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    • 4 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    At your most recent (or current) job, did you tell your coworkers that you have T1D?

    Home > LC Polls > At your most recent (or current) job, did you tell your coworkers that you have T1D?
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    Have you (or your loved one with T1D) had LASIK eye surgery to see better without glasses or contact lenses?

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    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Sherolyn Newell

      I have a medic alert tatoo on my wrist, so it’s no secret.

      5 years ago Log in to Reply
    2. Patricia Dalrymple

      I wear a bracelet and as someone who is aware but does go low for a variety of reasons, I tell people so they know what to do. Have never needed intervention except a little being waited on by my spouse, so fortunate. But: I have never felt fearful for my job. I know a lot of people do because of the expense to the company.

      5 years ago Log in to Reply
    3. Annie Wall

      I make it a habit to let people I work with (and play with!) know about my diabetes. Even with a CGM with alerts, there are times when my blood glucose can plummet and I need help, like a quick glass of juice. I let my supervisors and my employees know what my low blood sugar behavior looks like and I have been helped many a time and people are glad to help when they understand what kind of help I need. A lot of my colleagues, friends, and family, are much more knowledgeable about Type 1 diabetes now!

      5 years ago Log in to Reply
    4. Gene Maggard

      I never told anyone at my places of employment as I didn’t want to be judged by my disease instead of my performance. This was probably not going to happen, but just didn’t want to take the chance. I never had incidents where my problem was visible (for example, a low blood sugar reaction).

      5 years ago Log in to Reply
    5. Julie Akawie

      In my work I educate new employees about the Pharma R&D process, and often use diabetes as an example of how the drug development process works. As a 50-year T1D veteran with few complications, I feel I am a good example of what LIVING with diabetes looks like, and I am proud to advocate for a healthy lifestyle.

      5 years ago Log in to Reply
    6. Shelly Smith

      I answered “other” because I never tried to hide or display it. I am who/what I am. I may have tried to hide it if I thought it might have jeopardized my job, tho.

      5 years ago Log in to Reply
    7. Amy Nance

      As I see fit to inform others, I do, it’s a need to know basis.

      5 years ago Log in to Reply
    8. Kristen Clifford

      I’ve made it a habit with every job I’ve had to let my coworkers know early on that I have T1D. In the event something were to happen to me on the job, I would want people to know about me so that they can then know how to help.

      5 years ago Log in to Reply
    9. Kristine Warmecke

      Being a RN, who has worn a pump the majority of my career, it was hard to hide.

      5 years ago Log in to Reply
    10. Ann Taylor

      I’m retired now but when I was diagnosed I was working in a school kitchen. Luckily it happened in the summer and I almost died so they were told right away. Also I would have had to tell them since before I got Dexcom I would have lows a would have to stop to drink something and sit for a bit, which wasn’t always convenient

      5 years ago Log in to Reply
    11. Michael Slaven

      I don’t stand up on a desktop and shout it out, but I don’t hide it and have found it’s important to let people know why I’m beeping in meetings…or just in general. It does get really tiring to explain the difference between T1 and T2, but I tell myself I’m educating and try to do it with a smile. I have had to have frank conversations with coworkers about what I eat being my own business. (Can you imagine telling an overweight person that they shouldn’t have a piece of candy? Yet somehow that’s okay for folks to tell us, when we know that sometimes we NEED some sugar to level us out) I also make sure people in my immediate environment know if I’m about to do a finger stick. (rare since I have Dexcom now) But I learned early on that the tiny pin prick of blood that’s so normal to me might cause someone else to feel woozy if they see it unawares.

      5 years ago Log in to Reply
    12. Becky Hertz

      I didn’t announce it but neither did I hide it. Many people knew.

      5 years ago Log in to Reply
    13. Anthony Harder

      I have always notified those with whom I work closely, regularly. I don’t hide it, but I don’t make a corporate-wide announcement (several thousand people) either.

      5 years ago Log in to Reply
    14. William Bennett

      It was much more of a concern to me back in the bad old pre-CGM, R/NPH days because you really lived on thin ice all the time, doing your best to organize your life to fit your insulin (NOT the other way around), when the insulin time of action was imprecise at best. So it was important for my co-workers, my boss especially, to know because sometimes you had to deal with something and it was no joke.

      5 years ago Log in to Reply
    15. Bekki Weston

      I’ve only told my immediate work group (3 others), plus folks in the HR Dept. know. In fact, not too long ago, I left my insulin pen (in its case) in the restroom, and someone from HR brought it back to me.

      5 years ago Log in to Reply
    16. Steven Gill

      Wearing an insulin pump even an idiot would notice. I’ve changed jobs several times since diagnosis, it’s never been a problem. Back in “injection days,” I kid about doing drugs over lunch, but I ask if i need to walk away to test my levels (seems everyone is related to a diabetic so that’s not an issue either). Want to be polite after all. Everyone I work with know I’m a “chronically ill weak diabetic.” ( teasing there, these 20 year old whine about keeping up with this 61 year old). I’ve had homeowners question about the pump, neighbors ask, the only thing I physically can’t do is tall ladders: terrified of heights!

      5 years ago Log in to Reply
    17. Molly Jones

      After a bit of time working I will let those who work with me daily be aware of my medical concerns. I do not do this immediately. Possible hypoglycemic events need to be known for me as does epilepsy, but I want people to get to know me first.

      5 years ago Log in to Reply
    18. Jeff Balbirnie

      Such knowledge could do severe irreparable harm in the wrong hands/situation(s). e.g. promotion, employment, health insurance Why on earth would I give anyone that information/ability? They must earn that trust.

      5 years ago Log in to Reply

    At your most recent (or current) job, did you tell your coworkers that you have T1D? Cancel reply

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