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    • 1 hour, 38 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 3 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 5 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 5 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 24 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 25 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 26 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 5 hours, 27 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 27 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 32 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 5 hours, 37 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 5 hours, 52 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 15 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 7 hours, 9 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 7 hours, 56 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 7 hours, 58 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 8 hours, 23 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 5 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 36 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 37 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 9 hours, 58 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Home > LC Polls > Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.
    Previous

    At your most recent (or current) job, did you tell your coworkers that you have T1D?

    Next

    What was your most recent A1c?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Mick Martin

      Not Applicable as I live in the UK where all of my diabetes-related medical supplies are paid for by our NHS (National Health Service), which is financed via direct taxation from all working people.

      2 years ago Log in to Reply
    2. Nicholas Argento

      Other because I bought Baqsimi before COVID lockdown because I was afraid no one would be available to answer a desperate 911 call from my wife. I live in what was then a hot spot- but not now, because we have had effective local and state leadership, unlike many states. People here understand that a mask is a public health tool , not a political endorsement. Baqsimi was not covered, so I bought it. Peace of mind is of great value.

      2 years ago Log in to Reply
    3. Britni Steingard

      My job may pay poorly but we have the best insurance. Relatively low copays, no deductibles, so far everything I’ve needed has been covered…

      2 years ago Log in to Reply
    4. Ahh Life

      Test strips, since use of the Dexcom G6 obviates the need for them. Really? Ask the question sometime of T1D’s of what do they do when one or many sensors fail. (っ^▿^)💨 Also, pay for cotton balls, alcohol, skin wipes, alcohol pads, glucometers, trips to the MD, parking, tolls, glucose tablets. The insulin technically cannot be labeled “completely out-of-pocket, but the co-pay is so prohibitively high that it might as well be . . . . . . 😭😭😭💰💰💰

      2 years ago Log in to Reply
    5. Gene Maggard

      I’m on Medicare (an Advantage plan) so my CGM supplies are covered 100%, and my pump supplies are 80% covered. I haven’t had to buy test strips for years as I had a huge oversupply (from old insurance). The last time I purchased a new pump it was only $200 so pleased with that. My highest cost has been insulin (again, an 80% coverage for a very high priced medication), but the new law limiting it to $35 will help there.

      2 years ago Log in to Reply
    6. gary rind

      Express Scripts is my PBM so they are problematic with strips. They only allow OneTouch Verio which is garbage. I’ve been buying Choice strips from Amazon and they are the same price.

      2 years ago Log in to Reply
    7. Kristen Clifford

      All my supplies are either covered by insurance or able to pay for with FSA except for alcohol swabs.

      2 years ago Log in to Reply
    8. Greg Felton

      I am fortunate to have good coverage on pump and CGM supplies but “peripherals” like alcohol, tegaderm, emergency glucose and tape are out of pocket. I once tried to get reimbursement for pump batteries but was told that only the amount exceeding the over-the-counter price was covered.

      2 years ago Log in to Reply
    9. Trina Blake

      For a while after changing health pans (we moved) I paid out of pocket for my Dexcom. I had been Dexcom’ing for years and really valued evverything about it. After about 3 years, the new health plan covered Dexcom. I pay out of pocket for meter and strips. Can’t use the meter covered by health plan (reads higher than actual on people with chronic anemia – that is disastrous – correcting high bg’s I wasn’t experiencing).

      2 years ago Log in to Reply
    10. Gustavo Avitabile

      I live in a civilized country, Italy. Like most European countries, health items are paid by National Health Service, that is by all taxpayers. In this way, health care is not a privilege for affluent people.

      2 years ago Log in to Reply
    11. Kristine Warmecke

      I did a couple times in 2020 for pump supplies & G6 sensors because the supplier I chose to use through my Medicare Advantage Plan messed up my orders repeatedly and I was left with nothing for months. So out of pocket via Tandem on a limited fixed income.

      2 years ago Log in to Reply
    12. Melinda Lipe

      Glucose tablets/smarties or other hypo supplies, yes for supplemental alcohol/syringes for pump problems, supplemental test strips.

      2 years ago Log in to Reply
    13. Rebecca Lambert

      I pay out of pocket for barrier wipes, overlay patches, alcohol wipes, etc. Insurance covers everything else.

      2 years ago Log in to Reply
    14. Chip Brookes

      Glucose meter test strips. I have a CGM Medicare and supplemental won’t pay. Also I purchase glucose tabs, alcohol wipes, IV prep pads, and clear dressing film to make my own over patches when needed

      2 years ago Log in to Reply
    15. Elif DeSimone

      Thankfully my insurance pays for all this

      2 years ago Log in to Reply
    16. Mig Vascos

      For several years I paid for my sensors but I got coverage when Medicare approved the Dexcom CGM. Right now strips are not covered because of the Dex G6 I use them only occasionally and I ’m still using supplies I had from before. Dexcom is providing the overlay patches for free. You just have to call them and request them (packages of 10 each) monthly.

      2 years ago Log in to Reply
    17. Patricia Dalrymple

      I suppose N/A means No to all? That’s what I chose.

      2 years ago Log in to Reply
    18. Carol Meares

      Lately I found that I could get test strips on Amazon without prescription and totally out of pocket cheaper than I could with my copay at the pharmacy. I will be changing to pharmacy by mail which may be cheaper but not sure about the test strips.

      2 years ago Log in to Reply
    19. Patricia Maddix

      I checked other because all of the products mentioned are covered completely or in part by my insurance. I have original Medicare plus a United healthcare supplement. At first when I started the G6 a year ago apparently Medicare was not covering strips anymore according to Dexcom. A little later in the year they indicated that they would send me some test strips for free. Then I changed my supplies to come from United States medical mail order, And they are also able to send me at least 200 test strips every three months. However if I want the contour next test strips I buy them out of pocket At Amazon because those are not part of the formulary’s.

      2 years ago Log in to Reply
    20. ConnieT1D62

      I pay out of pocket for Baqsemi with a RX at CVS, and I get Skin Prep and IV3000 patches for pump use w/o a RX directly online with Amazon Prime. Everything else related to insulins, pump and cgm supplies is covered by my insurance.

      2 years ago Log in to Reply
    21. Molly Jones

      All of the supplies and visits listed are covered by my insurance. I chose other as there was not a no. N/A meant to me I did not need these. I pay for prescribed polyethylene glycol 3350 completely to help with digestion/constipation. If this is not used my appetite and food intake is null.

      2 years ago Log in to Reply
    22. PersonofSweet

      I don’t use my meter that much, so it’s less of a hassle to just buy the strips and pay out of pocket.

      2 years ago Log in to Reply

    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply. Cancel reply

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