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  • Activity
    • 3 hours, 49 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 49 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 45 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 1 minute ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 12 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 3 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 45 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 45 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 47 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 52 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 53 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 55 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 55 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 55 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 31 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 42 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 54 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 55 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    How satisfied are you with your current T1D therapy regimen?

    Home > LC Polls > How satisfied are you with your current T1D therapy regimen?
    Previous

    Do you think your diabetes healthcare provider uses language that is clear and easy to understand?

    Next

    Do you currently use any of the following CGM systems?

    Sarah Howard

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    18 Comments

    1. Michelle Saunders

      It helps that I am well versed as I have had type 1 for 35 years in March. As an adult I have been lucky with most of my care team. I have had the same care team for the last 12 years and am not looking forward to any of them retiring. Thankfully I have a few years as we are all roughly the same age. šŸ™‚ I have had in the past a pediatrician who as a teenager talked down to me. My mom listened to me and had me switched to a general doctor in our HMO.

      2 years ago Log in to Reply
    2. Bob Durstenfeld

      I’ve had the same endo for more than 35 years, the problem is that my body keeps changing. He does a pretty good job of helping me adjust. After 60 years with T1D, I’ve developed some Type 2 attributes.

      2 years ago Log in to Reply
    3. Clare Fishman

      I built and maintain my own DIY Loop using my Omnipod and Dexcom. I have been Looping for 2 years in April and have been really satisfied with the results.

      2 years ago Log in to Reply
    4. Anne Blayney

      Compared to what the options were 20 years ago? I’m thrilled, and I’m definitely in the best control of my life so far. Compared to the tech and treatments that are in development, or, you know, not having diabetes at all? It’s hard to ever be fully satisfied when there’s always more that can be improved.

      2 years ago Log in to Reply
    5. connie ker

      I am a senior with LADA type 1 for the past 23 years and am doing what I have done with MDI of Humalog and Lantus. My A1C is good and I have learned what I can and can’t do or eat……..however now that I wear an Abbott CGM, I can see the insulin work with the swings. It would be a perfect world for diabetics to see time in range a flat line on the graph, is this possible? Do any of you have a flat line after meals?

      2 years ago Log in to Reply
    6. Amanda Barras

      Currently have an order placed to switch pumps. I do decent on the pump and control I have now. But, it could be better. 6.3-6.5 but I don’t like the wide swings I get sometimes and the neediness of the pump/CGM I have now.

      2 years ago Log in to Reply
    7. Thomas Hatton

      I agree with Anne, its a tremendous improvement over when I was first diagnosed. But there is plenty of room for improvement. Complete closed loop control, AKA fully aut ok matic or artificial pancreas is what I see as the end game. I completly understand the risks, hell I live with them daily. Come on FDA & pump manufacturers, lets stop slow rollong this!

      2 years ago Log in to Reply
    8. George Lovelace

      Dex G6 and Tandem CIQ are giving me the Best numbers since 1963

      2 years ago Log in to Reply
    9. Grey Gray

      Medtronic has been there for me since the public release of insulin pumps.. tech keeps getting better. Have come a long since beef/pork insulin and peeing on glucose/keto sticks

      2 years ago Log in to Reply
    10. Melinda Lipe

      My endocrinologist is very knowledgeable and is not afraid to try new meds and therapies, especially if I ask about it. He likes my current pump, Tandem x2 with Control IQ, my A1C is down from 7.5 to 6.5. I’d like to have a new model of pump, but Covid stopped the clinical trials in 2020.

      2 years ago Log in to Reply
    11. Leona Hanson

      I believe that it will get better when I can get a cgm come on insurance

      2 years ago Log in to Reply
    12. Gene Maggard

      Visited my endo today and A1C was 5.8,a new world record for me. He started to talk about the Tandem CIQ combo but said I was great managing with my Medtronic 630 and G6 CGM. I don’t know if I will be able to give up my micromanagement!

      2 years ago Log in to Reply
    13. Pete Murphy

      I was diagnosed with Type 1 31 years ago when I was 32. I have been on Medtronic about 30 years. Everything I’ve read about Dexcom I am EXTREMELY excited as my warranty is finally up with Medtronic! Waiting now on my new Dexcom G6 CGM! My swings via Medtronic have been awful….extremely inaccurate readings, to the point I was receiving replacement Enlite Glucose Sensors roughly once a week, due to readings being 15, 20, 25, 30-50% different than my actual blood glucose. I’m hoping I can maintain my recent 7.3 A1C going forward. I haven’t been able to historically.

      2 years ago Log in to Reply
    14. Carol Meares

      My A1c is very good at 5.5-5.7, but I have to manage almost every minute to get that. Control iQ was supposed to give me some relief with that but in order to maintain a lower average I have to fight it when it wants to bring me up to 110 when I’m at 90 or 100. I have always shot for 100. That goal works for me well. I wish I could set the target for 100 with Control iQ. Maybe some day? It sounds like a little difference to some people but it really isn’t to me.

      2 years ago Log in to Reply
    15. Patricia Dalrymple

      A1C usually 5.8 to 5.9. Have a few lows but I’m aware of them. Adjusting nightly basal rate is working on cutting down lows. I don’t have a CGM and can’t decide whether I want something else stuck in my body. Am wary of night time low notifications not going off as soon as I adjust. Need my sleep. I wake up when go low at night because I get hot. I know it is dangerous to go low when asleep but have never had an incident in 20 years. On 630 Medtronic now. We will see when warranty up.

      2 years ago Log in to Reply
    16. Carlene Vaitones

      I’m happy with my A1Cs using Tresiba once a day as a long-acting. It has great early morning coverage. I can adjust it by 1-2 units each morning if I know I’m going to be taking Advair or Claritin. I like the Dexcom G6 – it’s pretty accurate, though I find it helpful to calibrate once a day with a finger stick. No thanks from me on the tubed pumps with all the special attention and babying they need. I’d rather pay attention to my body than a fussy pump and occlusions, which was my experience. After 29 years of day to day experience with my BGs, I am smarter than a pump.

      2 years ago Log in to Reply
    17. Cheryl Seibert

      I chose “somewhat satisfied”. My Time in Range (TIR) is decently good and A1C has never been over 6.9. Any insulin pump I’ve ever had cannot keep up with my system’s rapidly rising and falling BGs. Stress-related rises are difficult to manage. I am a ‘brittle’ diabetic for 54 years and my BG can drop so rapidly (180 to 69 in 30 minutes) that even though the pump shuts off the basal when I trend down, it’s not soon enough. Basal, carb ratios, and insulin sensitivity adjustments have not been successful in changing this situation.

      2 years ago Log in to Reply
    18. Sally Numrich

      I use Tandem IQ with Victoza. My life has become much, much easier and I don’t think about my diabetes all the time. I feel very good about just letting the system do it’s thing.

      2 years ago Log in to Reply

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