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    • 7 hours, 54 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 8 hours, 1 minute ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 8 hours, 27 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 3 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 24 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 13 hours, 24 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 25 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 13 hours, 44 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 8 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    Have you ever used inhaled insulin? Share your experience in the comments!

    Home > LC Polls > Have you ever used inhaled insulin? Share your experience in the comments!
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Annie Wall

      I tried it once (before pumping) and absolutely hated it. It gave me no control. I lasted about 10 seconds!

      1
      1 year ago Log in to Reply
      1. Dave Akers

        There have been additional information around dosing since this drug launched. Ask your Dr. Why they know about the dosing not being 1:1

        1 year ago Log in to Reply
      2. mentat

        It’s a different paradigm to injectable insulin. You have to relearn how and when to dose. (But many people find the results are well worth it.) It is a great idea to use a CGM when you try it in order to adjust more easily.

        1 year ago Log in to Reply
    2. connie ker

      I thought it was still a confusing option with the lungs involved. Plus, insurance coverage will not cover inhaled insulin yet. To be determined I would guess

      1
      1 year ago Log in to Reply
      1. Daniel Bestvater

        Unfortunately it is not available in Canada

        1 year ago Log in to Reply
      2. Dave Akers

        Insurance does cover it, not easy, but the company has solutions. Best to contact company directly as it’s a relatively new program.

        1 year ago Log in to Reply
    3. Kathy Hanavan

      I loved it for bringing down highs, but not so much for blousing as I had some pretty bad lows right after eating. The dosing is hard to get right too and you cannot get small doses to “sugar surf”.

      3
      1 year ago Log in to Reply
      1. persevereT1D52

        I am very insulin sensitive and sugar surf. There are ways to use smaller doses off label. Not medical advice but it is a common use.

        1
        1 year ago Log in to Reply
    4. Sharon Lillibridge

      I.have.never.heard.of.it.until.this.What.is.the.point?

      1 year ago Log in to Reply
      1. mentat

        ✔️ Acts quickly… no need to wait before eating
        ✔️ Gets highs down very fast
        ✔️ Less risk of lows (for some people)
        ✔️ No needles! (Except for long acting insulin)

        It’s not for everyone (especially if you have asthma) but I’ve had good experiences with it.

        1 year ago Log in to Reply
    5. GLORIA MILLER

      I have been offered that. I would like to give it a try some time.

      1 year ago Log in to Reply
    6. Valentina Potempa

      I love using inhaled insulin because of how quickly it can normalize a high blood sugar. However, it irritates my lungs so I use it sparingly.

      1
      1 year ago Log in to Reply
    7. mbulzomi@optonline.net

      I was in a test program at least 15 years ago, Mankind was the brand used for the test. Insulin Pumpers were picked to participate due to their knowledge and experiences. The test was one month long. We were given two inhaled insulin dose sizes to use in daily. The pump was used as a base line, no correction bolus was given with the pump. It was very difficult to keep your glucose levels at the same level as a functioning pump, because of the limited Inhale sizes. You needed to keep the Inhaled Insulin cool. Of course, prior to and after the test we all had to take breath tests. In my opinion the Inhale Insulin test was a failure. There was some lung discomfort after the test, but it passed. You needed to take large inhales to get the drug down, not good in a restaurant setting. Twice I was approached by the Restaurant Management wanting to know if I was sniffing GLUE!
      Embarrassing.

      1 year ago Log in to Reply
      1. Sherrie Johnson

        Warm liquid before helped. Tge dose and expense too large.

        1 year ago Log in to Reply
    8. AnitaS

      I haven’t used it yet, but I just asked a few days ago if I could get a prescription for it. I plan to use it only on those days where a high blood sugar will just not come down. My endocrinology physician’s assistant sounded very enthusiastic for me as she doesn’t have anyone else on afrezza. The only other patients who have requested it are smokers or others with lung issues so they can’t use it. I should be getting my lung test within a few weeks. Hopefully it will work out wonderfully.

      1
      1 year ago Log in to Reply
    9. JoAnn

      The insulin made me cough and I never knew how much I inhaled
      I couldn’t keep using it

      1 year ago Log in to Reply
    10. Angela Naccari

      I used Afrezza and Tresiba for about two years! I loved it and had great control. Went on Medicare last year and did not want to deal with all the appeals I figured I would have with getting it covered. So now I use Tandem and Dex. Control has been the same. Afezza was sooo much easier and caused no pain or scar tissue. I wish more people would use it. Maybe the price would go down!

      1 year ago Log in to Reply
      1. Dave Akers

        The company offers a cash pay program that overrides any insurances. Contact the company or ask Dr. Who your local rep is.

        1 year ago Log in to Reply
    11. Jeannie Hickey

      Just in a study, I was not impressed

      1 year ago Log in to Reply
    12. PamK

      I have a type of Asthma caused by allergies. My doctor says I should not use it because of this. I understand that it is MUCH faster acting than injected insulin, which would really help with my highs after meals. Wish I could try it!

      1 year ago Log in to Reply
      1. Kevin McCue

        I uses rescue inhaler occasionally for seasonal asthma brought on but cold or allergens sometimes, even the Afrezza rarely. Endo checks lung function and still ok.

        1 year ago Log in to Reply
    13. Brandonp2818

      Using Afrezza as my bolas insulin love fast acting and only stays in my system for an hour

      1 year ago Log in to Reply
    14. Dave Akers

      This stuff is Amazing! Most doctors and patients don’t understand the benefits of the MANNKIND Inhaled Insulin until they see the action profile on their own CGM. If this was a liquid… it would very well likely be in every pump today!

      1 year ago Log in to Reply
    15. Kevin McCue

      I use it almost daily, along with my pump. The Novolog doesn’t keep up with the spike but the Afrezza does. The duration of the very fast usually dove tails nicely with the other.

      1 year ago Log in to Reply
    16. Judith Marged

      I absolutely love Afrezza. My A1C was climbing on multiple injections. When it was at 7.9, I talked my doctor into allowing me to try it. Within three months, my A1C dropped to 6.4. It is now almost four years later and my A1C has remained below 7.0 ever since.
      Due to allergic reactions to the long-term insulins, I must use a corticosteroid to prevent any bronchial coughs. Doing this, I continue to pass my lung functioning tests and continue to use Afrezza.

      1
      1 year ago Log in to Reply
    17. persevereT1D52

      I have used Afreeza for years with my pump and also as MDI bolus with tresiba. There is no insulin like it. I wish more people and physicians would open to new ways of management and learn about it for their patients.

      2
      1 year ago Log in to Reply
      1. persevereT1D52

        Oops didn’t finish. It is just a matter of learning the new dosing. I struggled for many years and nothing compares to the speed of coverage and the short action time which allows for more precise control.

        1 year ago Log in to Reply
      2. Sherrie Johnson

        I tried it recently and I liked it it’s just I wish it came in smaller doses four units is still too high for me

        1
        1 year ago Log in to Reply
    18. Sherrie Johnson

      I recently tried a freezer for meal bolus. The problem is the smallest dose is four units which translate to 2.5 I still never eat that much at a meal to warrant the use. It did work good when I had a three unit meal but that was unusual It did keep my blood level throughout which was very interesting it did keep my blood level throughout which was very interesting I rejected the prescription as I was not a good candidate for it

      2
      1 year ago Log in to Reply
      1. Sherrie Johnson

        Afrezza

        1 year ago Log in to Reply
      2. mentat

        It is possible to DYI some smaller dosages. Check out this

        https://forum.fudiabetes.org/t/custom-afrezza-doses-making-2u-cartridges/1230/13

        1 year ago Log in to Reply
    19. Becky Hertz

      I would love to give it a try, but Medicare and asthma preclude me at this time.

      1
      1 year ago Log in to Reply
    20. Bekki Weston

      I’ve been using it just a little over a year, and love its fast-acting ability for those “we’re eating NOW” moments, when a usual MDI would take too long to counter-act the carbs. I recently had to switch pharmacies, and when I stepped over to the “Consult” window, the Pharmacist said: “I’ve never seen this stuff before.” So I proceeded to educate him on the benefits of Afrezza!

      3
      1 year ago Log in to Reply
    21. mentat

      I used Afrezza for a few years and it was great. I would still be using it if I could access it cheaply. Unfortunately I am in Australia and the process has stalled. AMSL signed a deal to distribute it here but I have heard rumors that Novo Nordisk bullied AMSL into burying the product.

      The only thing I have tried that can compare to the blazing speed of Afrezza is intramuscular injections. I make heavy use of them.

      1
      1 year ago Log in to Reply
    22. KCR

      I really like Afrezza for rapidly correctly high blood sugar.

      1 year ago Log in to Reply
    23. Shelley Fenn

      Have used inhaled insulin only for rescue if my blood sugar is high. I do not feel that this form of insulin works for me as I do not see results when used.

      1 year ago Log in to Reply

    Have you ever used inhaled insulin? Share your experience in the comments! Cancel reply

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