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    • 3 hours, 5 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 5 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 2 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 18 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 28 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 16 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 19 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 1 minute ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 1 minute ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 8 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 9 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 11 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 11 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 12 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 21 hours, 47 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 21 hours, 58 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 10 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 11 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 27 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Have you ever used inhaled insulin? Share your experience in the comments!

    Home > LC Polls > Have you ever used inhaled insulin? Share your experience in the comments!
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    36 Comments

    1. Annie Wall

      I tried it once (before pumping) and absolutely hated it. It gave me no control. I lasted about 10 seconds!

      1
      1 year ago Log in to Reply
      1. Dave Akers

        There have been additional information around dosing since this drug launched. Ask your Dr. Why they know about the dosing not being 1:1

        1 year ago Log in to Reply
      2. mentat

        It’s a different paradigm to injectable insulin. You have to relearn how and when to dose. (But many people find the results are well worth it.) It is a great idea to use a CGM when you try it in order to adjust more easily.

        1 year ago Log in to Reply
    2. connie ker

      I thought it was still a confusing option with the lungs involved. Plus, insurance coverage will not cover inhaled insulin yet. To be determined I would guess

      1
      1 year ago Log in to Reply
      1. Daniel Bestvater

        Unfortunately it is not available in Canada

        1 year ago Log in to Reply
      2. Dave Akers

        Insurance does cover it, not easy, but the company has solutions. Best to contact company directly as it’s a relatively new program.

        1 year ago Log in to Reply
    3. Kathy Hanavan

      I loved it for bringing down highs, but not so much for blousing as I had some pretty bad lows right after eating. The dosing is hard to get right too and you cannot get small doses to “sugar surf”.

      3
      1 year ago Log in to Reply
      1. persevereT1D52

        I am very insulin sensitive and sugar surf. There are ways to use smaller doses off label. Not medical advice but it is a common use.

        1
        1 year ago Log in to Reply
    4. Sharon Lillibridge

      I.have.never.heard.of.it.until.this.What.is.the.point?

      1 year ago Log in to Reply
      1. mentat

        āœ”ļø Acts quickly… no need to wait before eating
        āœ”ļø Gets highs down very fast
        āœ”ļø Less risk of lows (for some people)
        āœ”ļø No needles! (Except for long acting insulin)

        It’s not for everyone (especially if you have asthma) but I’ve had good experiences with it.

        1 year ago Log in to Reply
    5. GLORIA MILLER

      I have been offered that. I would like to give it a try some time.

      1 year ago Log in to Reply
    6. Valentina Potempa

      I love using inhaled insulin because of how quickly it can normalize a high blood sugar. However, it irritates my lungs so I use it sparingly.

      1
      1 year ago Log in to Reply
    7. mbulzomi@optonline.net

      I was in a test program at least 15 years ago, Mankind was the brand used for the test. Insulin Pumpers were picked to participate due to their knowledge and experiences. The test was one month long. We were given two inhaled insulin dose sizes to use in daily. The pump was used as a base line, no correction bolus was given with the pump. It was very difficult to keep your glucose levels at the same level as a functioning pump, because of the limited Inhale sizes. You needed to keep the Inhaled Insulin cool. Of course, prior to and after the test we all had to take breath tests. In my opinion the Inhale Insulin test was a failure. There was some lung discomfort after the test, but it passed. You needed to take large inhales to get the drug down, not good in a restaurant setting. Twice I was approached by the Restaurant Management wanting to know if I was sniffing GLUE!
      Embarrassing.

      1 year ago Log in to Reply
      1. Sherrie Johnson

        Warm liquid before helped. Tge dose and expense too large.

        1 year ago Log in to Reply
    8. AnitaS

      I haven’t used it yet, but I just asked a few days ago if I could get a prescription for it. I plan to use it only on those days where a high blood sugar will just not come down. My endocrinology physician’s assistant sounded very enthusiastic for me as she doesn’t have anyone else on afrezza. The only other patients who have requested it are smokers or others with lung issues so they can’t use it. I should be getting my lung test within a few weeks. Hopefully it will work out wonderfully.

      1
      1 year ago Log in to Reply
    9. JoAnn

      The insulin made me cough and I never knew how much I inhaled
      I couldn’t keep using it

      1 year ago Log in to Reply
    10. Angela Naccari

      I used Afrezza and Tresiba for about two years! I loved it and had great control. Went on Medicare last year and did not want to deal with all the appeals I figured I would have with getting it covered. So now I use Tandem and Dex. Control has been the same. Afezza was sooo much easier and caused no pain or scar tissue. I wish more people would use it. Maybe the price would go down!

      1 year ago Log in to Reply
      1. Dave Akers

        The company offers a cash pay program that overrides any insurances. Contact the company or ask Dr. Who your local rep is.

        1 year ago Log in to Reply
    11. Jeannie Hickey

      Just in a study, I was not impressed

      1 year ago Log in to Reply
    12. PamK

      I have a type of Asthma caused by allergies. My doctor says I should not use it because of this. I understand that it is MUCH faster acting than injected insulin, which would really help with my highs after meals. Wish I could try it!

      1 year ago Log in to Reply
      1. Kevin McCue

        I uses rescue inhaler occasionally for seasonal asthma brought on but cold or allergens sometimes, even the Afrezza rarely. Endo checks lung function and still ok.

        1 year ago Log in to Reply
    13. Brandonp2818

      Using Afrezza as my bolas insulin love fast acting and only stays in my system for an hour

      1 year ago Log in to Reply
    14. Dave Akers

      This stuff is Amazing! Most doctors and patients don’t understand the benefits of the MANNKIND Inhaled Insulin until they see the action profile on their own CGM. If this was a liquid… it would very well likely be in every pump today!

      1 year ago Log in to Reply
    15. Kevin McCue

      I use it almost daily, along with my pump. The Novolog doesn’t keep up with the spike but the Afrezza does. The duration of the very fast usually dove tails nicely with the other.

      1 year ago Log in to Reply
    16. Judith Marged

      I absolutely love Afrezza. My A1C was climbing on multiple injections. When it was at 7.9, I talked my doctor into allowing me to try it. Within three months, my A1C dropped to 6.4. It is now almost four years later and my A1C has remained below 7.0 ever since.
      Due to allergic reactions to the long-term insulins, I must use a corticosteroid to prevent any bronchial coughs. Doing this, I continue to pass my lung functioning tests and continue to use Afrezza.

      1
      1 year ago Log in to Reply
    17. persevereT1D52

      I have used Afreeza for years with my pump and also as MDI bolus with tresiba. There is no insulin like it. I wish more people and physicians would open to new ways of management and learn about it for their patients.

      2
      1 year ago Log in to Reply
      1. persevereT1D52

        Oops didn’t finish. It is just a matter of learning the new dosing. I struggled for many years and nothing compares to the speed of coverage and the short action time which allows for more precise control.

        1 year ago Log in to Reply
      2. Sherrie Johnson

        I tried it recently and I liked it it’s just I wish it came in smaller doses four units is still too high for me

        1
        1 year ago Log in to Reply
    18. Sherrie Johnson

      I recently tried a freezer for meal bolus. The problem is the smallest dose is four units which translate to 2.5 I still never eat that much at a meal to warrant the use. It did work good when I had a three unit meal but that was unusual It did keep my blood level throughout which was very interesting it did keep my blood level throughout which was very interesting I rejected the prescription as I was not a good candidate for it

      2
      1 year ago Log in to Reply
      1. Sherrie Johnson

        Afrezza

        1 year ago Log in to Reply
      2. mentat

        It is possible to DYI some smaller dosages. Check out this

        https://forum.fudiabetes.org/t/custom-afrezza-doses-making-2u-cartridges/1230/13

        1 year ago Log in to Reply
    19. Becky Hertz

      I would love to give it a try, but Medicare and asthma preclude me at this time.

      1
      1 year ago Log in to Reply
    20. Bekki Weston

      I’ve been using it just a little over a year, and love its fast-acting ability for those “we’re eating NOW” moments, when a usual MDI would take too long to counter-act the carbs. I recently had to switch pharmacies, and when I stepped over to the “Consult” window, the Pharmacist said: “I’ve never seen this stuff before.” So I proceeded to educate him on the benefits of Afrezza!

      3
      1 year ago Log in to Reply
    21. mentat

      I used Afrezza for a few years and it was great. I would still be using it if I could access it cheaply. Unfortunately I am in Australia and the process has stalled. AMSL signed a deal to distribute it here but I have heard rumors that Novo Nordisk bullied AMSL into burying the product.

      The only thing I have tried that can compare to the blazing speed of Afrezza is intramuscular injections. I make heavy use of them.

      1
      1 year ago Log in to Reply
    22. KCR

      I really like Afrezza for rapidly correctly high blood sugar.

      1 year ago Log in to Reply
    23. Shelley Fenn

      Have used inhaled insulin only for rescue if my blood sugar is high. I do not feel that this form of insulin works for me as I do not see results when used.

      12 months ago Log in to Reply

    Have you ever used inhaled insulin? Share your experience in the comments! Cancel reply

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