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    • 2 hours, 30 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 2 hours, 52 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 3 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 3 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 3 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 3 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 4 hours, 9 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 4 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 4 hours, 15 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 5 hours, 1 minute ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 22 hours, 7 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 3 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 3 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 14 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 14 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 2 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 2 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 3 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 3 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 3 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    Do you approach strangers in public who have visible diabetes devices?

    Home > LC Polls > Do you approach strangers in public who have visible diabetes devices?
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    How much do you think your immediate family members know about T1D? Select all of the statements that you think are true for you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. sweet charlie

      Yes… Because I hope by telling them that I have T1D from age 20 to 90 without any major problems, will help them on their outlook..

      18
      3 years ago Log in to Reply
    2. kilupx

      I answered “other” because so have never seen a stranger in public using diabetes devices. Perhaps some people around me have had devices and I just haven’t noticed.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      Yes, whenever possible. It’s rare to see someone’s diabetes devices because they are hidden in pockets and beneath their clothing. But, I am always eager to speak with other diabetics. I always tell them about the T1D Exchange website.

      3
      3 years ago Log in to Reply
    4. Robin Melen

      I think I would if I ever saw someone with a device. But I never have!

      2
      3 years ago Log in to Reply
    5. Liz Avery

      I answered no, but if I was having a low emergency, I might.

      1
      3 years ago Log in to Reply
    6. Nichole Pleisch

      I don’t usually approach people but I might point out my devices. People tend to approach me more

      3
      3 years ago Log in to Reply
    7. MARIE

      I said depends. Traveling, we approached an adult once who had the telltale plastic tubing from her pump sticking out of her pants pocket. She was very receptive. But we’ve seen kids with CGMs on the backs of their arms and we don’t say anything to kids.

      3 years ago Log in to Reply
    8. Ernie Richmann

      I often approach strangers with or without diabetes devices especially at the YMCA.

      2
      3 years ago Log in to Reply
    9. Jneticdiabetic

      I often do. Always nice to meet someone else with T1D. This past year I met a fellow Dexcom user while hiking in Zion, the Dad of a newly diagnosed boy at a kiddie birthday party, a man with an alarming Tandem on a garden walk who jokingly told me “is not you, it’s me” when I checked my own pump in response. Sometimes just a flash of the a nod or smile of recognition.
      #DiabetesInTheWild

      6
      3 years ago Log in to Reply
    10. Carole Ludwig

      I would but I have not had the opportunity. I live in a small town and there are not that many type 1’s

      1
      3 years ago Log in to Reply
    11. Linda Zottoli

      Like sweet charlie above, I figure my almost 68 years of diabetes is sometimes encouraging to people with newer diagnoses, and I’ve also become friends with people I’ve met.

      2
      3 years ago Log in to Reply
    12. KCR

      But several times people have approached me and I am happy to answer questions when the situation allows.

      3
      3 years ago Log in to Reply
    13. Sue Martin

      No, I haven’t seen any strangers with visible diabetes devices.

      3 years ago Log in to Reply
    14. cynthia jaworski

      My answer was “always.” However, I approach differently, depending onn the circumstances. Many times I simply point to my libre and nod.

      1
      3 years ago Log in to Reply
    15. George Lovelace

      I keep my Pump in a shirt Pocket and take it out to show with a Big Thumbs Up!

      1
      3 years ago Log in to Reply
    16. Mary Dexter

      I don’t. If someone approaches me, I try to be polite, but really it’s none of their business. I talk to strangers about other, less personal things: the weather, groceries (have you ever tried this and does it taste good, do you know where they keep…). Probably why so many keep their devices hidden.
      When I was 14,I wore a Milwaukee Brace. Strangers would come up to me wanting to know the details of the car accident and I just wanted to be as invisible as any adolescent, but my mother would walk away, leaving me to politely explain scoliosis. Yes, I’m deformed. We hide to avoid rude, ignorant, opinionated people.

      1
      3 years ago Log in to Reply
    17. Janis Senungetuk

      Definitely depends on the circumstance. If I notice a pump or CGM on someone in a grocery,
      farmers market or park I’ve approached and simply gestured to my pump and CGM, saying “me, too”. Sometimes there’s a positive response.

      3
      3 years ago Log in to Reply
    18. Wanacure

      If I see a stranger with something on their hip or wearing any device, I cannot assume it’s diabetes related. It might be a pacemaker, it might be a device using small electric shocks for pain, it could be a cellphone. Like Ernie I have no qualms talking to strangers.
      BTW I noticed a CGM on the arm of S. Epatha Merkerson on NBC TV’s Chicago Med where she plays chief administrator. In real life she was diagnosed as T2D in 2002. (Looper.com)

      3
      3 years ago Log in to Reply
    19. Jillmarie61

      I should of put sometimes, but most of the time it’s them approaching me.

      3 years ago Log in to Reply
    20. Jan Masty

      I never notice anyone wearing a pump or cgm. I have met other type 1’s because they have mentioned it during a conversation. Then I share my experience if appropriate.

      3 years ago Log in to Reply
    21. Bekki Weston

      Yes! Last year, I was in the zig-zag line at the airport, awaiting security check-in, and I spoke with a man in the next lane over, who had an Omnipod on his arm. Agree with others, that devices are often hidden, and we don’t even realize a fellow T1D is right beside us.

      1
      3 years ago Log in to Reply
    22. Cheryl Weaver

      Not if I don’t know them.

      3 years ago Log in to Reply
    23. Jen Farley

      Always good to understand how someone else thinks about and handles situation’s and always a moment to learn from another pumper. I am a lifelong learner and always willing to make a new friend.

      2
      3 years ago Log in to Reply
    24. LizB

      I have never noticed a device on anyone in public but if I did I might say something, depending on the situation.

      1
      3 years ago Log in to Reply
    25. Mike Plante

      I don’t because I’m an introvert, but I’m happy to talk with t1d strangers if they initiate it.

      2
      3 years ago Log in to Reply
    26. Bea Anderson

      Only if device is really noticeable!! Have had some great chats. And people have all different ways to achieve their goals!! Lots of questions. back and forth. I’m semi-private, but have had only good experiences.

      2
      3 years ago Log in to Reply
    27. Michael Andrews

      Is this annoying or not?

      3 years ago Log in to Reply

    Do you approach strangers in public who have visible diabetes devices? Cancel reply

    You must be logged in to post a comment.




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