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    • 1 hour, 15 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 11 hours, 57 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 20 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 43 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 41 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 19 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Ernie Richmann

      I have awareness for very low bg levels- 40-50 range.

      4 years ago Log in to Reply
    2. Steve Rumble

      My family members frequently detect my hypoglycemia before I do.

      3
      4 years ago Log in to Reply
    3. Rebecca Lambert

      I don’t feel low until very low (under 50) unless it is a rapid descent and the I feel the fast drop a little.

      2
      4 years ago Log in to Reply
    4. Beth F

      Sometimes – only when I’m lying down reading/sleeping. 58 seems to be magic number where I get restless, heart ‘thumpy’, and feel hot. I have it set at 60 at night to try to fix before the symptoms kick in. Doesn’t happen too often luckily.

      4 years ago Log in to Reply
    5. Daniel Bestvater

      My Dexcom G6 has saved me many times from more severe episodes of hypoglycemia.

      4 years ago Log in to Reply
    6. TEH

      As others have said, I don’t feel it until about 50. The sensation is never the same each time. CGM has been a tremendous help. I have a dropping alarm at 85. Most times (except while driving) I watch the trend at that time. Then at 70 take action and eat somthing.

      4 years ago Log in to Reply
    7. Annie Wall

      I used to have hypoglycemic unawareness but answered no because my cgm lets me know when I’m on my way down so I’m able to treat right away.

      4 years ago Log in to Reply
    8. Kim Murphy

      I am not aware it is low at any point. If I did not have the Dexcom I probably wouldn’t be alive. A few times my Dex com has not read correctly and my husband has to call paramedics. Before Dex Com I had paramedics at my house at least twice a month, because it would drop at night while I was asleep so my husband didn’t notice.

      1
      4 years ago Log in to Reply
      1. AnitaS

        I had a diabetic relative and her husband awoke many times each night and just touched his wife’s arm to check for clamminess. She didn’t have a CGM. I am sure both you and your husband are very thankful for your CGM

        4 years ago Log in to Reply
    9. Kathy Morison

      The only time I experienced hypoglycemia unawareness was while using Humalog insulin.

      1
      4 years ago Log in to Reply
      1. Wanacure

        So, Kathy, are you using beef pork insulin? Or?

        4 years ago Log in to Reply
    10. Jim Cobbe

      Like Rebecca, the speed of change definitely affects my awareness of what is happening; more likely to notice what is going on if the blood sugars are going down fast. On the other hand, the almost total unawareness I had about a decade ago has largely disappeared; but my wife still detects many episodes that don’t exist — but the false positives both she and the dog register are a small price to pay for their help in other ways (this is not a trained dog, but she clearly detects deep lows, but also sometimes gets my wife unnecessarily).

      1
      4 years ago Log in to Reply
    11. Janis Senungetuk

      Yes, over the last decade I lost awareness of lows and highs. Both my spouse and cat are often aware before the CGM extreme alarm sounds.

      1
      4 years ago Log in to Reply
    12. Sue Martin

      My awareness symptoms have changed over the last 37 years so I was very glad when my doctor suggested DexCom. It was version 3 at that point. Each version has had improved features. It really gives me and my husband peace of mind, especially overnight. I have my low alarm set to 90 so that I have time to correct before it gets too low.

      4 years ago Log in to Reply
    13. Lawrence S.

      I used to have hypoglycemia unawareness for many years. Over the past 10 years I seem to be becoming more aware. The only difference that I can think of is that I am retired, and seem to be more aware. When I was working, I was too busy to think about how I felt. Also, I still have unawareness when my blood sugars drop quickly.

      4 years ago Log in to Reply
    14. MarionBarker

      I used to have hypoglycaemic unawareness. Once I got a CGM and could prevent most lows, my awareness returned. It got even better once I started using a hybrid closed loop. (T1D for 42 years. )

      4
      4 years ago Log in to Reply
      1. AnitaS

        Same here. My awareness is much better with a CGM but I still have some unawareness.

        4 years ago Log in to Reply
    15. Kristine Warmecke

      I didn’t think I had hypoglycemia unawareness, until my endocrinologist suggested I test for a research study on hypoglycemia unawareness. I failed it miserably. Yep at 20, I was ready to go for a walk, no symptoms what so ever.

      1
      4 years ago Log in to Reply
    16. Bob Durstenfeld

      This is why I have LOVED having CGM alarms. Especially the predictive ones.

      2
      4 years ago Log in to Reply
    17. LizB

      Have not felt lows for a long time, 20+ years, (34 years with Type 1). This year I have really been paying attention to TIR and am more obsessive about checking my CGM. Several times this year I felt lows when I was in the 50s, but other times felt nothing when my numbers were even lower. I have not been able to figure out why.

      1
      4 years ago Log in to Reply
      1. AnitaS

        That has happened to me. I am not sure, but sometimes I think it has something to do with how fast the sugar level is declining.

        1
        4 years ago Log in to Reply
    18. Nicholas Argento

      I said yes sometimes, but actually the correct answer was not a choice- I had it severely, pre CGM use because I got low a lot at night, but it has resolved by avoiding or minimizing hypoglycemia since starting the Dexcom CGM in 8-2006.

      1
      4 years ago Log in to Reply
    19. Chrisanda

      I answered the question about me physically, not with my CGM. Obviously the G-6 lets me know when I’m going down. Physically, I don’t feel any symptoms until I’m in the mid 50s. Then I get a weird feeling and a bit of shakiness. I recognize it for what it is.

      4 years ago Log in to Reply
    20. Marsha Miller

      I did have this until the cgm. Now I have more awareness.

      1
      4 years ago Log in to Reply
    21. HMW

      I used to for several years before I got the Medtronic 670G closed loop system

      4 years ago Log in to Reply
    22. Maurine Bowser

      Depends upon which blood glucose level defines unawareness. Without the DexCom 6, I knew I was in trouble at 60 so I was aware I was low. But at 60 I think that meant I was unaware I was going below 70. G6 does tell me at 70 I am going down. So if the G6 alarms before I feel it, then yes I have hypoglycemic unawareness.

      4 years ago Log in to Reply
    23. AnitaS

      I am more aware now than I used to be before having a CGM. Before my CGM, there used to be times that I felt a little shaky and would test only to find out my sugar level was in the high 20’s or low 30’s. No wonder I was feeling a little bit off! Now my CGM notifies me when I am getting below 85 so I can usually correct that impending low blood sugar before it happens. I sometimes still get those low sugar symptoms but far less often and usually before the sugar level is way too low.

      4 years ago Log in to Reply
    24. Patricia Kilwein

      The majority of times I know I’m having trouble is when my cgm alarms me.

      4 years ago Log in to Reply
    25. PamK

      I was diagnosed with hypo unawareness @6 years ago. Since getting my blood sugars back into normal range, I find that I am recognizing I am low more often. I still get some surprise alarms though, so I guess I’m not completely back to normal.

      4 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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