Philly, I’ve become infuriated & expecting to put in my first ever volunteering as a ā€œdiabetes lobbyistā€!

        2 weeks ago Log in to Reply
    12. Jeff Perzan

      Have been a member of the ADA for decades and served as Board Member, including Chair and ‘educate’ legislators in diabetes-related matters including various legislation drafting and passage. Provide pro bono services for people with diabetes including children in 504 and IEP matters and prisoners.

      3
      2 weeks ago Log in to Reply
    13. Clare Fishman

      I am a PODS leader for women with diabetes in the greater Boston area. We have monthly zoom meetings offering peer support and education.

      3
      2 weeks ago Log in to Reply
      1. cynthia jaworski

        What is PODS?

        2
        2 weeks ago Log in to Reply
    14. Georgina Sokol

      I am TID 58 years. I have offered to volunteer at JDF and Bonfils in Denver several times. I have been totally ignored and received no response in any case.

      2
      2 weeks ago Log in to Reply
    15. Glen Heatherington

      Diabetes Canada
      JDRF

      1
      2 weeks ago Log in to Reply
    16. KCR

      I am a moderator for a smaller diabetes forum.

      1
      2 weeks ago Log in to Reply
    17. Richard Vaughn

      I volunteered as a participant in the Joslin Medalist Study in 2009 and 2017.
      I am a member of about 30 diabetes support groups on Facebook. I have made many posts there to help in the understanding the disease. I also post about the history of type 1 diabetes, starting in 1945. Many FB friends like learning about diabetes management in the past.

      4
      2 weeks ago Log in to Reply
    18. Vicki Breckenridge

      I was on the ADA board for a number of years and felt like I was on the payroll. When the office closed, because there was no staff, I dismantled the office.

      1
      2 weeks ago Log in to Reply
    19. Ernie Richmann

      Camp Ho Mita Koda located in Newbury Ohio. Camphomotakoda.org
      Also JDRF

      1
      2 weeks ago Log in to Reply
    20. Jillmarie61

      My mom started our local chapter of the ADA and ran it for several years until it closed. Then starting in my early 20’s I volunteered for the ADA doing young adult weekend getaways, besides working for them during the summers until I had a family of my own.

      More recently (the last 10-15 years), I have occasionally volunteered with the local chapter of the JDRF besides ADA at their walks, teaching todays kids about diabetes, mentoring newly diagnosed diabetic families, and letter writing lawmakers for change in health care policies and access to care to care for diabetics.

      1
      2 weeks ago Log in to Reply
    21. Bob Durstenfeld

      I use to coach newly diagnosed teen. I would tell them to treat T1D like a pet rattlesnake, feed it carefully, treat it with respect, but thet are ornery and may bite you anyway.

      5
      2 weeks ago Log in to Reply
    22. cynthia jaworski

      After my dx at age 10, my parents became very involved in what was then called the Diabetes Lay Society of Washington, DC. They often “volunteered” me to help as a hostess at meetings, etc and occasionally appeared as a speaker in a youth panel.
      My doctor would send me to visit newly diagnosed T1 teenagers when they were in the hospital. I remember feeling awkward at the time, but in later years I was told that meeting another person their own age was really helpful.

      3
      2 weeks ago Log in to Reply
    23. Amy Jo

      JDRF in college

      2
      2 weeks ago Log in to Reply
    24. William Bennett

      I’ve been a moderator for the TUDiabetes forum for 8(?) years or so.

      3
      2 weeks ago Log in to Reply
    25. Janis Senungetuk

      I checked “no” because I don’t consider Joslin a volunteer organization. I’m enrolled in the Joslin 50 Year Medalist study, have volunteered 4 times for a variety of clinical studies with Joslin. Twenty years ago I donated a portrait drawing gift certificate to the local JDRF fundraiser. Although I learned it received bids and was sold, I was never contacted by JDRF or the winner.

      2
      2 weeks ago Log in to Reply
    26. George Lovelace

      JDRF and ADA of course and I moderated a Local Support Group for Parents and Kids but paid special attention to http://www.insulin-pumpers.org/

      2
      2 weeks ago Log in to Reply
    27. Bob Jackson

      I was the chairman of “Outreach” for the Diabetes Society of the Santa Clara Valley in the late 70’s and early 80’s.

      2
      2 weeks ago Log in to Reply
    28. Sherrie Johnson

      I am in the 50 year medalist study with Joslin in Boston. I have traveled there 3 times and have done bloodwork locally.

      2
      2 weeks ago Log in to Reply
    29. Mick Martin

      Although I selected no, that REALLY depends on what YOU mean by “volunteered with a diabetes-related organization”. I was the first person, in the area that I live, to have tried pump technology. It was dependent on how well I coped, and how the technology suited me as to whether others would have been allowed to trial the technology.

      2
      2 weeks ago Log in to Reply
    30. TomH

      Haven’t found a local group in my area.

      1
      2 weeks ago Log in to Reply
    31. KC

      I put “no” because I didn’t really consider helping to raise money for JDRF volunteering…but now that I see others’ answers…maybe I was mistaken? I mean, it was more sharing my team link online so that doesn’t feel like volunteering haha

      2
      2 weeks ago Log in to Reply
    32. Mary Ann Sayers

      I have only been involved in a few 50 year Medalist studies.

      1
      2 weeks ago Log in to Reply
    33. Jeannie Hickey

      57 years wt T1D. Have volunteered 19 years with Diabetes Youth & Families camps (camp nurse for the 2 month season) & Dogs4Diabetics since it started in 2004. Also several Zoom support groups in the SF Bay Area. I find it invigorating to have a Diabetes Community.

      1
      2 weeks ago Log in to Reply
    34. Virginia Barndollar

      I have been a volunteer at our Pittsburgh chapter of the ADA, every year the ADA has a week long camp for kids with T1DM. I volunteer on the medical team and I can truly say that it is one of my favorite weeks of the summer.

      1
      2 weeks ago Log in to Reply
    35. Steve Rumble

      Years ago, while in college, I volunteered with a local chapter of the American Diabetes Association. Mostly involved with fundraising activities.

      1
      2 weeks ago Log in to Reply
    36. Dawn Adams

      Yes. As a volunteer with DiabetesUKNI I present my lived experiences of having T1D to undergrad pharmacists and midwives; speak to people at agricultural shows about life with diabetes including signs, symptoms, challenges and peer support; also help develop peer support programs and social meet ups.

      1
      2 weeks ago Log in to Reply
    37. Claude Laforest

      I figured after 36 years that, as a T1D, I needed a different approach than T2D. I got involved in a QuĆ©bec association dedicated to decrease our mental load, which means to address any obstacle that stands in front of our physical and mental health. 70% of DT1 patients don’t get below an average 8.5 mmol, T1D is still too complex to avoid related complications.

      1
      2 weeks ago Log in to Reply
    38. lenglish@cimginc.com

      I work with DiabetesSisters! Love meeting with women who have either Type 1 or 2 and supporting/helping them on their diabetes journey!

      1
      2 weeks ago Log in to Reply
    39. Rebecca Jervey

      I sometimes think maybe I volunteer too much… but I can’t imagine not doing so! I am on Camp Nejeda’s walk-a-thon committee, I volunteer in the adult programming of the Children with Diabetes Friends for Life conference, I help moderate the Loop and Learn facebook group, I show up to help at local JDRF and ADA galas, walks, and rides. Diabetes is a huge part of my life and I like giving back so volunteering is a very natural way to do that!

      1
      2 weeks ago Log in to Reply
    40. PamK

      I was a “mentor” for JDRF before they had mentors and were still called JDF. I had been helping out in the office near my home and after listening to me on the phone the director asked if I would be interested in speaking with newly diagnosed T1D’s who had questions. I said, “Sure!” and so I started. A few years back I called my local chapter (I have moved, so new locale) to offer my help. I was told that this position is now called a mentor. Guess I was one of the firsts! šŸ™‚

      1
      2 weeks ago Log in to Reply
      1. PamK

        I have also volunteered for the walks/runs and the Gala.

        2 weeks ago Log in to Reply
    41. Bill Marston

      Clinical research is important across the health care industry – it is how we have all the things we count on for our personal health care: appropriately educated and practice-tested physicians, nurse, technicians; medications & therapeutics; diagnostic criteria, identification, treatments et al; the entire range of devices from lab analyzers, thru ambulatory sensors/monitors, wearable/portable maintenance systems like pacemakers, insulin infusion pumps & continuous glucose monitors – just to skim the massive depth of what we all benefit from. One way that they all come to us is via human clinical trials.
      I have volunteered as a patient in a handful of such trials.

      2 weeks ago Log in to Reply
    42. Savanna Vance

      I have been a camp counselor for the ADA at a camp for kids with diabetes. I have also volunteered at JDRF One Walks and was an intern at the JDRF Advocacy Office

      2 weeks ago Log in to Reply
    43. Patricia Dalrymple

      When I was first diagnosed 23 years ago I went to a planning meeting for a run/walk. They served real coke and pizza. Never went back.

      2 weeks ago Log in to Reply

    Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments! Cancel reply

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