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    • 1 hour, 5 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 5 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 21 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 22 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 42 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 51 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 51 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 48 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 4 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Does your T1D healthcare provider inform you when new devices and medications become available to you?

    Home > LC Polls > Does your T1D healthcare provider inform you when new devices and medications become available to you?
    Previous

    Do you use any type of creams or ointments after removing your pump, CGM or injection site needle to prevent infection? Share in the comments what works for you!

    Next

    If you have ever changed or upgraded from one insulin pump to another, why did you change from your previous pump to your current pump? Select all that apply!

    Sarah Howard

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    34 Comments

    1. Lawrence S.

      I can’t remember my healthcare provider bringing up in conversations new medications or devices. However, I usually ask question about new devices and medications, which leads to a discussion.

      3
      8 months ago Log in to Reply
      1. Lawrence S.

        In hindsight, I remember when I wanted to switch to a different, and new on the market pump and CGM system, my healthcare provider refused to make a recommendation of one medical device over another. She didn’t think it was ethical to recommend one device over another. I thought that was very strange, and counter intuitive to what a medical professional should do to help a patient.

        8 months ago Log in to Reply
    2. Larry Martin

      I am connected to so many blogs and data that I usually know before it is brought up by them. They have patient quotas by huge conglomerates to satisfy you know because $$$

      3
      8 months ago Log in to Reply
    3. Mary Dexter

      No, I just hope to be able to keep my insulin and CGM.

      8 months ago Log in to Reply
    4. Robert Wilson

      Usually I know the newest stuff before she does but sometimes she gets info before I do. So we make a good team!

      1
      8 months ago Log in to Reply
    5. Mick Martin

      I would say sometimes!

      I live in the UK (United Kingdom of Great Britain and Northern Ireland) where our NHS (National Health Service) provides supplies for diabetes-related products. i.e. everything that you can get on prescription. They wouldn’t want to inform me of all new developments in case I wanted to change supplying companies for the latest and greatest pump technologies, for instance, as they wouldn’t give my existing ‘gear’ to another patient. They MAY also experience difficulty in arranging financing for said products.

      I’m generally informed about things that are unlikely to cost money, such as areas of research, etc.

      8 months ago Log in to Reply
    6. Keith LeMar

      I would say no because I usually know before he does. I’m sure he does tell other of his patients who may no know about a new device.

      8 months ago Log in to Reply
    7. Dennis Dacey

      Other. Over many decades this situation has evolved. In times past, my physicians and I were involved in innovative diabetes management devices and medication. Now in my later laidback years retired years, I continue to stay informed, and when visiting with my current medical team, at least two begin the session with “… what will you teach me today about diabetes”.

      3
      8 months ago Log in to Reply
    8. TomH

      I answered ā€œnoā€, but to be fair, I stay on top of developments myself pretty much.

      5
      8 months ago Log in to Reply
    9. Marty

      They haven’t so far, but I’ve only been seeing this particular team for a couple of years. I am on the lookout for Tandem’s new pumps to become available, but I’ll probably hear about it at the same time they do.

      8 months ago Log in to Reply
    10. Kathleen Juzenas

      Focusing on ā€œwhen new devices…become availableā€ to me, I said yes, but it’s only every five years that we have a discussion of options that Medicare will cover.

      4
      8 months ago Log in to Reply
    11. Natalie Daley

      Sometimes when it is relevant to my care and needs.

      1
      8 months ago Log in to Reply
    12. Carol Meares

      I find out about new T1D treatments and medical devices online through podcasts mostly.

      1
      8 months ago Log in to Reply
    13. Kevin McCue

      My endo isn’t as forthcoming with new treatment options as I would like. I think it’s due to low priority in the diabetes community being 1 of the 10%. Feels like type 2 gets the majority of time. Probably just a general lack of time for any patient due to final pressure from insurance. There is no doubt that corporate influence controls all outcomes regardless of medical degrees

      1
      8 months ago Log in to Reply
    14. Janis Senungetuk

      When I first started seeing my current endo, 8 yrs ago, she went through my prescriptions and suggested several updates. Both CGM and pump options were discussed with the CDE before I asked my endo to prescribe them. Since the pump was a major financial burden after only two years of an Animas Vibe, she hasn’t mentioned new devices in the 2 yrs since then. Our last appointment included a discussion on possible ways to continue using my pump/CGM after changes in insurance coverage.

      8 months ago Log in to Reply
      1. Dave Akers

        Just what I’ve witnessed: when a Dr. Doesn’t understand or know about a new therapy… they typically steer patients away from it.

        8 months ago Log in to Reply
    15. Brad Cohen

      I usually tell him!

      1
      8 months ago Log in to Reply
    16. Bob Durstenfeld

      Available to me means my insurance will pay for it. My doctor has no idea what my insurance will cover.

      3
      8 months ago Log in to Reply
      1. AnitaS

        My endo said she would check with my insurance to see if they would cover Afrezza. Since they wouldn’t, my endo said she would look for other avenues for me to get the medication.

        8 months ago Log in to Reply
    17. Becky Hertz

      It’s complicated…I haven’t seen my “new” healthcare provider yet/again. I only saw her once before insurance made me switch to someone else and now that person had left do they are showing me to go back to my other one.

      8 months ago Log in to Reply
    18. KCR

      Sometimes! But I go to an internal medicine practice so my provider has a lot to keep up on. I was her first patient to ask about Afrezza (she had samples, yay!) and to request a Gvoke prescription.

      8 months ago Log in to Reply
    19. Jillmarie61

      Sadly, no. Most of the time it’s me that has to ask about anything new n the market that I’ve heard about. And then on top of it, mos of the time they pop-poo wanting to try it.

      2
      8 months ago Log in to Reply
    20. M C

      I was answering a different yes/no question and this one came up – So the answer for this one is not ‘yes’ as I checked off – but actually ‘no’. If something ‘new’ comes out, I generally have to ask about it!

      8 months ago Log in to Reply
    21. PamK

      As I’ve only seen this doctor one time, I don’t know if he will, but I hope that he would inform me!

      8 months ago Log in to Reply
      1. Dave Akers

        Just what I’ve witnessed: when a Dr. Doesn’t understand or know about a new therapy… they typically steer patients away from it.

        8 months ago Log in to Reply
    22. Amanda Barras

      No. I am always reading and hearing from other T1D on Facebook about new tech and medications. They I go ask for it from my doc. The only meds she has suggested are ones with horrible side effects that I stop taking after she prescribes them.

      8 months ago Log in to Reply
    23. vbaum1956

      I usually read it on this site and ask him about it at my regular follow-up appointments.

      8 months ago Log in to Reply
      1. Dave Akers

        Just what I’ve witnessed: when a Dr. Doesn’t understand or know about a new therapy… they typically steer patients away from it.

        1
        8 months ago Log in to Reply
    24. Melissa Childers

      I usually bring up new devices as it becomes time to upgrade my pump or when insurance starts giving problems with the meds or devices I am using. Some of the off label t3 meds, I won’t go near due to my dad passing from medullary thyroid cancer.

      8 months ago Log in to Reply
    25. Wanacure

      The best health care goes to the richest in our stratified America. I’m qualified for ā€œadequateā€ care. Virginia Mason used to be tops in Seattle.

      8 months ago Log in to Reply
    26. Bonnie Lundblom

      I said “Other” since my answer like Mick above would be sometimes. I’ve found that most of the endocrinologists I’ve seen over the past 15 years when I asked questions about specific pumps or CGM’s would reach out to the local sales representative to call me to discuss their products and answer my questions.

      8 months ago Log in to Reply
    27. AnitaS

      Not really as my pump and cgm are still under warranty. However, when I asked about Afrezza and found out that my insurance won’t cover it, my endo said she would look into other ways that I may be able to get Afrezza at a reduced price.

      8 months ago Log in to Reply
    28. Molly Jones

      I assume so, but this is a very busy person!

      8 months ago Log in to Reply
    29. Mary Ann Sayers

      No, not really. I use TANDEM quality IQ and our discussions center on my use and changes I’ve made with the basal settings.

      8 months ago Log in to Reply

    Does your T1D healthcare provider inform you when new devices and medications become available to you? Cancel reply

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