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    • 58 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 58 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 14 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 2 hours, 14 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours, 14 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 15 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 2 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 2 hours, 17 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 17 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 2 hours, 17 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 19 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 5 hours, 40 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 2 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 26 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 26 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 27 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 42 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 42 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 7 hours, 43 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 22 hours, 43 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 22 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 22 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 4 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Do you think your diabetes healthcare provider uses language that is clear and easy to understand?

    Home > LC Polls > Do you think your diabetes healthcare provider uses language that is clear and easy to understand?
    Previous

    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.

    Next

    How satisfied are you with your current T1D therapy regimen?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    11 Comments

    1. connie ker

      WOW, 98% of diabetic patients think well of their healthcare provider. Sometimes, the healthcare providers learn from their patients too. So I always go to appointments with a list of questions seeking more knowledge. Sometimes they don’t have the answers, sometimes they do, but I appreciate the time they spend with me.

      5 years ago Log in to Reply
    2. Thomas Hatton

      I do the same, Connie! To the question of the day, if I hear something I don’t understand, I ask. No stupid questions, only more knowledge…

      5 years ago Log in to Reply
    3. Beth Franz

      I have an NP mainly for yearly bloodwork and prescription requests. I research and own everything I do for T1. I feel like half the time she doesn’t know what I’m talking about!

      5 years ago Log in to Reply
    4. Ernie Richmann

      I answered yes. I also ask questions or restate the information in my own words to confirm understanding. I read for more information and a greater understanding. I have few trusted resources that I often rely on for accurate information.

      5 years ago Log in to Reply
    5. Christina Trudo

      I have come to believe that most providers tailor their language to the (perceived) understanding of the patient. I worked in hospitals for many years so I think I have a vocabulary that may be beyond my actual understanding at times. Providers may assume I have more knowledge than I do. I need to be careful not to nod and bluff my way through things I don’t understand so well. Often I don’t realize that I don’t understand until after the appointment.

      5 years ago Log in to Reply
    6. Leona Hanson

      Yes my PCP explain everything so I understand and yes he is also learning about my pump which is a ++for both of us

      5 years ago Log in to Reply
    7. Becky Hertz

      My previous endo was great! Sally (for me) she retired. I haven’t met my new endo yet so don’t know how communication will be.

      5 years ago Log in to Reply
    8. Patricia Dalrymple

      Yes, in fact they talk down to me a little. I asked to speak to a nutritionist who said she wanted me to come to a group meeting. I told her no. By the end of our convo she agreed and said I could probably teach the class. When it means saving your own life, you tend to learn quick.

      5 years ago Log in to Reply
    9. Pat Reynolds

      I think it depends on what “your healthcare provider” means. I have had doctors who are abysmal, but swiftly move on: I work with teams who treat me as a co-researcher. But outside the teams I control (control as in, I can move on) I find that too many providers of information are failing. Some by _not_ catering to those with a higher comprehension level. Others by not getting communication basics right. Today, for example, I have been trying to find advice on diet for a blind pre-diabetic (equivalent of what I can find online, let alone tailored to their other health issues which mean that my usual go-to recommendations for non-spiking snacks are ruled out. What this person needs is a dietician who understands blindness, not me.

      5 years ago Log in to Reply
    10. Sealani Weiner

      My doc is a type 1 – he actually told me about this fabulous website – and he is so responsive. Whether its in person, or I pose a question or concern in the patient portal, he always gives me excellent direction. In addition, I have to say that even at times when I was down on myself for a too high A1c, he was kind and supportive. And he has been a cheerleader since it has been going down, down, down since I changed how and what I eat nearly two years ago. My last two visits, for the first time in my diabetic life (20+ years), my A1c was 7. (That may not be low for many of you, but consider that it was 13 before I got diagnosed.)

      5 years ago Log in to Reply
    11. Sally Numrich

      I never have any issues with communication with my medical team. If I don’t understand something, I just ask.

      5 years ago Log in to Reply

    Do you think your diabetes healthcare provider uses language that is clear and easy to understand? Cancel reply

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