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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Does your health insurance offer benefits or cover services that adequately meet your needs?

    Home > LC Polls > Does your health insurance offer benefits or cover services that adequately meet your needs?
    Previous

    On average, how many adjustment boluses would you estimate you manually give yourself in a day? For the purposes of this question, these “adjustment boluses” do not include insulin automatically dosed by an algorithm without user input, and exclude doses given when also bolusing for food.

    Next

    Has a stranger ever approached you to talk about your visible diabetes device(s)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Gustavo Avitabile

      Here in Italy, like in most European countries, we have National Health Service, which is free (covered by general taxation) and covers our needs.

      3
      3 years ago Log in to Reply
      1. Lawrence S.

        Hooray for Italy and most European countries. Maybe someday in the distant future, the USA will catch up.

        5
        3 years ago Log in to Reply
      2. Amber Thompson

        Are ALL type 1 diabetes medications and supplies covered? At $0. At what percentage are you taxed?

        3 years ago Log in to Reply
    2. Kathy Hanavan

      For diabetes, yes, but Medicare in their wonderful wisdom, does not cover eye, dental or hearing so those are big expenses for me.

      3
      3 years ago Log in to Reply
      1. Wanacure

        Kathy, you might be interested in a group that’s trying to expand Social Security and improve Medicare: https://pnhp.org/

        3 years ago Log in to Reply
      2. Jian

        Medicare Advantage plans do cover those

        1
        3 years ago Log in to Reply
    3. Bruce Schnitzler

      A combination of Medicare and a supplemental policy.

      3 years ago Log in to Reply
    4. Steve Rumble

      My needs are met through a combination of private health insurance and services provided by the Veterans Administration. The VA is my primary source of T1D supplies but my private insurance provides ophthalmologic care.

      3 years ago Log in to Reply
    5. Sondra Mangan

      Tricare for Life denies inhaled insulin unless injected doesn’t work. I think I could benefit by treating the occasional sticky high with inhaled insulin—but it’s too expensive to pay completely out of pocket.

      3
      3 years ago Log in to Reply
    6. Gary Rind

      Ugh, Express Scripts is my PBM. made me dump FIASP and won’t cover Afrezza.

      1
      3 years ago Log in to Reply
    7. Mick Martin

      As stated by Gustavo Avitabile, most European countries have a National Health Service, which is covered by direct taxation. (I live in the UK, so my ‘insurance’ is our NHS (National Health Service).

      There IS the option to take out your own private insurance, and some people do this as they don’t like NHS ‘queues’, but I’m in no position, financially, to be able to do that.

      2
      3 years ago Log in to Reply
    8. Daniel Bestvater

      I live in Ontario Canada so I have no health insurance. I owned my own business and could not get health insurance due to a pre-existing condition (T1D).
      I have several friends in the same boat. I have spoken to a number of T1D’s that took government jobs just to be covered under their group medical plan. In hindsight this probably would have been a good decision financially!!

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        Hmm. I always thought that Canada had a government health insurance program?

        1
        3 years ago Log in to Reply
    9. Lawrence S.

      I’m retired. Have Medicare and a supplemental from my former employment. However, I have had situation where I could not get the services that I need. Once I went to get a stress test with contrast. When I got to the testing site, they gave me a paper to sign which said that Medicare will probably not cover the cost of this test. They wanted me to pay $1200 up front. i walked out.
      Also, I have to buy my own eye insurance and dental insurance. I have no hearing aid insurance.

      1
      3 years ago Log in to Reply
    10. KIMBERELY SMITH

      Medical and medication Medical Wheelchair also Dietetic Supplies

      3 years ago Log in to Reply
    11. Kris Sykes-David

      I am covered under my husbands federal health insurance and Medicare. Out of pocket costs somewhat inhibit me from trying a pump or Affreza. Like others mentioned, vision and dental are not covered.

      3 years ago Log in to Reply
    12. Wanacure

      In Washington State we elected a very rigorous Insurance Commissioner. See https://www.insurance.wa.gov/
      And Kaiser Permanente, like Mayo & Cleveland Clinics, practices preventive medicine. So I get a discount on hearing aids, etc., BUT there are copays. And I pay for dental insurance, but it’s added to my monthly Advantage plan. I do get free gym membership because patients who exercise cost KP less. Next month I’ll take a free in-person Eccentrics class (see PBS) at Shoreline Senior Center, 20’ bus ride away. SO FIRST ELECT AN INSURANCE COMMISIONER WHO WILL SERVE CONSUMERS, ands who is NOT an insurance company stooge. I’d be much happier, though, with a non-profit health care provider as in Switzerland, or a state run non-profit health care plan: https://pnhp.org/
      And https://www.psara.org/

      1
      3 years ago Log in to Reply
      1. Amber Thompson

        I had Kaiser permanente in GA. They told me that unless I had an upper extremity disability or was an amputee, they do not cover the pens, only the vial. Same with medicare, they only cover the cheapest option, not the option that is best for the patient. Socialized medicine is not the answer to the healthcare issue in the USA.

        3 years ago Log in to Reply
    13. Jane Cerullo

      I feel like I am discriminated against for choosing MDI with an InPen. I must pay co pay for two insulins and the InPen. Insurance charges a huge amount for pen needles. I get them mail order for a lot less. From Diathrive. I don’t understand why Medicare pays for a pump and also the insulin. And not for MDI. When I stop working will probably have to go back to a pump.

      1
      3 years ago Log in to Reply
    14. Pauline M Reynolds

      My only income is Social Security and I belong to an HMO. While my insulin was free with my previous insurance, the HMO is allowed to charge up to $35 a month, and they do. This was quite a shock at first, but I do appreciate the other economies they provide.

      3 years ago Log in to Reply
    15. Sherrie Johnson

      Medicare plus supplement that covers the 20%. Not an inclusive not an advantage plan. So far no problems with all my diabetic supplies or anything else. I pay zero copay and deductibles. Anthem plan f very happy with it.

      3 years ago Log in to Reply
      1. Wanacure

        Aha! Thanks for that info, Sherrie. So you chose Original Medicare & chose a Supplemental PLan? Sounds better than my KP Medicare Advantage Plan. Though it may involve seeing new doctors & much time changing my iPhone’s Contacts list, I’ve made an appt with a. SHIBA counselor to consider Original Medicare with a Supplement. Thanks for sharing. ❤️😎. My KP Endo doc & her team are only available on some days at some times. KP does NOT offer Original Medicare!

        3 years ago Log in to Reply
    16. lis be

      We have to make choices based on what we can afford and what the insurance company covers instead of what will help us achieve the best control. (Bad blood sugar control ultimately cost insurance company and diabetics more money in time as a result) Insurance companies negotiate prices with some companies and not others. It’s hard to anticipate what they will do year to year, which of your doctors will be dropped from coverage. Which medicines will stay the same price. An example- for a decade I was able to afford insulin, syringes and blood test strips, but not a pump (etc). Then the company insurance changed, I had to find all new doctors in-the new network, get new prescriptions filled, and found out that I now could qualify for a pump, but I could not afford the test strips that talked to the pump.
      Now I’m anxiously awaiting the end of my 5 year medtronic 630 warranty so I can see if I qualify for IQ (or any smart pump that will keep my sugars level when I’m sleeping)

      3
      3 years ago Log in to Reply
    17. beth nelson

      It’s a shame that Medicare doesn’t cover any of the emergency hypoglycemia products … if somebody knows different, please tell me how to make this happen! Thank you!

      3 years ago Log in to Reply
      1. Kristine Warmecke

        I just got a new glucagon kit (the type you have to mix) last year, the Medicare covered.

        3 years ago Log in to Reply
    18. Steven Gill

      When I worked and with insurance was costly (stopped using a CGM several years) What I’ve learned since may have been less costly trying other systems, or looking at options.

      3 years ago Log in to Reply
    19. Kristine Warmecke

      Being on Medicare my Novolog should cost $35 per month but since it’s not what is on the formulary I pay $70 per month. All the rest of my DM supplies are $0 as long as I use what they say I can.

      3 years ago Log in to Reply
      1. Amber Thompson

        It is so stupid that insurance makes the medical decisions in this country, not the doctors.

        1
        3 years ago Log in to Reply
      2. Wanacure

        Kristine, are you on Original Medicare with a Supplemental Plan? If so, are their other supplemental plans available? Is Humalog on the formulary? It’s similar to Novolog: fast acting.

        3 years ago Log in to Reply
    20. Janis Senungetuk

      Unfortunately, right now I don’t have health insurance. I’m very hopeful that by the end of October I’ll have completed the process to again have basic coverage.

      3 years ago Log in to Reply
    21. Amber Thompson

      Currently, I am on a plan with Cigna through the healthcare marketplace that covers my Humalog pens, Basaglar pens, and freestyle libre so that I pay $0. But everything else, including endocrinology visits are very very expensive.

      3 years ago Log in to Reply
    22. Anne Mueller

      Sometimes. As a diabetic who uses both a CGM and a pump., I use lots of supplies. My insurance gives me the exact number of supplies I need. With my pump and my insulin it is not as much of a problem because I spent an extended amount of time on prednisone and my doctor changed my prescriptions to have me change my infusion site every 2 days. I built up a supply of more than I needed. But my Dexcom is a whole different story. Dexcom has been good about replacing sensors when they come off early, but there are months when I come uncomfortably close with having to go without for a few days because . . . I don’t know why. They come off early and sometimes Dexcom doesn’t always replace them and the pharmacist Will Not Refill just because I am out of sensors, and even if they did, insurance won’t pay for it. You need to have back ups for all your supplies, including sensors, and it’s insane that you can’t have them. What if you run out on vacation? Too bad for you. You can have your prescription transferred to wherever you are, but after that, your endo or whoever writes your prescriptions will have to write a new one for your regular pharmacy because a prescription can only be transferred once. The whole thing is insane.

      3 years ago Log in to Reply
      1. Wanacure

        Anne, take heart. Doctors. patients, volunteers are uniting & working to eliminate high cost of middlemen, needless paperwork & data entry, and to improve benefits. Here are some links: http://www.pnhp.org/ http://www.psara.org/, http://wholewashington.org/

        Are there similar groups in your state or a local chapter of physicians for a national healthcare plan?

        3 years ago Log in to Reply
    23. Brad Larson

      Just wish they would cover my GLP-1 – Liraglutide

      3 years ago Log in to Reply
    24. T1D4LongTime

      The health insurance coverage is great, but the processes PBMS and Medical Supply places use to provide DME and prescriptions for all diabetics is dangerous. Diabetics use varying amounts of devices and medications and the healthcare industry has a bias that assumes fixed amount of use (3 test strips per day for example or 1 infusion set cartridge every 3 days). This is not the way to manage our disease…. restricted by the number of devices/test strips we can use per day.

      3 years ago Log in to Reply
    25. Jeff Balbirnie

      The insurance system is deliberately hostile toward our usage or being fully and correctly covered. Haphazard, entirely random insulin put in a specific coverage formulary, meters-strips fully covered in one period and refused coverage at some next random period. An openly hostile system against us period.

      3 years ago Log in to Reply

    Does your health insurance offer benefits or cover services that adequately meet your needs? Cancel reply

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