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    • 12 hours, 27 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 12 hours, 27 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 12 hours, 30 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 14 hours, 34 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 14 hours, 34 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 15 hours, 16 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 16 hours, 19 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 16 hours, 19 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 17 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 18 hours ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 13 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!)

    Home > LC Polls > For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!)
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    For people diagnosed with T1D before 2000: If you have used a CGM, in what year did you start using a CGM?

    Next

    If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. ConnieT1D62

      I was diagnosed in December 1962 back in the primitive days of glass syringes, stainless steel needle tips, and urines test kits. The before meals and at bedtime urine tests and a monthly blood draw at a lab was it for monitoring BG levels. My urines were usually mucky olive green or bright orange.

      Got a Medtronic CGM to use with 512 or 515 (I don’t remember the version of the pump). Life changing for sure! Switched to Dexcom G4 in 2011 and since then CGM dependent for the rest of my life – until something better comes along.

      2
      4 years ago Log in to Reply
      1. PamK

        @ConnieT1D62 – I was diagnosed July 1964 and I remember the “primitive days” as well. We’ve come a long way, baby! 🙂

        2
        4 years ago Log in to Reply
      2. sweet charlie

        Yup ! To Connie and Pam, 1953 for me !! I sharpened the needles on the book match striker sand paper and used the fine wire to clean it out !! The big deal then was when we went from the tablet in the test tube to peeing on a strip and watching the color change.. Oh and insulin was $1.25 a vile and you used it all!!

        1
        4 years ago Log in to Reply
    2. Jane Cerullo

      Took two years for proper diagnosis then went on CGM. Been on ever since. Like Dexcom better than FSL but used both depending on insurance.

      4 years ago Log in to Reply
    3. KCR

      My recollection is fuzzy but sometime in the first year. I remember learning about Think Like a Pancreas on the ADA forum. I was pretty lost that first year and reading TLAP helped so much! I then asked my HCP about prescribing Dexcom. 🙂

      4 years ago Log in to Reply
    4. TomH

      I started on CGM (Dexcom G6) almost immediately after diagnosis as T1 by my Endo, but that was after having been mis-dx’d for 8 years as T2. I know there are a lot of folks that delay or seemingly required delay/use of MDI for up to 1 year. I encourage anyone dx’d as T1 or T2 using insulin to seek a CGM. I’m a firm believer that what gets measured gets done and having the CGM gives people the knowledge on which to act.

      3
      4 years ago Log in to Reply
    5. Mary Dexter

      Getting access to CGM was a long process,fighting doctors, CDEs, insurance companies, their appeal board, and then fighting every year to retain it. Now I am over 65, I must fight every 6 months.

      1
      4 years ago Log in to Reply
    6. MARIE

      Started process at first endo appointment, but it took over three months to actually get approved and shipped.

      4 years ago Log in to Reply
    7. gary rind

      DX in ’03, didn’t start CGM until Dec ’20. MDI & meter guy, wasn’t wild about having something stuck in my body 24/7. as I told my endo, didn’t like the idea of scanning my arm like it was a can of peaches at the supermarket! but Libre2 has been good, wish it was more accurate. still too many confirmation fingersticks for my liking.

      4 years ago Log in to Reply
    8. Mattie Fisher

      I didn’t even know about CGMs until about 3 years ago. How long has it been since they have been around?

      4 years ago Log in to Reply
      1. Mattie Fisher

        If CGMs have been around longer than 5 years, I’ll be legit MAD that none of my, multiple Drs, never told me.

        4 years ago Log in to Reply
      2. Bob Durstenfeld

        15 years. Though I was part of a trial for CGM in 1975 and I thought it took way too long to come to market. Be MAD.

        4 years ago Log in to Reply
    9. Bob Durstenfeld

      My granddaughter was diagnosed at age 18 months. She was on DEXCOM G6 as soon as insurance approved coverage,

      4 years ago Log in to Reply
    10. Amanda Laforet

      I was diagnosed in 1999, and started using a CGM with Medtronics in 2005 for a week when it was the big brick. I then went off the CGM to Dexcom series 7 for from 2005 – 2008. Then from 2008 – 210 I was on Enlite from 2010 – now I have been back with Dexcom.

      4 years ago Log in to Reply
    11. Molly Jones

      I mistakenly chose 5-10yrs, when it was 4.5yrs.
      I was diagnosed as type 1 in Dec 2001 and started using Medtronic sensors mid 2006. After multiple attempts with upgrades, I stopped these sensors as they did not seem worthwhile due to so many errors.
      I started Dexcom almost ten years later and am still using this CGM.

      4 years ago Log in to Reply
    12. Sherolyn Newell

      Prior to Dexcom G6, it seemed like they all said you still had to do finger sticks as well. I didn’t think I needed both. Then G6 came along and replaced 99% of finger sticks, so I got one. I would hate to have to do without now that I have it.

      4 years ago Log in to Reply

    For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!) Cancel reply

    You must be logged in to post a comment.




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