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  • Activity
    • 4 hours, 43 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 4 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 4 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 5 hours, 58 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 4 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 6 hours, 5 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 6 hours, 5 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 6 hours, 5 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 6 hours, 9 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 6 hours, 9 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 6 hours, 10 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 6 hours, 10 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 6 hours, 10 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 10 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 6 hours, 10 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 6 hours, 31 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 32 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 51 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 7 hours ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 7 hours ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 7 hours, 1 minute ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 7 hours, 1 minute ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 7 hours, 1 minute ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 7 hours, 1 minute ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 7 hours, 2 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    Does your T1D healthcare provider inform you when new devices and medications become available to you?

    Home > LC Polls > Does your T1D healthcare provider inform you when new devices and medications become available to you?
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    If you have ever changed or upgraded from one insulin pump to another, why did you change from your previous pump to your current pump? Select all that apply!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    34 Comments

    1. Lawrence S.

      I can’t remember my healthcare provider bringing up in conversations new medications or devices. However, I usually ask question about new devices and medications, which leads to a discussion.

      3
      12 months ago Log in to Reply
      1. Lawrence S.

        In hindsight, I remember when I wanted to switch to a different, and new on the market pump and CGM system, my healthcare provider refused to make a recommendation of one medical device over another. She didn’t think it was ethical to recommend one device over another. I thought that was very strange, and counter intuitive to what a medical professional should do to help a patient.

        12 months ago Log in to Reply
    2. Larry Martin

      I am connected to so many blogs and data that I usually know before it is brought up by them. They have patient quotas by huge conglomerates to satisfy you know because $$$

      3
      12 months ago Log in to Reply
    3. Mary Dexter

      No, I just hope to be able to keep my insulin and CGM.

      12 months ago Log in to Reply
    4. Robert Wilson

      Usually I know the newest stuff before she does but sometimes she gets info before I do. So we make a good team!

      1
      12 months ago Log in to Reply
    5. Mick Martin

      I would say sometimes!

      I live in the UK (United Kingdom of Great Britain and Northern Ireland) where our NHS (National Health Service) provides supplies for diabetes-related products. i.e. everything that you can get on prescription. They wouldn’t want to inform me of all new developments in case I wanted to change supplying companies for the latest and greatest pump technologies, for instance, as they wouldn’t give my existing ‘gear’ to another patient. They MAY also experience difficulty in arranging financing for said products.

      I’m generally informed about things that are unlikely to cost money, such as areas of research, etc.

      12 months ago Log in to Reply
    6. Keith LeMar

      I would say no because I usually know before he does. I’m sure he does tell other of his patients who may no know about a new device.

      12 months ago Log in to Reply
    7. Dennis Dacey

      Other. Over many decades this situation has evolved. In times past, my physicians and I were involved in innovative diabetes management devices and medication. Now in my later laidback years retired years, I continue to stay informed, and when visiting with my current medical team, at least two begin the session with “… what will you teach me today about diabetes”.

      3
      12 months ago Log in to Reply
    8. TomH

      I answered “no”, but to be fair, I stay on top of developments myself pretty much.

      5
      12 months ago Log in to Reply
    9. Marty

      They haven’t so far, but I’ve only been seeing this particular team for a couple of years. I am on the lookout for Tandem’s new pumps to become available, but I’ll probably hear about it at the same time they do.

      12 months ago Log in to Reply
    10. Kathleen Juzenas

      Focusing on “when new devices…become available” to me, I said yes, but it’s only every five years that we have a discussion of options that Medicare will cover.

      4
      12 months ago Log in to Reply
    11. Natalie Daley

      Sometimes when it is relevant to my care and needs.

      1
      12 months ago Log in to Reply
    12. Carol Meares

      I find out about new T1D treatments and medical devices online through podcasts mostly.

      1
      12 months ago Log in to Reply
    13. Kevin McCue

      My endo isn’t as forthcoming with new treatment options as I would like. I think it’s due to low priority in the diabetes community being 1 of the 10%. Feels like type 2 gets the majority of time. Probably just a general lack of time for any patient due to final pressure from insurance. There is no doubt that corporate influence controls all outcomes regardless of medical degrees

      1
      12 months ago Log in to Reply
    14. Janis Senungetuk

      When I first started seeing my current endo, 8 yrs ago, she went through my prescriptions and suggested several updates. Both CGM and pump options were discussed with the CDE before I asked my endo to prescribe them. Since the pump was a major financial burden after only two years of an Animas Vibe, she hasn’t mentioned new devices in the 2 yrs since then. Our last appointment included a discussion on possible ways to continue using my pump/CGM after changes in insurance coverage.

      12 months ago Log in to Reply
      1. Dave Akers

        Just what I’ve witnessed: when a Dr. Doesn’t understand or know about a new therapy… they typically steer patients away from it.

        12 months ago Log in to Reply
    15. Brad Cohen

      I usually tell him!

      1
      12 months ago Log in to Reply
    16. Bob Durstenfeld

      Available to me means my insurance will pay for it. My doctor has no idea what my insurance will cover.

      3
      12 months ago Log in to Reply
      1. AnitaS

        My endo said she would check with my insurance to see if they would cover Afrezza. Since they wouldn’t, my endo said she would look for other avenues for me to get the medication.

        12 months ago Log in to Reply
    17. Becky Hertz

      It’s complicated…I haven’t seen my “new” healthcare provider yet/again. I only saw her once before insurance made me switch to someone else and now that person had left do they are showing me to go back to my other one.

      12 months ago Log in to Reply
    18. KCR

      Sometimes! But I go to an internal medicine practice so my provider has a lot to keep up on. I was her first patient to ask about Afrezza (she had samples, yay!) and to request a Gvoke prescription.

      12 months ago Log in to Reply
    19. Jillmarie61

      Sadly, no. Most of the time it’s me that has to ask about anything new n the market that I’ve heard about. And then on top of it, mos of the time they pop-poo wanting to try it.

      2
      12 months ago Log in to Reply
    20. M C

      I was answering a different yes/no question and this one came up – So the answer for this one is not ‘yes’ as I checked off – but actually ‘no’. If something ‘new’ comes out, I generally have to ask about it!

      12 months ago Log in to Reply
    21. PamK

      As I’ve only seen this doctor one time, I don’t know if he will, but I hope that he would inform me!

      12 months ago Log in to Reply
      1. Dave Akers

        Just what I’ve witnessed: when a Dr. Doesn’t understand or know about a new therapy… they typically steer patients away from it.

        12 months ago Log in to Reply
    22. Amanda Barras

      No. I am always reading and hearing from other T1D on Facebook about new tech and medications. They I go ask for it from my doc. The only meds she has suggested are ones with horrible side effects that I stop taking after she prescribes them.

      12 months ago Log in to Reply
    23. vbaum1956

      I usually read it on this site and ask him about it at my regular follow-up appointments.

      12 months ago Log in to Reply
      1. Dave Akers

        Just what I’ve witnessed: when a Dr. Doesn’t understand or know about a new therapy… they typically steer patients away from it.

        1
        12 months ago Log in to Reply
    24. Melissa Childers

      I usually bring up new devices as it becomes time to upgrade my pump or when insurance starts giving problems with the meds or devices I am using. Some of the off label t3 meds, I won’t go near due to my dad passing from medullary thyroid cancer.

      12 months ago Log in to Reply
    25. Wanacure

      The best health care goes to the richest in our stratified America. I’m qualified for “adequate” care. Virginia Mason used to be tops in Seattle.

      12 months ago Log in to Reply
    26. Bonnie Lundblom

      I said “Other” since my answer like Mick above would be sometimes. I’ve found that most of the endocrinologists I’ve seen over the past 15 years when I asked questions about specific pumps or CGM’s would reach out to the local sales representative to call me to discuss their products and answer my questions.

      12 months ago Log in to Reply
    27. AnitaS

      Not really as my pump and cgm are still under warranty. However, when I asked about Afrezza and found out that my insurance won’t cover it, my endo said she would look into other ways that I may be able to get Afrezza at a reduced price.

      12 months ago Log in to Reply
    28. Molly Jones

      I assume so, but this is a very busy person!

      12 months ago Log in to Reply
    29. Mary Ann Sayers

      No, not really. I use TANDEM quality IQ and our discussions center on my use and changes I’ve made with the basal settings.

      12 months ago Log in to Reply

    Does your T1D healthcare provider inform you when new devices and medications become available to you? Cancel reply

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