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    • 11 hours, 40 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 11 hours, 40 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 11 hours, 41 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 12 hours, 55 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 16 hours, 28 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 16 hours, 30 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 19 hours, 53 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 19 hours, 54 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 19 hours, 54 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 19 hours, 54 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 19 hours, 55 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 20 hours, 19 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 19 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 21 hours, 8 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 19 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 19 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 21 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 21 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    At your most recent (or current) job, did you tell your coworkers that you have T1D?

    Home > LC Polls > At your most recent (or current) job, did you tell your coworkers that you have T1D?
    Previous

    Have you (or your loved one with T1D) had LASIK eye surgery to see better without glasses or contact lenses?

    Next

    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Sherolyn Newell

      I have a medic alert tatoo on my wrist, so it’s no secret.

      5 years ago Log in to Reply
    2. Patricia Dalrymple

      I wear a bracelet and as someone who is aware but does go low for a variety of reasons, I tell people so they know what to do. Have never needed intervention except a little being waited on by my spouse, so fortunate. But: I have never felt fearful for my job. I know a lot of people do because of the expense to the company.

      5 years ago Log in to Reply
    3. Annie Wall

      I make it a habit to let people I work with (and play with!) know about my diabetes. Even with a CGM with alerts, there are times when my blood glucose can plummet and I need help, like a quick glass of juice. I let my supervisors and my employees know what my low blood sugar behavior looks like and I have been helped many a time and people are glad to help when they understand what kind of help I need. A lot of my colleagues, friends, and family, are much more knowledgeable about Type 1 diabetes now!

      5 years ago Log in to Reply
    4. Gene Maggard

      I never told anyone at my places of employment as I didn’t want to be judged by my disease instead of my performance. This was probably not going to happen, but just didn’t want to take the chance. I never had incidents where my problem was visible (for example, a low blood sugar reaction).

      5 years ago Log in to Reply
    5. Julie Akawie

      In my work I educate new employees about the Pharma R&D process, and often use diabetes as an example of how the drug development process works. As a 50-year T1D veteran with few complications, I feel I am a good example of what LIVING with diabetes looks like, and I am proud to advocate for a healthy lifestyle.

      5 years ago Log in to Reply
    6. Shelly Smith

      I answered “other” because I never tried to hide or display it. I am who/what I am. I may have tried to hide it if I thought it might have jeopardized my job, tho.

      5 years ago Log in to Reply
    7. Amy Nance

      As I see fit to inform others, I do, it’s a need to know basis.

      5 years ago Log in to Reply
    8. Kristen Clifford

      I’ve made it a habit with every job I’ve had to let my coworkers know early on that I have T1D. In the event something were to happen to me on the job, I would want people to know about me so that they can then know how to help.

      5 years ago Log in to Reply
    9. Kristine Warmecke

      Being a RN, who has worn a pump the majority of my career, it was hard to hide.

      5 years ago Log in to Reply
    10. Ann Taylor

      I’m retired now but when I was diagnosed I was working in a school kitchen. Luckily it happened in the summer and I almost died so they were told right away. Also I would have had to tell them since before I got Dexcom I would have lows a would have to stop to drink something and sit for a bit, which wasn’t always convenient

      5 years ago Log in to Reply
    11. Michael Slaven

      I don’t stand up on a desktop and shout it out, but I don’t hide it and have found it’s important to let people know why I’m beeping in meetings…or just in general. It does get really tiring to explain the difference between T1 and T2, but I tell myself I’m educating and try to do it with a smile. I have had to have frank conversations with coworkers about what I eat being my own business. (Can you imagine telling an overweight person that they shouldn’t have a piece of candy? Yet somehow that’s okay for folks to tell us, when we know that sometimes we NEED some sugar to level us out) I also make sure people in my immediate environment know if I’m about to do a finger stick. (rare since I have Dexcom now) But I learned early on that the tiny pin prick of blood that’s so normal to me might cause someone else to feel woozy if they see it unawares.

      5 years ago Log in to Reply
    12. Becky Hertz

      I didn’t announce it but neither did I hide it. Many people knew.

      5 years ago Log in to Reply
    13. Anthony Harder

      I have always notified those with whom I work closely, regularly. I don’t hide it, but I don’t make a corporate-wide announcement (several thousand people) either.

      5 years ago Log in to Reply
    14. William Bennett

      It was much more of a concern to me back in the bad old pre-CGM, R/NPH days because you really lived on thin ice all the time, doing your best to organize your life to fit your insulin (NOT the other way around), when the insulin time of action was imprecise at best. So it was important for my co-workers, my boss especially, to know because sometimes you had to deal with something and it was no joke.

      5 years ago Log in to Reply
    15. Bekki Weston

      I’ve only told my immediate work group (3 others), plus folks in the HR Dept. know. In fact, not too long ago, I left my insulin pen (in its case) in the restroom, and someone from HR brought it back to me.

      5 years ago Log in to Reply
    16. Steven Gill

      Wearing an insulin pump even an idiot would notice. I’ve changed jobs several times since diagnosis, it’s never been a problem. Back in “injection days,” I kid about doing drugs over lunch, but I ask if i need to walk away to test my levels (seems everyone is related to a diabetic so that’s not an issue either). Want to be polite after all. Everyone I work with know I’m a “chronically ill weak diabetic.” ( teasing there, these 20 year old whine about keeping up with this 61 year old). I’ve had homeowners question about the pump, neighbors ask, the only thing I physically can’t do is tall ladders: terrified of heights!

      5 years ago Log in to Reply
    17. Molly Jones

      After a bit of time working I will let those who work with me daily be aware of my medical concerns. I do not do this immediately. Possible hypoglycemic events need to be known for me as does epilepsy, but I want people to get to know me first.

      5 years ago Log in to Reply
    18. Jeff Balbirnie

      Such knowledge could do severe irreparable harm in the wrong hands/situation(s). e.g. promotion, employment, health insurance Why on earth would I give anyone that information/ability? They must earn that trust.

      5 years ago Log in to Reply

    At your most recent (or current) job, did you tell your coworkers that you have T1D? Cancel reply

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