Bill Marston – T1D Exchange

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- 1 year, 2 months ago
  
  Patricia Dalrymple has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  When I was first diagnosed 23 years ago I went to a planning meeting for a run/walk. They served real coke and pizza. Never went back.
- 1 year, 3 months ago
  
  Savanna Vance has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I have been a camp counselor for the ADA at a camp for kids with diabetes. I have also volunteered at JDRF One Walks and was an intern at the JDRF Advocacy Office
- 1 year, 4 months ago
  
  Tom Webb has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Never be afraid to state your fears and admiration to your friends ✨️ If you do not know, ask a question.
- 1 year, 5 months ago
  
  Rose Lentzke has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Be patient and learn as much as you can about how to take care of yourself.
- 1 year, 5 months ago
  
  PamK has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I would let the person/people know that you can live a long, happy, healthy life with diabetes as long as you keep your blood sugars controlled. That is the key! It may take some time to get regulated, but once you do, stay that way. It's the best thing for you and you'll feel so much better if you do. Also, don't fret over the occasional high or low blood sugar. They will happen. It's just part of life with diabetes.
- 1 year, 5 months ago
  
  Melissa Childers has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Blood sugar numbers are treatment tools, not a judgement on how well you are doing.
- 1 year, 5 months ago
  
  John Henninger has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  1. Electronics have totally improved T1D management. Use them. 2. Team up with a specialist/clinic on T1D if possible. 3. A good life and T1D can work. 4. I learned more about food and my functioning as a human as a T1D than I ever imagined.
- 1 year, 5 months ago
  
  M McSwain has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Subscribe to the Juicebox Podcast
- 1 year, 5 months ago
  
  Alejandra Marquez has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I would say look for a support group at the online diabetes community near you.
- 1 year, 5 months ago
  
  Brian Vodehnal has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  you are your own best clinician. never stop testing or monitoring your blood sugars. things will change and things will not be perfect or under control all the time. you are human and you make mistakes...learn and move on. never be afraid to ask for help.
- 1 year, 5 months ago
  
  Bob Jackson has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  1. Make sure your doctor is a diabetic specialist. 2. Find a support group. 3. Educate yourself on diabetes.
- 1 year, 5 months ago
  
  Anneyun has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Both my shoulders were frozen for 6 years. I had a cortisone shot in each (at different times). The cortisone put my into ketoacidosis but it did relieve a lot of the pain for the remaining years. And they did ‘unfreeze” on their own and I have good range of motion now.
- 1 year, 5 months ago
  
  Emily Meister has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Learn all you can about T1D and always advocate for yourself. Stay in control, do not let it control you. Be realistic, the better controlled you are the better your life and health will be. There is very few things you cannot accomplish. Stay positive.
- 1 year, 5 months ago
  
  Tb-well has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  You only get one body. Do your best to take care of it and don’t be afraid to ask questions of doctors and endocrinologists.
- 1 year, 5 months ago
  
  Kim Murphy has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Diabetes is a disease you can live with. The pump and CGM are crucial to good control and will help you or your child avoid complications from the Diabetes. That being said you have to advocate for yourself in order to get most health Insurance companies to pay for anything other than syringes. It takes a lot of time to jump through all the hoops and to get your Doc to document and send all the paperwork for the Prior Authorization. Don't give up it is worth the effort to get the pump and CGM. Even with insurance prepare for it to cost a lot of money. I felt like diabetes was a death sentence when I first heard about my Diagnosis. Now 37 years later I realize it can be dealt with and you can have an almost normal life.
- 1 year, 5 months ago
  
  Lawrence S. has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I had/have frozen shoulders. I had surgery on my right shoulder around 2000, and my left shoulder around 2010. The 2000 surgery went well, with long physical therapy. I never was fully recovered. But, at least I could use it. After about 12 years, I was back to pre-2000 on that shoulder. My left shoulder, 2010, turned out worse after surgery. I was in terrible pain for several years, with long-term physical therapy. It is improved now, but still partially frozen.
- 1 year, 5 months ago
  
  anj1832 has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  You are not alone. You’re not the only one going through this. Look for social media groups to join to gain support and share experiences. Don’t ever think you are “failing.” This isn’t a pass or fail type of disease.. you’ll have your good days and you’ll have your fair share of bad ones too. Don’t let the bad days get you down. Each day is a new day to reset.
- 1 year, 5 months ago
  
  Carolann Hunt has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Get a Dexcom as soon as possible
- 1 year, 5 months ago
  
  Teri Morris has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  TID dx - April 1979 I am currently living with frozen shoulders for almost two years now. Physiotherapist said there's nothing they can do, as shoulders are "fuzed" with only 40% movement. How long did you live with your frozen shoulder, and what was the surgery/recovery like? It did not come back?
- 1 year, 5 months ago
  
  Teri Morris has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Try not to let the endocrinologist's judgement bother you to the core. You're doing the best you can, and they are there to help you achieve that.
- 1 year, 5 months ago
  
  jbielecki has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Give yourself grace. Really. Be kind to yourself. Strong long-term care takes an incredible amount of self-advocacy with your care team, so it's important to keep your emotional batteries charged so that you're able to be in the driver's seat to get the best available guidance and support.
- 1 year, 5 months ago
  
  Jan Masty likes your comment at
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Telling someone that "carbs are your enemy" is likely to ruin their life and squash its joy. Suggest, rather, that they see carbs like the water in a swimming pool, the rain from the sky, the air you breathe now. They are just different things you live with, and ALL of them require that you, kid, will have to learn enough to live with them. and, yeah, that can be scary sometimes, or make you angry, but nobody wants to be that way all the time. See joy in learning something new, in making new buddies, in knowing how to do things that nobody else in your class does. Strive for getting an "A" grade by learning from any mistakes or lack of understanding – that is always something to look forward to!
- 1 year, 5 months ago
  
  Jan Masty has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Don’t expect perfection! You have some leeway but you have to figure out where and how much. Try to live a regular life in spite of the diabetes. It’ll keep you much happier.. I have done the above for 63 years of diabetes and am still doing well. It’s doable!
- 1 year, 5 months ago
  
  Molly Jones has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  My advice exactly. Education helps incredibly. After you get the basics down you can find CME (continuing medical education) at regular diabetic websites that can be quite helpful as they are directed towards the professionals or look toward pubmed.gov the national library of medicine for endocrinology journals. They can help with your individual problems.
- 1 year, 5 months ago
  
  sweet charlie likes your comment at
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Telling someone that "carbs are your enemy" is likely to ruin their life and squash its joy. Suggest, rather, that they see carbs like the water in a swimming pool, the rain from the sky, the air you breathe now. They are just different things you live with, and ALL of them require that you, kid, will have to learn enough to live with them. and, yeah, that can be scary sometimes, or make you angry, but nobody wants to be that way all the time. See joy in learning something new, in making new buddies, in knowing how to do things that nobody else in your class does. Strive for getting an "A" grade by learning from any mistakes or lack of understanding – that is always something to look forward to!
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Bill Marston

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