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  • Activity
    • 11 hours, 27 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 11 hours, 27 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 11 hours, 29 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 14 hours, 32 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 18 hours, 29 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 19 hours, 37 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 20 hours, 1 minute ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 21 hours ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 21 hours ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 21 hours ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 21 hours, 24 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 21 hours, 24 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 21 hours, 24 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 21 hours, 24 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 21 hours, 34 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 21 hours, 35 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 21 hours, 35 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 21 hours, 36 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 36 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 37 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 21 hours, 37 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 21 hours, 37 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 21 hours, 38 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 21 hours, 53 minutes ago
      Janice Bohn likes your comment at
      In the past 7 days, on how many days did you get at least 30 minutes of moderate aerobic exercise (e.g., brisk walk, swimming, light bike riding)?
      Rain, snow or shine I walk 2-1/2 miles every morning and 1 to 2 mile in the evening with my dog.
    • 22 hours, 49 minutes ago
      Sue Martin likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
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    Have you ever used inhaled insulin?

    Home > LC Polls > Have you ever used inhaled insulin?
    Previous

    Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments!

    Next

    If you use an insulin pump, how long have you this brand/model of pump?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    43 Comments

    1. Gary Rind

      I would like to give it a try but my endo is dead set against it! States that he doesn’t recommend it for Type 1s and doesn’t give you the control that you think.

      grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr………………….

      1
      4 weeks ago Log in to Reply
      1. Gina Lucero

        It definitely gives you more control over injections.

        1
        4 weeks ago Log in to Reply
      2. Lynn Smith

        Your endo is wrong. Read Ginger Vieira’s articles on this website.
        https://t1dexchange.org/doctors-inhaled-insulin-t1d/

        4 weeks ago Log in to Reply
      3. Becky Hertz

        Sounds like he doesn’t know who it’s for. “Doesn’t recommend it for Type 1’s”, who does he think it’s for?

        4 weeks ago Log in to Reply
    2. mentat

      I used it for a while and the quick action was a game changer, but since I’m in Australia there is no cheap way to access it.

      I get a pretty similar effect now by injecting Fiasp intramuscularly (I do it in my biceps).

      4 weeks ago Log in to Reply
    3. Gina Lucero

      I love inhaled insulin and not having to take injections to bolus.

      4 weeks ago Log in to Reply
    4. GLORIA MILLER

      I wanted it to use when I fly since I have to remove my pump but my insurance will not cover it.

      4 weeks ago Log in to Reply
      1. Eve Rabbiner

        Why do you remove your pump? I always wear mine when flying. You have to do a pat down from the TSA, but that’s about it.

        4 weeks ago Log in to Reply
    5. KCR

      I keep some on hand to deal with unexplained high BGs.

      4 weeks ago Log in to Reply
    6. Kathy Hanavan

      I loved how fast it worked for highs, but I had some pretty sudden and nasty lows on it which caused me to discontinue it.

      4 weeks ago Log in to Reply
    7. Tb-well

      No, the initial study showed cancel in 95% of participants who had ever smoked. I smoked over 20 years ago, but it isn’t worth the chance of getting cancer.

      1
      4 weeks ago Log in to Reply
    8. Dan Diehl

      I asked about its use, the Endo discouraged it. With ‘time in range’ now being the hot ticket, I would think Afreza would at least be a talking point!

      4 weeks ago Log in to Reply
    9. Annie Wall

      I briefly used it and hated it. I’d rather pump.

      4 weeks ago Log in to Reply
    10. Rick Martin

      I’ve used it for years off – and on. Insurance doesn’t cover it – but Mannkind offers various programs that work. As long as I can get it affordably I will use it. I’m 68, have had diabetes most all my life and this provides the BEST control – much better than pump ever did.

      4 weeks ago Log in to Reply
    11. Rick Martin

      One other thing – it’s my health, my diabetes, and my choice. I would definitely switch endo’s if mine was dead set against it. Yes, I take their recommendations – but if I find something I totally disagree with them on I keep hammering away until they finally cave.

      2
      4 weeks ago Log in to Reply
      1. sweetcharlie

        My Doctor of 23 years [not an Endo] said ” I’m not going to tell you wht to do, the sick people are still out in the waiting room “

        3 weeks ago Log in to Reply
    12. Elizabeth Jones

      I have not, I have tried to get a Dr to prescribe it. I even showed them the article that was written through y’all & pinned studies showing it doesn’t cause lung cancer & they still won’t prescribe it due to that fear. It’s frustrating that they won’t even let me try it. I have so much insulin resistance that an alternative would be wonderful to try.

      4 weeks ago Log in to Reply
      1. Elizabeth Jones

        *pubmed not pinned studies.

        4 weeks ago Log in to Reply
      2. Lynn Smith

        So find a doctor who will.

        4 weeks ago Log in to Reply
    13. Emily Meister

      Would like to think that inhaled insulin would be an option for me. After 60 years of injectable insulin I have absorption issues that concern me for the future.

      4 weeks ago Log in to Reply
    14. Sondra Mangan

      My insurance won’t cover inhaled insulin. I had wanted to try it for those sticky highs that can take hours to get down—but it’s not covered by Tricare.

      4 weeks ago Log in to Reply
    15. Bob Durstenfeld

      I was interested in trying it, but was cot a good candidate with existing Asthma.

      3
      4 weeks ago Log in to Reply
    16. cynthia jaworski

      I was told that the smallest does for inhaled insulin is 2 U. that wouldn’t work for me, unless I could have the inhaled version as well as my injected fiasp and choose according to the situation.

      1
      4 weeks ago Log in to Reply
    17. Lynn Smith

      Afrezza has been a game changer for me. I love it. No more stubborn highs!!! I have only had one severe low, but I have learned from that event and have had no other lows. If your doctor has been a naysayer about it, then he/she does not have good information about it. And, the manufacturers special deal of $35 per month is affordable!!! For more information, read Ginger Vieira’s articles about it on this website.
      https://t1dexchange.org/doctors-inhaled-insulin-t1d/

      1
      4 weeks ago Log in to Reply
    18. Carol Meares

      I wanted to try it for stubborn highs but my Endo wouldn’t go through the process of prescribing it. It was new at the time.

      1
      4 weeks ago Log in to Reply
    19. Lyn McQuaid

      Like many have said, my endo refuses to prescribe it because of his (outdated) opinion that it’s dangerous. He’s been my endo for 30 years so I’m not going to switch endos over it as I only wanted it for the occasional high due to a bad pump site, but once I have a new endo, I will broach it again.

      1
      4 weeks ago Log in to Reply
      1. Brian Vodehnal

        I had the same problem with my other endo..but an insurance change forced me to get a new Endo and he’s alllll over new stuff. Shame some endos get stuck ..it really affects how we manage our blood sugar. Good luck

        3 weeks ago Log in to Reply
    20. John McQuaid

      My insurance won’t cover it without a fight because I’m on a pump, but I paid $99 to try it.
      I tried using it to bring down highs but didn’t think it worked for me. Perhaps I wan’t aggressive enough. But if my pump calculated that I needed two units, I would use 4 units of Afrezza and it would hardly make a dent in my BG. Perhaps I should have been using 8 or 12, but it just seemed too extreme.
      Also, I didn’t like the physical sensation of breathing powder into my lungs, especially the second cartridge. And it often caused bloody snot. so I didn’t like it.

      1
      4 weeks ago Log in to Reply
      1. Becky Hertz

        They shouldn’t have used “units” as the dose measure. It doesn’t translate at all to insulin dosing.

        1
        4 weeks ago Log in to Reply
    21. Becky Hertz

      I would love to use it, King function isn’t good enough.

      4 weeks ago Log in to Reply
    22. betsy valian

      I am looking into it at this time!!!! But Medicare of course doesn’t cover it.

      4 weeks ago Log in to Reply
      1. Jen Serrano

        Have you looked online for coupons? I tried it for free.

        3 weeks ago Log in to Reply
    23. betsy valian

      YES I believe if enough T1D’s advocate for its use we can get insurance to change?

      2
      4 weeks ago Log in to Reply
    24. Brian Vodehnal

      I am astounded that it has been approved for 10 years by the FDA and I just found out about it last year. It’s a complete game changer for handling spikes. It only lasts for an hour so you need to stay in your blood monitoring or pair it with some long lasting insulin.

      3 weeks ago Log in to Reply
    25. Carolann Hunt

      Nope not with asthma no way

      1
      3 weeks ago Log in to Reply
      1. Patricia Kilwein

        I have asthma too. It is also a no from me!

        3 weeks ago Log in to Reply
    26. Bekki Weston

      When you explore Plan options on Medicare, it will still show a $4,000/mo cost for Afrezza, but that’s because the site is not updated throughout the year. From the Afrezza site: Beginning January 1st, 2023, Medicare recipients can obtain Afrezza for a copay of no more than $35 a month if covered by their health plan. There will be no deductible for covered insulin products. Coverage will require Afrezza approval with a prior authorization or appeal. Visit medicare.gov for more information about the Inflation Reduction Act.

      3 weeks ago Log in to Reply
    27. karolinamalecki7@gmail.com

      I would love to try it, but don’t understand how to. My endo gave me a sample of fiasp before I switched over to it and I wish there was an easier way to try afrezza before committing / fighting insurance for it.

      3 weeks ago Log in to Reply
    28. mbulzomi@optonline.net

      I was part of a test team 20 years ago using Mankind Inhaled insulin. It did not work well then. Only limited Inhaled. size tubes were used. And we had to stay on our pumps to supply Basel Insulin.

      3 weeks ago Log in to Reply
    29. Wanacure

      My pulmonologist is against snorting or inhaling anything (except air) and that includes medical marijuana. ☹️ It takes more than anecdotal evidence. Show skeptical me the double-blind studies replicated many times over as to safety, effectiveness, and risks, especially for those who’ve been referred to a pulmonologist.

      3 weeks ago Log in to Reply
    30. Bruce Johnson

      No

      3 weeks ago Log in to Reply
    31. Laurie Tomer

      Used Afrezza for 3 years. Works super fast and I am too sensitive to insulin. Plus, there are only set doses and the lowest dose was still too much for me. Works well on blood sugars, just too well for my body to handle.

      2 weeks ago Log in to Reply
    32. PamK

      I was told that I shouldn’t because I have Asthma caused by allergies. Although, recently I was told that I might be able to use it. If so, I’d love to try it, but I need to research it more.

      2 weeks ago Log in to Reply

    Have you ever used inhaled insulin? Cancel reply

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