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    • 15 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 25 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 31 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 31 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 31 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 35 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 35 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 16 hours, 57 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 58 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 17 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 26 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 26 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 27 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.

    Home > LC Polls > For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    39 Comments

    1. Ahh Life

      Yes, even in 1953 each grade school (6 years) teacher was given a kit with adrenalin in it and typed instructions by my mom. And though her mind is gone, Mom’s still alive, God Bless her. 🥰

      4
      6 months ago Log in to Reply
    2. Kristine Warmecke

      In the 1970’s there was no blood glucose checks, CGM, etc. I was on R and NPH twice a day and had to take my lunch to school. No urine testing while at school, but first thing when I got home. No special accommodations made.

      1
      6 months ago Log in to Reply
    3. Linda Pease

      The school 40+ years ago let me eat at times I needed and even tho it meant that sometime 15 minutes before school let out for the day. It was students also with t1d that made it hard

      6 months ago Log in to Reply
    4. Melissa Carter

      We home school because early on we saw that our local schools were unable to accommodate our oldest son’s autism in a way that would allow him to thrive. I am certain if they couldn’t provide speech therapy support then, they would never be competent to manage his T1D now.

      6 months ago Log in to Reply
    5. Britni

      Officially I was granted some accommodations for standardized testing, like being allowed to eat and to make up time lost while eating or using the bathroom. Unofficially (I think), I was allowed to eat during class and the teachers all turned a blind eye to me wandering the hallways without a pass (since they knew I was probably headed for the nurses’ office or the bathroom).

      6 months ago Log in to Reply
    6. Milly Bassett

      I don’t have a child with T1D

      6 months ago Log in to Reply
    7. Nevin Bowman

      This was a very long time ago when no one knew much about T1, but I was allowed to snack as needed(before finger sticks were a thing).

      6 months ago Log in to Reply
    8. Natalie Castillo

      My t1d daughter has accommodations. I’m also t1d and didn’t have them

      6 months ago Log in to Reply
    9. Jennifer Wilson

      Not certain if leaving snacks and an extra vial of insulin with the nurse is considered an “accommodation”, but that was the extent of it. Of course, if I felt my BG level was low, I was permitted to visit the nurse.

      6 months ago Log in to Reply
    10. anj1832

      I was always allowed bathroom breaks whenever I needed them. I was also allowed to have snacks with me (especially in middle/high school when that sort of thing wasn’t allowed in class). In elementary school, my mom came by the school at lunch to check my blood sugar every day. In middle school I went to the office to give myself shots and then later to handle my insulin pump (changing infusion sets after they got ripped out, etc). High school was a lot different, I didn’t really have any accommodations, and I don’t think my teachers even knew I had type 1.

      6 months ago Log in to Reply
    11. rick phillips

      I have got the best story about accommodations in 1975. However I cannot even begin to tell the whole thing here. But damn things were funny in 1975

      6 months ago Log in to Reply
      1. Lawrence S.

        That is quite a teaser. I hope to hear your story some time.

        2
        6 months ago Log in to Reply
      2. Drina Nicole Jewell

        Now I need to know 🤣

        2
        6 months ago Log in to Reply
    12. Csampogna

      Allowed to test blood sugar, eat, drink, restroom as needed; some extra time during long exams to test and snack.

      6 months ago Log in to Reply
    13. Anthony Harder

      When I was in elementary school (one or two teachers the entire day), the teacher always had hard candies in her/his desk. As I matured into jr. high school (different teacher every hour), carrying my own reaction remedies became my responsibility.

      6 months ago Log in to Reply
    14. pru barry

      Getting diabetes at the beginning of high school was what I hoped would be deep dark secret. Word got out, of course, but there were no special accommodations made because I still wanted it all to be invisible. Ha! If I’d only known then what I know now, or if I’d known anyone else with T1, things probably would have been different.

      1
      6 months ago Log in to Reply
    15. Karen Newe

      I got T1 as an adult.

      1
      6 months ago Log in to Reply
    16. George Lovelace

      Dxed in H.S. in 64, No accomodations given or even acknowlegement of problems. I was small so the coaches were easier on me with workouts.

      1
      6 months ago Log in to Reply
    17. Lawrence S.

      I went to graduate school while a T1D. By that age, in 1978, I was on my own. I’m sure that I did urine tests before and after classes, and ate snacks as needed.
      There were no bloodtests, CGM’s or insulin pumps. Little bottles of apple or orange juice were my go to’s back in the day. Eating/drinking a snack in classes meant being super quiet. I am also sure that I told all of my professors that I was a diabetic.

      6 months ago Log in to Reply
    18. Erin Cassidy

      Dx’ed in middle school in 1988, my mom was a teacher and made sure all of my teachers knew. Some accommodated more than others but I was definitely supported all through high school.

      6 months ago Log in to Reply
    19. Drina Nicole Jewell

      I chose other. My 13 yr old has accomodations and my 17 yr old does not. He chose to skip out on them at the beginning of high school. At the beginning of each semester he personally talks to each of his teachers and explains his type 1 and the issues he occasionally has with highs and lows and his choice to not have a 504 plan. It’s worked well for him.

      1
      6 months ago Log in to Reply
    20. Joan Benedetto

      This is a pretty broad question. My child has a 504 plan which allows me to completely manage his diabetes from home. He goes to a private school with no nurse. We provide a kindle in the classroom which displays our son’s Nightscout site. He self manages checking BG/dosing for lunch via pump. If I see via Nightscout/Share that other action is necessary, I message the teacher. There are five others in the “text tree” just in case. We’ve used this system since three year old preschool, and he is now in fifth grade.

      2
      6 months ago Log in to Reply
    21. cynthia jaworski

      Dx in the fifth grade in 1962, the only accommodation to be made was to let the teacher know that I was diabetic and might need to eat. I took my NPH in the morning, and that was about it. No urine testing during school (why bother?). The first few weeks after dx I walked home for lunch but as we all got more accustomed to the diet, I resumed bringing a bag lunch to school.Amazingly, there were few problems. I’m sure that if an A1C had been done at the time, it would not have been good.

      6 months ago Log in to Reply
    22. Mary Dexter

      I was 48 when initially diagnosed and working in the local school K-12 as a substitute teacher. No accommodations. The kids were very helpful.

      6 months ago Log in to Reply
    23. Bob Durstenfeld

      When I was in elementary school my parents spent time with each teacher explaining diabetes and that I might need a snack. This was 50 years ago. Most teachers were clueless. For my eldest son we had a similar experience, but, in classroom blood testing was approved. For my granddaughter she uas the Dexcom G6 and a reader that the teacher has access to and understands what to do for both high and low bg.

      6 months ago Log in to Reply
    24. Leslie Frezza

      My son has a diabetes health plan and 504, both were required/suggested by his school nurse. His management at school has been very easy, he does everything himself but has contacts at the school if he needs help. The office staff are great too, they have a dedicated area where he can keep extra supplies.

      6 months ago Log in to Reply
    25. KarenM6

      Accommodations weren’t a thing when I was in school.
      I don’t have any idea if my Mom contacted teachers or administrators. She might have but I kinda don’t think she did.

      6 months ago Log in to Reply
    26. Lauren Carey

      Yes and No. I was given the time and space to eat a snack, check blood sugar, give insulin, etc. I did not have a 504 plan and I don’t think it was an option when I was in school.

      6 months ago Log in to Reply
    27. Janis Senungetuk

      In 1955. in the 3rd grade, there were no accommodations. After my dx my mother first spoke with the school nurse re. urine testing and assistance with hypoglycemia. She refused, saying that was my responsibility. My teacher was clueless. She kept the box of graham crackers Mom had given her locked in a cabinet, which made accessing one when I felt I needed it difficult. She did give me a piece of a cracker when another student had a classroom birthday celebration with ice cream and cupcakes. I had to eat my cracker at my desk while the other kids enjoyed their treats together at the large table in the back of the classroom. The next time there was a birthday party I was sent to the school library to stay until a student came to get me. From that point on I did everything I could to not need assistance with lows. Since there was only urine testing available I’m sure I was running high glucose levels most of the time. Throughout my public education there were no accommodations. It wasn’t until much later, as an adult in graduate school, that my request for accommodations because of T1D was finally acknowledged.

      1
      6 months ago Log in to Reply
    28. PamK

      I answered “Yes” even though I was in school many years ago. 504’s were not being used then, but i was allowed to go into the hallway at school to eat a mid-morning snack and I was sent to the Nurse anytime I felt “dizzy,” which was my symptom of a low blood sugar. This was back in the 60’s, so a lot has changed since then.
      There were no home blood testing kits, only urine sugars. So, testing at school was not an option. Also, I was only given one shot of beef/pork mix insulin a day, in the morning. So I did not inject at school. So, there really wasn’t a need for a 504. My Mom would just go in and talk to the school nurse/administration and the timing for my snacks and meals would be worked out by them and my teacher. I’m honestly not sure if there was any paperwork involved.

      1
      6 months ago Log in to Reply
      1. Lawrence S.

        Several people referred to “504’s”. What is that, some kind of an accommodations program?

        6 months ago Log in to Reply
      2. PamK

        @Lawrence S. – 504 refers to Section 504 of a government act that declared diabetes a disability. This allows students to have a 504 Plan that allows for them to do thinks like take breaks, eat a snack, or take insulin when needed while in school.

        6 months ago Log in to Reply
    29. AnitaS

      I was diagnosed in 1973 at age 9yrs. There was no accommodations but I am sure I would have been able to eat/drink something if needed to bring my blood sugar up. There were no blood glucose meters at that time and I didn’t have to give myself injections at school as my NPH and Regular insulins were combined into one syringe and just given two times a day (once in the morning and once at dinner time).

      6 months ago Log in to Reply
    30. Eva

      When I was diagnosed with pancreatitis in 1987, I had severe stomach pains after eating, felt nauseous and I needed to go to the bathroom often. I remember very well that I had to talk to and persuade each of the teachers to allow me to have some accommodations. Some allowed them, others did not.
      When my pancreas finally gave out and I was put on insulin, these same teachers were much more accommodating after explaining what I needed. I was able to check my blood sugar, and eat/drink in the classrooms as needed. However, my gymnastic and soccer coaches wanted nothing to do with me as I was liability to the teams. Rightfully so cause, I was always running low.

      6 months ago Log in to Reply
    31. JuJuB

      “Accommodations” were not a thing when I was in school. In elementary school, I’m sure my mother met with my teacher (I think she supplied them with juice and crackers, and told them what to look for as signs of going low); by the time I was in middle school and high school, I was handling things on my own and none of my teachers necessarily knew about my diabetes or would have known what to do about it.

      Back then, too, students carried their own meds. The only time you kept stuff at the nurse’s office was if it needed to be refrigerated. I was one-shot-a-day back then (this is in the 80s), so no nurse for me either.

      6 months ago Log in to Reply
    32. mbulzomi@optonline.net

      I have no children with T1, T1 1/2 or T2 Diabetes. Only I have Diabetes.

      6 months ago Log in to Reply
    33. Tom Webb

      I was in school some years ago but my mother would bring juice placed in the office. The nurse was only at the school for a very short time during the day and her office was locked when she was not there. The juice was either orange or apple juice.

      6 months ago Log in to Reply
    34. T1D4LongTime

      I was in school in the 60s and 70s, so ‘accommodations’ didn’t exist. After several hospitalizations in 7th grade, I was allowed to go to my locker outside of allowed time period to eat a snack. Not really an ‘accommodation’. No food or drinks in class in my school years, so Lifesavers were my low treatment choice

      6 months ago Log in to Reply
    35. Samantha Hunter

      I technically received accommodations, but still received a lot of judgment and discouragement from using those accommodations. In seventh grade, I had to leave five minutes early before lunch to go to the nurse to have my blood sugar taken (I had just been diagnosed and wasn’t comfortable doing it myself), and my seventh grade history teacher would literally stop what he was doing to glare at me as I left the room…

      6 months ago Log in to Reply

    For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments. Cancel reply

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