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    • 29 minutes ago
      kristina blake likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 54 minutes ago
      Mary Coleman likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 55 minutes ago
      Mary Coleman likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 1 hour, 6 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 hour, 7 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 1 hour, 7 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 1 hour, 23 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like most of the above comments, it's more of a question. The statements have come in situations where I'm not actually eating something...like someone saying, "Oh, it must be hard to not be able to eat desserts!"
    • 1 hour, 24 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like others here, it's more of "Can you eat . . .?" than "You shouldn't eat . . .!" Nonetheless, it comes across the same way.
    • 1 hour, 25 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 2 hours, 36 minutes ago
      Steve Rumble likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like others here, it's more of "Can you eat . . .?" than "You shouldn't eat . . .!" Nonetheless, it comes across the same way.
    • 2 hours, 37 minutes ago
      Steve Rumble likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 4 hours ago
      mojoseje likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 15 hours, 56 minutes ago
      Neha Shah likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 17 hours, 56 minutes ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      My grandma told me u could never have kid. I had two successful pregnancies.
    • 17 hours, 58 minutes ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Oh my goodness… yes! As a child I was often reminded of my limitations because of diabetes. I’m hopeful that those misconceptions about T1D have changed over the decades.
    • 17 hours, 58 minutes ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Me too! 2kids and now soon to be 6 grandchildren. We just persevere, don’t we.
    • 17 hours, 59 minutes ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was diagnosed with t1 41 years ago. I was told to NOT have children. But I did not listen and had two healthy children.
    • 18 hours, 49 minutes ago
      Sarah Berry likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 21 hours, 45 minutes ago
      René Wagner likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Oh my goodness… yes! As a child I was often reminded of my limitations because of diabetes. I’m hopeful that those misconceptions about T1D have changed over the decades.
    • 21 hours, 49 minutes ago
      René Wagner likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 29 minutes ago
      Bonnie Lundblom likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Is there a formula for how much more insulin to take when getting a steroid shot?
    • 23 hours, 29 minutes ago
      Bonnie Lundblom likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Dealing with wild bg swings.
    • 1 day ago
      Julianne likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      lis be likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Possess a Class A driver's license. Would allow u to drive a bus.
    • 1 day ago
      lis be likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      YES, DONATE PLASMA for the production of IGG. My wife is immune compromised with CVID. I was extremely disappointed when the technical support nurse basically said No you’re on insulin and it’s not filtered out during the washing process.
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    At what age were you diagnosed with T1D?

    Home > LC Polls > At what age were you diagnosed with T1D?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2023?

    Next

    Which healthcare provider have you used in the past 12 months for your non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Jane Cerullo

      Misdiagnosed as DM2 for a few years. New Endo was amazed that I didn’t know I was LADA T1D

      2
      2 years ago Log in to Reply
    2. KIMBERELY SMITH

      AT AGE OF 58

      2
      2 years ago Log in to Reply
      1. Kris Sykes-David

        I was 55, almost ten years ago. 😔

        1
        2 years ago Log in to Reply
    3. Yaffa Steubinger

      Diagnosed at 66 making T1 my fourth autoimmune disease. Ah, the ‘gift’ that keeps on giving.

      4
      2 years ago Log in to Reply
    4. Don P

      the label T1 has many sub categories of which require different control methods. ie .. as a JD I’m completely different than a LADA

      2
      2 years ago Log in to Reply
      1. Mark Schweim

        T1 is T1… JD means Juvenile Diabetes, which is what T1 USED TO be called. I was diagnosed at 24 years young, and at that time, the Hospital put on my diagnosis that I had “T1D, formerly called JD (Juvenile Diabetes)” and they said in 1991 that what was formerly called JD had been RENAMED as T1D due to their finding that an increasing number of people were being diagnosed with JD even at ages older than 40 years old, which made it totally meaningless and senseless to call it “Juvenile Diabetes” when most frequently diagnosed in people no longer young enough to consider as being juvenile.

        4
        2 years ago Log in to Reply
    5. Bob Durstenfeld

      My Dad, myself, two brothers, my eldest son, and his eldest daughter were all dx’ed with T1D before age 2.

      1
      2 years ago Log in to Reply
      1. Eva

        Ever tested for MODY?

        2 years ago Log in to Reply
    6. Sue Martin

      I was diagnosed at 18.

      1
      2 years ago Log in to Reply
    7. pru barry

      I was diagnosed at 14, 69 years ago. It has been an interesting adventure, with nothing more than Graves disease cropping up in the meantime to remind me that my system has its quirks. I knew long ago that respecting the do’s and don’t’s of diabetes was essential (Thank you, Dr. Joslin, Sr.)
      Just want everyone to be reminded that it’s not the end of the world. I’ve been lucky, and have tried to be diligent while trying really hard to live life to the fullest. I’m still wishing we had a medical system that didn’t place such a heavy insistence on supporting the drug barons. I know it’s complicated, but even I feel sure that we might have had a cure by now were it not for so much greed. There it is, in my most genteel terms :^}.

      5
      2 years ago Log in to Reply
    8. Joan Benedetto

      My son, age 11.5, was diagnosed at 18 mos of age.

      1
      2 years ago Log in to Reply
    9. Nevin Bowman

      Age 4, 46 years ago.

      2
      2 years ago Log in to Reply
    10. Donna Condi

      At 42 I was misdiagnosed with T2 and was finally told that I had always been a T1 two years later.

      2 years ago Log in to Reply
      1. Steven Gill

        I lived 3 1/2 years as a TYPE2, had to fire the endocrinologist to fix it.

        2 years ago Log in to Reply
    11. lis be

      I still think T1D should have a different name.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        How about
        Insulin Deficient Diabetes (IDD) for T1D
        and Insulin Resistant Diabetes (IRD) for T2D

        2
        2 years ago Log in to Reply
    12. Kristine Warmecke

      I was 11 years old, my brother was 7 months old and his oldest daughter was 1 years old.

      2 years ago Log in to Reply
    13. ConnieT1D62

      Age 8 in 1962.

      2 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I was 23 years of age, just out of the US Navy and that was 55 years ago!

      2 years ago Log in to Reply
    15. KarenM6

      Age 5

      2 years ago Log in to Reply
    16. Jen Farley

      I have had T1D for 41 years. Dang, was just called a senior citizen and given a senior discount at a store. I should be glad right. Not feeling it!

      2 years ago Log in to Reply
      1. Jen Farley

        I was 13. Worst year ever!

        2 years ago Log in to Reply
    17. PamK

      Age 2 1/2

      2 years ago Log in to Reply

    At what age were you diagnosed with T1D? Cancel reply

    You must be logged in to post a comment.




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