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    • 1 hour, 10 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you think your diabetes healthcare provider uses language that is clear and easy to understand?

    Home > LC Polls > Do you think your diabetes healthcare provider uses language that is clear and easy to understand?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    11 Comments

    1. connie ker

      WOW, 98% of diabetic patients think well of their healthcare provider. Sometimes, the healthcare providers learn from their patients too. So I always go to appointments with a list of questions seeking more knowledge. Sometimes they don’t have the answers, sometimes they do, but I appreciate the time they spend with me.

      5 years ago Log in to Reply
    2. Thomas Hatton

      I do the same, Connie! To the question of the day, if I hear something I don’t understand, I ask. No stupid questions, only more knowledge…

      5 years ago Log in to Reply
    3. Beth Franz

      I have an NP mainly for yearly bloodwork and prescription requests. I research and own everything I do for T1. I feel like half the time she doesn’t know what I’m talking about!

      5 years ago Log in to Reply
    4. Ernie Richmann

      I answered yes. I also ask questions or restate the information in my own words to confirm understanding. I read for more information and a greater understanding. I have few trusted resources that I often rely on for accurate information.

      5 years ago Log in to Reply
    5. Christina Trudo

      I have come to believe that most providers tailor their language to the (perceived) understanding of the patient. I worked in hospitals for many years so I think I have a vocabulary that may be beyond my actual understanding at times. Providers may assume I have more knowledge than I do. I need to be careful not to nod and bluff my way through things I don’t understand so well. Often I don’t realize that I don’t understand until after the appointment.

      5 years ago Log in to Reply
    6. Leona Hanson

      Yes my PCP explain everything so I understand and yes he is also learning about my pump which is a ++for both of us

      5 years ago Log in to Reply
    7. Becky Hertz

      My previous endo was great! Sally (for me) she retired. I haven’t met my new endo yet so don’t know how communication will be.

      5 years ago Log in to Reply
    8. Patricia Dalrymple

      Yes, in fact they talk down to me a little. I asked to speak to a nutritionist who said she wanted me to come to a group meeting. I told her no. By the end of our convo she agreed and said I could probably teach the class. When it means saving your own life, you tend to learn quick.

      5 years ago Log in to Reply
    9. Pat Reynolds

      I think it depends on what “your healthcare provider” means. I have had doctors who are abysmal, but swiftly move on: I work with teams who treat me as a co-researcher. But outside the teams I control (control as in, I can move on) I find that too many providers of information are failing. Some by _not_ catering to those with a higher comprehension level. Others by not getting communication basics right. Today, for example, I have been trying to find advice on diet for a blind pre-diabetic (equivalent of what I can find online, let alone tailored to their other health issues which mean that my usual go-to recommendations for non-spiking snacks are ruled out. What this person needs is a dietician who understands blindness, not me.

      5 years ago Log in to Reply
    10. Sealani Weiner

      My doc is a type 1 – he actually told me about this fabulous website – and he is so responsive. Whether its in person, or I pose a question or concern in the patient portal, he always gives me excellent direction. In addition, I have to say that even at times when I was down on myself for a too high A1c, he was kind and supportive. And he has been a cheerleader since it has been going down, down, down since I changed how and what I eat nearly two years ago. My last two visits, for the first time in my diabetic life (20+ years), my A1c was 7. (That may not be low for many of you, but consider that it was 13 before I got diagnosed.)

      5 years ago Log in to Reply
    11. Sally Numrich

      I never have any issues with communication with my medical team. If I don’t understand something, I just ask.

      5 years ago Log in to Reply

    Do you think your diabetes healthcare provider uses language that is clear and easy to understand? Cancel reply

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