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    • 5 hours, 32 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 19 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 1 hour ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 1 hour ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 19 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 19 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.)

    Home > LC Polls > Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.)
    Previous

    If you use both an insulin pump and CGM, do you currently use any of the following automated insulin delivery (also known as “predictive low glucose suspend” or “hybrid closed loop”) algorithms to help keep your glucose in-range?

    Next

    CGM users: The last time you had a sensor fail or fall off before its session was supposed to be over, how early did you have to change your sensor?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Molly Jones

      I chose no, but have had depression and chronic conditions that are associated with depression dealt with before the diagnosis of T1B. (Epilepsy and hypothyroidism)

      3 years ago Log in to Reply
    2. Sue Compo

      After driving 2hours to my endo, my 15 min appt is just filled with number inquiries and chatter.

      1
      3 years ago Log in to Reply
    3. Jane Cerullo

      Not really but if I have something going on he listens. Had problem this spring when I had Covid. He listened and changed my insulin doses so I could find what worked at that time. On MDI. Needed a lot of basal. But now back to normal

      3 years ago Log in to Reply
    4. William Bennett

      After 40 yrs you’d think that would all be settled, and mostly it is. But over that time I’ve had bouts with what I call “T1 Claustrophobia.” Mostly triggered by some major change in regimen. Switching from MDI to a pump, or changing pump brands, or going from a standard pump to an AID system, e.g. Suddenly the fact of T1 is all up in your grille for days and weeks on end as you try to get it dialed in, like getting dx’d all over again. Worst is when things are just not working and I can’t figure out why but I HAVE to figure it out and I’m just hyper-aware of being chained to this beast 24/7/365 with manacles that are never going to be unlocked. Yeah, that. But most of the time this is all just routine, part of daily life, and I don’t think about it very much.

      9
      3 years ago Log in to Reply
    5. Jian

      no but always ask if I have any concerns or issues to discuss. I feel very conformable and would be able to say if I was experiencing this. I have in the past several times when other issues occur on top of diabetes. I take action if I feel I need to see a. mental health provider

      1
      3 years ago Log in to Reply
    6. mojoseje

      I absolutely have diabetes distress related to insurance not covering supplies, high copays, and loss of coverage.

      1
      3 years ago Log in to Reply
    7. Lawrence S.

      I said, “I am unsure.” I complete a questionnaire before each visit. Social welfare questions are part of the questionnaire. I don’t know if some of the questions that my APRN asks me are assessing my emotional distress. I don’t remember direct discussions about diabetes distress. She always starts the discussion with “How are you doing?”

      3 years ago Log in to Reply
    8. Eric Lichtbach

      My Doc suggested a PhD of physiology 20 years ago. I found a bunch of family stuff and my divorce was affecting how I was resenting my diabetes.
      These days I just get tired of being bothered with caring for myself.

      3 years ago Log in to Reply
      1. Wanacure

        Eric, your last line resonated with me. But when I feel that way, i try to to remember to counter that with: It is good to care (feel compassion) for myself and all living beings, because we are part of the web of life and interdependent.

        3 years ago Log in to Reply
    9. Tod Herman

      I put no but it’s because after the general subject was asked, I responded that I wasn’t having any issues. As such we moved on and I didn’t have to hear about it anyway.

      3 years ago Log in to Reply
    10. Eve Rabbiner

      I’m vigilant. My A1C and TIR are very good. My endo has confused vigilance with stress. I tell him it’s like having a two year old in the house. You’re always aware of it and do what you can to take care of it, but that doesn’t mean it’s driving you crazy.

      2
      3 years ago Log in to Reply
    11. cynthia jaworski

      There is pent y of stress in my life these days, but T1 is not on the list.

      3 years ago Log in to Reply
    12. Janis Senungetuk

      Over time (years) I’ve discussed many issues all related to the financial stress directly related to managing life with T1D. The majority of conversations have been with my CDE. Just before switching from my discontinued Animas Vibe pump to my current Tandem X2 pump, I did speak with my endo about my distress re. the need to empty my bank account to pay $900 out-of- pocket because of Medicare’s 5 yr. replacement rule. She didn’t have any suggestions then and has not mentioned the subject again.

      3 years ago Log in to Reply
      1. Wanacure

        Janis, here are some folks who WILL listen to your financial concerns and you can take action with them. Search for https://socialsecurityworks.org and https:://pnhp.org and https:seniorsecurityalliance.org.

        3 years ago Log in to Reply
    13. KIMBERELY SMITH

      My Dietetic specialist hasn’t discuss anything with me

      3 years ago Log in to Reply
    14. terrih57@msn.com

      I said ‘no’ but I am asked – it just never seems like he really wants to know. I did say I was experiencing some burnout and maybe a therapist would help – did he have ant recommendations? No he didn’t and it was dropped. It comes and goes and I manage but after 47 years there are always days/weeks that are hard. Ideally I would love to find a therapist for those with chronic diseases. So far no luck.

      1
      3 years ago Log in to Reply
    15. Ahh Life

      While the pity palace is vastly overrated as a permanent place of residence. It is also true as Mark Twain once said, “Wagner’s music is better than it sounds.”

      The optimists continue asserting that folks are ultimately in control of events. But we know it to be false.

      Always the proverbial Dewey Decimal Kool-Aid for T1D—sounds great until you actually do it.

      And trying to explain an unexplainable world to the people who actually live in it is tough. So maybe, assuming a sufficient degree of empirical rigor, a health care person counseling, advising, or maybe even just listening would do some good. ✌️✌️✌️ 😉🙃🙂

      4
      3 years ago Log in to Reply
    16. Ready Nerd

      Both my Endo And GP always ask me if I have any questions.

      3 years ago Log in to Reply
    17. Becky Hertz

      My last endo hinted at it, but I’ve never felt Diabetes distress. 49 years in.

      3 years ago Log in to Reply
    18. Jneticdiabetic

      I don’t recall my diabetes care providers ever specifically asking about diabetes distress or my mental health. I’m lucky to be doing ok emotionally, despite T1D being a perpetual pain in my pancre-ass. (Word play, one of my coping mechanisms 😉). I have known others though not as easily distracted by pounds so could really use some help in this area but may be unfortunate asking. I do think it would be helpful to have a brief questionnaire before each clinic visit that ask a couple pointed multiple choice questions about this and have local resources to recommend.

      3 years ago Log in to Reply
      1. Jneticdiabetic

        This article includes some helpful tips find a diabetes knowledge therapist…
        https://diatribe.org/how-find-right-therapist-when-you-have-diabetes

        1
        3 years ago Log in to Reply
      2. Jneticdiabetic

        TYPO, meant: I have known others not as easily distracted by PUNS who could really use some help in this area but may be UNCOMFORTABLE asking.

        3 years ago Log in to Reply
    19. John McHenery

      Discussion was as to whether I was distressed and ended when I said no.

      3 years ago Log in to Reply
    20. Jen Farley

      I have had a pediatrician send me to therapy because my blood tests were not to her liking. I have had lectures on what I was doing to my body, but when I asked for solutions they stare blankly and tell me to check more and keep my sugar tests at a normal level. My endocrinologist now is now offering explanations and solutions to the problems and less stress or problems. I do get burnout. I just went through a power outage that lasted about a week, family wanting to grab fast food every night, and no way to charge anything. Lots of nights sitting in my car. lol Pain in my behind, yes, love help, yes, need mental help, no, my anxiety and antidepressants are doing their job. 🙂

      1
      3 years ago Log in to Reply
    21. Rick Martin

      No, I’ve never had anyone ask me about it. It is a real thing for me though. Fortunately, I’ve been self-educated about it and have sought help on my own.

      3 years ago Log in to Reply
    22. lis be

      I said no, but when I was diagnosed (42 years ago) my endo told me that I needed antidepressants so that my moods would even out and cause better sugar results. I don’t think he had a firm grip. Luckily my mom did not believe him! He also told me I’d likely not live past my teenage years. I often wonder how much of my diabetic anxiety (fear of complications) “distress” is based on the fears that endo ground into my head when I was a kid.

      1
      3 years ago Log in to Reply
    23. Brad Larson

      Only had an experience with depression in 1987, 17 years after onset. My T1D was not in control, and was told if you get it back under control, the depression would go away. I did, and it did- go away.

      3 years ago Log in to Reply
    24. T1D4LongTime

      I brought it up to my T1D team before they discussed it. After 56 years of this disease, distress is just water under the bridge. Electronics have made it MUCH worse now with constant alarms, alerts, set/CGM change reminders, transmitter expiration, etc. I would never go without a CGM unless I was forced to do so. Realtime BGs are a blessing (and a curse).

      3 years ago Log in to Reply
    25. Jeff Balbirnie

      How long is “discuss”? They used the words but the so called “discussion” lasted less than five (5) minutes. They raised the subject and promptly ignored the necessary conversation beyond that ~front door~. A serious pity….

      3 years ago Log in to Reply
    26. Wanacure

      I sometimes feel ambivalent about antidepressants. Some of us need them, some do not. Doesn’t it depend on differing genetics, differing epigenetics, differing ancestral traumas that are passed on verbally generation to generation (or kept secret like incest or adoption or infidelity)?

      3 years ago Log in to Reply

    Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.) Cancel reply

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