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    • 43 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 hour, 24 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 16 hours, 6 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 16 hours, 7 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 16 hours, 7 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 21 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 21 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 21 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 23 hours, 44 minutes ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 1 hour ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 20 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 1 hour ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 21 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 1 hour ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 2 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 2 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 13 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 13 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 3 days, 21 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 1 hour ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 4 days, 2 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
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    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Home > LC Polls > How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.
    Previous

    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?

    Next

    What was your most recent A1c?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Carolann Hunt

      You can explain it over and over and they still choose to not understand. It’s up there with understanding vaccines.

      6
      3 years ago Log in to Reply
    2. M C

      As it doesn’t impact them directly/personally, they don’t care to know or understand anything about the condition…. most don’t even know/remember that I have T1D. Those who do ‘know’ remain blissfully ignorant. Such is life.

      3
      3 years ago Log in to Reply
    3. Lawrence S.

      Unless they are around a T1D diabetic most of the time, they don’t get it. My relatives know that I am a diabetic. Most don’t know that there is a difference between Type 1 and Type 2. If it is not an immediate part of their lives, they just don’t think about it. I have heard numerous times when I experience a low blood sugar around them, “do you need insulin?” They want to help, but they don’t know what to do.
      Regarding my pump, they know that it pumps insulin … that’s about it.

      4
      3 years ago Log in to Reply
    4. Jane Cerullo

      Bahaha some still think you take insulin for a low. And don’t start me on difference between type 1 and 2. Always telling me what study they read that will cure me.

      5
      3 years ago Log in to Reply
    5. Barbara Bubar

      As a very long-term person with Type 1 and with the addition of both a nephew and a great nephew years later with Type 1 AND a brother-in-law with Type 2, the entire subject of diabetes has been covered in great detail for many years with all of the members in my extended family–up, down and sideways!!!.

      3 years ago Log in to Reply
    6. Ahh Life

      Cruise control / autopilot. Isn’t that what everyone has in their cars and F-22 fighter jets?

      That is the assumption made about tSlim X2 control IQ God-perfect algorithms. Friends, relatives, and even my wife assume now that life is perfect. Oh, well. ┏( ͡❛ ͜ʖ ͡❛)┛

      1
      3 years ago Log in to Reply
      1. Elissa Macher

        Same with me.

        3 years ago Log in to Reply
      2. Wanacure

        One of the critical computer models that was supposed to predict hurricane Ian is baffling meteorologists according to one of the TV news broadcast station I’m watching on 7 Oct 2022.

        3 years ago Log in to Reply
    7. Ernie Richmann

      To be fair I have limited knowledge of the various conditions, medications, and treatments of others in my extended family or of my friends and acquaintances. For those who are interested, I am happy to offer information about types of diabetes, the role of insulin, healthy life style choices, and more.

      3
      3 years ago Log in to Reply
    8. Elissa Macher

      Most of my relatives think that a pump IS an artificial pancreas that never needs to be touched.

      3 years ago Log in to Reply
      1. Karen Newe

        This is one reason why I do not like that term.

        3 years ago Log in to Reply
    9. Janice Bohn

      Sad but most of my extended family do not understand anything about T1D

      3 years ago Log in to Reply
    10. Liz Avery

      Even my siblings (56 year T1D) think I fake it when I experience a low and need to eat. That is the jealous mindset of “Liz always gets her way”. Grow up.

      1
      3 years ago Log in to Reply
    11. AnitaS

      I have T-1, but even my type 2 diabetic relatives are unaware of some of the differences between types 1 & 2. And some of the relatives who understand diabetes fairly well still don’t realize I can go for hours without eating because the pump helps, but they still think I have to be on a strict eating schedule. Like some other person noted, I don’t know all about others’ diseases, so why do I expect them to know all about my disease? Heck, just the other day when my cgm beeped, my mom offered me a hard boiled egg. My father would have known I needed something like juice.

      2
      3 years ago Log in to Reply
    12. Mary Dexter

      Some think they know about my diabetes, but the knowledge makes them uncomfortable, so they avoid me. They don’t visit and rarely call me. I can forgive them. The doctors on whom I must rely I am less forgiving. I should not have to keep correcting their changing my diagnosis back to T2, nor should I endure their pompous explanation of the two types (T1 is little kids, etc.) I shouldn’t have to repeatedly fight for continued access to insulin and CGM. Switching doctors would do me no good. All the doctors in this town are in lockstep and I am labeled the problem.

      1
      3 years ago Log in to Reply
      1. Karen Newe

        So sorry you are struggling with your doctors.

        1
        3 years ago Log in to Reply
    13. Molly Jones

      As I have three members of extended family in the medical field, a few of them understand it quite well. The others are ignorant as I am of many conditions myself.
      Since only half a percent of the population has this type 1 of this condition, I can understand the ignorance.

      1
      3 years ago Log in to Reply
    14. Cheryl Seibert

      I have a small extended family. One grandmother was Type 2 so she knew about diabetes. While my extended family has a lot of Type 2, they really no nothing about my T1D devices, what insulin does or anything else about my T1D.

      1
      3 years ago Log in to Reply
    15. Wanacure

      I have many distant relatives on both sides of family but we are not in touch. Years after my brother and I were diagnosed I learned it was on my mother’s side as well as my father’s side. I think this helped my father feel less guilty. I think at least some of the extended family members felt diabetes was shameful, an indication of “genetic inferiority.” My own mother had been a strong believer in eugenics…till her own sons developed diabetes.
      You would not believe how many “educated” Americans and Europeans including doctors and even Supreme Court Justice Felix Frankfurter endorsed eugenic practices like sterilizing people classified as “idiots,” “morons,” “homosexuals,” “insane,” epileptics, “criminals,” the colonized indigenous people of color, “cripples,” “half-breeds,” etc. Thousands were sterilized in the US well into the 1960’s. Ever seen the movie, “The Bad Seed?” Have you seen the PBS documentaries? Read any of the well-documented books? In “liberal” Seattle I met a “mixed-race” couple who could not buy or rent outside of the redlined zone. The world’s largest “democracy” still has a caste system based on the supposed superiority of lighter skin color. Today, look at the rise in popularity of “anti-immigrant” politicians in many “white” “so-called Christian” countries. How will YOU vote next month?

      3 years ago Log in to Reply

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you. Cancel reply

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