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  • Activity
    • 3 hours, 7 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 49 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 4 hours, 6 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 6 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 22 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 4 hours, 23 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 23 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 24 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 5 hours, 44 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 5 hours, 45 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 5 hours, 46 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 5 hours, 47 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 5 hours, 48 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 5 hours, 48 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 5 hours, 49 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 5 hours, 50 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 8 hours, 46 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 8 hours, 46 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 8 hours, 47 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 8 hours, 47 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 9 hours, 34 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 10 hours, 2 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 10 hours, 2 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 10 hours, 3 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 10 hours, 3 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    Have you ever used inhaled insulin?

    Home > LC Polls > Have you ever used inhaled insulin?
    Previous

    CGM sensors are only approved for specific areas of the body, but many people use other locations. If you use a CGM, do you have an area of your body where you feel you get the most accurate sensor readings? Select all that apply!

    Next

    If you use the time-in-range metric, how often would you estimate you typically look at your time-in-range reports?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    35 Comments

    1. AnitaS

      I have used it a few times, but since I only use it when my sugar is very high (300+), I very rarely use it. It tends to drop my sugar too low so I really don’t like to use it. Even when my sugar has reached over 300 (like when my infusion set accidentally got dislodged), my sugar drops too low when using the afrezza so I have to consume some carbs to not go too low.

      2
      7 months ago Log in to Reply
      1. Amanda Barras

        I just posted a comment where I thought this might be useful for a stubborn high or a failed sight. But, I haven’t used it myself. Good to know that going too low is a possibility!

        1
        7 months ago Log in to Reply
    2. Julie Pierce

      I have used inhaled insulin while participating in a study.

      7 months ago Log in to Reply
    3. Amanda Barras

      No, and with using the pump I’d be worried about stacking insulin if I did both. But, I think it could be useful to use like a rescue inhaler for a stubborn high to help bring it down quicker, for situations like failed sites or miss calculated carbs.

      3
      7 months ago Log in to Reply
    4. Judith Marged

      I tried inhalable insulin in a clinical trial. Once it was approved, I fought with my insurance company to cover it. I have been using Afrezza for several years now. My A1C went from 7.9 to 6.4 in the first three months. As long as I have been using Afrezza, I have never had an A1C above 6.9, which is amazing for a brittle diabetic.

      6
      7 months ago Log in to Reply
    5. Joan McGinnis

      I di not fit criteria for it have very mild asthmas, and rhinnorhea. dont think i need to try it happy with pump and sensor.

      1
      7 months ago Log in to Reply
    6. Brian Vodehnal

      It’s a game changer for treating a high. They need to work on the harshness of the delivery. Anything over 12 units is brutal.

      1
      7 months ago Log in to Reply
      1. KCR

        I primarily use it for high BGs as well—so fast, easier then an IM injection.

        7 months ago Log in to Reply
      2. Dave Akers

        There’s nothing higher than 12u cartridge to inhale. You can take multiple doses if needed.

        7 months ago Log in to Reply
    7. cynthia jaworski

      I was offered a trial, but turned it down when I learned that the smallest increment was 2 units.
      After more consideration, I think it might be useful for combating highs. Room what i read here, I would probably need less than what is typically needed for a high. However, I am still reluctant to add yet another insulin type to my collection of meds.

      7 months ago Log in to Reply
    8. Marty

      I’d love to try it to deal with highs quickly, but it’s very expensive and not covered by any Medicare supplemental drug plan as far as I know. I wonder if the $35 monthly limit on insulin costs starting in 2023 will change that.

      7 months ago Log in to Reply
    9. Ginger Vieira

      I LOVE inhaled insulin. I resisted trying it for years but it is a game-changer! There are so many misconceptions about how it works.
      Read more about my experience here on T1D Exchange: https://t1dexchange.org/my-a1c-dropped-from-6-1-to-5-7-using-inhaled-insulin-gingers-story/

      1
      7 months ago Log in to Reply
    10. Lyn McQuaid

      I have never used it but am interested in keeping it on hand for extreme highs, which seem to happen to me with pump cannula occlusions now and then. However, when I broached it with my endo, he said he wasn’t comfortable prescribing it, even for occasional use. 🤷‍♀️

      1
      7 months ago Log in to Reply
    11. Tb-well

      No, the initial release and the cancer numbers make me super hesitant to use it.

      7 months ago Log in to Reply
      1. Dave Akers

        What is your claim based on? Please site your source so we can fact check. Been using it for 4yrs straight. Seen no reports on what you’re saying.

        7 months ago Log in to Reply
    12. Bob Durstenfeld

      I tried, but was refused due to asthma. I was interested in using it to correct for high bg’s.

      7 months ago Log in to Reply
    13. mbulzomi@optonline.net

      I was in a test program using Inhaled Insulin and the test turned out to be a failure. The inhaled insulin only came in fixed dosage; however, it never covered my Bolous requirements. Only pumpers were used so as our Basels were fixed in place.

      7 months ago Log in to Reply
    14. Dave Akers

      You CANNOT match the onset, peak, and IOB time with any other insulin. Injectable isn’t for everyone, but almost everyone is on it. There is another option.
      I LIVE IT & LOVE IT!

      7 months ago Log in to Reply
    15. Sherolyn Newell

      I haven’t used it, and it sounds like I can’t. An adjustment bolus for me, even at 300, is quite a bit less than 2 units. Also, my bolus for a snack is less than 2 units.

      7 months ago Log in to Reply
    16. Sherrie Johnson

      Tried a sample wasn’t for me

      7 months ago Log in to Reply
    17. Rick Martin

      I use it as my only short-acting insulin. Due to scar tissue, inhaled has worked so much better than injections/pump. My A1c has been 6.1 since being on Afrezza for a few years now.

      1
      7 months ago Log in to Reply
    18. Kristine Warmecke

      No. My endocrinologist wanted me to take part in the trail’s before its was FDA approved but I couldn’t pass the Lung Function Test to be included.

      7 months ago Log in to Reply
    19. John Henninger

      I was involved in a test of inhaled insulin. Did not receive the results expected and was somewhat uncomfortable.

      7 months ago Log in to Reply
    20. Kevin McCue

      Overall I am pleased with inhaled insulin. Sometimes it doesn’t seem effective requiring another dose but overall works faster and falls off faster than injected insulin

      7 months ago Log in to Reply
    21. betsy valian

      It would be great if there was more information on inhaled insulin.

      7 months ago Log in to Reply
    22. Vicki Breckenridge

      I want to try inhaled insulin!

      7 months ago Log in to Reply
    23. Sandra Norman

      I use it for highs, usually because of pump failure’s, but not that often as I’m doing well on Omnipod 5. It does work very quick which is great, but unfortunately makes me cough which is annoying.

      7 months ago Log in to Reply
    24. Angela Naccari

      I have used Afrezza and loved it. I stopped when I went on Medicare two years ago because I did not want to struggle with getting the help I needed with the cost. It worked great because at the time I was having absorption problems due to almost 60 years type 1. I am back on pump now and hoping that if absorption problems happen again I will be able to go back on Afrezza and have Medicare help with the cost. It will be the only way to not have high sugars if liquid insulin cannot be absorbed!

      7 months ago Log in to Reply
    25. Tom Caesar

      My endorsement gave me samples to try with his determination that size 4=2 actual, 6=3, and 12=6. Have tried them and found them very helpful bringing down highs rapidly. Looked into insurance coverage, ha, not covered. Would cost approx $40,000 for 3 month supply of lowest dose, or $155 THOUSAND yearly!!!! Thanks but no thanks, will be happy with my pump and Humalog! Crazy

      7 months ago Log in to Reply
      1. Ginger Vieira

        Hi Tom! This is NOT the cost of Afrezza with or without insurance. They have an awesome patient assistance program for anyone who can’t get insurance coverage. (Most insurance companies will say they don’t cover it — your doctor just has to appeal.) Here are two articles to learn more about getting/paying for Afrezza:
        https://beyondtype1.org/getting-inhaled-insulin/

        6 months ago Log in to Reply
    26. Becky Hertz

      I have asthma so don’t qualify. I’d love to give it a try though.

      7 months ago Log in to Reply
    27. Mig Vascos

      I’ve never used it. I very well understand the problems with occlusions and stubborn highs. They’re real nuisances. I inject 1 or two units of Humalog to remedy the problem. But like everything with diabetes it’s always a gambling. You never know exactly how many units are going to do the trick and concern over having to fight a rapid low is always another problem.

      7 months ago Log in to Reply
    28. Bekki Weston

      Yes, been using for almost two years. Injected humalog is still my primary, but Afrezza is great for “I want/need to eat NOW” situations, and for those stubborn highs. Am soon to go on Medicare, so hope one of the supplements will cover it. Occasional slight cough, but passed the breathing test with flying colors.

      7 months ago Log in to Reply
    29. Daniel Bestvater

      No, unfortunately inhaled insulin is not available in Canada,

      7 months ago Log in to Reply
    30. Yerachmiel

      I’ve already gotten the product and a few of the inhalers but have been unable to schedule education (how to use it). If someone could point me in correct direction (or better tell me who to contact local to get help from company rep) would greatly appreciate

      1
      7 months ago Log in to Reply

    Have you ever used inhaled insulin? Cancel reply

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