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    • 1 hour ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 1 hour, 1 minute ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 hour, 2 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 3 hours, 39 minutes ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 4 hours, 10 minutes ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 5 hours, 45 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 5 hours, 46 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 5 hours, 51 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 5 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 6 hours, 45 minutes ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 22 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 22 hours, 1 minute ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 22 hours, 2 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 22 hours, 3 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 22 hours, 3 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 22 hours, 4 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 22 hours, 4 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day, 1 hour ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 3 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 3 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 3 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 3 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 3 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day, 4 hours ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 4 hours ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
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    If you have T1D and have had a confirmed case of COVID-19, what symptoms did you experience? Please select all that apply.

    Home > LC Polls > If you have T1D and have had a confirmed case of COVID-19, what symptoms did you experience? Please select all that apply.
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    Have you ever used inhaled insulin? Share your experience in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Lawrence S.

      I’m surprised you didn’t include a choice of high blood glucose, or ketones.

      7
      4 years ago Log in to Reply
    2. GLORIA MILLER

      I consider myself very fortunate. I tested positive right before Christmas but I had no symptoms whatsoever. The first night after testing positive ( T1 for 65 years), I worried a lot but when I was fine the next day I did not worry any more. I had been boosted with Moderna.

      1
      4 years ago Log in to Reply
    3. TEH

      Huh. Looks like the vaccine was a good choice. I took the vaccine mainly because I don’t want to end up in the hospital.

      3
      4 years ago Log in to Reply
    4. Lynn Smith

      Even after both vaccinations and the booster, I still caught it. I believe it was the Omicron variant. At the same time, I had cedar pollen allergies going. So, I was also dizzy at times and coughed so hard, I nearly threw up. That went on even after I tested negative. The fever/severe body aches only lasted a day and a half. The weird thing was that at first my blood sugars were running low, perhaps because I wasn’t eating much. The higher blood sugars did not hit until about day four. Never hit the 250 mark, but they gave me a hard time for a few days.

      1
      4 years ago Log in to Reply
    5. kflying1@yahoo.com

      It was like a mild cold, and happened 7 weeks after my aortic valve replacement surgery while Delta was the current virus de jour. Not vaccinated.

      1
      4 years ago Log in to Reply
    6. connie ker

      I have not been diagnosed with covid19, but experienced these symptoms with the Moderna vaccines all 3 times. The pharmacist said, that means your immune system is reacting strongly. Now we hear that the booster is not covering Omicron.

      4 years ago Log in to Reply
      1. Vicki Breckenridge

        I’ve heard just the opposite. That it does help reduce the severity as shown by hospitalizations. Over 75% are unvaccinated.

        4
        4 years ago Log in to Reply
    7. TomH

      Aches only lasted a day, cough and nasal drip have lasted 2 weeks so far, very slowly resolving.

      4 years ago Log in to Reply
    8. Vicki Breckenridge

      I had terrible brain fog which lasted 4 additional months along with all of the other symptoms. Ugh.

      4 years ago Log in to Reply
    9. David & Kaleo of Team Nani

      I am vaccinated and boosted and wore N95 high quality duck masks all the time, inside and out, but tested positive w/ both home antigen and lab pcr after flying from MD to CA w/ a change in Houston.

      Self isolated for 5 days.

      Mild symptoms of fatigue, light cough, muscle-ache, persistent slightly elevated blood sugar levels and a sore throat (eliminated by gargling w/ warm salt-water recommended by a doctor-friend).

      Symptoms disappeared w/in 5 days, delayed return flight til 5 days w/ no symptoms and have since double tested negative w/ (free from my county) home antigen tests.
      As is the general case w/ Omicron, this never entered my lungs.

      1
      4 years ago Log in to Reply
    10. Mick Martin

      Mainly asymptomatic … apart from raised blood glucose levels. (I WAS admitted to hospital as I’d had a fall and had ‘made a mess’ of myself.)

      4 years ago Log in to Reply
    11. CindyGoddard

      I also had an occasional ear ache.

      4 years ago Log in to Reply
    12. mbulzomi@optonline.net

      I had all the symptoms of the Flu/Cold. But it still continues to linger on after 15 days.

      4 years ago Log in to Reply
    13. Patricia Dalrymple

      Vaccinated and boostered. My husband tested positive. He was mostly asymptomatic, a few sniffles. I waited until he tested negative, then I went today and tested negative. Yay! Now I can go visit my 89 year old vaccinated and boostered father without fearing he will get anything.

      4 years ago Log in to Reply
    14. Steven Gill

      I work in the cleaning field (fires, mold, de-flooding, trauma/health concerns). I generally visit 10-15 job sites or homes a week. At the onset of all this two years ago bad flu-like symptoms in January (headaches, sore muscles, coughing, major congestion, runny nose…) than finally a fever in the end of February. The doc tested and said it appeared to be the flu (just started the isolating and masking shortly before) and prescribed Tamaflu. Three bottles later, several weeks later started feeling better but too tired for my garden. Finally planted some squash and cucumbers in May,barely anything to brag on.

      My a1C increased from 6.8 in Oct (’19) to 7.1 in Jan, than 7.4 in May, 7.6 in Sept. I increased the insulin and slightly dropped carbs ended with a horrible hypoglycemic episode and laid in the floor in Oct (6 hours). Adjusted pump settings just to have an a1C of 7.9 in Jan, all the doc and her assistant/educator said is “something’s going on.” Almost never had an a1C over 7 in my 23 years. Lowered my carbs by 50% (no fruit, no bread for lunch, no more milk) mostly green veggies and readjusted the pump settings the a1C is now at 7.1-7.2. With her blessing got the Abbott antibody test, her and her staff and the doc that administered it said all my symptoms, especially the glucose levels indicate the probability. The results of the test said “no evidence or presence of antibodies but this doesn’t rule out the infection from COVID19.” Another doc said a 61 year old TYPE1 weight be hospitalized and automatically on a ventilator so I’m hesitant for any emergency room visits.

      I still have sinus issues (but I fell from standing into a metal toolbox on the floor- woke with a black eye and a bloody nose) my new doc said it’s still healing. Whereas 2 years ago I eat something and the levels would slowly rise now they seem to leap up (just got back my CGM), the insulin doesn’t seem as efficient. Still have fatigue where I used to work 50-60 hours a week than garden/yardwork/small appliance repair and visit animal shelters now it’s so I can do is the 40-50 (thankfully we now have younger guys who like the hours) and care for my home.

      As mentioned before here diabetics seem to have lingering problems with glucose levels but it’s not listed. As mentioned there’s no confirmation nor was there a test back than for a COVID infection so I clicked “did not have…” but in general I agree with the docs that by my symptoms probably.

      Still bouts of fatigue (but I am 62 keeping up with 20 year olds), needed a handkerchief and got a frequent cough from sinus irritation, and really limit meat/protein now because even that now raises my levels horribly. I feel like a rabbit, bad for a country boy.

      4 years ago Log in to Reply
    15. PamK

      I was not diagnosed with COVID-19, but I did get a very bad cold with the symptoms I checked. I was not tested for COVID though.

      4 years ago Log in to Reply
    16. Wanacure

      Four years ago in a crowded senior exercise class (closed doors & windows) I & another person caught a lingering respiratory illness. Chills & aches at first, then v. tired, then sore throat, then persistent annoying cough, shortness of breath, much nasal & throat congestion, and finally the last stage of losing my sense of smell and taste. This lasted for at least 8 weeks. Doctor & lab tests could not identify problem, so I was put on 2 strong antibiotics. Mucous in lungs had to be mechanically removed (not painful) which gave great relief. To keep lungs clear I was also taught to use a cheap simple device 15’ each day using diaphragmatic deep exhalation, an “Acapella” from Glaxo Smith Kline. Maybe it was an early version of COVID? Or some other coronavirus? I’m Vaxxed and boostered, have had no flu or cold problems since that awful episode.

      1
      4 years ago Log in to Reply
    17. Steve Rumble

      Loss of appetite for a couple days

      4 years ago Log in to Reply

    If you have T1D and have had a confirmed case of COVID-19, what symptoms did you experience? Please select all that apply. Cancel reply

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