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    • 4 hours, 5 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 5 hours, 40 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 5 hours, 41 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 5 hours, 43 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 5 hours, 43 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 8 hours, 25 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 8 hours, 26 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 11 hours, 16 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 12 hours, 4 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 11 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 15 hours, 12 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 31 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 31 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 44 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 12 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 12 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Did you have any diabetes-related achievements or milestones in 2021? Share what you’re proud of in the comments!

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    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Ernie Richmann

      I have awareness for very low bg levels- 40-50 range.

      3 years ago Log in to Reply
    2. Steve Rumble

      My family members frequently detect my hypoglycemia before I do.

      3
      3 years ago Log in to Reply
    3. Rebecca Lambert

      I don’t feel low until very low (under 50) unless it is a rapid descent and the I feel the fast drop a little.

      2
      3 years ago Log in to Reply
    4. Beth F

      Sometimes – only when I’m lying down reading/sleeping. 58 seems to be magic number where I get restless, heart ‘thumpy’, and feel hot. I have it set at 60 at night to try to fix before the symptoms kick in. Doesn’t happen too often luckily.

      3 years ago Log in to Reply
    5. Daniel Bestvater

      My Dexcom G6 has saved me many times from more severe episodes of hypoglycemia.

      3 years ago Log in to Reply
    6. TEH

      As others have said, I don’t feel it until about 50. The sensation is never the same each time. CGM has been a tremendous help. I have a dropping alarm at 85. Most times (except while driving) I watch the trend at that time. Then at 70 take action and eat somthing.

      3 years ago Log in to Reply
    7. Annie Wall

      I used to have hypoglycemic unawareness but answered no because my cgm lets me know when I’m on my way down so I’m able to treat right away.

      3 years ago Log in to Reply
    8. Kim Murphy

      I am not aware it is low at any point. If I did not have the Dexcom I probably wouldn’t be alive. A few times my Dex com has not read correctly and my husband has to call paramedics. Before Dex Com I had paramedics at my house at least twice a month, because it would drop at night while I was asleep so my husband didn’t notice.

      1
      3 years ago Log in to Reply
      1. AnitaS

        I had a diabetic relative and her husband awoke many times each night and just touched his wife’s arm to check for clamminess. She didn’t have a CGM. I am sure both you and your husband are very thankful for your CGM

        3 years ago Log in to Reply
    9. Kathy Morison

      The only time I experienced hypoglycemia unawareness was while using Humalog insulin.

      1
      3 years ago Log in to Reply
      1. Wanacure

        So, Kathy, are you using beef pork insulin? Or?

        3 years ago Log in to Reply
    10. Jim Cobbe

      Like Rebecca, the speed of change definitely affects my awareness of what is happening; more likely to notice what is going on if the blood sugars are going down fast. On the other hand, the almost total unawareness I had about a decade ago has largely disappeared; but my wife still detects many episodes that don’t exist — but the false positives both she and the dog register are a small price to pay for their help in other ways (this is not a trained dog, but she clearly detects deep lows, but also sometimes gets my wife unnecessarily).

      1
      3 years ago Log in to Reply
    11. Janis Senungetuk

      Yes, over the last decade I lost awareness of lows and highs. Both my spouse and cat are often aware before the CGM extreme alarm sounds.

      1
      3 years ago Log in to Reply
    12. Sue Martin

      My awareness symptoms have changed over the last 37 years so I was very glad when my doctor suggested DexCom. It was version 3 at that point. Each version has had improved features. It really gives me and my husband peace of mind, especially overnight. I have my low alarm set to 90 so that I have time to correct before it gets too low.

      3 years ago Log in to Reply
    13. Lawrence S.

      I used to have hypoglycemia unawareness for many years. Over the past 10 years I seem to be becoming more aware. The only difference that I can think of is that I am retired, and seem to be more aware. When I was working, I was too busy to think about how I felt. Also, I still have unawareness when my blood sugars drop quickly.

      3 years ago Log in to Reply
    14. MarionBarker

      I used to have hypoglycaemic unawareness. Once I got a CGM and could prevent most lows, my awareness returned. It got even better once I started using a hybrid closed loop. (T1D for 42 years. )

      4
      3 years ago Log in to Reply
      1. AnitaS

        Same here. My awareness is much better with a CGM but I still have some unawareness.

        3 years ago Log in to Reply
    15. Kristine Warmecke

      I didn’t think I had hypoglycemia unawareness, until my endocrinologist suggested I test for a research study on hypoglycemia unawareness. I failed it miserably. Yep at 20, I was ready to go for a walk, no symptoms what so ever.

      1
      3 years ago Log in to Reply
    16. Bob Durstenfeld

      This is why I have LOVED having CGM alarms. Especially the predictive ones.

      2
      3 years ago Log in to Reply
    17. LizB

      Have not felt lows for a long time, 20+ years, (34 years with Type 1). This year I have really been paying attention to TIR and am more obsessive about checking my CGM. Several times this year I felt lows when I was in the 50s, but other times felt nothing when my numbers were even lower. I have not been able to figure out why.

      1
      3 years ago Log in to Reply
      1. AnitaS

        That has happened to me. I am not sure, but sometimes I think it has something to do with how fast the sugar level is declining.

        1
        3 years ago Log in to Reply
    18. Nicholas Argento

      I said yes sometimes, but actually the correct answer was not a choice- I had it severely, pre CGM use because I got low a lot at night, but it has resolved by avoiding or minimizing hypoglycemia since starting the Dexcom CGM in 8-2006.

      1
      3 years ago Log in to Reply
    19. Chrisanda

      I answered the question about me physically, not with my CGM. Obviously the G-6 lets me know when I’m going down. Physically, I don’t feel any symptoms until I’m in the mid 50s. Then I get a weird feeling and a bit of shakiness. I recognize it for what it is.

      3 years ago Log in to Reply
    20. Marsha Miller

      I did have this until the cgm. Now I have more awareness.

      1
      3 years ago Log in to Reply
    21. HMW

      I used to for several years before I got the Medtronic 670G closed loop system

      3 years ago Log in to Reply
    22. Maurine Bowser

      Depends upon which blood glucose level defines unawareness. Without the DexCom 6, I knew I was in trouble at 60 so I was aware I was low. But at 60 I think that meant I was unaware I was going below 70. G6 does tell me at 70 I am going down. So if the G6 alarms before I feel it, then yes I have hypoglycemic unawareness.

      3 years ago Log in to Reply
    23. AnitaS

      I am more aware now than I used to be before having a CGM. Before my CGM, there used to be times that I felt a little shaky and would test only to find out my sugar level was in the high 20’s or low 30’s. No wonder I was feeling a little bit off! Now my CGM notifies me when I am getting below 85 so I can usually correct that impending low blood sugar before it happens. I sometimes still get those low sugar symptoms but far less often and usually before the sugar level is way too low.

      3 years ago Log in to Reply
    24. Patricia Kilwein

      The majority of times I know I’m having trouble is when my cgm alarms me.

      3 years ago Log in to Reply
    25. PamK

      I was diagnosed with hypo unawareness @6 years ago. Since getting my blood sugars back into normal range, I find that I am recognizing I am low more often. I still get some surprise alarms though, so I guess I’m not completely back to normal.

      3 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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