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    • 1 hour, 52 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 hour, 54 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 hour, 55 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 hour, 56 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 2 hours, 4 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 3 hours, 56 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 3 hours, 57 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 3 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 59 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 10 hours, 2 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 10 hours, 44 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 10 hours, 47 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 11 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 11 hours, 12 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 11 hours, 12 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 11 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 11 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 11 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 11 hours, 18 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 11 hours, 20 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 11 hours, 21 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 11 hours, 33 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 11 hours, 46 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 2 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 58 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you receive high alerts on your CGM, how frequently do your high alerts repeat after you acknowledge the alert? If you use different settings depending on time of day, please select the answer that corresponds to your alert setting at noon in your time zone.

    Home > LC Polls > If you receive high alerts on your CGM, how frequently do your high alerts repeat after you acknowledge the alert? If you use different settings depending on time of day, please select the answer that corresponds to your alert setting at noon in your time zone.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Britni

      With the Libre, once I’ve acknowledged an alert it doesn’t alarm again unless my blood sugar has crossed over the threshold a second time. So if it alarms at 300, drops to 290 and rises to 300 again, it will alarm again. If it alarms at 300 and continues to rise to 400, it won’t alarm again.

      4 years ago Log in to Reply
    2. Ahh Life

      About as often as a woodpecker pounds an aluminum light pole per second. And as annoying. (∩ ͡ ° ʖ ͡ °) ⊃=(===>

      4 years ago Log in to Reply
      1. Bruce and Audrey Coleman

        So true – they are very annoying but I tell myself how important they are. Then I grumble again.

        1
        4 years ago Log in to Reply
    3. Mary Ann Sayers

      I acknowledge the high alert and observe IOB vs bg and food intake and act accordingly.
      By noticing the times my bgs are continuously high is when I alter the basal. And I’m careful about not running my bgs into the ground!!!

      4 years ago Log in to Reply
    4. ConnieT1D62

      30 minutes. I am more concerned about urgent low BGs than I am about occasional highs.

      2
      4 years ago Log in to Reply
    5. Molly Jones

      I have no idea!
      I receive alerts when my blood sugar is above the target range and acknowledge it, but don’t know if it is repeating the alert or if it is alerting me again at a “new time” because my sugar is high.

      1
      4 years ago Log in to Reply
      1. AnitaS

        I have the same question as I sometimes get multiple alerts in a short amount of time even though I have the alert set to repeat after 3 hours.

        4 years ago Log in to Reply
    6. PamK

      Sorry! I chose the wrong answer. My CGM alerts me again 3-4 hours after a high alert, not 1-1.5 hours after!

      4 years ago Log in to Reply
      1. AnitaS

        I did the exact same thing.

        4 years ago Log in to Reply
    7. rick phillips

      Drives me nuts

      3
      4 years ago Log in to Reply
    8. Keli Godin

      It will alarm, I acknowledge and take insulin and BS goes down a few points. Then it goes back up a few points minutes later and it alarms again. Frustrating but better than no alerts ever!

      4 years ago Log in to Reply
      1. ELYSSE HELLER

        I know. I get yelled at by the machine that I am dropping and need to eat; then I get yelled at that my BG is rising.

        1
        4 years ago Log in to Reply
    9. KCR

      The response options are poorly worded with overlapping categories, e.g., 1-1.5, 1.5-2, etc. This is a problem I have observed in other questions. 😳

      4 years ago Log in to Reply
      1. AnitaS

        I see that in questionnaires all of the time, not just with this forum, but everywhere.

        4 years ago Log in to Reply
    10. Andrew Stewart

      I have my Dexcom G6 high and low alerts set to NOT repeat but they do anyway. I also have the sound off and vibrate only but even after acknowledging a low and treating it sometimes my t:slim pump goes into panic mode and won’t quiet down (STFU).
      #BeWell

      1
      4 years ago Log in to Reply
    11. Sherolyn Newell

      If I don’t acknowledge, it repeats every few minutes until I do. I haven’t ever timed it. When I do acknowledge it, I have it set to repeat in an hour. I think if it goes below the high threshold and then back up, it is a new alarm that goes off when it happens, not after the delay.

      1
      4 years ago Log in to Reply
    12. ELYSSE HELLER

      I am on Dexcom for about a month now. The diabetes educator set up my alerts but I am not sure that I am liking her recommendations She has my low set at 90 (which happens to be normal) and my high set at 250 (which is when I normally start vomiting) Pre CBGM I always set my pump to 70-99 as my range. Can anybody share what their CBGM’s normal/abnormal range is? I feel like I haven’t slept since I started the CBGM. Hopefully, once I can get the Omnipod 5 system I will be able to get some sleep. Any suggestions from other T1Ds would be greatly appreciated.

      4 years ago Log in to Reply
      1. KarenM6

        Elysse – can you go back to the educator and tell her how much trouble you are having? Or, even ask her to explain why she set your levels at low = 90 and high = 250?
        You should be able to change the alarms yourself. But, because you are new to the technology, I think it would be great to have the nurse help you through it.
        You may need a higher low alarm than others because of hypoglycemia unawareness or other issues. And, my levels may not work for you. But, I will say that my low and high alarms are a bit lower than yours.
        The one that concerns me for you is the high… if you are vomiting by the time the system is trying to alert you, it is set to high, IMHO! Just my opinion. But, definitely something to talk to your doctor and/or nurse about!!

        2
        4 years ago Log in to Reply
      2. Vivian Moon

        I have my high set at 140. 250 is ridiculous in my opinion!

        4 years ago Log in to Reply
    13. Pauline M Reynolds

      “Other”. Soon I’ll be getting training for my new CGM. So eager.

      1
      4 years ago Log in to Reply
      1. sweet charlie

        Enjoy !!

        4 years ago Log in to Reply
    14. Janis Senungetuk

      On the Dex G6 high alarms sound every half second. The high is set to alarm at 250. Even though I acknowledge the alarm and take a correction, it will alarm again within 30 minutes. Novolog doesn’t work that fast. Stacking doses only results in lows 3 hours later. The 250 level for high alerts was set by my Endo when I first started using the Tandem pump. She set it in response to my desire to personalize the alert level. It’s not a good solution.

      2
      4 years ago Log in to Reply
      1. Jneticdiabetic

        Are you a Tandem tslim pump user? If so, have you tried going to My CGM/ CGM Alerts/ High and Low/ High Alert and then adjusting your Repeat setting? Has several options from Never, 15min to 5hrs. I have mine set to repeat at 2hrs to give time for correction bolus to take effect. Imperfect, but it has helped.

        4 years ago Log in to Reply
    15. Jane Cerullo

      I set alarms on my FSL to not repeat. I set high alert at 150 so I can decide early on if need correction bolus or not.

      4 years ago Log in to Reply
    16. Becky Hertz

      My high alerts repeats at 2 hours. Need to let correction bolus time to work but want to stay on top of the high to determine if it’sa calculation error or a site issue.

      4 years ago Log in to Reply
    17. KarenM6

      Like others, for the G6, if the alarm goes off for a high, I can give insulin. But, if the reading goes down because of the insulin action or just because it has a variability factor of say +/- 20 (ish… I’m not sure what the real variability is), the number can go down after any number of minutes. Then, once it goes back up, the alarm sounds again.
      I have no repeat of the alarm set because of this quirk. The only way it doesn’t repeat the alarm on this setting is if the BS goes steadily up and up and up.
      I am trying to learn to not get irritated at the redundant alarms… or “rage bolus” because of them.

      4 years ago Log in to Reply
    18. Vivian Moon

      Very irritating at times as you cannot shut it off. I have let Dexcom know but nothing has improved. Loud alert at 140. 2 minutes later a loud alert at 141! No insulin is That fast!

      4
      4 years ago Log in to Reply
    19. Steve Rumble

      My CGM does not repeat high alerts IF i acknowledge receipt of the alert. However if my BS drops below the alert level and then again exceeds that level it will provide another alert.

      4 years ago Log in to Reply
    20. Patricia Kilwein

      I had to mark other. My cgm bugs me every 30 seconds until I respond with my pump and bolus. My pump also let’s me know how fast sugar glucose is rising. So I take a bg and make sure that cgm is correct.

      1
      4 years ago Log in to Reply
    21. Leon Ullrich

      Usually I need one alert and make corrections with insulin or carbs etc.

      4 years ago Log in to Reply
    22. persevereT1D52

      YES! REPEATEDLY! And it drives me crazy!! I did hear that G7 will have a snooze setting. But I’m beginning to doubt G7 is coming out in the US in my lifetime😡.

      4 years ago Log in to Reply
    23. Mary Thomson

      Every five minutes.

      4 years ago Log in to Reply
    24. David Smith

      I have a Dexcom G6 with alarms set to “never” repeat, and they generally don’t. They seem to go off again if I either don’t take any action or the trend going high is continuing in a big way or the low is calculated to continue dropping below 80.

      4 years ago Log in to Reply
    25. Leona Hanson

      The dexcom will alert you every 5 minutes until you are back in range then it will stop. Very irritating!

      4 years ago Log in to Reply

    If you receive high alerts on your CGM, how frequently do your high alerts repeat after you acknowledge the alert? If you use different settings depending on time of day, please select the answer that corresponds to your alert setting at noon in your time zone. Cancel reply

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