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    • 4 hours, 1 minute ago
      atr likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 4 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 4 hours, 23 minutes ago
      Sarah Berry likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 13 hours, 27 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 1 day, 1 hour ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day, 2 hours ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 1 day, 3 hours ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 3 hours ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 3 hours ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 4 hours ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 21 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 2 days, 2 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 3 days, 3 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 13 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 13 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 21 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 21 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 21 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 21 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 4 days, 1 hour ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 4 days, 1 hour ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
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    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?

    Home > LC Polls > If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed?
    Previous

    How often do you clean your skin with an alcohol wipe before giving yourself an injection or inserting a new pump site or sensor?

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    Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Scott Rudolph

      It was two weeks before my eighteenth birthday.

      2 years ago Log in to Reply
    2. lynda meyer

      I was 4 when I was diagnosed. In May I “celebrated” my 70th year living with T1D!

      10
      2 years ago Log in to Reply
      1. Mick Martin

        @lynda meyer. Bless you, ma’am. May you survive a long and healthy life.

        2 years ago Log in to Reply
    3. dholl62@gmail.com

      I was diagnosed at age 18

      2 years ago Log in to Reply
    4. Joan Benedetto

      My son, now 11.5, was diagnosed at 18 months of age.

      2 years ago Log in to Reply
    5. Kristine Warmecke

      I was diagnosed at 11 years in 1982, my brother was diagnosed at 7 months old in 1972 and his oldest daughter was 23 months old in 2004.

      2 years ago Log in to Reply
    6. mlettinga

      My younger brother was diagnosed at 5 and I at 8. My poor parents as this was 55 years ago in the dark ages of juvenile diabetes as it was called back then. Average life span after diagnosis 20 years.

      2 years ago Log in to Reply
    7. Edward Geary

      Barely, I was eighteen and totally unprepared for what lay ahead. As the saying goes
      : “if I knew then….”

      2 years ago Log in to Reply
    8. Lyn McQuaid

      I was diagnosed shortly after I turned 20, which is technically “adult” status, but I was in college and still living at home. Now, 30 years later, I think of myself as being a “kid” at diagnosis as I was not yet living what I think of as my “adult” life.

      2 years ago Log in to Reply
    9. Ahh Life

      At age 4, life was as simple as an Amazon 1-swipe—poke a syringe in with NPH and regular.

      Now life is more complicated than Byzantine philosophy—insulin, inserts, tubing, syringes, skin wipes, alcohol, algorithms, adjustments, hardware, software, vaporware, cgm’s, overpatches, signal interference, test strips, glucometers, , steroid interferences, PPI interferences, and other complications to be tended to.

      And I haven’t even gotten to the Byzantine-squared public/private/not-for-profit/for-some-profit-but-not-all-profit gargantuan American medical system frustrations and delays.

      Dying unto one’s former self to be born anew is an old Christian trope. I think I know where its appeal comes from. Sigh! 😖🤣😑

      2 years ago Log in to Reply
    10. George Lovelace

      15 and ever since Life has been a “Shot in the Dark” even with CGMs and Control IQ

      2 years ago Log in to Reply
    11. Bob Durstenfeld

      I was dx’ed at 18 months of age, my eldest son was dx’ed by me at 8 months of age and his eldest daughter was dx’ed at 18 months. Sort of runs on the family.

      2 years ago Log in to Reply
    12. Barb Robertson

      I was in dka and told I was diabetic on my 10th birthday…….61 years ago.

      2 years ago Log in to Reply
    13. KIMBERELY SMITH

      I am Type 2 Dietetic

      2 years ago Log in to Reply
    14. Jen Farley

      I was 13. I was a defiant kid and feel now I am glad I was not my parents. That is, looking back on the situation now. Back then, they just did not understand but being a parent now they were trying to save my life from complications down the way. I have a younger brother with adult onset and a sister with pancreatic cancer, I wish there was a way to help them besides advice and recipes.

      1
      2 years ago Log in to Reply
    15. Juha Kankaanpaa

      I have always believed that while we T1s are born with the predispositions to this disease, there usually is some trigger to activate it. In my case this was stress at the last year of university, and in my daughter’s case, move to a new country and starting school at the age of 4.

      2 years ago Log in to Reply
    16. Mark Schweim

      Diagnosed at age 24, well into adulthood, but not yet transitioned from childhood into adultery.

      2 years ago Log in to Reply
    17. Janis Senungetuk

      I was 8 when dx in 1955.

      2 years ago Log in to Reply
    18. Kristen Clifford

      I once again reiterate that you guys are in dire need of new questions. This one has been asked at least twice before.

      2 years ago Log in to Reply

    If you (or your loved one) were diagnosed with T1D as a child, at what age were you diagnosed? Cancel reply

    You must be logged in to post a comment.




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