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    • 1 hour, 59 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 3 hours, 15 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 3 hours, 15 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 3 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 3 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 18 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 3 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 3 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 5 hours, 21 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 58 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 42 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 4 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 27 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 28 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 7 hours, 28 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 43 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 44 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 8 hours, 45 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 45 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 23 hours, 45 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 23 hours, 46 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 5 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Home > LC Polls > Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.
    Previous

    At your most recent (or current) job, did you tell your coworkers that you have T1D?

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    What was your most recent A1c?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Mick Martin

      Not Applicable as I live in the UK where all of my diabetes-related medical supplies are paid for by our NHS (National Health Service), which is financed via direct taxation from all working people.

      5 years ago Log in to Reply
    2. Nicholas Argento

      Other because I bought Baqsimi before COVID lockdown because I was afraid no one would be available to answer a desperate 911 call from my wife. I live in what was then a hot spot- but not now, because we have had effective local and state leadership, unlike many states. People here understand that a mask is a public health tool , not a political endorsement. Baqsimi was not covered, so I bought it. Peace of mind is of great value.

      5 years ago Log in to Reply
    3. Britni Steingard

      My job may pay poorly but we have the best insurance. Relatively low copays, no deductibles, so far everything I’ve needed has been covered…

      5 years ago Log in to Reply
    4. Ahh Life

      Test strips, since use of the Dexcom G6 obviates the need for them. Really? Ask the question sometime of T1D’s of what do they do when one or many sensors fail. (っ^▿^)💨 Also, pay for cotton balls, alcohol, skin wipes, alcohol pads, glucometers, trips to the MD, parking, tolls, glucose tablets. The insulin technically cannot be labeled “completely out-of-pocket, but the co-pay is so prohibitively high that it might as well be . . . . . . 😭😭😭💰💰💰

      5 years ago Log in to Reply
    5. Gene Maggard

      I’m on Medicare (an Advantage plan) so my CGM supplies are covered 100%, and my pump supplies are 80% covered. I haven’t had to buy test strips for years as I had a huge oversupply (from old insurance). The last time I purchased a new pump it was only $200 so pleased with that. My highest cost has been insulin (again, an 80% coverage for a very high priced medication), but the new law limiting it to $35 will help there.

      5 years ago Log in to Reply
    6. gary rind

      Express Scripts is my PBM so they are problematic with strips. They only allow OneTouch Verio which is garbage. I’ve been buying Choice strips from Amazon and they are the same price.

      5 years ago Log in to Reply
    7. Kristen Clifford

      All my supplies are either covered by insurance or able to pay for with FSA except for alcohol swabs.

      5 years ago Log in to Reply
    8. Greg Felton

      I am fortunate to have good coverage on pump and CGM supplies but “peripherals” like alcohol, tegaderm, emergency glucose and tape are out of pocket. I once tried to get reimbursement for pump batteries but was told that only the amount exceeding the over-the-counter price was covered.

      5 years ago Log in to Reply
    9. Trina Blake

      For a while after changing health pans (we moved) I paid out of pocket for my Dexcom. I had been Dexcom’ing for years and really valued evverything about it. After about 3 years, the new health plan covered Dexcom. I pay out of pocket for meter and strips. Can’t use the meter covered by health plan (reads higher than actual on people with chronic anemia – that is disastrous – correcting high bg’s I wasn’t experiencing).

      5 years ago Log in to Reply
    10. Gustavo Avitabile

      I live in a civilized country, Italy. Like most European countries, health items are paid by National Health Service, that is by all taxpayers. In this way, health care is not a privilege for affluent people.

      5 years ago Log in to Reply
    11. Kristine Warmecke

      I did a couple times in 2020 for pump supplies & G6 sensors because the supplier I chose to use through my Medicare Advantage Plan messed up my orders repeatedly and I was left with nothing for months. So out of pocket via Tandem on a limited fixed income.

      5 years ago Log in to Reply
    12. Melinda Lipe

      Glucose tablets/smarties or other hypo supplies, yes for supplemental alcohol/syringes for pump problems, supplemental test strips.

      5 years ago Log in to Reply
    13. Rebecca Lambert

      I pay out of pocket for barrier wipes, overlay patches, alcohol wipes, etc. Insurance covers everything else.

      5 years ago Log in to Reply
    14. Chip Brookes

      Glucose meter test strips. I have a CGM Medicare and supplemental won’t pay. Also I purchase glucose tabs, alcohol wipes, IV prep pads, and clear dressing film to make my own over patches when needed

      5 years ago Log in to Reply
    15. Elif DeSimone

      Thankfully my insurance pays for all this

      5 years ago Log in to Reply
    16. Mig Vascos

      For several years I paid for my sensors but I got coverage when Medicare approved the Dexcom CGM. Right now strips are not covered because of the Dex G6 I use them only occasionally and I ’m still using supplies I had from before. Dexcom is providing the overlay patches for free. You just have to call them and request them (packages of 10 each) monthly.

      5 years ago Log in to Reply
    17. Patricia Dalrymple

      I suppose N/A means No to all? That’s what I chose.

      5 years ago Log in to Reply
    18. Carol Meares

      Lately I found that I could get test strips on Amazon without prescription and totally out of pocket cheaper than I could with my copay at the pharmacy. I will be changing to pharmacy by mail which may be cheaper but not sure about the test strips.

      5 years ago Log in to Reply
    19. Patricia Maddix

      I checked other because all of the products mentioned are covered completely or in part by my insurance. I have original Medicare plus a United healthcare supplement. At first when I started the G6 a year ago apparently Medicare was not covering strips anymore according to Dexcom. A little later in the year they indicated that they would send me some test strips for free. Then I changed my supplies to come from United States medical mail order, And they are also able to send me at least 200 test strips every three months. However if I want the contour next test strips I buy them out of pocket At Amazon because those are not part of the formulary’s.

      5 years ago Log in to Reply
    20. ConnieT1D62

      I pay out of pocket for Baqsemi with a RX at CVS, and I get Skin Prep and IV3000 patches for pump use w/o a RX directly online with Amazon Prime. Everything else related to insulins, pump and cgm supplies is covered by my insurance.

      5 years ago Log in to Reply
    21. Molly Jones

      All of the supplies and visits listed are covered by my insurance. I chose other as there was not a no. N/A meant to me I did not need these. I pay for prescribed polyethylene glycol 3350 completely to help with digestion/constipation. If this is not used my appetite and food intake is null.

      5 years ago Log in to Reply
    22. PersonofSweet

      I don’t use my meter that much, so it’s less of a hassle to just buy the strips and pay out of pocket.

      5 years ago Log in to Reply

    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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