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    • 10 hours, 31 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      People keep sending me articles with headlines that suggest stem cell transplants “cure” diabetes. However, as mentioned above, a lifetime on immunosuppressive drugs carries its own risks that are probably worse than the risks of well-controlled diabetes. They’ll figure out a way to hide these engineered beta cells from our immune systems someday. I might be willing to call it a “cure” when that happens, although I’ll probably to too old to benefit by then.
    • 10 hours, 32 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I am aware that cell therapies are being researched. This may be a panacea in the future. But, for me, red flags are waving. There are many possible dangers with these experiments. I only have this one life. There are no do-overs if something goes wrong, or if there are side effects. So, I tread carefully. Even with all the health issue that I have, I enjoy the one life that I have.
    • 12 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 23 minutes ago
      Amanda Barras likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 32 minutes ago
      René Wagner likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I decided not to have kids when I was young enough to do so. I was too worried I may pass it to them, or their children.
    • 14 hours, 19 minutes ago
      Marty likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 16 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 17 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I follow diabetic research rather meticulously. Most advancements are top-notch. But please take note of the risks and warnings. My spouse, on an entirely different issue (lower lumbar pain) injected umbilical stem cells one ago and has had intense headaches ever since.
    • 16 hours, 56 minutes ago
      KCR likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 31 minutes ago
      mojoseje likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 46 minutes ago
      Gary R. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 1 day, 11 hours ago
      Amanda Barras likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I had two healthy pregnancies. The only issues were low blood sugars and my babies being born early other than that they are 38 and 35 years old, healthy children.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use them all. I use an app when I’m eating out. I use labels when at home. If not on the app I estimate.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I generally do a very rough guess of carbs and correct if needed by adding more insulin for an also rough guess for effect of fat and protein later. My alert is set at 130 to remind me so I don’t get too high. I watch arrows a lot. I have had individual sensors lately that are not accurate. This can throw me off, where the sensor reading will be going up fast at say 180 and I will test my blood and it is 130. Sometimes I will have already corrected for the 180. This can cause a very rough day having to feed the insulin. I am hoping sensors will continue to get more accurate. So much depends on it especially with the algorithm. I usually don’t wait for my algorithm to correct because it will let my bg get too high. I know I’m supposed to let the algorithm do its thing but my goals are more strict. I am on G7 and Omnipod 5. I would like to be able to set my target at 100.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I should have clicked the fourth option. I use the labels if available. If not, I estimate.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      We knew the risk was 50%. My wife miscarried 4x. We ended up with three great sons, only 1 has T1D. His eldest daughter (of 2) also has T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      47 years ago i had my pregnancies and didnt hear about her carrying T1D antibodies but i did have concerns about my child having diabetes. When she was about 12 there was a study to see her chance of developing diabetes ,this blood test was negative. 2 of my grandchildren have been tested and were negative . At the time of my pregnancies i had diabetes for 10 years
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      oh and this one...... when I see a new doctor they say... "let's get some blood work to see if you have diabetes" and I ask them... did you even read my intake forms that say I have had T1 D for over 40 years? ughhhhhh
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use the nutrition labels as a starting point. For home made foods or for restaurant meals, my wife who was a nutritionist, helps come up with a carb estimate. Then there are times that I just have to take a wild ass guess. I have collected a list of over a hundred common foods that I eat and I keep that keep that list in a notes app on my phone right next to my T-slim app. I often check the nutrition labels for things on my list to see if the recommended carb levels for that item have changed. Then I adjust my list as needed. I also check my BG response to listed carbs I eat. I have adjusted some items over time. So, I would call this approach a hybrid. As Daniel Bestvater notes above, we are only controlling one item out of 6. Your mileage may vary.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      Not really trigger words as much as not understanding or even aware of the difference between Type 1 and Type 2.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      And it's especially frustrating when HCP's ask about "checking your sugars? Be a professional dammit, ask about my "blood glucose"
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I count carbs, acc. To Mabel if I have, look up nutrition for items, and estimate if needed. Used to always cook myself till this yr, now in apt where food is provided, so now looking up a lot to estimate. Going pretty well
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      Years ago I used to calculate out carbs with a scale & book. Then I realized it didn’t seem to make a huge difference. I had many discussions with an endocrinologist friend about this topic and we both found that highly accurate carb counting didn’t seem to make much difference. As long as you are in the ballpark. I think we need to realize the pancreas produces at least 6 BG regulator hormones and we are only injecting one, insulin. So we need to do our best but not stress over it. This is at least why 2 identical meals can result in two different BG levels.
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      It depends on the situation. At home I calculate carbohydrate with my scale. At restaurants it depends on if they have nutritional information available. If they don't have it, I estimate. The same with eating with other people's houses even while using my scale.
    • 2 days, 7 hours ago
      AmyM likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      If I have a label I use it. Mostly I guesstimate then use the info the next time I eat the same meal. I am a big eater with no weight problem. When I go out, usually 2-3 times per week, I have to put in 90 grams of carbs, then add if not enough because I will go low before I go high. The other times, when eating at home, I eat less. Exercise is key. I just got back from 3 trips in 6 weeks. To Sicily, Boothbay Harbor, Maine, and to visit family in Baltimore. Only in Baltimore did I have issues with BG, because I wasn’t walking as much, although I did walk 1.5 miles most days. A1C when got home was 6.3. Time in range about 75%, down from usual 85%. I’ll take that. Not traveling for another year probably and will get back on track.
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    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.

    Home > LC Polls > If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.
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    Have you ever been told your A1c is too low?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Nevin Bowman

      140

      4 years ago Log in to Reply
    2. Maggie Morgan

      160 mg/dL… I start to feel the high just above this number so I have it set so that I can attempt to prevent any ill feelings. Any lower than this causes too many alarms that don’t really help other than to annoy me or cause over correction on my part.

      4 years ago Log in to Reply
    3. Austin Tremblay

      I see someone has it set for 140. If my blood sugar could just stabilize at 140 for 24 hours, I would be elated. I wish we could have a conversation thread in these comments because I would love to know what sorcery this user employs such that 140 is considered hyperglycemic.

      4 years ago Log in to Reply
    4. Megan L

      Mine is set at 250, but it never gets that high. I was getting annoyed when I was already correcting it when it was high 100’s for a high.

      4 years ago Log in to Reply
    5. connie ker

      I use an Abbott Freestyle Libre without alarms, so am in the small percent of 3%. My blue range is 70 to 180 and I try to run in the blue range for sure. I am finding that if I delay eating after taking Humalog, numbers don’t spike so high. I go by the numbers not any alarms.

      4 years ago Log in to Reply
    6. Gene Maggard

      I have mine set for 170, which is ten less than my TIR (180) so when it alarms I have some wiggle room to get it back in line without affecting TIR. I retired two years ago so have plenty of time to mess with my numbers without worry of being in a meeting or traveling as it was in the “olden days”.

      4 years ago Log in to Reply
    7. Mike S

      I think the flip side of this would be interesting. I’ve been using 160 during the days (but seeing some of your responses, I’m tempted to try for lower now) That said, at night I shift to 220. No matter what I’ve eaten, I tend to spike somewhere around 4 am every morning and the alarms drove me nutty with lost sleep.

      4 years ago Log in to Reply
    8. Sherolyn Newell

      Mine’s at 200. That’s where my endo said to put it. I think it’s a little high, but it keeps me from getting waked up at night.

      4 years ago Log in to Reply
    9. Kristen Clifford

      My alerts begin at 250.

      4 years ago Log in to Reply
    10. Tod Herman

      While I aim for something much lower, I had to set the range to 180 because I was tired of the alarm going off at work during the afternoons after lunch.

      4 years ago Log in to Reply
    11. kylekk@gmail.com

      I use 130 during the day and 120 overnight. I sometimes get alarms after meals, but rarely other than that. 🙂

      4 years ago Log in to Reply
    12. Ahh Life

      200. ✍(◔◡◔) But kudos to @Austin Tremblay on the conversational thread that is sadly lacking here. There is sorcery. And there are miracles being worked managing the T1D condition. We need to know what works, in what circumstances, for what people, how often, and why. We are a tremendously pragmatic group, and if something works, it’s worth a try. (ง︡’-‘︠)ง

      4 years ago Log in to Reply
    13. Mick Martin

      I have my “high” setting at 8.4 mmol/l [151.2 mg/dL], and I use that setting 24 hours per day.

      4 years ago Log in to Reply
    14. kristina blake

      I chose below 140, although in actuality my alert is set at 120. Depending on IOB, trend arrows, when I ate something I take action. That action may be a small correction or an increased basal. Over 140 I start to get horrid heartburn so if I ignore the alert, I have a backup waring system.

      4 years ago Log in to Reply
    15. Julie Akawie

      I set mine to 120. I do not consider that “hyperglycemic” but it is out of range for a non-diabetic. I try to manage my blood glucose to that of a non-diabetic, in order to achieve the best long-term outcomes. (Fifty years as a T1D, so far so good!)

      4 years ago Log in to Reply
    16. Daniel Alvarez

      140 for me as well. I restrict carbs to 30-40gr /day with few exceptions (intermittent keto) and rarely go over 140, with very few mild lows (1-2 mo). It’s hard not to miss bread, rice, pasta -it’s not fun, but I prioritize it hoping I will enjoy my children grow for many years to come.

      4 years ago Log in to Reply
    17. Ceolmhor

      Mine is set at 230, but I would set it lower if I didn’t also have “rise alerts”, in which my Medtronic 670G makes predictions about where I’ll wind up based on current level, rate of change, and perhaps more. That’s almost always my first warning that I’m going high. So my high alert is actually the backup setting, where I get a second alert if I haven’t reacted appropriately or fast enough to the rise alert.

      4 years ago Log in to Reply
    18. Janis Senungetuk

      I set the high for 200. Depending on what and when I eat, I may go over that number once during the day. My latest Time In Range is 97%.

      4 years ago Log in to Reply
    19. john36m

      I selected the range 160-179, but I think that range is way too big. My high alarm is 160 because I want to keep below 180. If it alarms at 160, I may have a chance. If it was at 179, there would be nothing I could do. They are not the same

      4 years ago Log in to Reply
    20. ConnieT1D62

      180. I set it there because it does get that high occasionally but not that often and I don’t want to hear my pump alarms beeping at me when I am 146 or 167 after a meal. If I am at 180 or over, I take a look at why and can make adjustments as needed. Did I forget to bolus for food intake? Is the infusion set occluded? Is the cartridge empty? Overall with Tandem CIQ, BG fluctuations are much smoother and consistently in range.

      4 years ago Log in to Reply
    21. Molly Jones

      My Dexcom high alert is 280. After eating almost all kinds of carbs I will be well above 200 for a short amount of time and then come down. Tandem’s high and low are more in the normal range. Control IQ may not be working for me due to how quickly variable my BG is. Maybe when I can inform Tandem of an event such as sugar for a hypoglycemic event and it therefore doesn’t deliver insulin.

      4 years ago Log in to Reply
    22. Bonnie Lundblom

      180, if I see I’m going up I’ll set a higher temp basal rate on my Tandem pump.

      4 years ago Log in to Reply
    23. Sally Numrich

      Set at 170. This helps me stay under my 180 goal.

      4 years ago Log in to Reply

    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone. Cancel reply

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