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    • 1 hour, 4 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 4 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 19 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 20 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 41 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 50 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 50 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 47 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 3 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you have thyroid issues in addition to T1D?

    Home > LC Polls > Do you have thyroid issues in addition to T1D?
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    33 Comments

    1. GLORIA MILLER

      I don’t presently have thyroid issues since my thyroid was removed in 2002.

      12 months ago Log in to Reply
    2. Jane Cerullo

      Oh yes!! Last year my thyroid went wacky and I ended up with Graves Disease. Have some eye involvement so no radioactive iodine. Which I didn’t want anyway. Have been on anti thyroid medication and doing well. My eye disease is minimal. Just puffy lids.

      12 months ago Log in to Reply
    3. Sasha Wooldridge

      Other – I suspect I have a thyroid problem but have not been formally diagnosed. Many of my general health complaints are symptoms of thyroid malfunction.

      12 months ago Log in to Reply
    4. Francisco Varea

      I answered other. I had hyperthyroidism at diagnosis, but no issues ever since.

      12 months ago Log in to Reply
    5. Martha Arnold

      I was diagnosed with Graves Disease years and years prior to getting Type 1. I did have the radioactive iodine treatment at age 18. I was diagnosed at age 12 with Graves, diagnosed at age 20 with type 1. I still take Synthroid, and will continue with it for the rest of my life.

      12 months ago Log in to Reply
    6. Mary Dexter

      I have Hashimoto’s antibodies, but the levothyroxine does nothing but mess with my blood sugar and cholesterol levels, nothing positive, and my endocrinologists have been unwilling to note any symptoms, preferring to ascribe them to gluttony and sloth. I have changed endocrinologists several times with nothing changing.

      12 months ago Log in to Reply
    7. Lawrence S.

      My thyroid problems started soon after my T1D diagnosis in 1977. I’ve been on Synthroid ( or some generic) since. I believe that I am hypothyroid, although, I’m not really sure. My Endo checks my thyroid every 3 months, and occasionally makes adjustments.

      I noticed that deleting soy from my diet, and taking iodine helps my thyroid numbers. Recently, I started adding soy to my diet because my Endo wants me to have more protein in my diet. I’m feeling more exhausted. So, I’ll be curious to see what my thyroid numbers look like in my next blood test in March.

      1
      12 months ago Log in to Reply
    8. Kathleen Juzenas

      Hypothyroidism for many years, controlled with Levothyroxine.

      12 months ago Log in to Reply
    9. AnitaS

      I was diagnosed at age 9yrs in 1973 with D1 and I believe I was diagnosed with low thyroid about age 12 yrs. I have been on the same amount of levothyroxine since then.

      12 months ago Log in to Reply
    10. Amy Jo

      Other , but now that I’m thinking about it I guess I should have said “yes.” Subclinical hypothyroid during and after pregnancy, but thyroid dysfunction is present in my mom/grandma/all my aunts. I think I got the short end of the autoimmunity stick with T1!

      12 months ago Log in to Reply
      1. Kristi McAndrews-Litton

        same. :/

        12 months ago Log in to Reply
    11. Sherrie Johnson

      I was diagnosed withT1D in 1961 a year later hypothyroidism. They have been trying to get it right for 61 years. I seem to do best on a compounded formula.

      12 months ago Log in to Reply
    12. Kris Sykes-David

      Hypothyroidism earlier in life, as well as my mom and sister. Mine is well controlled with levothyroxine. Dx’d LADA at age 50.

      12 months ago Log in to Reply
    13. TEH

      I answered yes. I have had 3 rouns of hyper thyroid starting right befor 9/11/2001. I had the radioactive iodine and thist time when my TSH dropped to 0.1. Methimazol has has rased my TSH back to normal. Additionally I have a non cancerous nodule on my Thyroid. Watching both carefully now.

      12 months ago Log in to Reply
    14. Nancy Burgess

      I started with thyroid conditions about 15 years ago. Nobody wanted to remove my thyroid, but wanted to biopsy it every 6 months. Ouch! I found a doctor at Johns Hopkins who removed my thyroid 10 years ago. It was a good solution because I had cancer.

      12 months ago Log in to Reply
    15. Jneticdiabetic

      I was diagnosed with T1D first at age 18. Diagnosed with Hashimoto’s thyroiditis (autoimmune hypothyroidism) in early 30s after birth of my second son. Took a few years to get it right, but I’ve now been stable on the same dose of Synthroid for many years.
      Lots of thyroid issues on my maternal side. My aunt (no T1D) also developed Hashimoto’s after childbirth. My mom developed T1D late (age 57) and Hashimoto’s even later. We suspect my maternal grandmother had Graves, as she had her thyroid removed in her early 20s and had hyperthyroid eye involvement, but this is unconfirmed.

      12 months ago Log in to Reply
    16. Stuart Pelcyger

      Almost 40 years ago I was diagnosed, as diabetic. Soon thereafter was diagnosed with papillary carcinoma. My thyroid panels were normal coincidental with the diagnosis. So, I think if individual baselines were created that would alleviate some of the complications of thyroid disease, 1 of which might be diabetes.

      12 months ago Log in to Reply
    17. Janis Senungetuk

      Dx hypothyroid in 2004 , have taken varied amounts of Levothyroxine since.

      12 months ago Log in to Reply
    18. Patricia Dalrymple

      Endo found a nodule that he described as pretty large but not cancer about 5 months ago. He put me on levothyroxine but after no cancer and no symptoms I asked if I could quit because I was irritated with people on general, more so than normal, on it ā˜ŗļø. He said I could cone off it. Just watching it with blood checks.

      12 months ago Log in to Reply
    19. Natalie Daley

      Hashimoto’s was diagnosed shortly after I started to see an excellent endocrinologist. My Levothyroxine does has stabilized over the years, and I’ve taken the same amount for about 20 years.

      12 months ago Log in to Reply
    20. Kristine Warmecke

      I was just diagnosed and started on levothyroxine two weeks ago.

      12 months ago Log in to Reply
    21. Julie Hedges

      I have had an underactive thyroid for last 15 years and have been a T1 diabetic foot 53 years since I was 15 years of age

      12 months ago Log in to Reply
    22. Julie Hedges

      Yes, have had an underactive thyroid for over 25 years, Type 1 diabetic for 53 years, also have been coeliac for last 15 years, all auto immune diseases

      12 months ago Log in to Reply
    23. lis be

      I was diagnosed with type 1 41 years ago, Hashimoto’s somewhere between 15-20 years ago.

      12 months ago Log in to Reply
    24. Joan Fray

      I’m always on the low end of normal.

      12 months ago Log in to Reply
    25. M C

      I’ve been a T1D for 45 years this March. A year ago, my thyroid became enlarged. Luckily, that is all that it has done. Had an ultrasound done, and blood tests – the scan showed enlargement and a couple of nodes – the blood test showed everything to be in the normal range… To date, there has been no other impacts from this anomaly – but the doctor continues to monitor it, and so far, so good.

      12 months ago Log in to Reply
    26. pru barry

      After almost 70 years with diabetes, I was recently diagnosed with Graves. I’m taking methimazole now, to tide me over until I have my thyroid removed in March. Never expected another auto-immune disease, but this one seems easy in comparison. Lots of symptoms before treatment, but easily corrected, and NO dietary limitations. (Big grin!) I’m actually smiling through this one, just wondering what’s the underlying reason for of two autoimmune diseases. Very curious.

      12 months ago Log in to Reply
    27. Linda Zottoli

      I have had several nodules, for years now, but blood levels of hormone okay. Used to keep getting pressured to have nodules removed.

      12 months ago Log in to Reply
    28. LizB

      I am surprised that the results are so even! I’ve had Type 1 for 35 years. Maybe 22 years ago, not long after I finally got insurance, I was diagnosed hypothyroid but it had probably been that way for much longer. I was never told I have Hashimoto’s, just that it was autoimmune. My sister was diagnosed hypothyroid very shortly after her Type 1 diagnosis.

      12 months ago Log in to Reply
    29. marmcs@yahoo.com

      Nodules

      12 months ago Log in to Reply
    30. Bonnie Lundblom

      Developed Graves disease about 2 years after my T1D diagnosis, took synthroid for years until Medicare started, now on generic levothyroxine and liothyrinone.

      12 months ago Log in to Reply
    31. Molly Jones

      I assume my GAD antibodies kept increasing and caused my epilepsy first at 19, hypothyroidism at 21, then type 1 diabetes at 30.

      12 months ago Log in to Reply
    32. Mitch Chernoff

      An endocrinologist told me this would occur some years before it did. Said it was a given and she was correct. I’d estimate I had been Type 1 roughly 40 years before I had to begin taking a daily thyroid pill for Hashimoto’s.

      12 months ago Log in to Reply

    Do you have thyroid issues in addition to T1D? Cancel reply

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