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    • 1 hour, 36 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 3 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 3 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 3 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 16 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 17 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 17 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 5 hours, 59 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 22 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 20 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    If you use an insulin pump, when a pump site does not last the full amount of time it is supposed to last, do you contact customer service for replacement supplies?

    Home > LC Polls > If you use an insulin pump, when a pump site does not last the full amount of time it is supposed to last, do you contact customer service for replacement supplies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    33 Comments

    1. Molly Jones

      I chose other as sometimes seemed too often.
      I would only contact the company if there seems to be something wrong with the pump they need to be aware of or an issue they could possibly explain to me.
      This has not happened very often, in my memory.

      3 years ago Log in to Reply
    2. dave hedeen

      Question doesn’t appear correct? Pump site hence infusion set, never yet CGM often doesn’t last full 7 days

      3 years ago Log in to Reply
    3. Kristen Clifford

      As long as I have backups, I just put on a new site.

      3
      3 years ago Log in to Reply
    4. Lawrence S.

      No, I have never contacted customer services for replacement of a canula or tubing. I have enough of those supplies to get me through. I do call for failed CGM sensors and transmitters.

      3
      3 years ago Log in to Reply
    5. Ron Pierce

      Yes, Medtronic makes this process quick and easy.

      3 years ago Log in to Reply
    6. Gary Taylor

      If the canula is inserted correctly, i.e. it doesn’t get bent by scars, then it always lasts the full three days. If the canula gets bent, then it’s my problem and I just replace it without calling support services.

      3
      3 years ago Log in to Reply
    7. Andrew Stewart

      When I used the Omnipod system and I had issue I would always call but now that I’m using the Tandem system, I just replace the infusion set as I have a large surplus.
      #BeWell

      3 years ago Log in to Reply
    8. Mig Vascos

      At times I have to replace the infusion site because of absorbing problems, so I always have more supplies of cartridges and syringes than of infusion sets.
      I call Tandem at times and explain the situation of which they take many notes and they send me an extra box of 10 sets.
      I have try to get my NP to write a prescription to address this situation and she said she can’t. Tried CCS when I order my supplies to send me 4 boxes of infusion sets and 2 of the cartridges and they say they can’t. So it seems there’s no solution to the problem.

      1
      3 years ago Log in to Reply
      1. Robert Brooks

        You hit the nail on the head. Although Tandem calls the infusion sets good for 2-3 days, the insurance company or Medicare dictate the quantity you may receive. I have managed to get a box of infusion sets as an extra once, but it required a doctor’s approval and was of a different type than normal (Soft-Set vs True Steel), so it may have been approved on the basis of trying something different.

        3 years ago Log in to Reply
    9. Ms Cris

      If just several hours, no. But if 12 hours or more, yes. If there’s a kink in the canula, always. This has led to a new prescription to change every 1-2 days depending on the body area and type of infusion set. It’s annoying, but at least my BG is better controlled.

      3 years ago Log in to Reply
    10. Liz Avery

      I marked sometimes. I generally do not call for infusion sets or reservoirs as I have a few extra. I always call for CGM (sensors) sets as Medicare has a throttle on these supplies.

      3
      3 years ago Log in to Reply
      1. Trina Blake

        My insurance has the same thing – I get 3 months worth (9 sensors) and they don’t seem to rec ognize that some months have 31 days or that on occasion a sensor doesn’t last. Once a year, I purchase a box of 3 sensors retail (using GoodRx) so I have a stash.

        3 years ago Log in to Reply
      2. Lawrence S.

        Trina,
        When my sensor fails I call Dexcom for technical assistance. They replace the sensors free of charge.

        3 years ago Log in to Reply
    11. George Lovelace

      I Chose “Other” as I went to changing the Site every 2 days, been pumping for 24 years Best of Bgs to All!

      3 years ago Log in to Reply
    12. Trina Blake

      Years ago I had a problem, the sticky pad seemed faulty. It took several tries, I opened a new box. I called Tandem for that situation. Provided the batch number etc and they replaced them. They also sent a return packaging so I cold send the unopned sets back to them to review.

      3 years ago Log in to Reply
    13. Maggie Morgan

      I often have my sensors last longer than 3 days so I’ve built up a stash. That way if one rips out early I don’t have to deal with replacing it.

      3 years ago Log in to Reply
    14. Lynn Smith

      I put Other. It depends on why it did not last. If my pod falls off or quits working for no apparent reason, especially during the first 2 days of use, I usually call. If my blood sugars are running higher on the third day of use, I just do bolus corrections and live with it until the three days is up.

      3 years ago Log in to Reply
    15. Patricia Kilwein

      If I have to change a pump site early, it’s probably because of scar tissue. No one’s fault. If I am running low on supplies I contact my endo Dr to ask for an increase in my prescription. Takes a bit of time to process but always works out.

      3 years ago Log in to Reply
    16. Marty

      I now get enough supplies to change sites every two days when a site seems to be wearing out before the 3rd day. My endo was more than happy to prescribe 45 sets/90 days. I was told initially by my supplier that Medicare wouldn’t cover the “extra” sets so I asked them to increase the amount of insulin they shipped so I could use 2x insulin on the 3rd day. Somehow, the “extra” sets got “approved”. Now I get as many as I need.

      1
      3 years ago Log in to Reply
    17. Janis Senungetuk

      Insurance also;utely limits quantity of all DME. If I need to replace the infusion set before 3 days for any reason not resulting from my error I call Tandem for a replacement. Fortunately I haven’t needed to do that often.

      3 years ago Log in to Reply
    18. Joan Fray

      Nope. I figure it is just part of the whole ( wretched) deal and change the site. I have Kaiser so I pay 20% of supplies

      1
      3 years ago Log in to Reply
    19. KarenM6

      I don’t unless it is obviously a technical issue with the pump.

      3 years ago Log in to Reply
    20. Louise Robinson

      Being on Medicare, I am only shipped the exact amount of supplies needed to last 30 (CGM sensors) or 90 days (CGM Transmitter and pump supplies). If I did not call customer service for replacements when they do not last the full alloted time, I would run out and have to resort to MDI.

      3 years ago Log in to Reply
    21. Pauline M Reynolds

      I am not clear on this point. While my infusion sets last 4 days, I have more than once accidentally pulled it out beforehand.

      3 years ago Log in to Reply
    22. Becky Hertz

      When I used the plastic cannula and they failed, I would contact customer support. I had so many “failed” sites it was obvious it was me. I switched to TruSteel and now if my site fails ( me again) I just move the insertion set to another place.

      3 years ago Log in to Reply
    23. Jillmarie61

      I recently switched to OmniPod5 and they don’t replace the pods.

      3 years ago Log in to Reply
      1. ELYSSE HELLER

        I was recently put on Omnipod 5 so I appreciate your answer. Do you have any idea why we have to go Through Byram to get the Omnipod 5 and why we are only allowed to get a 1 month supply. Is it because of an insurance policy? I hope that once the Omnipod 5 is not the newest rage in terms of insulin delivery technology that this annoying stipulation will no longer appy.

        1
        3 years ago Log in to Reply
      2. Jillmarie61

        ELYSSE HELLER, I don’t know who you have your insurance thru, but I do know mine isn’t the same as yours because of what you’re saying. I don’t have to go thru Byram to get refills of my pods, nor do I only get a one month supply. I get three months at a time. Those issues are with your insurance company and/or doctor.

        It might be your doctor has only written the prescription for a one month supply, but you might call them to ask why and I would also ask your doctor to write the prescription for three months of supplies if he hasn’t.

        I can tell you that OmniPod5 does not fall under DME benefits in CA where I live (I don know if it’s that way everywhere). It is ordered and goes thru pharmacy benefits here. I can order refills when my supply runs low depending on if I need them from my pharmacy.

        Since the Pods only carry 200U of insulin, it works out perfectly for me. I usually take the Pod off within a few hours after the time runs out (it will work up to an additional 8 hours) depending how much insulin is left in it . When I take it off I can pull out any insulin left in the Pod, and use it in the next one.

        3 years ago Log in to Reply
    24. LizB

      My prescription is written to change every 2-3 days so I get enough every 90 days to be able to change early if needed so I never call.

      3 years ago Log in to Reply
    25. AnitaS

      I had quite a few soft cannulas get bent in my first 3 months of using a pump. I then switched to a steel cannula and have never had a problem since.

      3 years ago Log in to Reply
    26. Mike Plante

      I absolutely dread calling Omnipod for a pod replacement. It always takes so long and the customer representative is usually clueless and difficult to understand. Last time I had to explain to them what an MRI was and why I had to remove my pod to get one done.

      I hope they introduce an online replacement form like Dexcom has.

      1
      3 years ago Log in to Reply
    27. T1D4LongTime

      I have not up to this point. I don’t think Tandem has a Chat or online request form and I don’t have time in the day to sit on hold. For the most part, if they last at least 2 days I consider it ok. Other times, I just inject fast acting insulin and go on with my day until I’ve reached day 3. Insurance and DME rules and time to make the request stresses me more than figuring out my own solution to keep BG in control,

      3 years ago Log in to Reply
    28. Andrea Hultman

      Medtronic doesn’t offer this service for infusion sites. Only for CGM sensors.

      3 years ago Log in to Reply

    If you use an insulin pump, when a pump site does not last the full amount of time it is supposed to last, do you contact customer service for replacement supplies? Cancel reply

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