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    • 5 hours, 56 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      TCOYD one conference and Breakthrough T1D summits. I really enjoy in person events.
    • 6 hours, 7 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      Many because I am a retired RN, CDE
    • 8 hours, 12 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      BAAAAAAD WORDS. Definitely the next step for sure.... After that more grumbling, cursing and eventually the decision whether or not taking the long acting THIS late is smart idea. If NOT, then a slightly heavier dose the next day of the short acting insulin seems real likely
    • 8 hours, 13 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      OH boy, an impossible question to answer without a lot more specific details......ie name of insulin / miss an injection completely over 24 hrs or by shorter time frame / to list a few.
    • 12 hours, 51 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 12 hours, 53 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      Literal poverty prevents attending such conferences. I must survive, therefore to do so the job(s) require all that I have which remains. I would likely enjoy such conference(s), ALWAYS go for the "small" tables FIRST, their survival depends on it...
    • 14 hours, 18 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      Yes, TCOYD and maybe an ADA conference. The second conference I went to in order to check out tech. Both were in the 90s.
    • 14 hours, 22 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 14 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever attended a diabetes-related conference?
      Before retiring I would go to our local teaching hospital/ADA conferences. They were held yearly and were a great way getting my CE's.
    • 1 day, 1 hour ago
      kilupx likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Other: I was not diagnosed with T1D at a young age.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
      The word "chose" is past tense. In the present tense, "no." In the past tense, the ancient of days 1996, the answer was "yes." They even hospitalized you for 2 days. I was and am very healthy and horrified the medical staff when I walked up and down 9 flights of stairs to get something. C'est la vie 🫠
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I felt my lows when I was younger. Now after 45+ years with type 1 I feel a bit of “blurry brain function” when below 50. Thankful for CGM alerts!
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I was diagnosed at age 29. Is that considered "young"?
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The "target" is set for 100 (the lowest option with Medtronic), my alarms are 70-130. With the algorithm it's interesting with a basal that rises and falls (and the "auto-bolus") according to levels and dosing, thus my alarms (down to 2% lows this way). But... There's another setting offering different target range, I have it set 70-90 for now. Only been a few weeks so interesting to see how it goes.
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      On my Omnipod, both the high and the low are set at 110, the lowest it will allow. My preferred target rang is 70 to 120.
    • 1 day, 14 hours ago
      Janis Senungetuk likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Diagnosed in 1951 when I was 6 years old. I would feel terrible when glucose went low, but did not know what was wrong.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Missing answer is “I felt them early in, but not it can be hard at times to physically see a low.”
    • 1 day, 16 hours ago
      Steven Gill likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      To me... (a1C has been as low as 5.2, now near 6.0 with a lot less lows). Discuss with your doc goals, read the DCCT trials (determined "multiple injections" were more beneficial than 1 or 2 shots a day (mixed). Than up to your own confidence with insulin: -how your body reacts (after dosed I notice in 30-35 minutes) it's different for everyone -confidence with understanding the glycemic scale for food (some reach the blood stream quicker, some slower) -your health-as I grow up may not hear a low alarm as quick, nor be able to react as well -and tools... I'm confident with my CGM, alarms, understanding my insulin pump A tighter or lower target can lower a1C, wasn't worth my lows. But an a1C a little closer to non-diabetic can offer a little more prevention against the damage from diabetes. We're doing this to get as old a we can and be as healthy as we can (not necessarily a brag about numbers)---read a definition of heath is to be as far from death as possible. I think that changes...
    • 1 day, 17 hours ago
      atr likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      110, which is as low as omnipod 5 allows. If I could change it, it would be 90-100.
    • 1 day, 18 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      In 1973 when I was diagnosed the hospital policy was to force a low so you knew what they felt like. Around 2000 I became severely hypo unaware.
    • 1 day, 18 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Initially, I felt lows long before they became problematic. This diminished gradually over time. Now, after 51 years, I feel nothing until BG drops to critical levels -50. Exception is when BG drops dramatically over a very short period of time.
    • 1 day, 19 hours ago
      Edward Geary likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 2 days, 11 hours ago
      kilupx likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      My alarm range is 70 - 180.
    • 2 days, 12 hours ago
      Anita Stokar likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The whole "target" question is a mess. I think most of us here (T1D people who are proactive etc) define "target" as where we want to be after a meal or correction bolus has done it's job. Pump mfr's (and many Endo's) define "target" like they define an A1C goal: averaging 110 over time. Lots of "discussions" (notice the quotes) with my Endo about my targets (I don't accept the "standard goal" of 70-180, I prefer aiming for 70-140). So so answer today's question, my alert ranges are 70 and 120 for high (I correct if I have no IOB, but may have food on board). My target bg (post bolus) is 80-90.
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    Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.)

    Home > LC Polls > Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.)
    Previous

    If you use both an insulin pump and CGM, do you currently use any of the following automated insulin delivery (also known as “predictive low glucose suspend” or “hybrid closed loop”) algorithms to help keep your glucose in-range?

    Next

    CGM users: The last time you had a sensor fail or fall off before its session was supposed to be over, how early did you have to change your sensor?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Molly Jones

      I chose no, but have had depression and chronic conditions that are associated with depression dealt with before the diagnosis of T1B. (Epilepsy and hypothyroidism)

      2 years ago Log in to Reply
    2. Sue Compo

      After driving 2hours to my endo, my 15 min appt is just filled with number inquiries and chatter.

      1
      2 years ago Log in to Reply
    3. Jane Cerullo

      Not really but if I have something going on he listens. Had problem this spring when I had Covid. He listened and changed my insulin doses so I could find what worked at that time. On MDI. Needed a lot of basal. But now back to normal

      2 years ago Log in to Reply
    4. William Bennett

      After 40 yrs you’d think that would all be settled, and mostly it is. But over that time I’ve had bouts with what I call “T1 Claustrophobia.” Mostly triggered by some major change in regimen. Switching from MDI to a pump, or changing pump brands, or going from a standard pump to an AID system, e.g. Suddenly the fact of T1 is all up in your grille for days and weeks on end as you try to get it dialed in, like getting dx’d all over again. Worst is when things are just not working and I can’t figure out why but I HAVE to figure it out and I’m just hyper-aware of being chained to this beast 24/7/365 with manacles that are never going to be unlocked. Yeah, that. But most of the time this is all just routine, part of daily life, and I don’t think about it very much.

      9
      2 years ago Log in to Reply
    5. Jian

      no but always ask if I have any concerns or issues to discuss. I feel very conformable and would be able to say if I was experiencing this. I have in the past several times when other issues occur on top of diabetes. I take action if I feel I need to see a. mental health provider

      1
      2 years ago Log in to Reply
    6. mojoseje

      I absolutely have diabetes distress related to insurance not covering supplies, high copays, and loss of coverage.

      1
      2 years ago Log in to Reply
    7. Lawrence S.

      I said, “I am unsure.” I complete a questionnaire before each visit. Social welfare questions are part of the questionnaire. I don’t know if some of the questions that my APRN asks me are assessing my emotional distress. I don’t remember direct discussions about diabetes distress. She always starts the discussion with “How are you doing?”

      2 years ago Log in to Reply
    8. Eric Lichtbach

      My Doc suggested a PhD of physiology 20 years ago. I found a bunch of family stuff and my divorce was affecting how I was resenting my diabetes.
      These days I just get tired of being bothered with caring for myself.

      2 years ago Log in to Reply
      1. Wanacure

        Eric, your last line resonated with me. But when I feel that way, i try to to remember to counter that with: It is good to care (feel compassion) for myself and all living beings, because we are part of the web of life and interdependent.

        2 years ago Log in to Reply
    9. Tod Herman

      I put no but it’s because after the general subject was asked, I responded that I wasn’t having any issues. As such we moved on and I didn’t have to hear about it anyway.

      2 years ago Log in to Reply
    10. Eve Rabbiner

      I’m vigilant. My A1C and TIR are very good. My endo has confused vigilance with stress. I tell him it’s like having a two year old in the house. You’re always aware of it and do what you can to take care of it, but that doesn’t mean it’s driving you crazy.

      2
      2 years ago Log in to Reply
    11. cynthia jaworski

      There is pent y of stress in my life these days, but T1 is not on the list.

      2 years ago Log in to Reply
    12. Janis Senungetuk

      Over time (years) I’ve discussed many issues all related to the financial stress directly related to managing life with T1D. The majority of conversations have been with my CDE. Just before switching from my discontinued Animas Vibe pump to my current Tandem X2 pump, I did speak with my endo about my distress re. the need to empty my bank account to pay $900 out-of- pocket because of Medicare’s 5 yr. replacement rule. She didn’t have any suggestions then and has not mentioned the subject again.

      2 years ago Log in to Reply
      1. Wanacure

        Janis, here are some folks who WILL listen to your financial concerns and you can take action with them. Search for https://socialsecurityworks.org and https:://pnhp.org and https:seniorsecurityalliance.org.

        2 years ago Log in to Reply
    13. KIMBERELY SMITH

      My Dietetic specialist hasn’t discuss anything with me

      2 years ago Log in to Reply
    14. terrih57@msn.com

      I said ‘no’ but I am asked – it just never seems like he really wants to know. I did say I was experiencing some burnout and maybe a therapist would help – did he have ant recommendations? No he didn’t and it was dropped. It comes and goes and I manage but after 47 years there are always days/weeks that are hard. Ideally I would love to find a therapist for those with chronic diseases. So far no luck.

      1
      2 years ago Log in to Reply
    15. Ahh Life

      While the pity palace is vastly overrated as a permanent place of residence. It is also true as Mark Twain once said, “Wagner’s music is better than it sounds.”

      The optimists continue asserting that folks are ultimately in control of events. But we know it to be false.

      Always the proverbial Dewey Decimal Kool-Aid for T1D—sounds great until you actually do it.

      And trying to explain an unexplainable world to the people who actually live in it is tough. So maybe, assuming a sufficient degree of empirical rigor, a health care person counseling, advising, or maybe even just listening would do some good. ✌️✌️✌️ 😉🙃🙂

      4
      2 years ago Log in to Reply
    16. Ready Nerd

      Both my Endo And GP always ask me if I have any questions.

      2 years ago Log in to Reply
    17. Becky Hertz

      My last endo hinted at it, but I’ve never felt Diabetes distress. 49 years in.

      2 years ago Log in to Reply
    18. Jneticdiabetic

      I don’t recall my diabetes care providers ever specifically asking about diabetes distress or my mental health. I’m lucky to be doing ok emotionally, despite T1D being a perpetual pain in my pancre-ass. (Word play, one of my coping mechanisms 😉). I have known others though not as easily distracted by pounds so could really use some help in this area but may be unfortunate asking. I do think it would be helpful to have a brief questionnaire before each clinic visit that ask a couple pointed multiple choice questions about this and have local resources to recommend.

      2 years ago Log in to Reply
      1. Jneticdiabetic

        This article includes some helpful tips find a diabetes knowledge therapist…
        https://diatribe.org/how-find-right-therapist-when-you-have-diabetes

        1
        2 years ago Log in to Reply
      2. Jneticdiabetic

        TYPO, meant: I have known others not as easily distracted by PUNS who could really use some help in this area but may be UNCOMFORTABLE asking.

        2 years ago Log in to Reply
    19. John McHenery

      Discussion was as to whether I was distressed and ended when I said no.

      2 years ago Log in to Reply
    20. Jen Farley

      I have had a pediatrician send me to therapy because my blood tests were not to her liking. I have had lectures on what I was doing to my body, but when I asked for solutions they stare blankly and tell me to check more and keep my sugar tests at a normal level. My endocrinologist now is now offering explanations and solutions to the problems and less stress or problems. I do get burnout. I just went through a power outage that lasted about a week, family wanting to grab fast food every night, and no way to charge anything. Lots of nights sitting in my car. lol Pain in my behind, yes, love help, yes, need mental help, no, my anxiety and antidepressants are doing their job. 🙂

      1
      2 years ago Log in to Reply
    21. Rick Martin

      No, I’ve never had anyone ask me about it. It is a real thing for me though. Fortunately, I’ve been self-educated about it and have sought help on my own.

      2 years ago Log in to Reply
    22. lis be

      I said no, but when I was diagnosed (42 years ago) my endo told me that I needed antidepressants so that my moods would even out and cause better sugar results. I don’t think he had a firm grip. Luckily my mom did not believe him! He also told me I’d likely not live past my teenage years. I often wonder how much of my diabetic anxiety (fear of complications) “distress” is based on the fears that endo ground into my head when I was a kid.

      1
      2 years ago Log in to Reply
    23. Brad Larson

      Only had an experience with depression in 1987, 17 years after onset. My T1D was not in control, and was told if you get it back under control, the depression would go away. I did, and it did- go away.

      2 years ago Log in to Reply
    24. T1D4LongTime

      I brought it up to my T1D team before they discussed it. After 56 years of this disease, distress is just water under the bridge. Electronics have made it MUCH worse now with constant alarms, alerts, set/CGM change reminders, transmitter expiration, etc. I would never go without a CGM unless I was forced to do so. Realtime BGs are a blessing (and a curse).

      2 years ago Log in to Reply
    25. Jeff Balbirnie

      How long is “discuss”? They used the words but the so called “discussion” lasted less than five (5) minutes. They raised the subject and promptly ignored the necessary conversation beyond that ~front door~. A serious pity….

      2 years ago Log in to Reply
    26. Wanacure

      I sometimes feel ambivalent about antidepressants. Some of us need them, some do not. Doesn’t it depend on differing genetics, differing epigenetics, differing ancestral traumas that are passed on verbally generation to generation (or kept secret like incest or adoption or infidelity)?

      2 years ago Log in to Reply

    Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.) Cancel reply

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