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    • 1 hour, 25 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 1 hour, 25 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 1 hour, 54 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 10 hours, 16 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 19 hours, 50 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 19 hours, 50 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 19 hours, 50 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 19 hours, 51 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 6 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 10 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 10 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
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      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 8 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    Do you have thyroid issues in addition to T1D?

    Home > LC Polls > Do you have thyroid issues in addition to T1D?
    Previous

    If you have T1D, have you ever dated or married someone who also has T1D? Share your T1D love stories in the comments!

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    For current or past insulin pump users: Have you ever changed your insulin delivery routine because of insulin absorption issues?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    33 Comments

    1. GLORIA MILLER

      I don’t presently have thyroid issues since my thyroid was removed in 2002.

      4 years ago Log in to Reply
    2. Jane Cerullo

      Oh yes!! Last year my thyroid went wacky and I ended up with Graves Disease. Have some eye involvement so no radioactive iodine. Which I didn’t want anyway. Have been on anti thyroid medication and doing well. My eye disease is minimal. Just puffy lids.

      4 years ago Log in to Reply
    3. Sasha Wooldridge

      Other – I suspect I have a thyroid problem but have not been formally diagnosed. Many of my general health complaints are symptoms of thyroid malfunction.

      4 years ago Log in to Reply
    4. Francisco Varea

      I answered other. I had hyperthyroidism at diagnosis, but no issues ever since.

      4 years ago Log in to Reply
    5. Martha Arnold

      I was diagnosed with Graves Disease years and years prior to getting Type 1. I did have the radioactive iodine treatment at age 18. I was diagnosed at age 12 with Graves, diagnosed at age 20 with type 1. I still take Synthroid, and will continue with it for the rest of my life.

      4 years ago Log in to Reply
    6. Mary Dexter

      I have Hashimoto’s antibodies, but the levothyroxine does nothing but mess with my blood sugar and cholesterol levels, nothing positive, and my endocrinologists have been unwilling to note any symptoms, preferring to ascribe them to gluttony and sloth. I have changed endocrinologists several times with nothing changing.

      4 years ago Log in to Reply
    7. Lawrence S.

      My thyroid problems started soon after my T1D diagnosis in 1977. I’ve been on Synthroid ( or some generic) since. I believe that I am hypothyroid, although, I’m not really sure. My Endo checks my thyroid every 3 months, and occasionally makes adjustments.

      I noticed that deleting soy from my diet, and taking iodine helps my thyroid numbers. Recently, I started adding soy to my diet because my Endo wants me to have more protein in my diet. I’m feeling more exhausted. So, I’ll be curious to see what my thyroid numbers look like in my next blood test in March.

      1
      4 years ago Log in to Reply
    8. Kathleen Juzenas

      Hypothyroidism for many years, controlled with Levothyroxine.

      4 years ago Log in to Reply
    9. AnitaS

      I was diagnosed at age 9yrs in 1973 with D1 and I believe I was diagnosed with low thyroid about age 12 yrs. I have been on the same amount of levothyroxine since then.

      4 years ago Log in to Reply
    10. Amy Jo

      Other , but now that I’m thinking about it I guess I should have said “yes.” Subclinical hypothyroid during and after pregnancy, but thyroid dysfunction is present in my mom/grandma/all my aunts. I think I got the short end of the autoimmunity stick with T1!

      4 years ago Log in to Reply
      1. Kristi McAndrews-Litton

        same. :/

        4 years ago Log in to Reply
    11. Sherrie Johnson

      I was diagnosed withT1D in 1961 a year later hypothyroidism. They have been trying to get it right for 61 years. I seem to do best on a compounded formula.

      4 years ago Log in to Reply
    12. Kris Sykes-David

      Hypothyroidism earlier in life, as well as my mom and sister. Mine is well controlled with levothyroxine. Dx’d LADA at age 50.

      4 years ago Log in to Reply
    13. TEH

      I answered yes. I have had 3 rouns of hyper thyroid starting right befor 9/11/2001. I had the radioactive iodine and thist time when my TSH dropped to 0.1. Methimazol has has rased my TSH back to normal. Additionally I have a non cancerous nodule on my Thyroid. Watching both carefully now.

      4 years ago Log in to Reply
    14. Nancy Burgess

      I started with thyroid conditions about 15 years ago. Nobody wanted to remove my thyroid, but wanted to biopsy it every 6 months. Ouch! I found a doctor at Johns Hopkins who removed my thyroid 10 years ago. It was a good solution because I had cancer.

      4 years ago Log in to Reply
    15. Jneticdiabetic

      I was diagnosed with T1D first at age 18. Diagnosed with Hashimoto’s thyroiditis (autoimmune hypothyroidism) in early 30s after birth of my second son. Took a few years to get it right, but I’ve now been stable on the same dose of Synthroid for many years.
      Lots of thyroid issues on my maternal side. My aunt (no T1D) also developed Hashimoto’s after childbirth. My mom developed T1D late (age 57) and Hashimoto’s even later. We suspect my maternal grandmother had Graves, as she had her thyroid removed in her early 20s and had hyperthyroid eye involvement, but this is unconfirmed.

      4 years ago Log in to Reply
    16. Stuart Pelcyger

      Almost 40 years ago I was diagnosed, as diabetic. Soon thereafter was diagnosed with papillary carcinoma. My thyroid panels were normal coincidental with the diagnosis. So, I think if individual baselines were created that would alleviate some of the complications of thyroid disease, 1 of which might be diabetes.

      4 years ago Log in to Reply
    17. Janis Senungetuk

      Dx hypothyroid in 2004 , have taken varied amounts of Levothyroxine since.

      4 years ago Log in to Reply
    18. Patricia Dalrymple

      Endo found a nodule that he described as pretty large but not cancer about 5 months ago. He put me on levothyroxine but after no cancer and no symptoms I asked if I could quit because I was irritated with people on general, more so than normal, on it ☺️. He said I could cone off it. Just watching it with blood checks.

      4 years ago Log in to Reply
    19. Natalie Daley

      Hashimoto’s was diagnosed shortly after I started to see an excellent endocrinologist. My Levothyroxine does has stabilized over the years, and I’ve taken the same amount for about 20 years.

      4 years ago Log in to Reply
    20. Kristine Warmecke

      I was just diagnosed and started on levothyroxine two weeks ago.

      4 years ago Log in to Reply
    21. Julie Hedges

      I have had an underactive thyroid for last 15 years and have been a T1 diabetic foot 53 years since I was 15 years of age

      4 years ago Log in to Reply
    22. Julie Hedges

      Yes, have had an underactive thyroid for over 25 years, Type 1 diabetic for 53 years, also have been coeliac for last 15 years, all auto immune diseases

      4 years ago Log in to Reply
    23. lis be

      I was diagnosed with type 1 41 years ago, Hashimoto’s somewhere between 15-20 years ago.

      4 years ago Log in to Reply
    24. Joan Fray

      I’m always on the low end of normal.

      4 years ago Log in to Reply
    25. M C

      I’ve been a T1D for 45 years this March. A year ago, my thyroid became enlarged. Luckily, that is all that it has done. Had an ultrasound done, and blood tests – the scan showed enlargement and a couple of nodes – the blood test showed everything to be in the normal range… To date, there has been no other impacts from this anomaly – but the doctor continues to monitor it, and so far, so good.

      4 years ago Log in to Reply
    26. pru barry

      After almost 70 years with diabetes, I was recently diagnosed with Graves. I’m taking methimazole now, to tide me over until I have my thyroid removed in March. Never expected another auto-immune disease, but this one seems easy in comparison. Lots of symptoms before treatment, but easily corrected, and NO dietary limitations. (Big grin!) I’m actually smiling through this one, just wondering what’s the underlying reason for of two autoimmune diseases. Very curious.

      4 years ago Log in to Reply
    27. Linda Zottoli

      I have had several nodules, for years now, but blood levels of hormone okay. Used to keep getting pressured to have nodules removed.

      4 years ago Log in to Reply
    28. LizB

      I am surprised that the results are so even! I’ve had Type 1 for 35 years. Maybe 22 years ago, not long after I finally got insurance, I was diagnosed hypothyroid but it had probably been that way for much longer. I was never told I have Hashimoto’s, just that it was autoimmune. My sister was diagnosed hypothyroid very shortly after her Type 1 diagnosis.

      4 years ago Log in to Reply
    29. marmcs@yahoo.com

      Nodules

      4 years ago Log in to Reply
    30. Bonnie Lundblom

      Developed Graves disease about 2 years after my T1D diagnosis, took synthroid for years until Medicare started, now on generic levothyroxine and liothyrinone.

      4 years ago Log in to Reply
    31. Molly Jones

      I assume my GAD antibodies kept increasing and caused my epilepsy first at 19, hypothyroidism at 21, then type 1 diabetes at 30.

      4 years ago Log in to Reply
    32. Mitch Chernoff

      An endocrinologist told me this would occur some years before it did. Said it was a given and she was correct. I’d estimate I had been Type 1 roughly 40 years before I had to begin taking a daily thyroid pill for Hashimoto’s.

      4 years ago Log in to Reply

    Do you have thyroid issues in addition to T1D? Cancel reply

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