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    • 14 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 14 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 14 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 15 hours, 45 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 15 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 15 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 15 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 15 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 15 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 15 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 15 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 15 hours, 57 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 15 hours, 57 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 15 hours, 57 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 16 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 18 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 16 hours, 38 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 16 hours, 48 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 16 hours, 48 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    Do you have thyroid issues in addition to T1D?

    Home > LC Polls > Do you have thyroid issues in addition to T1D?
    Previous

    If you have T1D, have you ever dated or married someone who also has T1D? Share your T1D love stories in the comments!

    Next

    For current or past insulin pump users: Have you ever changed your insulin delivery routine because of insulin absorption issues?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    33 Comments

    1. GLORIA MILLER

      I don’t presently have thyroid issues since my thyroid was removed in 2002.

      1 year ago Log in to Reply
    2. Jane Cerullo

      Oh yes!! Last year my thyroid went wacky and I ended up with Graves Disease. Have some eye involvement so no radioactive iodine. Which I didn’t want anyway. Have been on anti thyroid medication and doing well. My eye disease is minimal. Just puffy lids.

      1 year ago Log in to Reply
    3. Sasha Wooldridge

      Other – I suspect I have a thyroid problem but have not been formally diagnosed. Many of my general health complaints are symptoms of thyroid malfunction.

      1 year ago Log in to Reply
    4. Francisco Varea

      I answered other. I had hyperthyroidism at diagnosis, but no issues ever since.

      1 year ago Log in to Reply
    5. Martha Arnold

      I was diagnosed with Graves Disease years and years prior to getting Type 1. I did have the radioactive iodine treatment at age 18. I was diagnosed at age 12 with Graves, diagnosed at age 20 with type 1. I still take Synthroid, and will continue with it for the rest of my life.

      1 year ago Log in to Reply
    6. Mary Dexter

      I have Hashimoto’s antibodies, but the levothyroxine does nothing but mess with my blood sugar and cholesterol levels, nothing positive, and my endocrinologists have been unwilling to note any symptoms, preferring to ascribe them to gluttony and sloth. I have changed endocrinologists several times with nothing changing.

      1 year ago Log in to Reply
    7. Lawrence S.

      My thyroid problems started soon after my T1D diagnosis in 1977. I’ve been on Synthroid ( or some generic) since. I believe that I am hypothyroid, although, I’m not really sure. My Endo checks my thyroid every 3 months, and occasionally makes adjustments.

      I noticed that deleting soy from my diet, and taking iodine helps my thyroid numbers. Recently, I started adding soy to my diet because my Endo wants me to have more protein in my diet. I’m feeling more exhausted. So, I’ll be curious to see what my thyroid numbers look like in my next blood test in March.

      1
      1 year ago Log in to Reply
    8. Kathleen Juzenas

      Hypothyroidism for many years, controlled with Levothyroxine.

      1 year ago Log in to Reply
    9. AnitaS

      I was diagnosed at age 9yrs in 1973 with D1 and I believe I was diagnosed with low thyroid about age 12 yrs. I have been on the same amount of levothyroxine since then.

      1 year ago Log in to Reply
    10. Amy Jo

      Other , but now that I’m thinking about it I guess I should have said “yes.” Subclinical hypothyroid during and after pregnancy, but thyroid dysfunction is present in my mom/grandma/all my aunts. I think I got the short end of the autoimmunity stick with T1!

      1 year ago Log in to Reply
      1. Kristi McAndrews-Litton

        same. :/

        1 year ago Log in to Reply
    11. Sherrie Johnson

      I was diagnosed withT1D in 1961 a year later hypothyroidism. They have been trying to get it right for 61 years. I seem to do best on a compounded formula.

      1 year ago Log in to Reply
    12. Kris Sykes-David

      Hypothyroidism earlier in life, as well as my mom and sister. Mine is well controlled with levothyroxine. Dx’d LADA at age 50.

      1 year ago Log in to Reply
    13. TEH

      I answered yes. I have had 3 rouns of hyper thyroid starting right befor 9/11/2001. I had the radioactive iodine and thist time when my TSH dropped to 0.1. Methimazol has has rased my TSH back to normal. Additionally I have a non cancerous nodule on my Thyroid. Watching both carefully now.

      1 year ago Log in to Reply
    14. Nancy Burgess

      I started with thyroid conditions about 15 years ago. Nobody wanted to remove my thyroid, but wanted to biopsy it every 6 months. Ouch! I found a doctor at Johns Hopkins who removed my thyroid 10 years ago. It was a good solution because I had cancer.

      1 year ago Log in to Reply
    15. Jneticdiabetic

      I was diagnosed with T1D first at age 18. Diagnosed with Hashimoto’s thyroiditis (autoimmune hypothyroidism) in early 30s after birth of my second son. Took a few years to get it right, but I’ve now been stable on the same dose of Synthroid for many years.
      Lots of thyroid issues on my maternal side. My aunt (no T1D) also developed Hashimoto’s after childbirth. My mom developed T1D late (age 57) and Hashimoto’s even later. We suspect my maternal grandmother had Graves, as she had her thyroid removed in her early 20s and had hyperthyroid eye involvement, but this is unconfirmed.

      1 year ago Log in to Reply
    16. Stuart Pelcyger

      Almost 40 years ago I was diagnosed, as diabetic. Soon thereafter was diagnosed with papillary carcinoma. My thyroid panels were normal coincidental with the diagnosis. So, I think if individual baselines were created that would alleviate some of the complications of thyroid disease, 1 of which might be diabetes.

      1 year ago Log in to Reply
    17. Janis Senungetuk

      Dx hypothyroid in 2004 , have taken varied amounts of Levothyroxine since.

      1 year ago Log in to Reply
    18. Patricia Dalrymple

      Endo found a nodule that he described as pretty large but not cancer about 5 months ago. He put me on levothyroxine but after no cancer and no symptoms I asked if I could quit because I was irritated with people on general, more so than normal, on it ☺️. He said I could cone off it. Just watching it with blood checks.

      1 year ago Log in to Reply
    19. Natalie Daley

      Hashimoto’s was diagnosed shortly after I started to see an excellent endocrinologist. My Levothyroxine does has stabilized over the years, and I’ve taken the same amount for about 20 years.

      1 year ago Log in to Reply
    20. Kristine Warmecke

      I was just diagnosed and started on levothyroxine two weeks ago.

      1 year ago Log in to Reply
    21. Julie Hedges

      I have had an underactive thyroid for last 15 years and have been a T1 diabetic foot 53 years since I was 15 years of age

      1 year ago Log in to Reply
    22. Julie Hedges

      Yes, have had an underactive thyroid for over 25 years, Type 1 diabetic for 53 years, also have been coeliac for last 15 years, all auto immune diseases

      1 year ago Log in to Reply
    23. lis be

      I was diagnosed with type 1 41 years ago, Hashimoto’s somewhere between 15-20 years ago.

      1 year ago Log in to Reply
    24. Joan Fray

      I’m always on the low end of normal.

      1 year ago Log in to Reply
    25. M C

      I’ve been a T1D for 45 years this March. A year ago, my thyroid became enlarged. Luckily, that is all that it has done. Had an ultrasound done, and blood tests – the scan showed enlargement and a couple of nodes – the blood test showed everything to be in the normal range… To date, there has been no other impacts from this anomaly – but the doctor continues to monitor it, and so far, so good.

      1 year ago Log in to Reply
    26. pru barry

      After almost 70 years with diabetes, I was recently diagnosed with Graves. I’m taking methimazole now, to tide me over until I have my thyroid removed in March. Never expected another auto-immune disease, but this one seems easy in comparison. Lots of symptoms before treatment, but easily corrected, and NO dietary limitations. (Big grin!) I’m actually smiling through this one, just wondering what’s the underlying reason for of two autoimmune diseases. Very curious.

      1 year ago Log in to Reply
    27. Linda Zottoli

      I have had several nodules, for years now, but blood levels of hormone okay. Used to keep getting pressured to have nodules removed.

      1 year ago Log in to Reply
    28. LizB

      I am surprised that the results are so even! I’ve had Type 1 for 35 years. Maybe 22 years ago, not long after I finally got insurance, I was diagnosed hypothyroid but it had probably been that way for much longer. I was never told I have Hashimoto’s, just that it was autoimmune. My sister was diagnosed hypothyroid very shortly after her Type 1 diagnosis.

      1 year ago Log in to Reply
    29. marmcs@yahoo.com

      Nodules

      1 year ago Log in to Reply
    30. Bonnie Lundblom

      Developed Graves disease about 2 years after my T1D diagnosis, took synthroid for years until Medicare started, now on generic levothyroxine and liothyrinone.

      1 year ago Log in to Reply
    31. Molly Jones

      I assume my GAD antibodies kept increasing and caused my epilepsy first at 19, hypothyroidism at 21, then type 1 diabetes at 30.

      1 year ago Log in to Reply
    32. Mitch Chernoff

      An endocrinologist told me this would occur some years before it did. Said it was a given and she was correct. I’d estimate I had been Type 1 roughly 40 years before I had to begin taking a daily thyroid pill for Hashimoto’s.

      1 year ago Log in to Reply

    Do you have thyroid issues in addition to T1D? Cancel reply

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