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    • 5 hours, 16 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 12 hours, 43 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 12 hours, 43 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 12 hours, 44 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 12 hours, 44 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 14 hours, 56 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 17 hours, 29 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 19 hours, 23 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 20 hours, 48 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 21 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 21 hours, 32 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 22 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 9 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 9 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 11 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 18 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 18 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 18 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 18 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 18 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 18 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 18 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 19 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
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    If you have a child with T1D (or at some point you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage the amount of candy they consume? Share what works best for you in the comments!

    Home > LC Polls > If you have a child with T1D (or at some point you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage the amount of candy they consume? Share what works best for you in the comments!
    Previous

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

    Next

    Have you recently experienced delays in receiving your T1D prescriptions or device supplies due to product shortages?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Don P

      as a child I was never allowed to do such, 70 years ago things were much different. Temptation wasn’t allowed.

      1
      4 years ago Log in to Reply
      1. Tina Roberts

        Neither applies to me.

        4 years ago Log in to Reply
      2. David Z

        My T1D was on manual insulin and timed meals for many years of her childhood trick-or-treating. We had already set the precedent of eating a little bit of candy a day rather than all at once, for general health reasons, so doing the same post-diagnosis did not come as a shock. Candy became a part of her “meal plan”, could be used to treat low bg, and lasted for months.

        4 years ago Log in to Reply
    2. Sahran Holiday

      All kids and everyone should limit candy. Don’t make the child feel different or excluded, they’ve been limiting sweets all along. Freeze the ones that can go in the freezer and work out with the child having a piece or two a day as their blood glucose level allows.

      1
      4 years ago Log in to Reply
    3. connie ker

      Halloween candy, Christmas candy, Easter baskets, are so difficult for a T1D, especially the children. My son was diagnosed in 7th grade and being a teen, gave up trick or treating. However when he got on a pump, he discovered he had more freedom to eat the fun size candy by covering it. Thankfully, he was old enough to do his own thing. What is really hard for the T1D children is when they have siblings who are able to gobble down what they want, when they want. There is jealosy, and tears of remorse for being the one who has the chronic disease. God Bless the T1D children…….maybe have a healthy party celebrating 100 years of insulin and teach them how their lives have been saved.

      3
      4 years ago Log in to Reply
    4. Bob Durstenfeld

      Trick or treat for UNICEF

      1
      4 years ago Log in to Reply
    5. Janis Senungetuk

      Halloween was my favorite holiday, but in 1955 when I was diagnosed, if it wasn’t on the ADA Exchange list I wasn’t allowed to eat it, no exceptions. We lived in a neighborhood with lots of kids. My parents always bought treats and I was allowed to wear a costume and hand them out to all the kids who came to our door. When UNICEF started using Halloween as a fundraiser, I got to go trick or treating again, but only to collect the donations, no food treats.

      4 years ago Log in to Reply
    6. James Goldman

      I was diagnosed when I was the age of 5 in 1957. I would go trick or treating with my brothers and later with friends to where my Dad would buy my stash from me. I was the only kid on the block that made money on Halloween.

      4
      4 years ago Log in to Reply
    7. Christina Trudo

      I was 11 at diagnosis and as I recall I took on door-answering duties with my mom. I don’t really remember much about it and no doubt I took it in stride as well as I did most year round restrictions. When my nephew was diagnosed at age 4, he was barely home from the hospital when Halloween rolled around. His wonderful mom bought sugar free treats and gave them to the neighbors ahead of time to give to him. I don’t recall whether that was an ongoing tradition.

      2
      4 years ago Log in to Reply
      1. AnitaS

        I LOVE that idea, especially for a young child who deserves to get dressed up and have fun on Halloween just like all of the other children.

        4 years ago Log in to Reply
    8. Patricia Dalrymple

      I have no children and am LADA, but I do know that every once in a while, you have to just cheat and enjoy it for a day. I asked my Endo: what should I do at Thanksgiving (my fav holiday) and he said cheat and enjoy it and catch it afterwards. In the words of my mother-in-law God rest her soul: you can’t be good all the time. And as someone else said: God bless the T1D children and their often worried parents.

      3
      4 years ago Log in to Reply
      1. AnitaS

        Yes, having high blood sugars once in awhile isn’t going to kill you (within reason of course). I went so many years without a blood glucose meter (I did urine testing in the olden days) and then only got a pump and cgm in the last 3 years. I am sure my sugars were nowhere in range as they are now before these medical advancements, yet thankfully I am free of diabetes complications. Nowadays, having treats and staying in range is so much easier to do.

        1
        4 years ago Log in to Reply
    9. Kristine Warmecke

      My brother and I were allowed to chose the candy/treats we wanted, then our parent’s bought what they wanted from us and the rest went into our low treatment supply.

      2
      4 years ago Log in to Reply
    10. Pauline M Reynolds

      “Other”. When my nephew was diagnosed and I also three months later, I became aware of the candy thing at Halloween. Since then I’ve given pretzels and pencils, which were a big hit.

      4 years ago Log in to Reply
    11. Becky Hertz

      Diagnosed at 14. Didn’t trick or treat then.

      4 years ago Log in to Reply
    12. Richard Vaughn

      I was diagnosed in the 1940’s when I was 6. My parents bought me artificially sweetened candy. I think the candy companies were Diamel and Loeb.

      4 years ago Log in to Reply
    13. Amanda Barras

      Other:
      My son isn’t diabetic, but I am. When I was a kid my mom used to decorate the house and make Halloween as fun as possible at home so that I’d have more fun there handing out candy rather than spending all night gathering candy myself. I still went trick or treating, we just went early for a short time and spent the rest of the evening at home. One year she took me to an kids event to as an alternate.

      4 years ago Log in to Reply
    14. StPetie

      I’m 63 yo dx’d 2-1/2 years ago. Every day I read comments from people who were dx’d decades ago at very young ages. How lucky am I to have lived almost 61 t1d free years? My hat’s off to those of you who dealt with t1d in their youth/childhood without the tech and treatment advantages I received. You have my respect.

      2
      4 years ago Log in to Reply
      1. AnitaS

        Very nice of you to say.

        4 years ago Log in to Reply
    15. Marla Peaslee

      We traded candy for a new toy(s) with our son. Also our neighbors were really great in giving SF chewing gum and SF candies. He selected a few candies to keep, and eat after a meal or with a snack. When I was growing up, my mom allowed me to also select a few pieces as well. Not a great issue in our home.

      1
      4 years ago Log in to Reply
    16. AnitaS

      I didn’t use any strategies per se, but when I was young, my mom sometimes suggested I eat certain treats over others. For instance a piece of licorice rather than a pixie stick. This was back in the 70’s when I didn’t even have a blood glucose meter so who really knows how well those suggestions worked.

      4 years ago Log in to Reply
    17. Amy Schneider

      When I was a child, we only went to our neighborhood and all of the neighbors always bought sugar-free candy for me.

      4 years ago Log in to Reply
    18. Britni

      Unless my blood sugar went low I wasn’t allowed to eat any candy at all until I got home. And the amount once I got home was limited. For the first several years I was allowed to keep my favorite (I usually kept all the snickers) and then the rest got traded in for money and my dad would take me to the toy store to spend it. Later on I was allowed to keep the candy but, again unless my blood sugar went low, I was only allowed 1 piece of candy per day.

      4 years ago Log in to Reply
    19. Kim Rehtus

      I look forward to Halloween every year because, even as an adult, this is the day I allow myself to eat all of the candy that I want to as long as I dose to cover it. This makes it much easier for me to avoid the temptation of indulging the rest of the year.

      1
      4 years ago Log in to Reply
    20. brettsmith115

      Diagnosed when I was 4. My parents always did a candy trade-in for toys. I think I made out better than all my friends. I realize I was extremely fortunate to have parents that did that for me and kept Halloween fun.

      1
      4 years ago Log in to Reply
    21. Karen Brady

      Halloween is once a year, one of my sisters and I have had T1D since childhood and we were always allowed to eat what we wanted to on days like Halloween, Thanksgiving, Xmas.

      Trying to control food intake often backfires; rebellion and/or wanting what you “can’t” have. (this is true for all people, not just those with diabetes. “Everything in moderation”)

      4 years ago Log in to Reply
    22. Velika Peterson

      I increase basal some years and then my daughter runs low, so treats with candy.

      4 years ago Log in to Reply
    23. Tabatha Rush

      Yesterday was her first Halloween/Trick or Treat as a diabetic and I allowed her 50 carbs worth once we arrived back home. Regarding the rest of the candy, I’m not sure what to do with it. She LOVES candy, as do I and her grandmother (she gets it honestly), but I know it’s not good for us. However, we have to have fun sometimes. So I think we might do what someone else said and let her pick what she wants to keep (eating over a long period of time) and buy what we want from her and use the rest as low treatment or throw it away.

      4 years ago Log in to Reply
    24. ConnieT1D62

      When I was a kid I would go trick or treating and keep the Fritos, peanuts and Juicy Fruit candies and give the rest to my brother and other select playmates in the neighborhood to divide up amongst themselves. This was in the 1960s. We didn’t have “mini” sized treats or carb counting back then. Juicy Fruit candies were a special treat they let us eat at diabetes kids camp.

      4 years ago Log in to Reply
    25. Cheryl Seibert

      I was trick or treating, 45-50 years ago! LOL! I didn’t have much of a craving for candy, but Mom would take the candy and put it ‘away’ where I couldn’t find/reach it. She then would give it out during my lows (which were frequent)! Sure beats glucose tablets and orange juice! 🙂

      4 years ago Log in to Reply
    26. PamK

      When I was young I was allowed to choose one piece of candy to have each day. My siblings ate most of what I collected, but I was happy to have some!

      4 years ago Log in to Reply
    27. Mary Dexter

      I was diagnosed at age 48.

      4 years ago Log in to Reply

    If you have a child with T1D (or at some point you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage the amount of candy they consume? Share what works best for you in the comments! Cancel reply

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