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    • 9 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Has a stranger ever approached you to talk about your visible diabetes device(s)?

    Home > LC Polls > Has a stranger ever approached you to talk about your visible diabetes device(s)?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    38 Comments

    1. Wanacure

      Before anyone complains about question repetition, just remember that there are always new participants (hopefully) in QOTD at T1D.

      5
      3 years ago Log in to Reply
    2. Lawrence S.

      I always keep my insulin pump visible on my belt, which is around my waste. Very rarely does someone ask me about it. Usually, it’s a question about my phone, pager, tape recorder, etc. On approximately two or three occasions, I’ve been asked if it was an insulin pump. No matter what I am asked, I respond that it is an insulin pump. If the person knows it is a pump, I usually ask, “are you a diabetic also?”. I am happy to discuss details about what kind of pump I use, what kind of insulin, or any other related subject matter.
      But, I’ve noticed, even with other diabetics, that most people don’t care to discuss details. They just want to know what it is that is on my belt.

      2
      3 years ago Log in to Reply
    3. KIMBERELY SMITH

      No stranger I use one

      3 years ago Log in to Reply
    4. Carol Evans

      I often get asked about the CGM on my upper arm (when I’m wearing short sleeves or a tank top). Occasionally if I whip out my pump to bolus or turn off an alert, someone will ask about it. Almost always because they know someone who also has a pump. They usually ask me how I like it, and I tell them it’s better than five shots a day! (That’s my short elevator speech; otherwise I would have to say, “you got an hour or so to talk?” 😉)

      7
      3 years ago Log in to Reply
    5. stillarobyn

      No but I once complimented someone’s dexcom!

      2
      3 years ago Log in to Reply
    6. Tina Roberts

      Yes. A man in his 70’s approached me while I was shopping. He saw my sensor and asked how I was able and o keep it on because his always fell off too soon. I asked him if he used Amazon. He said yes so I showed him skintac on Amazon from my phone. He said oh great. Now I can wear my sensors! No one had told him about it. Very sad.

      5
      3 years ago Log in to Reply
    7. Annie Wall

      Sure and it’s usually when my sensor can be seen. People have always been very interested and I have had some good conversations.

      4
      3 years ago Log in to Reply
    8. Sondra Mangan

      Yes, lots of times—always positive interactions. Most recently in grocery checkout line, the Dad approached and asked if I would talk to his daughter—a darling 10-year old who whipped out her Omnipod 5 Controller to show me. We both are anxiously awaiting IOS FDA approval. She was happy to see somebody “just like her” — I’m 74!

      8
      3 years ago Log in to Reply
    9. Dennis Dacey

      Yes, several times – and years after persons mistaking a pump to be an outdated pager.
      Notable times were when I accompanied z neighbor to the hospital ER and the nurse noticed and we compared my t-Slim with her 630G. Another time the security agent at the airport asked me if I had spare time to step out of line and speak with her – her husband was considering pumps and she wanted my input, pros vs. cons.

      4
      3 years ago Log in to Reply
    10. Twinniepoo74

      Just yesterday lol I was talking about my omnipod and dexcom g7. She was a diabetic also who had omnipod dash and dexcom g6. I was very happy to talk to her. I never mind strangers asking better asking than staring.

      2
      3 years ago Log in to Reply
    11. Annie Simon

      Absolutely as my sensor is generally seen on my upper arm. What I do enjoy is meeting fellow diabetics as we identify ourselves from our sensors. Was recently in a cruise and another woman was wearing the exact same Freestyle Libre sensor and gave each other a high 5. This is the future of technology and making managing diabetes so much easier👍

      3
      3 years ago Log in to Reply
    12. Amanda Barras

      Yes, and I have also accosted others I spot in the wild myself. LOL

      2
      3 years ago Log in to Reply
    13. Kris Sykes-David

      I answered no, however, I have approached other T1D’s in the wild! One being my neighbor and now friend with LADA like me!

      2
      3 years ago Log in to Reply
    14. mlettinga

      All the time. I look at it as an opportunity to educate people about type 1 diabetes and difference from type 2

      3
      3 years ago Log in to Reply
    15. Ahh Life

      Ancient history, but in the late 1990’s while touring Buckingham Palace in an area with multiple “NO PHOTOGRAPHY” signs, I whipped out my Medtronic to bolus a bit.

      Female guard came unglued. She was ready to banish me from the kingdom for taking pictures. And even when provided an explanation, her eldritch manner did not allow for a smile. Must be a requirement of the job. 💂‍♀️

      4
      3 years ago Log in to Reply
      1. Mick Martin

        @Ahh Life, that ‘tickles’ me, sir. I’m from the UK and I KNOW how obstreperous SOME people can be over here. 😉

        2
        3 years ago Log in to Reply
    16. dgmarrero

      I sometimes get questions about my CGM when working out at the gym

      2
      3 years ago Log in to Reply
    17. Carrolyn Barloco

      I’m very eager to share with any other CGM buddies see around. Just to ask how it’s going and do they like their device!😃

      2
      3 years ago Log in to Reply
    18. Jim Andrews

      Got asked recently why I was still wearing a pager

      2
      3 years ago Log in to Reply
    19. Mick Martin

      Presumably, when you mention “visible diabetes device(s)” that could include ALL diabetes devices. If so, I was once approached by the landlord of a public house and requested to leave as someone had reported me ‘shooting up’.

      Fortunately, work colleagues that were with me immediately jumped to my defence, indicating that what I was ‘shooting up’ was insulin as we’d ordered food to eat-in.

      The landlord accepted this after I showed him indication that I am, in fact, a Type 1 diabetic.

      3
      3 years ago Log in to Reply
    20. Jane Cerullo

      Happens a lot and ends in a good conversation.

      2
      3 years ago Log in to Reply
    21. Janis Senungetuk

      Yes, while waiting in line at the grocery checkout was asked about my sensor on my upper arm. The person asking recognized it from the almost constant Dexcom TV commercials. They asked if it was worth the cost. I explained that it had made a tremendous difference over testing 10 times a day, especially since it paired with my pump.

      3
      3 years ago Log in to Reply
    22. TEH

      I have quite a few times. I have approached others wearing a pump or Dexcom 6 or 7. Most recently a young lady wearing an Omni pod.

      1
      3 years ago Log in to Reply
    23. Nicholas Argento

      Not as often now that they are so common. I started a pump in 1982 and CGM in 2006, few had them then, more questions.

      3 years ago Log in to Reply
    24. Jneticdiabetic

      Yes! I love meeting fellow T1Ds is the wild! Most recently in the seat next to me on a flight. The gal next to me noticed my pump in my pocket and showed me her pod. Had a nice chat. What odd luck that two T1D strangers are assigned seats next to each other. I should have bought a lottery ticket that day.

      3
      3 years ago Log in to Reply
    25. KarenM6

      It happens all the time and I am happy to chat with anyone who asks.
      Most recently, two women in line waiting to get onto a plane asked if I was type 2 and asked about my CGM. They were very nice.
      I explained I have had type 1 for nearly 52 years and just blabbered for a bit about diabetes in general… they started to seem slightly dazed, so I stopped… and, in any case, the line started to move again.

      1
      3 years ago Log in to Reply
    26. Karen Mielish-Clausell

      No, but I have spoken to people with devices and showed them mine

      1
      3 years ago Log in to Reply
    27. lis be

      I said yes, but never to have a conversation, it’s always more like a “Cool, I have one too” kind of moment. It’s a club!

      3
      3 years ago Log in to Reply
    28. kim bullock

      I have been asked if it is a pain pump, a pager. Asked whst that pink or purple tape on my arm is. I use over the counter tape to secure my cgm

      3 years ago Log in to Reply
    29. Steven Gill

      Just last week was asked about my “medic alert bracelet,” and our discussion veered to her being a newly diagnosed TYPE 2.

      3 years ago Log in to Reply
    30. KC

      They asked if it was a nicotine patch…ya know…to quit smoking. Man, if my patch is THAT big, I have a serious problem!

      3 years ago Log in to Reply
      1. KC

        Also, many people think my OG omnipod PDM is a BlackBerry hahaha they’re like “How are your text bubbles blue if THAT’s your phone?!” (Iphone’s text bubbles are blue).

        3 years ago Log in to Reply
    31. Brad Larson

      Rarely as my CGM sensor is hidden. Will go back on the pump in October, we’ll see. I do approach people with visible pumps or CGM sensors on their arms. It is like approaching a stranger with a dog- it is okay to ask about the dog, right? Once I say I am a T1D, all is well.

      3 years ago Log in to Reply
      1. Brad Larson

        One time, entering London by flight, the immigration official asked if that was a “pain pump.” Have never heard that term.

        3 years ago Log in to Reply
      2. AnitaS

        Sometimes people who need morphine for pain control have devises that give them the medication just as an insulin pump gives insulin. Hence the term “pain pump”.

        3 years ago Log in to Reply
    32. AnitaS

      I don’t believe anyone has that I can remember as most of the time, the devises can’t be seen. However once while on the beach while on vacation, someone saw me with a waterproof devise hanging from my neck which I used to put glucose tabs in if I ever needed them while out in the water. They asked me what I had in that necklace.

      3 years ago Log in to Reply
    33. PamK

      I love it when this happens!

      3 years ago Log in to Reply
    34. Fay Jacobsohn

      Usually kids!

      3 years ago Log in to Reply

    Has a stranger ever approached you to talk about your visible diabetes device(s)? Cancel reply

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