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  • Activity
    • 2 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 10 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 3 hours, 27 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 27 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 3 hours, 43 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 3 hours, 44 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 3 hours, 44 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 3 hours, 45 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 5 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 5 hours, 6 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 5 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 5 hours, 8 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 5 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 5 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 5 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 5 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 8 hours, 7 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 8 hours, 7 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 8 hours, 8 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 8 hours, 8 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 8 hours, 55 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 9 hours, 23 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 9 hours, 23 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 9 hours, 24 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 9 hours, 24 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    How satisfied are you with your current T1D therapy regimen?

    Home > LC Polls > How satisfied are you with your current T1D therapy regimen?
    Previous

    Do you think your diabetes healthcare provider uses language that is clear and easy to understand?

    Next

    Do you currently use any of the following CGM systems?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. Michelle Saunders

      It helps that I am well versed as I have had type 1 for 35 years in March. As an adult I have been lucky with most of my care team. I have had the same care team for the last 12 years and am not looking forward to any of them retiring. Thankfully I have a few years as we are all roughly the same age. 🙂 I have had in the past a pediatrician who as a teenager talked down to me. My mom listened to me and had me switched to a general doctor in our HMO.

      2 years ago Log in to Reply
    2. Bob Durstenfeld

      I’ve had the same endo for more than 35 years, the problem is that my body keeps changing. He does a pretty good job of helping me adjust. After 60 years with T1D, I’ve developed some Type 2 attributes.

      2 years ago Log in to Reply
    3. Clare Fishman

      I built and maintain my own DIY Loop using my Omnipod and Dexcom. I have been Looping for 2 years in April and have been really satisfied with the results.

      2 years ago Log in to Reply
    4. Anne Blayney

      Compared to what the options were 20 years ago? I’m thrilled, and I’m definitely in the best control of my life so far. Compared to the tech and treatments that are in development, or, you know, not having diabetes at all? It’s hard to ever be fully satisfied when there’s always more that can be improved.

      2 years ago Log in to Reply
    5. connie ker

      I am a senior with LADA type 1 for the past 23 years and am doing what I have done with MDI of Humalog and Lantus. My A1C is good and I have learned what I can and can’t do or eat……..however now that I wear an Abbott CGM, I can see the insulin work with the swings. It would be a perfect world for diabetics to see time in range a flat line on the graph, is this possible? Do any of you have a flat line after meals?

      2 years ago Log in to Reply
    6. Amanda Barras

      Currently have an order placed to switch pumps. I do decent on the pump and control I have now. But, it could be better. 6.3-6.5 but I don’t like the wide swings I get sometimes and the neediness of the pump/CGM I have now.

      2 years ago Log in to Reply
    7. Thomas Hatton

      I agree with Anne, its a tremendous improvement over when I was first diagnosed. But there is plenty of room for improvement. Complete closed loop control, AKA fully aut ok matic or artificial pancreas is what I see as the end game. I completly understand the risks, hell I live with them daily. Come on FDA & pump manufacturers, lets stop slow rollong this!

      2 years ago Log in to Reply
    8. George Lovelace

      Dex G6 and Tandem CIQ are giving me the Best numbers since 1963

      2 years ago Log in to Reply
    9. Grey Gray

      Medtronic has been there for me since the public release of insulin pumps.. tech keeps getting better. Have come a long since beef/pork insulin and peeing on glucose/keto sticks

      2 years ago Log in to Reply
    10. Melinda Lipe

      My endocrinologist is very knowledgeable and is not afraid to try new meds and therapies, especially if I ask about it. He likes my current pump, Tandem x2 with Control IQ, my A1C is down from 7.5 to 6.5. I’d like to have a new model of pump, but Covid stopped the clinical trials in 2020.

      2 years ago Log in to Reply
    11. Leona Hanson

      I believe that it will get better when I can get a cgm come on insurance

      2 years ago Log in to Reply
    12. Gene Maggard

      Visited my endo today and A1C was 5.8,a new world record for me. He started to talk about the Tandem CIQ combo but said I was great managing with my Medtronic 630 and G6 CGM. I don’t know if I will be able to give up my micromanagement!

      2 years ago Log in to Reply
    13. Pete Murphy

      I was diagnosed with Type 1 31 years ago when I was 32. I have been on Medtronic about 30 years. Everything I’ve read about Dexcom I am EXTREMELY excited as my warranty is finally up with Medtronic! Waiting now on my new Dexcom G6 CGM! My swings via Medtronic have been awful….extremely inaccurate readings, to the point I was receiving replacement Enlite Glucose Sensors roughly once a week, due to readings being 15, 20, 25, 30-50% different than my actual blood glucose. I’m hoping I can maintain my recent 7.3 A1C going forward. I haven’t been able to historically.

      2 years ago Log in to Reply
    14. Carol Meares

      My A1c is very good at 5.5-5.7, but I have to manage almost every minute to get that. Control iQ was supposed to give me some relief with that but in order to maintain a lower average I have to fight it when it wants to bring me up to 110 when I’m at 90 or 100. I have always shot for 100. That goal works for me well. I wish I could set the target for 100 with Control iQ. Maybe some day? It sounds like a little difference to some people but it really isn’t to me.

      2 years ago Log in to Reply
    15. Patricia Dalrymple

      A1C usually 5.8 to 5.9. Have a few lows but I’m aware of them. Adjusting nightly basal rate is working on cutting down lows. I don’t have a CGM and can’t decide whether I want something else stuck in my body. Am wary of night time low notifications not going off as soon as I adjust. Need my sleep. I wake up when go low at night because I get hot. I know it is dangerous to go low when asleep but have never had an incident in 20 years. On 630 Medtronic now. We will see when warranty up.

      2 years ago Log in to Reply
    16. Carlene Vaitones

      I’m happy with my A1Cs using Tresiba once a day as a long-acting. It has great early morning coverage. I can adjust it by 1-2 units each morning if I know I’m going to be taking Advair or Claritin. I like the Dexcom G6 – it’s pretty accurate, though I find it helpful to calibrate once a day with a finger stick. No thanks from me on the tubed pumps with all the special attention and babying they need. I’d rather pay attention to my body than a fussy pump and occlusions, which was my experience. After 29 years of day to day experience with my BGs, I am smarter than a pump.

      2 years ago Log in to Reply
    17. Cheryl Seibert

      I chose “somewhat satisfied”. My Time in Range (TIR) is decently good and A1C has never been over 6.9. Any insulin pump I’ve ever had cannot keep up with my system’s rapidly rising and falling BGs. Stress-related rises are difficult to manage. I am a ‘brittle’ diabetic for 54 years and my BG can drop so rapidly (180 to 69 in 30 minutes) that even though the pump shuts off the basal when I trend down, it’s not soon enough. Basal, carb ratios, and insulin sensitivity adjustments have not been successful in changing this situation.

      2 years ago Log in to Reply
    18. Sally Numrich

      I use Tandem IQ with Victoza. My life has become much, much easier and I don’t think about my diabetes all the time. I feel very good about just letting the system do it’s thing.

      2 years ago Log in to Reply

    How satisfied are you with your current T1D therapy regimen? Cancel reply

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