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    • 14 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 3 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 15 hours, 21 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 52 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 53 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 54 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 16 hours, 19 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 16 hours, 21 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 11 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 11 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 14 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 16 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    At your most recent (or current) job, did you tell your coworkers that you have T1D?

    Home > LC Polls > At your most recent (or current) job, did you tell your coworkers that you have T1D?
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    Have you (or your loved one with T1D) had LASIK eye surgery to see better without glasses or contact lenses?

    Next

    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. Sherolyn Newell

      I have a medic alert tatoo on my wrist, so it’s no secret.

      2 years ago Log in to Reply
    2. Patricia Dalrymple

      I wear a bracelet and as someone who is aware but does go low for a variety of reasons, I tell people so they know what to do. Have never needed intervention except a little being waited on by my spouse, so fortunate. But: I have never felt fearful for my job. I know a lot of people do because of the expense to the company.

      2 years ago Log in to Reply
    3. Annie Wall

      I make it a habit to let people I work with (and play with!) know about my diabetes. Even with a CGM with alerts, there are times when my blood glucose can plummet and I need help, like a quick glass of juice. I let my supervisors and my employees know what my low blood sugar behavior looks like and I have been helped many a time and people are glad to help when they understand what kind of help I need. A lot of my colleagues, friends, and family, are much more knowledgeable about Type 1 diabetes now!

      2 years ago Log in to Reply
    4. Gene Maggard

      I never told anyone at my places of employment as I didn’t want to be judged by my disease instead of my performance. This was probably not going to happen, but just didn’t want to take the chance. I never had incidents where my problem was visible (for example, a low blood sugar reaction).

      2 years ago Log in to Reply
    5. Julie Akawie

      In my work I educate new employees about the Pharma R&D process, and often use diabetes as an example of how the drug development process works. As a 50-year T1D veteran with few complications, I feel I am a good example of what LIVING with diabetes looks like, and I am proud to advocate for a healthy lifestyle.

      2 years ago Log in to Reply
    6. Shelly Smith

      I answered “other” because I never tried to hide or display it. I am who/what I am. I may have tried to hide it if I thought it might have jeopardized my job, tho.

      2 years ago Log in to Reply
    7. Amy Nance

      As I see fit to inform others, I do, it’s a need to know basis.

      2 years ago Log in to Reply
    8. Kristen Clifford

      I’ve made it a habit with every job I’ve had to let my coworkers know early on that I have T1D. In the event something were to happen to me on the job, I would want people to know about me so that they can then know how to help.

      2 years ago Log in to Reply
    9. Kristine Warmecke

      Being a RN, who has worn a pump the majority of my career, it was hard to hide.

      2 years ago Log in to Reply
    10. Ann Taylor

      I’m retired now but when I was diagnosed I was working in a school kitchen. Luckily it happened in the summer and I almost died so they were told right away. Also I would have had to tell them since before I got Dexcom I would have lows a would have to stop to drink something and sit for a bit, which wasn’t always convenient

      2 years ago Log in to Reply
    11. Michael Slaven

      I don’t stand up on a desktop and shout it out, but I don’t hide it and have found it’s important to let people know why I’m beeping in meetings…or just in general. It does get really tiring to explain the difference between T1 and T2, but I tell myself I’m educating and try to do it with a smile. I have had to have frank conversations with coworkers about what I eat being my own business. (Can you imagine telling an overweight person that they shouldn’t have a piece of candy? Yet somehow that’s okay for folks to tell us, when we know that sometimes we NEED some sugar to level us out) I also make sure people in my immediate environment know if I’m about to do a finger stick. (rare since I have Dexcom now) But I learned early on that the tiny pin prick of blood that’s so normal to me might cause someone else to feel woozy if they see it unawares.

      2 years ago Log in to Reply
    12. Becky Hertz

      I didn’t announce it but neither did I hide it. Many people knew.

      2 years ago Log in to Reply
    13. Anthony Harder

      I have always notified those with whom I work closely, regularly. I don’t hide it, but I don’t make a corporate-wide announcement (several thousand people) either.

      2 years ago Log in to Reply
    14. William Bennett

      It was much more of a concern to me back in the bad old pre-CGM, R/NPH days because you really lived on thin ice all the time, doing your best to organize your life to fit your insulin (NOT the other way around), when the insulin time of action was imprecise at best. So it was important for my co-workers, my boss especially, to know because sometimes you had to deal with something and it was no joke.

      2 years ago Log in to Reply
    15. Bekki Weston

      I’ve only told my immediate work group (3 others), plus folks in the HR Dept. know. In fact, not too long ago, I left my insulin pen (in its case) in the restroom, and someone from HR brought it back to me.

      2 years ago Log in to Reply
    16. Steven Gill

      Wearing an insulin pump even an idiot would notice. I’ve changed jobs several times since diagnosis, it’s never been a problem. Back in “injection days,” I kid about doing drugs over lunch, but I ask if i need to walk away to test my levels (seems everyone is related to a diabetic so that’s not an issue either). Want to be polite after all. Everyone I work with know I’m a “chronically ill weak diabetic.” ( teasing there, these 20 year old whine about keeping up with this 61 year old). I’ve had homeowners question about the pump, neighbors ask, the only thing I physically can’t do is tall ladders: terrified of heights!

      2 years ago Log in to Reply
    17. Molly Jones

      After a bit of time working I will let those who work with me daily be aware of my medical concerns. I do not do this immediately. Possible hypoglycemic events need to be known for me as does epilepsy, but I want people to get to know me first.

      2 years ago Log in to Reply
    18. Jeff Balbirnie

      Such knowledge could do severe irreparable harm in the wrong hands/situation(s). e.g. promotion, employment, health insurance Why on earth would I give anyone that information/ability? They must earn that trust.

      2 years ago Log in to Reply

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