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    • 6 hours, 33 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 7 hours, 24 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 8 hours, 19 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 2 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 22 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 9 hours, 53 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 58 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 10 hours, 52 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 54 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 23 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 31 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 11 hours, 36 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 22 hours, 52 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 22 hours, 52 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 22 hours, 52 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 3 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 6 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 7 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    Have you ever used inhaled insulin? Share your experience in the comments!

    Home > LC Polls > Have you ever used inhaled insulin? Share your experience in the comments!
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Annie Wall

      I tried it once (before pumping) and absolutely hated it. It gave me no control. I lasted about 10 seconds!

      1
      2 years ago Log in to Reply
      1. Dave Akers

        There have been additional information around dosing since this drug launched. Ask your Dr. Why they know about the dosing not being 1:1

        2 years ago Log in to Reply
      2. mentat

        It’s a different paradigm to injectable insulin. You have to relearn how and when to dose. (But many people find the results are well worth it.) It is a great idea to use a CGM when you try it in order to adjust more easily.

        2 years ago Log in to Reply
    2. connie ker

      I thought it was still a confusing option with the lungs involved. Plus, insurance coverage will not cover inhaled insulin yet. To be determined I would guess

      1
      2 years ago Log in to Reply
      1. Daniel Bestvater

        Unfortunately it is not available in Canada

        2 years ago Log in to Reply
      2. Dave Akers

        Insurance does cover it, not easy, but the company has solutions. Best to contact company directly as it’s a relatively new program.

        2 years ago Log in to Reply
    3. Kathy Hanavan

      I loved it for bringing down highs, but not so much for blousing as I had some pretty bad lows right after eating. The dosing is hard to get right too and you cannot get small doses to “sugar surf”.

      3
      2 years ago Log in to Reply
      1. persevereT1D52

        I am very insulin sensitive and sugar surf. There are ways to use smaller doses off label. Not medical advice but it is a common use.

        1
        2 years ago Log in to Reply
    4. Sharon Lillibridge

      I.have.never.heard.of.it.until.this.What.is.the.point?

      2 years ago Log in to Reply
      1. mentat

        ✔️ Acts quickly… no need to wait before eating
        ✔️ Gets highs down very fast
        ✔️ Less risk of lows (for some people)
        ✔️ No needles! (Except for long acting insulin)

        It’s not for everyone (especially if you have asthma) but I’ve had good experiences with it.

        2 years ago Log in to Reply
    5. GLORIA MILLER

      I have been offered that. I would like to give it a try some time.

      2 years ago Log in to Reply
    6. Valentina Potempa

      I love using inhaled insulin because of how quickly it can normalize a high blood sugar. However, it irritates my lungs so I use it sparingly.

      1
      2 years ago Log in to Reply
    7. mbulzomi@optonline.net

      I was in a test program at least 15 years ago, Mankind was the brand used for the test. Insulin Pumpers were picked to participate due to their knowledge and experiences. The test was one month long. We were given two inhaled insulin dose sizes to use in daily. The pump was used as a base line, no correction bolus was given with the pump. It was very difficult to keep your glucose levels at the same level as a functioning pump, because of the limited Inhale sizes. You needed to keep the Inhaled Insulin cool. Of course, prior to and after the test we all had to take breath tests. In my opinion the Inhale Insulin test was a failure. There was some lung discomfort after the test, but it passed. You needed to take large inhales to get the drug down, not good in a restaurant setting. Twice I was approached by the Restaurant Management wanting to know if I was sniffing GLUE!
      Embarrassing.

      2 years ago Log in to Reply
      1. Sherrie Johnson

        Warm liquid before helped. Tge dose and expense too large.

        2 years ago Log in to Reply
    8. AnitaS

      I haven’t used it yet, but I just asked a few days ago if I could get a prescription for it. I plan to use it only on those days where a high blood sugar will just not come down. My endocrinology physician’s assistant sounded very enthusiastic for me as she doesn’t have anyone else on afrezza. The only other patients who have requested it are smokers or others with lung issues so they can’t use it. I should be getting my lung test within a few weeks. Hopefully it will work out wonderfully.

      1
      2 years ago Log in to Reply
    9. JoAnn

      The insulin made me cough and I never knew how much I inhaled
      I couldn’t keep using it

      2 years ago Log in to Reply
    10. Angela Naccari

      I used Afrezza and Tresiba for about two years! I loved it and had great control. Went on Medicare last year and did not want to deal with all the appeals I figured I would have with getting it covered. So now I use Tandem and Dex. Control has been the same. Afezza was sooo much easier and caused no pain or scar tissue. I wish more people would use it. Maybe the price would go down!

      2 years ago Log in to Reply
      1. Dave Akers

        The company offers a cash pay program that overrides any insurances. Contact the company or ask Dr. Who your local rep is.

        2 years ago Log in to Reply
    11. Jeannie Hickey

      Just in a study, I was not impressed

      2 years ago Log in to Reply
    12. PamK

      I have a type of Asthma caused by allergies. My doctor says I should not use it because of this. I understand that it is MUCH faster acting than injected insulin, which would really help with my highs after meals. Wish I could try it!

      2 years ago Log in to Reply
      1. Kevin McCue

        I uses rescue inhaler occasionally for seasonal asthma brought on but cold or allergens sometimes, even the Afrezza rarely. Endo checks lung function and still ok.

        2 years ago Log in to Reply
    13. Brandonp2818

      Using Afrezza as my bolas insulin love fast acting and only stays in my system for an hour

      2 years ago Log in to Reply
    14. Dave Akers

      This stuff is Amazing! Most doctors and patients don’t understand the benefits of the MANNKIND Inhaled Insulin until they see the action profile on their own CGM. If this was a liquid… it would very well likely be in every pump today!

      2 years ago Log in to Reply
    15. Kevin McCue

      I use it almost daily, along with my pump. The Novolog doesn’t keep up with the spike but the Afrezza does. The duration of the very fast usually dove tails nicely with the other.

      2 years ago Log in to Reply
    16. Judith Marged

      I absolutely love Afrezza. My A1C was climbing on multiple injections. When it was at 7.9, I talked my doctor into allowing me to try it. Within three months, my A1C dropped to 6.4. It is now almost four years later and my A1C has remained below 7.0 ever since.
      Due to allergic reactions to the long-term insulins, I must use a corticosteroid to prevent any bronchial coughs. Doing this, I continue to pass my lung functioning tests and continue to use Afrezza.

      1
      2 years ago Log in to Reply
    17. persevereT1D52

      I have used Afreeza for years with my pump and also as MDI bolus with tresiba. There is no insulin like it. I wish more people and physicians would open to new ways of management and learn about it for their patients.

      2
      2 years ago Log in to Reply
      1. persevereT1D52

        Oops didn’t finish. It is just a matter of learning the new dosing. I struggled for many years and nothing compares to the speed of coverage and the short action time which allows for more precise control.

        2 years ago Log in to Reply
      2. Sherrie Johnson

        I tried it recently and I liked it it’s just I wish it came in smaller doses four units is still too high for me

        1
        2 years ago Log in to Reply
    18. Sherrie Johnson

      I recently tried a freezer for meal bolus. The problem is the smallest dose is four units which translate to 2.5 I still never eat that much at a meal to warrant the use. It did work good when I had a three unit meal but that was unusual It did keep my blood level throughout which was very interesting it did keep my blood level throughout which was very interesting I rejected the prescription as I was not a good candidate for it

      2
      2 years ago Log in to Reply
      1. Sherrie Johnson

        Afrezza

        2 years ago Log in to Reply
      2. mentat

        It is possible to DYI some smaller dosages. Check out this

        https://forum.fudiabetes.org/t/custom-afrezza-doses-making-2u-cartridges/1230/13

        2 years ago Log in to Reply
    19. Becky Hertz

      I would love to give it a try, but Medicare and asthma preclude me at this time.

      1
      2 years ago Log in to Reply
    20. Bekki Weston

      I’ve been using it just a little over a year, and love its fast-acting ability for those “we’re eating NOW” moments, when a usual MDI would take too long to counter-act the carbs. I recently had to switch pharmacies, and when I stepped over to the “Consult” window, the Pharmacist said: “I’ve never seen this stuff before.” So I proceeded to educate him on the benefits of Afrezza!

      3
      2 years ago Log in to Reply
    21. mentat

      I used Afrezza for a few years and it was great. I would still be using it if I could access it cheaply. Unfortunately I am in Australia and the process has stalled. AMSL signed a deal to distribute it here but I have heard rumors that Novo Nordisk bullied AMSL into burying the product.

      The only thing I have tried that can compare to the blazing speed of Afrezza is intramuscular injections. I make heavy use of them.

      1
      2 years ago Log in to Reply
    22. KCR

      I really like Afrezza for rapidly correctly high blood sugar.

      2 years ago Log in to Reply
    23. Shelley Fenn

      Have used inhaled insulin only for rescue if my blood sugar is high. I do not feel that this form of insulin works for me as I do not see results when used.

      2 years ago Log in to Reply

    Have you ever used inhaled insulin? Share your experience in the comments! Cancel reply

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