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    • 1 hour, 13 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 1 hour, 13 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 1 hour, 14 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 1 hour, 14 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 1 hour, 14 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 12 hours, 43 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 12 hours, 43 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 12 hours, 45 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 15 hours, 48 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 19 hours, 45 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 20 hours, 53 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 17 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 16 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 22 hours, 16 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 22 hours, 16 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 22 hours, 40 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 22 hours, 40 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 22 hours, 40 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 22 hours, 41 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 22 hours, 50 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 22 hours, 51 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 51 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 22 hours, 52 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 22 hours, 52 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 22 hours, 53 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
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    Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments!

    Home > LC Polls > Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments!
    Previous

    Have you ever changed your insulin delivery routine because of insulin absorption issues? Select all that apply, and share what has worked for you in the comments.

    Next

    Have you ever used inhaled insulin?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    20 Comments

    1. Britni

      I answered “other.” I’ve never hired a “diabetes coach” per se, but I’ve been seeing a diabetes educator for decades and started seeing a behavioral health specialist a couple years ago. Combined I think they serve roughly the same function as a coach would…

      3 weeks ago Log in to Reply
    2. Dennis Dacey

      I have received suggestions relating to diabetes management, and “coaching” from many physicians I’ve consulted during the last seven decades, and yes I paid for this advice.

      3 weeks ago Log in to Reply
    3. cynthia jaworski

      my blue cross insurance plan keeps trying to get me to sign up for coaching sessions. At one point, I decided to be open-minded and see what it could offer me. I found it was chaotically managed (2 different coaches phoned me the same day) and seemed to be geared for people who know absolutely nothing about diabetes or life in general. I quit.

      3
      3 weeks ago Log in to Reply
    4. Georgina Sokol

      Never heard of them. Must cost a lot of money.

      3 weeks ago Log in to Reply
    5. KCR

      I am not sure what is meant by health/diabetes coach. Does that include CDEs? If so, then, yes, I consulted a few times with a CDE at Integrated Diabetes 2 years ago.

      3 weeks ago Log in to Reply
    6. Bea Anderson

      No, but…
      Almost 20 yrs ago my trainer for first pump(Medtronic) was a fount of info. She covered the pump, living with t1 , so many good thoughts about pump life and more! She had t1 and was smart and humorous!! She was one of a kind. The educator I was then assigned to had t1, same pump, but told me to have same diet every day, exercise to bring a high down. What about utilizing the pump? I was confused and quit going. I’m just an average Jo-sephine, but with so many forums, websites and YouTube, I can be my best advocate picking and choosing what fits into my life for now. Barring other things that complicate diabetes care like depression, government rules, other health problems and old age…

      3
      3 weeks ago Log in to Reply
    7. Eva

      I hired a health coach who looked at my total health habits – eating, sleep, vitamins, and exercise. The idea was to increase my endurance and exercise performance. It was interesting but not worth the cost.

      3 weeks ago Log in to Reply
    8. Karen Tay

      I actually went years without an endocrinologist. My PCP took care of my prescriptions

      3 weeks ago Log in to Reply
    9. Janis Senungetuk

      By absolute “luck of the draw” I’ve had and currently have tremendously supportive relationships with two CDEs over the past 68 years of life with T!D. They have both gone over and above their job duties to care for me and assist in any way they could. In the many years in-between these relationships the coaching services either didn’t exist, were financially unavailable or geared toward individuals with extremely little knowledge of T1D glucose management.

      1
      3 weeks ago Log in to Reply
    10. lis be

      not a health coach, but I did see an amazing nutritionist that helped me figure out how to eat low carb vegetarian. (at my request). she also explained the timing on how protein and fats digest so I could figure out the rest from there.

      2
      3 weeks ago Log in to Reply
    11. KC

      No, but I worked with a nutritionist when I wanted to go vegan.

      3 weeks ago Log in to Reply
    12. Ahh Life

      I’ve played the games (many). I’ve coached a few. I’ve even refereed and umpired.

      In all 3 roles, I’ve made mistakes. And in referring and umpiring, I try to even out the good calls and the bad calls even though, strictly speaking, that’s against the rules.

      Same with the diabetic condition. I hope the good calls and the bad calls all work out.

      3 weeks ago Log in to Reply
    13. Steven Gill

      I do a lot of reading and research, listen to a variety of podcasts regarding the use of insulin, pumps, and especially a CGM. I listened to “Diabetes Connections,” “The Huddle,” and “Juicebox Podcast.” The first 2 were geared to Certified Diabetes Care and Education Care Specialists or endocrinologists. The last is towards the diabetic, initially I thought more for parents but after listening to each heard several episodes on the Juicebox including adult diabetics, educators, pump and CGM industry representatives, and insulin producers. Learned how “smart algorithms” worked and various looping technologies for each pump/CGM system, the rates of various insulin were better explained. By learning how to understand my CGM from the last, timing my insulin brought my a1C down from low 7’s to low 6’s with a decreased risk of hypoglycemia.

      Dropped the pump to insulin pens, was just minor adjustments to doses because there were episodes helping there (my averages on the CGM are lower even without the ability to adjust basal doses). The guy’s daughter was diagnosed TYPE1 as a toddler, now in college. Opted to be a “stay at home” dad for her care, initially blogged than “broadcasted” his experiences, success, and problems. The guests include children (great for younger listeners), older with complications, long term explaining boiling syringes and peeing on strips.

      But he had sponsors or advertisers, no cosys, and also guests from companies from each tool available, whether an advertiser or not.

      3 weeks ago Log in to Reply
    14. ConnieT1D62

      Other. No I have never hired a diabetes coach or health coach to help me manage my diabetes. However, I have been in therapy to deal with psycho-emotional stress related to family and significant other relationship issues.However, in my professional life as a diabetes care and education specialist RN, I have been hired as a diabetes self-care health coach and advocate on numerous occasions.

      3 weeks ago Log in to Reply
    15. Carolann Hunt

      Yes we hired Gary Shiners group for help with Loop settings

      3 weeks ago Log in to Reply
    16. David & Kaleo of Team Nani

      I have worked with many H & W coaches while I trained to become one. I was certified by Wellcoaches and recently gained national board certification through our international professional organization (NBHWC.org) where you can learn about wellness coaching and find Board Certified coaches in your area across the US and around the world.
      I became interested in the field b/c as a T1d person, I understand the impacts of a chronic condition and the huge benefit of the kind of support, accountability, collegial problem solving a H&W coach can provide by applying lessons of behavioral psychology and goal setting to facilitate behaviors that reduce stress, increase mindfulness and promote life satisfaction along the road to setting and achieving health goals.

      3 weeks ago Log in to Reply
    17. Keira Thurheimer

      My insurance company provides health coaches at no cost. I worked with one for about a year.

      3 weeks ago Log in to Reply
    18. mbulzomi@optonline.net

      I guess you can call a CDE a Health coach/Diabetes coach I do work with a CDE.

      3 weeks ago Log in to Reply
    19. Wanacure

      I attended a “Living with Chronic Conditions” series. There was one other T1D, some T2Ds, some pre-diabetics amongst the 20 people with incurable conditions. The main thing I learned was how popular melatonin was. I was curious but never tried this supplement. Recently heard that too many people are overdosing this supplement with hazardous results. Never tried chondroitin for joints either.

      3 weeks ago Log in to Reply
    20. James Cheairs

      Yes – Dr Jodi Stanislaw who is a naturopath who also has T1D . Great experience and I learned much that is often not discussed in conventional healthcare settings.

      2 days ago Log in to Reply

    Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments! Cancel reply

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