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    • 3 hours, 2 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 23 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 17 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!)

    Home > LC Polls > For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!)
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    For people diagnosed with T1D before 2000: If you have used a CGM, in what year did you start using a CGM?

    Next

    If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. ConnieT1D62

      I was diagnosed in December 1962 back in the primitive days of glass syringes, stainless steel needle tips, and urines test kits. The before meals and at bedtime urine tests and a monthly blood draw at a lab was it for monitoring BG levels. My urines were usually mucky olive green or bright orange.

      Got a Medtronic CGM to use with 512 or 515 (I don’t remember the version of the pump). Life changing for sure! Switched to Dexcom G4 in 2011 and since then CGM dependent for the rest of my life – until something better comes along.

      2
      4 years ago Log in to Reply
      1. PamK

        @ConnieT1D62 – I was diagnosed July 1964 and I remember the “primitive days” as well. We’ve come a long way, baby! 🙂

        2
        4 years ago Log in to Reply
      2. sweet charlie

        Yup ! To Connie and Pam, 1953 for me !! I sharpened the needles on the book match striker sand paper and used the fine wire to clean it out !! The big deal then was when we went from the tablet in the test tube to peeing on a strip and watching the color change.. Oh and insulin was $1.25 a vile and you used it all!!

        1
        4 years ago Log in to Reply
    2. Jane Cerullo

      Took two years for proper diagnosis then went on CGM. Been on ever since. Like Dexcom better than FSL but used both depending on insurance.

      4 years ago Log in to Reply
    3. KCR

      My recollection is fuzzy but sometime in the first year. I remember learning about Think Like a Pancreas on the ADA forum. I was pretty lost that first year and reading TLAP helped so much! I then asked my HCP about prescribing Dexcom. 🙂

      4 years ago Log in to Reply
    4. TomH

      I started on CGM (Dexcom G6) almost immediately after diagnosis as T1 by my Endo, but that was after having been mis-dx’d for 8 years as T2. I know there are a lot of folks that delay or seemingly required delay/use of MDI for up to 1 year. I encourage anyone dx’d as T1 or T2 using insulin to seek a CGM. I’m a firm believer that what gets measured gets done and having the CGM gives people the knowledge on which to act.

      3
      4 years ago Log in to Reply
    5. Mary Dexter

      Getting access to CGM was a long process,fighting doctors, CDEs, insurance companies, their appeal board, and then fighting every year to retain it. Now I am over 65, I must fight every 6 months.

      1
      4 years ago Log in to Reply
    6. MARIE

      Started process at first endo appointment, but it took over three months to actually get approved and shipped.

      4 years ago Log in to Reply
    7. gary rind

      DX in ’03, didn’t start CGM until Dec ’20. MDI & meter guy, wasn’t wild about having something stuck in my body 24/7. as I told my endo, didn’t like the idea of scanning my arm like it was a can of peaches at the supermarket! but Libre2 has been good, wish it was more accurate. still too many confirmation fingersticks for my liking.

      4 years ago Log in to Reply
    8. Mattie Fisher

      I didn’t even know about CGMs until about 3 years ago. How long has it been since they have been around?

      4 years ago Log in to Reply
      1. Mattie Fisher

        If CGMs have been around longer than 5 years, I’ll be legit MAD that none of my, multiple Drs, never told me.

        4 years ago Log in to Reply
      2. Bob Durstenfeld

        15 years. Though I was part of a trial for CGM in 1975 and I thought it took way too long to come to market. Be MAD.

        4 years ago Log in to Reply
    9. Bob Durstenfeld

      My granddaughter was diagnosed at age 18 months. She was on DEXCOM G6 as soon as insurance approved coverage,

      4 years ago Log in to Reply
    10. Amanda Laforet

      I was diagnosed in 1999, and started using a CGM with Medtronics in 2005 for a week when it was the big brick. I then went off the CGM to Dexcom series 7 for from 2005 – 2008. Then from 2008 – 210 I was on Enlite from 2010 – now I have been back with Dexcom.

      4 years ago Log in to Reply
    11. Molly Jones

      I mistakenly chose 5-10yrs, when it was 4.5yrs.
      I was diagnosed as type 1 in Dec 2001 and started using Medtronic sensors mid 2006. After multiple attempts with upgrades, I stopped these sensors as they did not seem worthwhile due to so many errors.
      I started Dexcom almost ten years later and am still using this CGM.

      4 years ago Log in to Reply
    12. Sherolyn Newell

      Prior to Dexcom G6, it seemed like they all said you still had to do finger sticks as well. I didn’t think I needed both. Then G6 came along and replaced 99% of finger sticks, so I got one. I would hate to have to do without now that I have it.

      4 years ago Log in to Reply

    For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!) Cancel reply

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