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    • 1 hour, 31 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 2 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 2 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 2 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 5 hours, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of blood glucose levels, managing complications of T1D, etc.)?

    Home > LC Polls > In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of blood glucose levels, managing complications of T1D, etc.)?
    Previous

    When you most recently changed insulin pumps, which of these options describes the brand of your previous pump and the brand of your current pump?

    Next

    If you take insulin using multiple daily injections, do you use any visual cues to easily tell the difference between your long-acting and short-acting insulin vials/pens? (For example, wrapping a hair tie or rubber band around one type of insulin, or adding colorful tape)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Jen Farley

      Doctors appointments only, both me and my doctor keep banker hours.

      3 years ago Log in to Reply
    2. Grey Gray

      If I took time off every time I had a low episode I would probably never work. Most of my lows happen at work. Hmmm… maybe I shouldn’t work.

      3
      3 years ago Log in to Reply
    3. Jane Cerullo

      Sometimes go low at work. Am an R N and sometimes get very busy but always keep something with me to bring up lows. Once was working and pump malfunctioned. I forget why. But had my highest BS ever. 319 Had headache and felt awful. Worse than being low

      1
      3 years ago Log in to Reply
      1. Janis Senungetuk

        Jane, I understand the enormous pressure HC staff are under with the increased work demands made by employers. It’s very sad that the Healthcare industry does little or nothing to acknowledge/apply ADA standards.

        1
        3 years ago Log in to Reply
    4. Janice Bohn

      I always make up any time missed at work for appointments or blood work.

      1
      3 years ago Log in to Reply
      1. Sue Martin

        Same here. It’s nice to have that flexibility.

        3 years ago Log in to Reply
    5. Joan Benedetto

      My son missed three hours of school for an Endo appointment (same practice, brand new Endo). We are doing our best to avoid this in the future.

      3 years ago Log in to Reply
    6. Lawrence S.

      I’m retired. I do a lot of yard work, and work around the house. I lose work time almost every day, waiting for my blood glucose to get high enough to resume work. I conservatively figure an hour a week. So that’s about 12 hours. I answered “9-16 hours.”

      3 years ago Log in to Reply
    7. Sherolyn Newell

      Just about 1/2 an hour for a lab appointment and about the same for the doctor. The office is very close by work.

      3 years ago Log in to Reply
    8. Edward Geary

      Currently retired, however, in my last three years of work, medical appointments, dental appointments, nutrition, physical therapy, behavioral therapy and diagnostic testing added up. Fortunately, I had an enlightened employer and was an HR professional so it went smoothly. I did have to advocate on behalf of diabetics who routinely skipped critical health appointments or were forced to use vacation time. FMLA, particularly the intermittent leave provisions for chronic conditions is poorly understood and/or enforced by the Labor Department.

      1
      3 years ago Log in to Reply
    9. Janis Senungetuk

      1 – 4 hrs for Paratransit rides to/from labs and 1 appointment.

      3 years ago Log in to Reply
    10. AnitaS

      Since I worked night shift, I didn’t have to miss work for doctor appointments. During work, I would occasionally have to stop working for a 1/2 hour till my blood sugar rose as I had an extremely physically active job. I am retired now though.

      1
      3 years ago Log in to Reply
    11. mbulzomi@optonline.net

      I selected zero. I’m retired, I just volunteer.

      3 years ago Log in to Reply
    12. Jeanne McMillan-Olson

      I’m retired but do not miss any appointments due to T1d . When I worked at a hospital for 30 years as a Registered Dietitian, I did not miss work due to T1d and had 750 hours of sick leave on my last day of work in 2011. I have had it for 68 years this July.

      3 years ago Log in to Reply
    13. Steven Gill

      Over the past 8-9 years all my doc appts were scheduled a round days off (combined with eye, dental, driver’s licence…) so while took time off not just for diabetic care. All my doc appointments were scheduled early, have gone to work afterwards. Now retired, 3-4 days a week at the HumaneSociety (working 2 days this week), I’m the idiot that never calls off sick (could work alone if needed): sold back 7 days of my 2 week vacation when I retired this year. High blood sugar? low blood sugar? Still have to feed the AttackPit, walk the SaberToothKitten, still have to pay bills even if not 100%. So…. never lost time due to diabetes.

      1
      3 years ago Log in to Reply
    14. Steve Rumble

      I’m long retired and have no regular daily commitments.

      3 years ago Log in to Reply
    15. T1D4LongTime

      I am now retired, but I’ve seldom missed any work due to T1D. My endo appointments were always 7am so I’m out in time to get to work. The only exception when I was a teenager in the early 70s. Unmanaged T1D for 7 years due to my pediatrician’s lack of knowledge caused me to be in the hospital for total of 6-8 weeks one spring. (Too many years ago, to count now! LOL!). I didn’t miss work due to T1D during my adult years.

      3 years ago Log in to Reply

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of blood glucose levels, managing complications of T1D, etc.)? Cancel reply

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