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    • 1 hour, 16 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 11 hours, 59 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 25 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 25 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 22 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 45 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 42 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?

    Home > LC Polls > If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Joan Fray

      I can’t remember much about menopause and diabetes problems. All I remember is having extreme panic attacks. Lasted about threes months. My doctor at the time, 1992, put me on a low dose of Prozac and I was fine. Saved my life.

      1
      4 years ago Log in to Reply
    2. connie ker

      Wow, 20% were diagnosed with diabetes during menopause……that is truly a change of life! I was 49 years old at the time of diagnosis. I told the OB/GYN I was feeling lousy. He put me on birth control and my vision got blurry, so the hormones ran sugars high. I have been on insulin for LADA ever since. I always wonder if I would have gone through menopause naturally if I could have avoided the high sugars.

      1
      4 years ago Log in to Reply
    3. Anne Mueller

      I am really not sure when menopause was for me because my doctor always told me I was perimenopausal. Then at some point I realized I hadn’t had a period in over a year. I was using an IUD that had a small amount of a hormone in it that was supposed to prevent pregnancy. I never took anything else for it. It seems strange that no one ever actually told me that I was in menopause or that it was over. Did they think I would sue them or be inconsolable? Frankly once I realized it, I was relieved.

      4 years ago Log in to Reply
    4. Mary Ann Sayers

      I didn’t have a tough time going through menopause. Yes, insulin needs rebounded constantly, but at the end of it, my bgs were much easier to predict because I wasn’t dealing with hormone upheavals on a monthly basis. I was 55 years at the time.

      4 years ago Log in to Reply
    5. cynthia jaworski

      That happened during a time when there were lots of changes in insulins and diabetic treatments. So it is impossible to tell.

      4 years ago Log in to Reply
    6. Sherrie Johnson

      Less by 1/3. I used to have a total basal of 16 units now 10 units per day

      1
      4 years ago Log in to Reply
    7. Joan McGinnis

      I don’t know if I did or not. I don’t recall blood sugar changes that were even discussed related to menopause with me

      1
      4 years ago Log in to Reply
    8. Mary Halverson

      I was diagnosed at age 61 AFTER going through menopause.

      4 years ago Log in to Reply
    9. Sarah Berry

      I had a total hysterectomy 6 years ago, so instant menapause. I don’t remember any major differences in insulin needs.

      4 years ago Log in to Reply
    10. Sue Martin

      I had other health issues during that time, a kidney transplant, so I didn’t notice if menopause had an impact.

      4 years ago Log in to Reply
    11. Carol Meares

      Honestly, I don’t remember. I was on MDI and just gave myself insulin when needed. I did not run totals daily but just aimed at keeping in a good range.

      1
      4 years ago Log in to Reply
    12. kflying1@yahoo.com

      I can’t say, since my onset in my mid-50s was related to male menopause or just being burned out by the effects of my disease.

      4 years ago Log in to Reply
    13. Janis Senungetuk

      That was 24 years ago. Can’t be sure if I was experiencing a very bumpy glucose roller coaster specifically because of menopause or a combination with incompetent medical care. My MD at the time had little knowledge of T1 glucose management.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      Mine chemically induced due t breast cancer, being normal positive.

      4 years ago Log in to Reply
    15. Karen Maffucci

      I did have significantly lower sugars during the night. However I did not use a CGM at that point. My CGM and paying better attention to my T1D has made a world of difference. I have a better handle on things. (62 years w/T1D)

      4 years ago Log in to Reply
    16. Pauline M Reynolds

      “Other” because I honestly can’t remember. I had LADA from age 46 and thyroid disease after that, so there were a mess of things going on.

      4 years ago Log in to Reply
      1. Kristi McAndrews-Litton

        exactly the same! HOT mess.

        4 years ago Log in to Reply
    17. Anneyun

      I chose “other” because I didn’t noticed any correlation. I didn’t know it was something to watch for.

      4 years ago Log in to Reply
    18. Donna Condi

      I don’t know one way or the other because I was not paying attention.

      1
      4 years ago Log in to Reply
    19. Miriam Gordon

      My basal profile has flattened out. The highest basal I used to have was double the rest of the time. If not more. Now highest is only 50% more.

      4 years ago Log in to Reply
    20. NAK Marshall

      It was before CGMs and drove me crazy testing and adjusting so often!

      1
      4 years ago Log in to Reply
    21. KarenM6

      It’s a constant roller coaster.

      4 years ago Log in to Reply
    22. Christina Trudo

      In perimenopause, I found I had a high spike about midway between periods when they were still regular. (Some reading suggested this might be a time my body was flushing eggs at a higher rate than usual during those years.)

      4 years ago Log in to Reply
    23. KSannie

      I just stopped having variations in insulin requirements during the various parts of the cycle. My insulin has remained more constant after menopause, and has really remained constant my whole life except when I was pregnant.

      4 years ago Log in to Reply
    24. James Phelps

      N/A

      4 years ago Log in to Reply
    25. Sue Herflicker

      I was diagnosed after menopause!

      4 years ago Log in to Reply
    26. Sue Compo

      I was diagnosed after menopause. (Age 62)

      4 years ago Log in to Reply
    27. Mick Martin

      N/A. I’m male.

      4 years ago Log in to Reply
    28. LizB

      Currently in perimenopause. Starting in late 2019 I had a sudden increase in my insulin needs overall. That then went down in 2021. I had my period in April 2021 and then nothing for 11 months but just got it again this month, March 2022 so the 1 year timer has reset. I found I needed a little more insulin while I had it this month but not a significant amount..

      4 years ago Log in to Reply
    29. Andrea J. Schedel

      I had a full hysterectomy at 43 and got to skip Menopause. I did not notice any changes in BG’s or increased insulin post surgery.

      4 years ago Log in to Reply

    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years? Cancel reply

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