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    • 4 hours, 58 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 4 hours, 59 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 9 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 9 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 17 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 30 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 6 hours, 6 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 6 hours, 6 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 6 hours, 6 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 15 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 hours, 3 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 45 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?

    Home > LC Polls > Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?
    Previous

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?

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    If you use a CGM, do you ever experience “compression lows”? These are inaccurate CGM readings that occur when there is pressure placed on the CGM transmitter and sensor. They typically look like a sudden and drastic drop on a CGM graph, and often occur when a person is lying on their sensor.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    38 Comments

    1. Diane

      I don’t have a kit, but I definitely have all the supplies for it. I live in a hurricane prone area and know what it’s like to evacuate and not be able to get home for a couple of weeks.

      3
      2 years ago Log in to Reply
    2. Jneticdiabetic

      Not a kit per se, but do try to have extra supplies on hand in case of emergencies. I store all my supplies together in a box (except my insulin in the fridge) so easy to grab and go.

      5
      2 years ago Log in to Reply
    3. Teri Morris

      No, but I could throw one together in about a minute.

      4
      2 years ago Log in to Reply
    4. ConnieT1D62

      Yes I have a grab and go diabetes supply survival kit that has enough extra stuff for three weeks, including an extra sensor. All I have to do is grab my extra stash of insulin kept in a Frio pack from the fridge to add to the kit on the way out to a safe place.

      2
      2 years ago Log in to Reply
      1. Robin Melen

        Same here – supplies are in a travel bag (3 of everything). Just have to grab insulin and a smaller cooler and I’m outta there!

        1
        2 years ago Log in to Reply
    5. Ernie Richmann

      I have everything but not in a kit that I could easily grab and go. I should prepare a kit. Don’t think I can adequately prepare for a worst case scenario.

      6
      2 years ago Log in to Reply
    6. Grey Gray

      I always keep back up in my truck. A 6 pack mini 12v fridge that I got for 30 dollars keeps things cool enough. Live in SWFL sometimes I sweat my stuff off a few times a week. May not be a disaster or emergency for the rest of the world but at that moment it is for me.

      4
      2 years ago Log in to Reply
    7. Patricia Kilwein

      No, not yet. After 2 fire 🔥 alarms in our apt building since April, going to make sure I do!

      1
      2 years ago Log in to Reply
    8. Jen Farley

      National disasters do not exist for insurance companies. You cannot have any extra supplies due to the cost to them and other insurance customers. This is what I was told by my insurance company. I thanked her for guaranteeing my struggle or death in a national disaster. She laughed and hung up. I wish I had gotten her name.

      6
      2 years ago Log in to Reply
    9. KIMBERELY SMITH

      Just got it yesterday

      1
      2 years ago Log in to Reply
    10. Lawrence S.

      No. I live in a small place, and don’t know where I would keep an emergency kit. All of the closets and cabinets are full. If time allowed, I could put my insulin and supplies together within a few minutes. Let’s hope it doesn’t come to that.

      2 years ago Log in to Reply
    11. Jeff Balbirnie

      Currently awaiting several scripts, with CORRECT insurance information, before I am able to fulfill the complete kit

      2 years ago Log in to Reply
    12. Janice B

      Would probably be a good idea

      1
      2 years ago Log in to Reply
    13. Marty

      I was suddenly evacuated from a fire zone for a week once and I was trapped in a hotel for several days after the Boston marathon bombing. The possibility of being cut off from my normal routine is very real for me so I keep a “travel kit” ready. I would just need to grab insulin from the fridge.

      1
      2 years ago Log in to Reply
    14. cynthia jaworski

      I always have a days worth of stuff with me in my cosmetic bag. for few days, I would simply add my tresiba pen. Longer than that, it would depend on how long my cgm lasted.

      2 years ago Log in to Reply
    15. Thomas Cline

      Always. I live 1/4 mile from the Hayward Fault which is WAY overdue to break. We are informed to be able to provide for our own needs for at least 3 days — based on the anticipated inability of the authorities to provide help for that long in the event of a major earthquake.

      1
      2 years ago Log in to Reply
    16. Janis Senungetuk

      No, I don’t. All the pump supplies, CGM supplies plus my 7 daily prescription meds take up a lot of space that combined would be a suitcase full. I could grab insulin from the fridge and a bag of disposable syringes quickly, but the other things would take a while to put together. Thanks for the reminder that it needs to be done.

      1
      2 years ago Log in to Reply
    17. TomH

      I have all my supplies in one location except insulin (in fridge) along with a small backpack to put it in, but it isn’t pre-packed.

      1
      2 years ago Log in to Reply
    18. Beckett Nelson

      Things I would need in an emergency, yes. Located in a box as a kit, no

      0
      2 years ago Log in to Reply
    19. Lorri McLuckie

      Kind of – all of my diabetes supplies are in one location in the house and would be easy to put in a bag that is also there.

      2
      2 years ago Log in to Reply
    20. Pauline M Reynolds

      No, but I keep all my current supplies in a tote bag.

      2 years ago Log in to Reply
    21. Anneyun

      I have put a kit together in the past, but realized that I need to keep an eye on expiry dates of the meds and pump and CGM supplies. So I have put a written list in my earthquake kit of the drugs etc that I need to grab if need be. Hopefully I will have my wits about me!

      1
      2 years ago Log in to Reply
      1. T1DGJ

        Ooh good tip to make the list for future freaked out me!! Thanks for this answer.

        1
        2 years ago Log in to Reply
    22. mlettinga

      I have a “kit” that I keep located where I change sites etc with several days of supplies but do it for convenience. I’d probably use a larger kit or stock more supplies if that was the case.

      2 years ago Log in to Reply
    23. T1diabetic

      I have stuff that I carry with me, but the needed supplies for a disaster would have to be gone thru continuously so none of the supplies expire!
      So, my supplies are all kept in one place, but not in a carryable container.
      But of course, insulin can’t be kept like that…..

      2
      2 years ago Log in to Reply
    24. George Lovelace

      All Supplies in my house inland that might be subject to tornado. The only disaster no one could have been prepared for was the death of my wife last week but I carry on in her memory!

      1
      2 years ago Log in to Reply
      1. Jian

        so sorry. One can never be prepared for this.

        2
        2 years ago Log in to Reply
      2. T1DGJ

        I’m so sorry for your loss.

        2 years ago Log in to Reply
    25. Jian

      partially ready just have to grab insulin from frig and get sensors from a closet – expiration of things keep it sort of unready. but I could do in 2. minutes.

      2
      2 years ago Log in to Reply
    26. lis be

      if the natural disaster only lasts as long as my insurance cover my meds, then, i guess.

      2 years ago Log in to Reply
    27. T1D4LongTime

      Yes, in a way. My husband is frequently ill, so I keep an “Emergency Room” bag with extra supplies, batteries, syringes and snacks. The kit includes a long-acting insulin pen. Truth be told, I really need to have ketone strips, glucagon, etc. We have a crankable charging lantern that I would use in a natural disaster to provide power to charge my pump as long as possible.

      2 years ago Log in to Reply
    28. Kristine Warmecke

      Not currently. I have in the past.

      2 years ago Log in to Reply
    29. Bea Anderson

      Not specifically, but all my supplies are probably as easy to grab as the bag would be.

      1
      2 years ago Log in to Reply
    30. Anita Stokar

      I said no, but since my supplies are in a large storage rubbermaid tub, I could easily just grab that.

      1
      2 years ago Log in to Reply
    31. T1DGJ

      Yes & No. I did have a bag packed in 2020/2021 when I lived in a zone for both earthquake and tsunamis. But same issue, expiration dates. I still have the “bug out bags” packed with non-perishables, but would grab diabetes supplies from the drawer and fridge I keep them in to be sure they are fresh. I’m going to make the needs list AnneYun mentioned & put THAT in the bags, so I won’t forget something in a freak out.

      2 years ago Log in to Reply
    32. tmeagher

      Everything is close by and could easily be thrown into a bag in case of emergency evacuation.

      2 years ago Log in to Reply
    33. sandra smith

      In my purse I always have a little BG monitor case with a BG monitor, 1 vial fast-acting insulin and couple syringes. I also always carry nasal glucagon & glucose tabs. It’s actually just for day to day events, i.e. if I’m out and my insulin pen is empty or cracked, or my syringe tip gets bent. It’s got me thru a few situations that could have become issues. In a crisis it would keep me alive for a while I suppose. What i don’t have is long acting insulin.

      2 years ago Log in to Reply
    34. Brad Larson

      Due to the refrigeration requirements of insulin, no kit has been created. Just make sure there is always plenty on hand. I always have a medium size ice chest and ice blocks if I have to escape for a while. Even with a CGM, I never travel without the blood glucose kit.

      2 years ago Log in to Reply

    Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency? Cancel reply

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