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    • 3 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 28 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 44 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 54 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 43 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 46 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 27 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 28 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 35 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 35 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 38 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 14 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 25 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 37 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 38 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 53 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    If you have T1D and have had a confirmed case of COVID-19, what symptoms did you experience? Please select all that apply.

    Home > LC Polls > If you have T1D and have had a confirmed case of COVID-19, what symptoms did you experience? Please select all that apply.
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    18 Comments

    1. Lawrence S.

      I’m surprised you didn’t include a choice of high blood glucose, or ketones.

      7
      1 year ago Log in to Reply
    2. GLORIA MILLER

      I consider myself very fortunate. I tested positive right before Christmas but I had no symptoms whatsoever. The first night after testing positive ( T1 for 65 years), I worried a lot but when I was fine the next day I did not worry any more. I had been boosted with Moderna.

      1
      1 year ago Log in to Reply
    3. TEH

      Huh. Looks like the vaccine was a good choice. I took the vaccine mainly because I don’t want to end up in the hospital.

      3
      1 year ago Log in to Reply
    4. Lynn Smith

      Even after both vaccinations and the booster, I still caught it. I believe it was the Omicron variant. At the same time, I had cedar pollen allergies going. So, I was also dizzy at times and coughed so hard, I nearly threw up. That went on even after I tested negative. The fever/severe body aches only lasted a day and a half. The weird thing was that at first my blood sugars were running low, perhaps because I wasn’t eating much. The higher blood sugars did not hit until about day four. Never hit the 250 mark, but they gave me a hard time for a few days.

      1
      1 year ago Log in to Reply
    5. kflying1@yahoo.com

      It was like a mild cold, and happened 7 weeks after my aortic valve replacement surgery while Delta was the current virus de jour. Not vaccinated.

      1
      1 year ago Log in to Reply
    6. connie ker

      I have not been diagnosed with covid19, but experienced these symptoms with the Moderna vaccines all 3 times. The pharmacist said, that means your immune system is reacting strongly. Now we hear that the booster is not covering Omicron.

      1 year ago Log in to Reply
      1. Vicki Breckenridge

        I’ve heard just the opposite. That it does help reduce the severity as shown by hospitalizations. Over 75% are unvaccinated.

        4
        1 year ago Log in to Reply
    7. TomH

      Aches only lasted a day, cough and nasal drip have lasted 2 weeks so far, very slowly resolving.

      1 year ago Log in to Reply
    8. Vicki Breckenridge

      I had terrible brain fog which lasted 4 additional months along with all of the other symptoms. Ugh.

      1 year ago Log in to Reply
    9. David & Kaleo of Team Nani

      I am vaccinated and boosted and wore N95 high quality duck masks all the time, inside and out, but tested positive w/ both home antigen and lab pcr after flying from MD to CA w/ a change in Houston.

      Self isolated for 5 days.

      Mild symptoms of fatigue, light cough, muscle-ache, persistent slightly elevated blood sugar levels and a sore throat (eliminated by gargling w/ warm salt-water recommended by a doctor-friend).

      Symptoms disappeared w/in 5 days, delayed return flight til 5 days w/ no symptoms and have since double tested negative w/ (free from my county) home antigen tests.
      As is the general case w/ Omicron, this never entered my lungs.

      1
      1 year ago Log in to Reply
    10. Mick Martin

      Mainly asymptomatic … apart from raised blood glucose levels. (I WAS admitted to hospital as I’d had a fall and had ‘made a mess’ of myself.)

      1 year ago Log in to Reply
    11. CindyGoddard

      I also had an occasional ear ache.

      1 year ago Log in to Reply
    12. mbulzomi@optonline.net

      I had all the symptoms of the Flu/Cold. But it still continues to linger on after 15 days.

      1 year ago Log in to Reply
    13. Patricia Dalrymple

      Vaccinated and boostered. My husband tested positive. He was mostly asymptomatic, a few sniffles. I waited until he tested negative, then I went today and tested negative. Yay! Now I can go visit my 89 year old vaccinated and boostered father without fearing he will get anything.

      1 year ago Log in to Reply
    14. Steven Gill

      I work in the cleaning field (fires, mold, de-flooding, trauma/health concerns). I generally visit 10-15 job sites or homes a week. At the onset of all this two years ago bad flu-like symptoms in January (headaches, sore muscles, coughing, major congestion, runny nose…) than finally a fever in the end of February. The doc tested and said it appeared to be the flu (just started the isolating and masking shortly before) and prescribed Tamaflu. Three bottles later, several weeks later started feeling better but too tired for my garden. Finally planted some squash and cucumbers in May,barely anything to brag on.

      My a1C increased from 6.8 in Oct (’19) to 7.1 in Jan, than 7.4 in May, 7.6 in Sept. I increased the insulin and slightly dropped carbs ended with a horrible hypoglycemic episode and laid in the floor in Oct (6 hours). Adjusted pump settings just to have an a1C of 7.9 in Jan, all the doc and her assistant/educator said is “something’s going on.” Almost never had an a1C over 7 in my 23 years. Lowered my carbs by 50% (no fruit, no bread for lunch, no more milk) mostly green veggies and readjusted the pump settings the a1C is now at 7.1-7.2. With her blessing got the Abbott antibody test, her and her staff and the doc that administered it said all my symptoms, especially the glucose levels indicate the probability. The results of the test said “no evidence or presence of antibodies but this doesn’t rule out the infection from COVID19.” Another doc said a 61 year old TYPE1 weight be hospitalized and automatically on a ventilator so I’m hesitant for any emergency room visits.

      I still have sinus issues (but I fell from standing into a metal toolbox on the floor- woke with a black eye and a bloody nose) my new doc said it’s still healing. Whereas 2 years ago I eat something and the levels would slowly rise now they seem to leap up (just got back my CGM), the insulin doesn’t seem as efficient. Still have fatigue where I used to work 50-60 hours a week than garden/yardwork/small appliance repair and visit animal shelters now it’s so I can do is the 40-50 (thankfully we now have younger guys who like the hours) and care for my home.

      As mentioned before here diabetics seem to have lingering problems with glucose levels but it’s not listed. As mentioned there’s no confirmation nor was there a test back than for a COVID infection so I clicked “did not have…” but in general I agree with the docs that by my symptoms probably.

      Still bouts of fatigue (but I am 62 keeping up with 20 year olds), needed a handkerchief and got a frequent cough from sinus irritation, and really limit meat/protein now because even that now raises my levels horribly. I feel like a rabbit, bad for a country boy.

      1 year ago Log in to Reply
    15. PamK

      I was not diagnosed with COVID-19, but I did get a very bad cold with the symptoms I checked. I was not tested for COVID though.

      1 year ago Log in to Reply
    16. Wanacure

      Four years ago in a crowded senior exercise class (closed doors & windows) I & another person caught a lingering respiratory illness. Chills & aches at first, then v. tired, then sore throat, then persistent annoying cough, shortness of breath, much nasal & throat congestion, and finally the last stage of losing my sense of smell and taste. This lasted for at least 8 weeks. Doctor & lab tests could not identify problem, so I was put on 2 strong antibiotics. Mucous in lungs had to be mechanically removed (not painful) which gave great relief. To keep lungs clear I was also taught to use a cheap simple device 15’ each day using diaphragmatic deep exhalation, an ā€œAcapellaā€ from Glaxo Smith Kline. Maybe it was an early version of COVID? Or some other coronavirus? I’m Vaxxed and boostered, have had no flu or cold problems since that awful episode.

      1
      1 year ago Log in to Reply
    17. Steve Rumble

      Loss of appetite for a couple days

      1 year ago Log in to Reply

    If you have T1D and have had a confirmed case of COVID-19, what symptoms did you experience? Please select all that apply. Cancel reply

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