Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 3 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 3 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 4 hours, 45 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 4 hours, 55 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 4 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 4 hours, 57 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 5 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 18 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 5 hours, 38 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 5 hours, 47 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 5 hours, 48 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 5 hours, 48 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Clinics
      • Resources
        • Change Packages
        • Sick Day Guide
        • Meet the Experts
      • Portal
      • Health Equity
        • Heal Advisors
      • Join Us
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Work with us
    • Partners
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Donate

    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
    Previous

    Did you have any diabetes-related achievements or milestones in 2021? Share what you’re proud of in the comments!

    Next

    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

    Related Stories

    Meet the Expert

    Meet the Expert: Looking Beyond A1c at a Patient’s Quality of Life 

    Jewels Doskicz, 3 days ago 8 min read  
    Research

    Fear of Hypoglycemia: New Tool Helps Docs Identify “FoH” in People with Diabetes 

    Ginger Vieira, 6 days ago 5 min read  
    Meet the Expert

    Meet the Expert: Evaluating Telemedicine in T1D Patient Care 

    Jewels Doskicz, 1 week ago 9 min read  
    Lifestyle

    T1D Exchange Team: Our Type 1 Diabetes Diagnosis Stories  

    Tara Mayo, 2 weeks ago 3 min read  
    Insulin & Meds

    Total Transparency: How Cost Plus Drugs Sells Affordable Medications 

    Ginger Vieira, 2 weeks ago 10 min read  
    Technology

    All About the Medtronic Minimed 780G Closed-Loop Automated Insulin Pump System 

    Ginger Vieira, 4 weeks ago 8 min read  

    29 Comments

    1. Ernie Richmann

      I have awareness for very low bg levels- 40-50 range.

      1 year ago Log in to Reply
    2. Steve Rumble

      My family members frequently detect my hypoglycemia before I do.

      3
      1 year ago Log in to Reply
    3. Rebecca Lambert

      I don’t feel low until very low (under 50) unless it is a rapid descent and the I feel the fast drop a little.

      2
      1 year ago Log in to Reply
    4. Beth F

      Sometimes – only when I’m lying down reading/sleeping. 58 seems to be magic number where I get restless, heart ‘thumpy’, and feel hot. I have it set at 60 at night to try to fix before the symptoms kick in. Doesn’t happen too often luckily.

      1 year ago Log in to Reply
    5. Daniel Bestvater

      My Dexcom G6 has saved me many times from more severe episodes of hypoglycemia.

      1 year ago Log in to Reply
    6. TEH

      As others have said, I don’t feel it until about 50. The sensation is never the same each time. CGM has been a tremendous help. I have a dropping alarm at 85. Most times (except while driving) I watch the trend at that time. Then at 70 take action and eat somthing.

      1 year ago Log in to Reply
    7. Annie Wall

      I used to have hypoglycemic unawareness but answered no because my cgm lets me know when I’m on my way down so I’m able to treat right away.

      1 year ago Log in to Reply
    8. Kim Murphy

      I am not aware it is low at any point. If I did not have the Dexcom I probably wouldn’t be alive. A few times my Dex com has not read correctly and my husband has to call paramedics. Before Dex Com I had paramedics at my house at least twice a month, because it would drop at night while I was asleep so my husband didn’t notice.

      1
      1 year ago Log in to Reply
      1. AnitaS

        I had a diabetic relative and her husband awoke many times each night and just touched his wife’s arm to check for clamminess. She didn’t have a CGM. I am sure both you and your husband are very thankful for your CGM

        1 year ago Log in to Reply
    9. Kathy Morison

      The only time I experienced hypoglycemia unawareness was while using Humalog insulin.

      1
      1 year ago Log in to Reply
      1. Wanacure

        So, Kathy, are you using beef pork insulin? Or?

        1 year ago Log in to Reply
    10. Jim Cobbe

      Like Rebecca, the speed of change definitely affects my awareness of what is happening; more likely to notice what is going on if the blood sugars are going down fast. On the other hand, the almost total unawareness I had about a decade ago has largely disappeared; but my wife still detects many episodes that don’t exist — but the false positives both she and the dog register are a small price to pay for their help in other ways (this is not a trained dog, but she clearly detects deep lows, but also sometimes gets my wife unnecessarily).

      1
      1 year ago Log in to Reply
    11. Janis Senungetuk

      Yes, over the last decade I lost awareness of lows and highs. Both my spouse and cat are often aware before the CGM extreme alarm sounds.

      1
      1 year ago Log in to Reply
    12. Sue Martin

      My awareness symptoms have changed over the last 37 years so I was very glad when my doctor suggested DexCom. It was version 3 at that point. Each version has had improved features. It really gives me and my husband peace of mind, especially overnight. I have my low alarm set to 90 so that I have time to correct before it gets too low.

      1 year ago Log in to Reply
    13. Lawrence S.

      I used to have hypoglycemia unawareness for many years. Over the past 10 years I seem to be becoming more aware. The only difference that I can think of is that I am retired, and seem to be more aware. When I was working, I was too busy to think about how I felt. Also, I still have unawareness when my blood sugars drop quickly.

      1 year ago Log in to Reply
    14. MarionBarker

      I used to have hypoglycaemic unawareness. Once I got a CGM and could prevent most lows, my awareness returned. It got even better once I started using a hybrid closed loop. (T1D for 42 years. )

      4
      1 year ago Log in to Reply
      1. AnitaS

        Same here. My awareness is much better with a CGM but I still have some unawareness.

        1 year ago Log in to Reply
    15. Kristine Warmecke

      I didn’t think I had hypoglycemia unawareness, until my endocrinologist suggested I test for a research study on hypoglycemia unawareness. I failed it miserably. Yep at 20, I was ready to go for a walk, no symptoms what so ever.

      1
      1 year ago Log in to Reply
    16. Bob Durstenfeld

      This is why I have LOVED having CGM alarms. Especially the predictive ones.

      2
      1 year ago Log in to Reply
    17. LizB

      Have not felt lows for a long time, 20+ years, (34 years with Type 1). This year I have really been paying attention to TIR and am more obsessive about checking my CGM. Several times this year I felt lows when I was in the 50s, but other times felt nothing when my numbers were even lower. I have not been able to figure out why.

      1
      1 year ago Log in to Reply
      1. AnitaS

        That has happened to me. I am not sure, but sometimes I think it has something to do with how fast the sugar level is declining.

        1
        1 year ago Log in to Reply
    18. Nicholas Argento

      I said yes sometimes, but actually the correct answer was not a choice- I had it severely, pre CGM use because I got low a lot at night, but it has resolved by avoiding or minimizing hypoglycemia since starting the Dexcom CGM in 8-2006.

      1
      1 year ago Log in to Reply
    19. Chrisanda

      I answered the question about me physically, not with my CGM. Obviously the G-6 lets me know when I’m going down. Physically, I don’t feel any symptoms until I’m in the mid 50s. Then I get a weird feeling and a bit of shakiness. I recognize it for what it is.

      1 year ago Log in to Reply
    20. Marsha Miller

      I did have this until the cgm. Now I have more awareness.

      1
      1 year ago Log in to Reply
    21. HMW

      I used to for several years before I got the Medtronic 670G closed loop system

      1 year ago Log in to Reply
    22. Maurine Bowser

      Depends upon which blood glucose level defines unawareness. Without the DexCom 6, I knew I was in trouble at 60 so I was aware I was low. But at 60 I think that meant I was unaware I was going below 70. G6 does tell me at 70 I am going down. So if the G6 alarms before I feel it, then yes I have hypoglycemic unawareness.

      1 year ago Log in to Reply
    23. AnitaS

      I am more aware now than I used to be before having a CGM. Before my CGM, there used to be times that I felt a little shaky and would test only to find out my sugar level was in the high 20’s or low 30’s. No wonder I was feeling a little bit off! Now my CGM notifies me when I am getting below 85 so I can usually correct that impending low blood sugar before it happens. I sometimes still get those low sugar symptoms but far less often and usually before the sugar level is way too low.

      1 year ago Log in to Reply
    24. Patricia Kilwein

      The majority of times I know I’m having trouble is when my cgm alarms me.

      1 year ago Log in to Reply
    25. PamK

      I was diagnosed with hypo unawareness @6 years ago. Since getting my blood sugars back into normal range, I find that I am recognizing I am low more often. I still get some surprise alarms though, so I guess I’m not completely back to normal.

      1 year ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    11 Avenue de Lafayette
    Boston, MA 02111
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2023 T1D Exchange.
    All Rights Reserved.

    © 2022 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    9 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    7 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    22 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    2023 ATTD

    6 Stories Related

    ADA

    5 Stories Related

    ADCES

    0 Stories Related

    Advocacy

    21 Stories Related

    ATTD

    16 Stories Related

    Blood Sugar

    0 Stories Related

    Conditions

    7 Stories Related

    COVID-19

    14 Stories Related

    EASD

    0 Stories Related

    General Publications

    73 Stories Related

    Get Involved

    11 Stories Related

    Insulin & Meds

    15 Stories Related

    ISPAD

    1 Stories Related

    Journal of Diabetes

    21 Stories Related

    Lifestyle

    12 Stories Related

    Lifestyles

    0 Stories Related

    Meet the Expert

    17 Stories Related

    Mental Health

    11 Stories Related

    News

    35 Stories Related

    Our team

    25 Stories Related

    Partner Content

    7 Stories Related

    Press Release

    6 Stories Related

    Question of the Day

    24 Stories Related

    Research

    66 Stories Related

    Stories

    18 Stories Related

    T2D

    1 Stories Related

    Technology

    23 Stories Related

    Uncategorized

    1 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category